Made available in DSpace on 2014-12-17T14:46:52Z (GMT). No. of bitstreams: 1 SamaraSDR_DISSERT.pdf: 925766 bytes, checksum: a9ffc5c5017410b8086f3ce0b78b8e73 (MD5) Previous issue date: 2012-12-01 / The objective of analyze the shift of the working process of the ESF team in care of children with disabilities, from awareness-raising actions. It is a qualitative study, with the action-research method. Thirteen health professionals were involved from two teams of ESF unit area of the Unidade de Sa?de da Fam?lia Dr. Chico Porto (UBSFCP) in Mossor?, from March to August 2011. Data were analyzed following the direction of freirean s thematic analysis. In the situational diagnosis of the current reality of CwD assistance in that UBSFCP, through participant observation and application of semi-structured interviews with professionals, we realize that despite these actions carry some assistance to the CwD, in practice few are used for inclusion and accessibility. The monitoring of the CwD is done through individual consultations by each team professional, home visits when possible, both ruled on the complaints and problems, with little solving in the used actions. Since the need for a change in the treatment model and training requirements as pointed out by professionals in the interview, then we decided to build the proposed of training suggested by the multidisciplinary team and put together collectively the achievement of this moment in all its phases. In the step of implementation (action), aspects related to the current situation in Brazil and Mossor? (Laws, policies and health care) for the CwD and CwD Assistance and their family in the ESF in the first two moments of the first training (action) were contemplate. On the second day we discussed the specialized care to CwD, contribution of the Handicapped Parents and Friends Association of Mossor? and in a second moment a workshop was held in which awareness for inclusion of CwD and actions of ESF were discussed. All these moments were discussed and collectively constructed. In the evaluation, we found that implementation (action) allowed to the professional the comprehension of new understandings about people with disabilities, on ways to include, guiding, caring, watching, and mainly to have a new vision on health assistance of the CwD, expanding assistance beyond clinical aspects and recognizing the educational aspects of the rights and duties of citizens and the inclusion of these children in the social spaces area. As difficulties, we face the need for some professionals to be absent to attend another job, solve personal problems, and little or no participation. Thus, during this action-research, the subjects were able to realize the importance of carrying out their practice to the quality of life for him and to the one they care / Objetivou-se analisar a mudan?a do processo de trabalho da equipe da ESF na aten??o ? crian?a com defici?ncia, a partir de a??es de sensibiliza??o. Trata-se de um estudo qualitativo, tendo como m?todo a pesquisa-a??o. Foram envolvidos treze profissionais de sa?de das duas equipes da ESF da ?rea de abrang?ncia da Unidade de Sa?de da Fam?lia Dr. Chico Porto (UBSFCP), no munic?pio de Mossor?/RN, no per?odo de Mar?o a Agosto de 2011. Os dados foram analisados seguindo o direcionamento da an?lise tem?tica freireana. No diagn?stico situacional da realidade atual de assist?ncia as CcD na referida UBSFCP, atrav?s da observa??o participante e aplica??o de entrevista semi-estruturada junto aos profissionais, percebemos que apesar de realizarem algumas a??es assistenciais para a CcD, na pr?tica poucas delas s?o empregadas no sentido da inclus?o e acessibilidade. O acompanhamento da CcD ? feito atrav?s de consultas individuais por cada profissional da equipe, e visitas domiciliares quando poss?vel ambas pautadas nas queixas e problemas, com pouca resolubilidade nas a??es empregadas. Visto a necessidade de mudan?a no modelo de atendimento e tamb?m de capacita??o como foi apontado pelos profissionais na entrevista realizada, decidimos em seguida construir a proposta de capacita??o sugerida pela equipe multiprofissional e elaboramos coletivamente a realiza??o deste momento em todas as suas fases. Na etapa de implementa??o da capacita (a??o), contemplamos aspectos referentes ? situa??o atual no Brasil e em Mossor?/RN (Leis, pol?ticas e assist?ncia a sa?de) para as CcD e Assist?ncia ? CcD e a sua fam?lia na ESF nos dois primeiros momentos do primeiro de capacita (a??o). No segundo dia, discutimos a assist?ncia especializada ? CcD, contribui??o da Associa??o Pais e Amigos dos Excepcionais de Mossor? e, em um segundo momento, foi realizada uma oficina que discutia a sensibiliza??o para inclus?o da CcD nas a??es da ESF. Todos esses momentos foram debatidos e constru?dos coletivamente. Na avalia??o, constatamos que a capacita (a??o) permitiu aos profissionais a compreens?o de novos entendimentos sobre a pessoa com defici?ncia, sobre as formas de incluir, de orientar, de cuidar, de assistir e, principalmente, de ter uma nova vis?o sobre a assist?ncia a sa?de da CcD, ampliando a assist?ncia para al?m dos aspectos cl?nicos e reconhecendo os aspectos educacionais, dos direitos e deveres de cidad?os e a inclus?o dessas crian?as da ?rea(comunidade) nos espa?os sociais. Com dificuldades, nos deparamos com a necessidade de alguns profissionais se ausentarem para comparecerem a outro emprego, resolver problemas pessoais, e pouca ou nenhuma participa??o. Assim, esta pesquisa-a??o fez, durante o seu curso, com que os sujeitos conseguissem perceber a import?ncia da realiza??o de suas pr?ticas para a qualidade vida deles e daqueles que est?o sob seus cuidados.

Submitted by Jadson Francisco de Jesus SILVA (jadson@uefs.br) on 2018-07-20T21:53:39Z No. of bitstreams: 1 DISSERTA??O PAULO ROBERTO finalz?o 09 03.pdf: 3626215 bytes, checksum: a916a4a7fbf307b65ccad4330d1dd18c (MD5) / Made available in DSpace on 2018-07-20T21:53:39Z (GMT). No. of bitstreams: 1 DISSERTA??O PAULO ROBERTO finalz?o 09 03.pdf: 3626215 bytes, checksum: a916a4a7fbf307b65ccad4330d1dd18c (MD5) Previous issue date: 2018-02-22 / Coordena??o de Aperfei?oamento de Pessoal de N?vel Superior - CAPES / Study qualitative, exploratory, with the objective of understanding the experiences of families of children with microcephaly by Zika virus. For the production of empirical data we explore the narratives of relatives contained in videos posted on the YouTube Internet platform published between 10/01/2015 and 07/31/2016, as well as narratives obtained from an in-depth interview, of the story-theme design applied in 11 family members of children with microcephaly attended at the Association of Parents and Friends of the Exceptional in Feira de Santana, as well as field diary material. The data collection took place between September and November 2017. For the treatment of the data we adopted the thematic content analysis and the iconographic analysis. The results are organized in: Article 1 - Bad news: experiences and feelings of families regarding the diagnosis of microcephaly by Zika virus; A session entitled: Understanding the family dynamics of study participants; Article 2 - "Well run, very fast ...": experiences of care of mothers of children with microcephaly by Zika; Article 3 - Family organization to take care of the child with microcephaly by z?ka virus. Microcephaly is revealed in the prenatal period, through imaging tests, or during the immediate or late postpartum. Relatives live with feelings of sadness, despair, pain, fright, commotion, disorientation and terror. After diagnosis, family members seek to understand microcephaly through internet resources, and question God's permission and the relevance of scientific knowledge. Mothers experience day-to-day organizing and cleaning the home environment, caring for their children and the specific care of the child with microcephaly, regarding lullaby, since children cry frequently, requiring the mother to spend hours with the child in the lap; Give a shower; change diapers; to feed; play; and, stimulate. They learn to differentiate cognitive, psychomotor, auditory, and visual impairments; recognize progress in the development and new needs of children; identify episodes of seizure; consider patience and attention relevant to care; and, seek to learn about new thematic and unknown terms such as calcifications. Family members build a network of solidarity and unity for the benefit of the child, family relationships are strengthened, bringing together previously conflicting relationships. Caregivers include mothers, fathers, grandparents, sisters, cousins, aunts, friends and neighbors, with the mother being the protagonist who also coordinates and defines the roles played by other people. Family members practice care that has been organized in four dimensions: "Take care"; Encourage; Access Resources and Services. We recommend that family members and health workers attend to the restriction of social interaction, weakening marital relationships, jealousy behaviors on the part of siblings, worsening of grandparents' health conditions, and financial difficulties that may affect the family of children with microcephaly. / Estudo qualitativo, do tipo explorat?rio, com objetivo de compreender as experi?ncias de fam?lias de crian?as com microcefalia por Zika v?rus. Para produ??o de dados emp?ricos exploramos as narrativas de familiares contidas em v?deos postados na plataforma virtual da internet YouTube publicados entre 01/10/2015 e 31/07/2016, e tamb?m narrativas obtidas de entrevista em profundidade, do desenho est?ria-tema aplicados em 11 familiares de crian?as com microcefalia atendidos na Associa??o de Pais e Amigos dos Excepcionais em Feira de Santana, al?m de material do di?rio de campo. A coleta de dados ocorreu entre setembro a novembro de 2017. Para tratamento dos dados adotamos a an?lise de conte?do tem?tica e a an?lise iconogr?fica. Os resultados encontram-se organizados em: Artigo 1 ? M?s not?cias: experi?ncias e sentimentos de fam?lias face o diagn?stico de microcefalia por Zika v?rus; Uma se??o intitulada: Compreendendo a din?mica familiar dos participantes do estudo; Artigo 2 ? ?Bem corrido, muito corrido...?: experi?ncias de cuidado de m?es de crian?as com microcefalia por Zika; Artigo 3 ? Organiza??o familiar para cuidar da crian?a com microcefalia por z?ka v?rus. A microcefalia ? revelada no per?odo pr?-natal, atrav?s de exames de imagens, ou durante o p?s-parto imediato ou tardio. Os familiares convivem com sentimentos de tristeza, desespero, dor, susto, como??o, desorienta??o e terror. Ap?s o diagn?stico, os familiares buscam compreender a microcefalia atrav?s dos recursos da internet, e questionam a permiss?o de Deus e a relev?ncia do conhecimento cient?fico. As m?es experienciam o dia a dia organizando e limpando o ambiente dom?stico, exercendo os cuidados aos filhos e o cuidado espec?fico ? crian?a com microcefalia, referentes a: ninar, pois as crian?as choram com frequ?ncia, necessitando que a m?e passe horas com a crian?a no colo; dar banho; trocar fralda; alimentar; brincar; e, estimular. Elas aprendem a diferenciar as defici?ncias cognitivas, psicomotoras, auditivas e visuais; reconhecem os avan?os no desenvolvimento e as novas necessidades das crian?as; identificam epis?dios de convuls?o; consideram a paci?ncia e a aten??o relevantes para o cuidado; e, buscam apreender sobre novas tem?ticas e termos desconhecidos como calcifica??es. Os familiares constroem uma rede de solidariedade e uni?o em prol da crian?a, as rela??es familiares s?o fortalecidas, aproximando rela??es antes conflituosas. Participam do cuidado as m?es, pais, av?s, irm?s (os), primos (as), tias (os), amigas e vizinhas, havendo protagonismo da m?e que tamb?m coordena e define os papeis desempenhados pelas outras pessoas. Os familiares exercem cuidados que foram organizados em quatro dimens?es: Cuidar Integralmente; ?Tomar Conta?; Estimular; Acessar Recursos e Servi?os. Recomendamos que os familiares e trabalhadores da sa?de atentem para a restri??o do conv?vio social, enfraquecimento das rela??es conjugais, comportamentos que indiquem ci?mes por parte dos irm?os, agravamento das condi??es de sa?de das av?s e dificuldades financeiras que podem repercutir na fam?lia de crian?as com microcefalia.