Thesis (PH.D.) -- Syracuse University, 2006. / "Publication number AAT 3316570"

Thesis (M.Soc.Sc.)--University of Waikato, 2007. / Title from PDF cover (viewed May 26, 2008) Includes bibliographical references (p. 74-84)

Thesis (M.S.)--University of North Texas, May, 2008. / Title from title page display. Includes bibliographical references.

Thesis (M. Phil.)--University of Hong Kong, 1998. / Includes bibliographical references (leaf 104-115).

Thesis (M. Ed.)--University of Hong Kong, 2000. / Exercises in English and Chinese. Includes bibliographical references (leaves i-iv, second group).

Thesis (M.A.)--Humboldt State University, 2009. / Includes bibliographical references (leaves 58-60). Also available via Humboldt Digital Scholar.

Thesis (M.Ed.)--University of Hong Kong, 2000. / Exercises in English and Chinese. Includes bibliographical references (leaves i-iv, second group). Also available in print.

Thesis (M.A. (Psychology))--Rhodes University, 2005. / A thesis submitted in partial fulfilment of the requirements for the degree of Master of Arts. Text in English and Afrikaans.

Autism occupies an extreme position among childhood pathologies due to its severity, duration and impact on the family. In this qualitative study, four primary caregivers of autistic children were interviewed regarding their experiences of the diagnostic process, their post-diagnostic adjustment, and how helping professionals can improve their service rendering to these families. This study utilised a phenomenological approach to look at primary caregivers as the best-informed authority to explore and describe their lived realities and experiences of raising their autistic children in South Africa. The rationale for a phenomenological approach in this study is that such an interpretative inquiry enables material to be collected and analysed within the specific context of the subjective realities of primary caregivers of autistic children in South Africa. The researcher utilised semi-structured, in-depth, face-to-face interviews as method of data collection. Each participant was interviewed over the course of three separate interviews. The themes and categories that resulted from a content analysis of the material were grouped into two broad fields of experience, namely: (1) experiences surrounding the diagnostic process; and (2) the pervasive influence of autism on different areas of family life. In terms of experiences surrounding children’s diagnosis, four themes were identified: (1) Being a new parent and making sense out of chaos; (2) Responsibility and blame; (3) Confusion and disillusionment during early experiences with helping professionals; and (4) Feelings about the diagnosis. The pervasive influence of autism on different areas of family life includes: (5) Strained family relationships; (6) Challenges of behaviour management and disciplining the autistic child; (7) Challenges of finding suitable resources for education and day-care; and (8) Maintaining the family unit and doing things as a family.

In recent years the number of studies on resilience emerging within the field of positive psychology has increased. However, such studies are limited within the South African context and so the proposed study aims to explore and describe the factors that facilitate adjustment and adaptation in South African families living with Autism Spectrum Disorder. McCubbin, McCubbin and Thompson (2001) developed the Resiliency Model of Family Stress, Adjustment and Adaptation which were used to conceptualise the family’s adaptation. Mothers (n = 19) from 19 families participated in the study. The families consisted of at least three members, of which two are parents and one a child younger than 18 years of age that has been diagnosed with Autistic Spectrum Disorder. A combination of non-probability purposive sampling and snowball sampling was used to select participants. The study had an exploratory and descriptive aim and employed triangulation of method, including both qualitative and quantitative data collection procedures. A biographical questionnaire and the following seven structured paper-and-pencil questionnaires were used: the Family Attachment and Changeability Index 8 (FACI8), the Family Crisis-oriented Personal Evaluation Scales (F-COPES), the Family Hardiness Index (FHI), the Family Problem-solving Communication (FPSC), the Family Time and Routine Index (FTRI), the Relative and Friend Support (RFS), and the Social Support Index (SSI). Descriptive statistics were used to describe the biographical information. Qualitative data were analysed by means of content analysis. Quantitative data were manipulated by means of correlation and regression analysis. The results from the quantitative analysis indicate three significant positive correlations with the FACI8. These variables were the family hardiness (measured by FHI), family problem-solving communication (measured by the FPSC), and family time and routines (measured by the FTRI). The findings from the qualitative analysis point out that social support, the spousal relationship and family time, togetherness and routines are the most important strength factors that contribute to the family’s adjustment and adaptation. Even though this study had a small sample size and several other limitations, the findings of this study could still assist in guiding specialised institutions toward providing more comprehensive information and support to families living with a child diagnosed with Autism Spectrum Disorder. This study also contributes to the studies on family resilience within a South African context.