published_or_final_version / Medicine / Master / Doctor of Medicine

Objectives: To describe the 'activities and participation' of children with cerebral palsy, as defined by the International Classification of Functioning, Disability and Health (ICF), using family-assessed instruments. Methods: A structured review of family assessed instruments appropriate for measuring children's activities and participation was undertaken to identify questionnaires for use in a postal survey. The survey involved a geographically-defined population of children with cerebral palsy between 6 and 12 years old, identified from the 4Child database in Oxford. Indices of children's 'activities and participation' were families' assessment of the Gross Motor Function (GMFCS) and Manual Ability (MACS) Classification Systems, the Activities Scale for Kids (ASK) and Lifestyle Assessment Questionnaire (LAQ-CP). To determine the reliability of families' assessments their classifications of the GMFCS and MACS were compared to ratings made professionals; the response frequencies and internal consistency of the ASK and LAQ-CP scales were also examined. Details of children's impairments and abilities were then used as explanatory variables in multiple regression analyses to identify the effect of disability on children's activities and participation. Results: Families of 129/314 (41%) of the children fully participated in the survey and 175/314 (56%) provided a classification using the GMFCS. These children did not differ from children who did not take part by age, gender or characteristics of their cerebral palsy and associated impairments. Although there was not always perfect agreement the families' classifications of children's movement and manual abilities using the GMFCS and MACS were highly reliable compared to those of health professionals (ICC>0.9). Analysis of the ASK and LAQ-CP showed these also to be reliable. Scores for the ASK and LAQ-CP were generally best predicted by children movement, manual and intellectual disability. Conclusions: Family assessment of children's movement and manual abilities using the GMFCS and MACS was highly reliable compared to health professionals. In concordance with similar studies that used professionally-assessed measures, children's activities and participation were most adversely affected by movement, manual and intellectual disabilities. Family assessment offers a highly reliable method for measuring activities and participation; however currently available instruments do not fully represent all the domains in the ICF.

Thesis (Ph. D.)--University of Melbourne, 1997. / Typescript (photocopy). Includes bibliographical references (leaves 533-565).

Thesis (doctoral)--Lund University, 1998. / Added t.p. with thesis statement inserted. Includes bibliographical references.

Thesis (doctoral)--Lund University, 1998. / Added t.p. with thesis statement inserted. Includes bibliographical references.

Tese (doutorado)—Universidade de Brasília, Instituto de Psicologia, 2007. / Submitted by Fernanda Weschenfelder (nandaweschenfelder@gmail.com) on 2009-10-15T18:59:36Z No. of bitstreams: 1 Tese_Paulo Franca Santos.pdf: 790451 bytes, checksum: 7cfcf89f71bf49870bac2d5c655c497e (MD5) / Approved for entry into archive by Gomes Neide(nagomes2005@gmail.com) on 2010-12-20T13:36:41Z (GMT) No. of bitstreams: 1 Tese_Paulo Franca Santos.pdf: 790451 bytes, checksum: 7cfcf89f71bf49870bac2d5c655c497e (MD5) / Made available in DSpace on 2010-12-20T13:36:41Z (GMT). No. of bitstreams: 1 Tese_Paulo Franca Santos.pdf: 790451 bytes, checksum: 7cfcf89f71bf49870bac2d5c655c497e (MD5) Previous issue date: 2007 / O objetivo deste estudo foi identificar e analisar os significados em narrativas de jovens adultos com paralisia cerebral. Nosso estudo se baseia na fala de cinco participantes adultos (03 homens e 02 mulheres com diagnóstico de paralisia cerebral em atendimento em um centro de reabilitação). Buscamos investigar as seguintes questões: Quais os significados emergentes das trocas dialógicas construídas nas narrativas de histórias de suas vidas? Como esses participantes se autodescrevem e como elaboram as suas identidades? Quais são as dificuldades enunciadas e como as enfrentam? Tomamos como referencial a pesquisa qualitativa em uma abordagem dialógica a partir da perspectiva da psicologia histórico-cultural. Esta escolha teórico-metodológica fundamenta-se no argumento de que a pesquisa qualitativa é um processo complexo de construção do conhecimento que atenta para aspectos importantes na exploração de um problema humano ou social. O trabalho de construção de dados aconteceu em três encontros individuais com cada um dos participantes, onde foram realizadas as entrevistas abertas e semiestruturadas. Todas as entrevistas foram gravadas em fita cassete, totalizando 35 horas de gravação e 222 páginas de transcrição. Utilizamos o programa QDA Miner software que organiza os dados para análise qualitativa, que nos permitiu agrupar o conjunto de textos transcritos e formar um documento para cada um dos participantes. Os resultados foram definidos e organizados nas seguintes categorias: Gêneros: drama, comédia, romance, epopéia, referindose à estrutura discursiva construída nas entrevistas em sentido mais amplo, uma vez que abrange também a formação dos significados nos contextos e se aplica para classificar textos como produtos culturais. Períodos vitais: nascimento, infância, adolescência, vida adulta, mudanças de lugar, mudanças de atitudes, relacionando os eventos narrados a períodos específicos no desenvolvimento dos participantes; Temas: autopercepção, percepção social, diagnóstico, tratamento, relacionamentos, enfrentamento, definidos a partir das diversas leituras dos textos e análise temática dialógica, produzidos a partir das entrevistas. Os dados obtidos foram confrontados com a teoria, nos permitindo entender que as narrativas se apresentam como uma maneira particular de compreendermos como as pessoas constroem os significados de suas histórias de vida. Neste estudo, as análises dos resultados indicaram que os significados que regulam as narrativas de jovens adultos com paralisia cerebral são mediados pelas repercussões da deficiência em suas histórias de vida. ______________________________________________________________________________ ABSTRACT / This study aimed at identifying, defining and analyzing meanings that regulate the narratives of young adults with cerebral palsy.Five participants with cerebral palsy diagnostics attending a rehabilitation center took part of the study – three men and two women. We tried to answer the following questions: Which meanings do emerge from narratives constructions during life stories interviews? How do the participants describe themselves and build their identities? Which difficulties are uttered and how they cope with them? The study is based on the dialogical frame of the historical-cultural perspective. The choice of a qualitative methodology is based on the argument that it turns possible a complex process of knowledge construction important to the exploration of the potentialities of human and social phenomena. Data were constructed in three individual sessions held with each of the participants through the development of open and semi-structured interviews. All sessions were tape recorded with the agreement of the participants, totalizing 35 hours of recording and 222 pages of transcription. In order to analyze data we used QDA Miner software that allowed the organization of the transcribed texts forming documents for each of the participants. Results were organized in three main categories: genres (drama, comedy, romance and epic), as the life stories narratives and responses in other interviews structured the relation of self explanations and the cultural contexts; vital periods (birth, childhood, teenage years, beginning of adulthood, moving places and changes of attitudes), in order to relate events to specific moments of development; themes (auto perception, social perception, diagnostics, treatment, relationships and coping) defined by a thematic dialogical analyses of the whole corpus of data. Data were then confronted with the theory allowing the construction of a complex comprehension on the meanings constructed by the participants during the study. The analysis indicated that meanings that regulated young adults with cerebral palsy narratives were mediated by the repercussions of deficiency in their life stories.

Orientador: Evandro Pinto da Luz de Oliveira / Tese (doutorado) - Universidade Estadual de Campinas. Faculdade de Ciencias Medicas / Made available in DSpace on 2018-08-15T07:57:17Z (GMT). No. of bitstreams: 1 ChaddadNeto_FeresEduardoAparecido_D.pdf: 73496991 bytes, checksum: 1ed841dc2b8fa51a8c132cb82f523160 (MD5) Previous issue date: 2010 / Resumo: A craniotomia pterional é o acesso cirúrgico mais utilizado na prática neurocirúrgica atual. É utilizada para abordar a maior parte dos aneurismas da circulação anterior e lesões tumorais envolvendo a região supra-selar e parte das estruturas da fossa anterior e média. No entanto, se caracteriza como sendo um acesso limitado para as lesões que envolvem a maior parte do lobo temporal, o assoalho da fossa média do crânio e o complexo da artéria basilar. Para tanto, foram desenvolvidas as craniotomias pré-temporal e orbitozigomática. No entanto a literatura é ainda relativamente carente quanto ao estudo do posicionamento exato da cabeça para a melhor abordagem de cada patologia, em particular. Esse trabalho tem por objetivo estudar o melhor posicionamento da cabeça para a realização das craniotomias mencionadas, visando a melhor exposição de cada lesão em particular / Abstract: The pterional approach is the most applied neurosurgical access in the customized practice nowadays. It is used for approaching most of the anterior circulation aneurysms and tumors involving the anterior and the middle cranial space. However, it is considered a limited approach to some pathologies involving the temporal lobe, the middle cranial space floor and the basilar artery complex region. As a result, the orbitozygomatic and the pretemporal craniotomies developed since it was necessary to enlarge such access to the temporal area. However, there is not a systematic evaluation of head positioning study about the best approach to each specific pathology. This study aims to demonstrate the best way to position the head according to each specific pathology, in order to offer a better surgical visualization by using the most appropriated craniotomy / Doutorado / Neurologia / Doutor em Ciências Médicas

published_or_final_version / Clinical Psychology / Master / Master of Social Sciences

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No description available.