The Function-based Intervention Decision Model (Umbreit, Ferro, Liaupsin, & Lane, 2007) (Decision Model), is a straightforward technique to link the function of a behavior to an intervention. Although this technique has been found to be significantly effective with school-age disability populations, it has not been tested with adults who have cognitive disabilities and significant behavioral problems in non-school settings.This study explored the efficacy of the Decision Model (Umbreit et al., 2007) as a method for matching behavioral interventions to assessed function(s) of the target behavior by extending its practices to adults with developmental disabilities in a community-based day program. The participants were three adults with moderate mental retardation and problematic behavior, displayed by inappropriate social interactions. The research design was a multiple baseline across subjects. A notable benefit to this design is that there was no need to withdraw treatment, an important ethical consideration because each of the problem behaviors presented with some form of self-injury, aggression to others, and/or property destruction. The study had four phases: (a) conducting the functional behavioral assessment to identify the function of the participant's problem behavior, (b) utilizing the Decision Model (Umbreit et al., 2007) to link the function to the behavioral intervention plan (BIP), (c) applying the intervention, and (d) and maintenance. Several research questions were posed: (a) Do interventions developed using the Decision Model produce positive results for adults who have developmental disabilities and significant behavior problems in a non-school setting? (b) Will the application and maintenance of each BIP result in decreased exhibition of assessed problem behaviors? (c) Will the application and maintenance of each BIP result in increased exhibition of identified replacement behaviors? (d) Will the day program support staff and behavioral support team view the outcomes as socially valid? The results indicated a decrease in problem behaviors (socially inappropriate interactions) and an increase in replacement behaviors (socially appropriate interactions). Results of this study influenced positive intervention strategies that were easily maintained and viewed as socially valid by the direct support staff, evidenced by the results of the Treatment Acceptability Rating Form-Revised (Reimers, Wacker, Cooper, & DeRaad, 1992).

The purpose of this exploratory investigation was to investigate how self-identified gay or bisexual (GB) men with developmental disabilities managed their complex identities. Through various profiling strategies and snowball sampling techniques, seven such GB men volunteered. These key participants resided over a wide geographical area, from the coastal US to the southern part of British Columbia. Semi-structured interviews were conducted with each person, three of whom identified a caregiver as being a particularly important part of his "coming-out" process. Semi-structured interviews were also conducted with these supporting participants, as well as a few other relevant professionals. Key participants' life stories were framed within several theories: namely; Goffman's (1963) stigma, Lave and Wengers' (1991) legitimate peripheral participation, disability theory, queer theory and Smith's (1987) institutional ethnography. Similarly, the supporting professionals' responses were analyzed. The results present rich kaleidoscopic narrative descriptions, and provide many implications for special education practice and queer activism.

Most toddlers with Pervasive Developmental Disorder (PDD) and Autism are non-compliant, have language delays and immature play; however, some have intact information processing ability, while others do not. Play data from two treatment outcome studies of children with PDD and Autism, and one normative longitudinal study were analysed to (1) compare play of normally developing children to delayed children with intact versus impaired processing; (2) investigate differential impact of a parent-implemented cognitive-behavioural treatment on children with intact versus impaired processing; and (3) investigate the use of information processing, and non-verbal play measures, including sustained attention, for use with children with delays. Both children with intact and those with impaired processing, but particularly children with impaired processing, displayed immature play relative to normally developing children. With treatment, sophistication of play improved substantially for children with intact processing and less for children with impaired processing confirming the usefulness of both information processing and play as alternative assessment procedures for children who are non-verbal and non-compliant.

Very little research has examined the role of personality in important life outcomes and support needs of adults with intellectual disabilities. This exploratory study includes a sample of 102 community-dwelling adults with intellectual and developmental disabilities, and begins to evaluate the relative contributions of general personality and personality disorder as it they concern their adaptive functioning, Axis I psychopathology symptoms, and residential and vocational supports. Observer ratings of personality disorder and Five Factor Model and Reiss Profile general personality functioning were obtained from direct service providers who knew the participants well, and archival file data (e.g., IQ, adaptive functioning scores, medications prescribed, and diagnoses) were collected after informed consent and assent were obtained from the participants. The results suggest that both personality and personality disorder, relate the intensity of supports required, the number of psychiatric medications prescribed, maladaptive behavior, and the amount of Axis I psychopathology exhibited by the participants. Results of the study are discussed with reference to implications for service delivery and planning and future research.

Current literature on the developmentally disabled indicates they represent a large untapped labor pool that is significantly inhibited in its inclusion in the community. To address this unnecessary isolation, Right in the Community (RitC), a voluntary agency in Cobb County, Georgia, wanted to innovate its service offering by providing meaningful and sustainable work opportunities for those that are severely developmentally disabled. The Competing Values Framework (CVF) offers a dynamic and robust theoretical framework that has been adapted to explain many business factors in addition to organizational effectiveness. Based on a fourteen-month action research engagement at RitC, I adapted the CVF to concentrate on the dimensions of organizational focus, strategy formation and motivational traits to understand and guide service innovation in a voluntary organization. My research aided RitC’s development of a program to provide meaningful and sustainable work opportunities for those that are severely developmentally disabled. From a theoretical standpoint, I have added new knowledge on managing service innovation in voluntary organizations and adapted CVF for understanding and guiding service innovation in that particular context.

The funtioning of families of children with developmental disabilities has been of interest to researchers for some time. To date, little research has focused on experiences of New Zealand families. The aim of this research is to investigate relationships between various aspects of the family environment and family functioning, and to explore siblings' level of self-concept and satisfaction with the sibling relationship. It is expected that families who receive more support from external levels of the environment will be able to function more effectively in their immediate environment (Bronfenbrenner, 1979; Hornby, 1994). Twenty-one parents and nineteen siblings of children with developmental disabilities volunteered to take part in this study. Parent participants completed questionnaires about family demographics, the level of support received from external sources, their perceptions of the family environment, and level of stress related to child characteristics; pessimism and family problems. Sibling participants completed questionnaires about their satisfaction with the relationship with their brother or sister, their self-concept, and their own perceptionso of the family environment. The results indicate that there are a number of relationships between various aspects of the environment and family functioning. Siblings who are more satisfied with their relationship have higher self-concept scores, however the self-concept scores were lower than expected. Families who receive higher levels of support have more positive perceptions of the family enviornment, and families who have more support and more positive views of the environment have few concerns on the resources and stress scale. The results indicated that families consider that they are receiving adequate support from professional services, however support from family and friends appears to be lacking. This study has provided insight into the functioning of New Zealand families who have children with developmental disabilities, and has suggested a number of avenues for future research.

[Truncated abstract] There are few existing screening instruments designed to identify Autism Spectrum Disorders (ASD) at an early age, such as the Checklist for Autism in Toddlers (CHAT) and the Modified Checklist for Autism in Toddlers (M-CHAT). Unfortunately, many are limited in their ability to identify children at risk in the first two years of life while displaying an acceptable level of reliability. Given this limitation, the present study aimed to identify any additional early markers of ASD from either the retrospective analysis of early autistic symptomatology (parental report and video analysis of footage made before the diagnosis) or performance-based measures linked to different theoretical accounts of ASD. Specifically, measures addressing theory of mind, executive dysfunction and weak central coherence were developed. In the first study, parents of three groups of children those of typical development (n = 19, mean CA = 26 months), children with an ASD (n = 39, mean CA = 34 months) and children with developmental delay (n = 14, mean CA = 28 months) were interviewed about their child's early development. In the first study, parents of three groups of children those of typical development (n = 19, mean CA = 26 months), children with an ASD (n = 39, mean CA = 34 months) and children with developmental delay (n = 14, mean CA = 28 months) were interviewed about their child's early development. Several behaviours discriminated children with ASD from children with typical development and children with delayed development. ... A discriminant function analysis using the two factor scores indicated that Factor 1 discriminated the ADI-R groups, while Factor 2 scores did not add to the ability of Factor 1 scores to discriminate the ADI-R groups. Furthermore, while the finding that joint attention behaviours differentiated children with ASD from children with typical development and children with delayed development, more research is needed to determine if this impairment is a precursor of a theory of mind deficit or if this impairment and later appearing impairments in theory of mind are the result of a more global impairment in social-emotional approach behaviours. Additional research is also needed to determine the relationship between the early appearing deficits in joint attention and the impairments in social relating behaviours that appear to develop later in the chronology of ASD development and how both of these relate to the theory of mind hypothesis of ASD.

Thesis (Ph.D.)--University of Tennessee Health Science Center, 2007. / Title from title page screen (viewed on February 29, 2008). Research advisor: Robert S. Waters, Ph.D. Document formatted into pages (xix, 179 p. : ill.). Vita. Abstract. Includes bibliographical references (p. 152-178).

Diss. (sammanfattning) Linköping : Linköpings universitet, 2007. / Härtill 4 uppsatser.

Diss. (sammanfattning) Stockholm : Karol. inst., 2003. / Härtill 5 uppsatser.