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Experiences of HIV and AIDS patients and families regarding palliative care in an urban care centre in Buffalo CityBunt, Helen January 2013 (has links)
The South African Constitution (South Africa, 1996) states that access to healthcare services is a basic human right. The Patients’ Rights Charter (HPCSA, 2008: 6) stipulates that the provision for “special needs in the case of persons living with HIV or AIDS” and palliative care be “affordable and effective”. The need for palliative care in South Africa today continues to increase. Khan and Sayed 2011[2]) found that five years after commencement of anti-retrovirals, twenty five percent of their patients had passed away. This study was performed in the Eastern Cape which is one of the poorest provinces with the second highest HIV prevalence rate. Since 2008, Sophumelela Centre Incorporated has offered palliative care for HIV and AIDS patients in Buffalo City. Some of these patients and their families were interviewed about their experiences in this care centre. The South African Constitution (South Africa, 1996) states that access to healthcare services is a basic human right. The Patients’ Rights Charter (HPCSA, 2008: 6) stipulates that the provision for “special needs in the case of persons living with HIV or AIDS” and palliative care be “affordable and effective”. The need for palliative care in South Africa today continues to increase. Khan and Sayed (2011[2]) found that five years after commencement of anti-retrovirals, twenty five percent of their patients had passed away. This study was performed in the Eastern Cape which is one of the poorest provinces with the second highest HIV prevalence rate. Since 2008, Sophumelela Centre Incorporated has offered palliative care for HIV and AIDS patients in Buffalo City. Some of these patients and their families were interviewed about their experiences in this care centre.
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Ett liv med begränsningar : Ungdomars upplevelser av att leva med en ADHD-diagnos / A life with limitations : Adolescents and young adults experiences of living with ADHDHjärtmyr, Eleonor January 2017 (has links)
Detta är en litteraturbaserad studie som belyser ungdomars upplevelser av att leva med en ADHD-diagnos, samt vilken påverkan diagnosen har för den enskilde individen och samhället i stort. Många svårigheter i vardagen framkommer, så även brister i kunskap, bemötande och samverkan från sjukvårdens sida. ADHD är en neuropsykiatrisk funktionsnedsättning som karaktäriseras av brister i uppmärksamhet, impulskontroll och reglering av aktivitetsnivå. ADHD hos ungdomar är associerat med risker som exempelvis utvecklandet av psykiatriska samsjukliga tillstånd, drogproblem och kriminellt leverne. Ungdomar med ADHD beskrivs vara känsliga för negativ miljöpåverkan och beteenden relaterade till diagnosen påvisas kunna leda till stigmatisering och diskriminering. Trots att behandling för ADHD i många fall leder till en bättre funktion för individerna är behandlingsföljsamheten låg. Det framkommer att många väljer att avsluta sin sjukvårdskontakt och behandling, specifikt i övergångsåldern mellan ungdom till vuxen. Resultatet lyfter att ADHD i många fall leder till stora svårigheter i vardagen och ungdomarna rapporterar ett stort omvårdnadsbehov. Brister i delgivning av information framkommer vid kontakten med sjukvården. Så även brister i upplevelser av behandling samt bemötande. För att kunna främja hälsa ur ett holistiskt synsätt, krävs bättre samverkan mellan de olika aktörer i samhället som är i kontakt med denna patientgrupp. Sjuksköterskan möter individer med ADHD inom både den somatiska och psykiatriska delen av vården. Hanteringen av diagnosens yttranden hos patienterna ställer i många fall högra krav på kompetensen hos sjuksköterskan. Sjuksköterskor inom både den somatiska och psykiatriska delen av vården behöver mer kunskap om ADHD och diagnosens yttranden för att kunna tillhandahålla personcentrerad vård med ett gott bemötande till patientgruppen. / Background: ADHD is a neuropsychiatric disorder which characteristics has been proven to cause many difficulties in the everyday life, both from an individual perspective and in society as a whole. The diagnosis is associated with high mortality, drug use, deviance behaviour, criminality and the individuals who's been diagnosed and treated often experiences stigmatization. The health care and especially the nurse plays a big role in the management and caring for these patients. The core essence of nursing is to promote health through a holistic approach and relieve the suffering which these patients experience. Aim: The aim of this study was to investigate how adolescents and young adults with ADHD experiences their everyday life, and how the diagnose influence their psychosocial function. Method: This study is formed as a literature review based on ten scientifical articles, which was conducted through a systematic literature search. The articles were examined and sorted based on similarities in their result sections. Results: The experiences of ADHD in everyday life and psychosocial functioning were charactered by behaviour issues which led to limitations in social interactions, academic performances, home environment and experiences of stigmatization. Regarding the meeting with health care professionals, youths reported lack of individualistic approach, personcentered care and information. Conclusion: Adolescents and young adults with ADHD experiences a lot of malfunctioning in their everyday life, both due to their diagnosis and the consequences which it leds to. Health care professionals needs more knowledge about the disorder to present good care and to promote health.
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The Lived Experiences of Mothers of Adolescents who Misuse SubstancesKATOUZIYAN, MASOUMEH January 2017 (has links)
Background: When a family encounters the problem of adolescent substance misuse, the burden of managing it often falls primarily on the mother.
Objective and methods: This research was conducted in two phases to explore the experiences of mothers of adolescents who misuse substances. Phase one was a systematic qualitative evidence synthesis of qualitative studies on the experiences of mothers of adolescents who misused substances. In this phase, conventional content analysis was used to create a narrative synthesis of themes and categories. Phase two was a qualitative study using thematic analysis to describe mothers’ experiences of parenting an adolescent who misused drugs.
Findings: Eleven qualitative studies were included in the literature review. New categories regarding mothers’ experiences emerged from the review and synthesis: 1) I love you and we can talk no matter what; 2) So this is really happening . . . My kid’s on drugs; 3) What have I done?; 4) My family is shattered: a) I can’t believe what you’re doing, b) I can’t face this, c) I’ve lost my baby; and 5) It’s not my addiction.
Four mothers were interviewed for the qualitative study. Mothers described their realities and the challenges they faced parenting an adolescent who misused drugs. Their experiences were represented in the following categories:1) recognition, 2) punishment/surveillance, 3) negative emotions, 4) relationships, 5) escalating effects, 6) strategies, and 7) home–a safe place.
Conclusions: The findings from this research contribute to our understanding of the everyday lives and struggles that mothers face with their adolescents’ substances misuse. Nurses, by implementing early targeted interventions, will meet the needs of these mothers and assist themselves and ultimately their adolescents to attain optimal wellbeing.
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The Impact of Advanced Pharmacy Practice Experiences on Future Career OpportunitiesChavez, Christopher, Hildebrandt, Darlene January 2006 (has links)
Class of 2006 Abstract / Advanced Pharmacy Practice Experiences (APPE) provide students an opportunity to develop and demonstrate skills and competencies desired by future employers. The purpose of this study is to examine the impact of performance during APPE rotations on post-graduation hiring practices within the graduates and preceptors of the University of Arizona College of Pharmacy. Alumni who graduated from The University of Arizona College of Pharmacy between the years of 1991 and 2005 were surveyed to determine the impact preceptors had on their employment opportunities after pharmacy school (153 of 734 responded). APPE preceptors for The University of Arizona College of Pharmacy were also surveyed regarding the effect that APPE rotation performance has on the student’s future employment opportunities (84 of 272 responded). Study results show that of the alumni surveyed, 64% (n=96) answered that they asked a clerkship/rotation preceptor to provide references for a job or residency application. Further results show 60% (n=91) of alumni answered that their clerkship/rotation experience did increase their interest in post graduation employment at that specific site. Preceptor response confirmed that the student’s performance had a dramatic impact on his/her hiring potential. Of the preceptors surveyed, 74% (n=62) intentionally tried to hire students based on their clerkship/rotation performance, while 55% (n=46) avoided hiring students based on their clerkship/rotation performance. There is a noteworthy association between student performance and postgraduate employment opportunities. These results emphasize the importance of student performance during APPE rotations.
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Parent-Child Relations Correlates of a Cognitive Model for Social ExpectationsMorwood, Linda L. 08 1900 (has links)
The general purpose of this study was to consider the relationship between an individual's perception of his parent-child experiences and the adequacy of a naive cognitive model to describe his judgements of others.
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Exploring parental coping with childcare after the disclosure of child sexual abuseLakey, Abigail January 2011 (has links)
Magister Artium (Social Work) - MA(SW) / Child sexual abuse is a well-documented social crime that influences every aspect of the survivor and their family's lives. The parents are then confronted with a child that presents behavior that may include scholastic challenges, antisocial behaviour, sexual explorative behaviour as well as adult mannerisms. In addition, parents are then 'expected' to cope with their own feelings of guilt in relation to their child's affected behaviour. The aim of the study was to explore parental coping with childcare post the disclosure of child sexual abuse. This study used a qualitative methodological framework. A group of twelve (12) heterogeneous parents were purposively sampled from Childline case registers. Face-to-face interviews were conducted with the parents, using an interview schedule and a voice recorder. The parents' interviews were transcribed verbatim, translated and verified with the parents. The data was analysed using thematic analysis in order to explore parents' experiences. The findings of the study reveal the participants' emotional responses to the disclosure of child sexual abuse, parental coping post the disclosure of CSA and available resources. These themes highlight the experiences of the parents who care for children post the disclosure of child sexual abuse. The study discusses the needs and challenges of the parents, and offers recommendations regarding provisions that can be made for these parents.
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Homebound: Spatializing the Immigrant Experience by Breaking Down Barriers in Virtual RealityUnknown Date (has links)
This thesis explores the production process of developing a virtual reality experience with an emphasis on digital humanities and the methods of adapting real-world events, narratives, and media coverage into an interactive, location based VR experience. The thesis contextualizes the production of an accompanying media project, which is informed by the history of U.S migration and the media’s impact on the opinion of Americans.
Through the observation of production methods, this paper summarizes the process of creating a VR experience that expands the established production pipeline to more fluidly produce immersive interactive content. Using Homebound: The Interactive Immigrant Experience, a collaborative VR project as a prototype for these methods, we were able to integrate and develop a media production pipeline that uses off the shelf hardware in unison with Unreal Engine 4 to produce a prototype VR experience that follows the narrative on a Latin American Immigrant. / Includes bibliography. / Thesis (M.F.A.)--Florida Atlantic University, 2020. / FAU Electronic Theses and Dissertations Collection
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Homebound: Exploring Environmental Storytelling in Spatial Virtual Reality to Breakdown Psychological Borders and Build EmpathyUnknown Date (has links)
The problem of immigration has been around since the dawn of man because humans cannot just stay in one place, especially if that place is not suitable for their lives and their families. It is a reasonable expectation of the human condition to want to feel free and safe because we do not live in a utopian society. There are social injustices, wars, and atrocities that threaten the most basic of human needs and freedoms in many countries across the globe.
Homebound, the virtual reality experience, which was developed in Unreal, aims to make sense of this crisis and shed light on the lives affected by this social ill. By using rich environments, virtual production and motion capture, to construct a place that captures the realism of the illegal immigration narrative, this manuscript will show how behavioral and gameplay psychology, when paired with environmental storytelling, can be utilized to craft impactful and empathetic, immersive stories and edutainment experiences for the player. / Includes bibliography. / Thesis (M.F.A.)--Florida Atlantic University, 2020. / FAU Electronic Theses and Dissertations Collection
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“I never doubted that I made a difference” : Personal experiences from physical therapists working after the earthquakes in Nepal. / “Jag tvekade aldrig på att jag gjorde skillnad” : Personliga erfarenheter från fysioterapeuter som arbetade efter jordbävningarna i Nepal.Örn, Mimmie, Roempke Lindström, Matilda January 2021 (has links)
Background: Earthquakes and other natural disasters have increased over recent years, more people around the world are living with disabilities. The physical therapists have an important role to increase function and restore quality of life. Although it is stated that early rehabilitation intervention is an essential part of the health response there is limited information about the work and the experiences from physical therapists. Aim: The aim of this study is to examine physical therapists’ experiences after the earthquakes in Nepal 2015. Design: This study had a qualitative exploratory design, based on five individual semi-structured interviews using the communication platform zoom. The data was analysed by a qualitative content analysis and had an inductive approach. Result: The physical therapists’ describes a chaotic situation, the psychological vulnerability in patients made it challenging to motivate and keep the patients focused on their rehabilitation. The huge influx of patients made it hard for the physical therapists to manage their time and led to compromised treatments and the need of early discharge of patients. The physical therapists had dual experiences about their role in the healthcare teams. There was a clear system on how to prioritize the patients based on severity of injuries. Conclusion: This study showed that physical therapists in Nepal had an important role from acute care to follow-up after the earthquakes. The study provides an insight from physical therapists in disaster settings and may contribute to identify barriers in performing their work tasks in future disaster settings. / Bakgrund: Jordbävningar och andra naturkatastrofer har ökat de senaste åren, fler människor runt om i världen lever med kvarstående funktionshinder. Fysioterapeuterna har en viktig roll genom att öka funktionen och återställa livskvaliteten hos dessa patienter. Även om det tydligt anges att en tidig rehabiliteringsinsats är en väsentlig del av arbetet finns det begränsad information om erfarenheterna från fysioterapeuter. Syfte: Syftet med denna studie är att undersöka fysioterapeuters erfarenheter efter jordbävningarna i Nepal 2015. Metod: Denna studie hade en kvalitativ utforskande design, baserad på fem individuella semistrukturerade intervjuer med hjälp av kommunikationsplattformen zoom. Data analyserades med kvalitativ innehållsanalys och hade en induktiv ansats. Resultatsammanfattning: Fysioterapeuterna beskriver en kaotisk situation, den psykologiska sårbarheten hos patienter gjorde det svårt att motivera och hålla patienterna fokuserade på deras rehabilitering. En stor tillströmning av patienter gjorde det svårt för fysioterapeuterna att hantera sin tid och detta ledde till att behandlingar behövde kompromissas och ökade behovet av tidig utskrivning av patienter. Fysioterapeuterna hade tvetydiga erfarenheter av sin roll i vårdteamet. Det fanns ett tydligt system för hur man skulle prioritera patienterna baserat på svårighetsgraden av skador. Slutsats: Denna studie visar att fysioterapeuter i Nepal hade en viktig roll för patienten efter jordbävningarna, en roll som sträcker sig från akutvården till uppföljning. Studien ger tydlig insikt i hur fysioterapeuterna upplevde sitt jobb vilket skulle kunna bidra till identifiering av hinder för fysioterapeuter i utförandet sina uppgifter vid framtida katastrofsituationer.
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The experiences of women diagnosed with HIV during pregnancyNetshimbupfe, Pfarelo Myrah January 2016 (has links)
Pregnancy is period in a woman's life when she has many fears, uncertainties and expectations. To receive an HIV positive diagnosis during this period, has devastating effects on women. The burden of HIV and AIDS does not fall evenly or equally. The overwhelming majority of those currently living with HIV/AIDS are young women in developing countries.
The impact of HIV on women's lives, including their roles as mothers, economic providers and caregivers within households, emphasises the importance of psychosocial counselling and other interventions. Most women only find out about their HIV status while pregnant. Being diagnosed with HIV infection during pregnancy has become one of the greatest complications of pregnancy in South Africa.
WHO (2012:2) predicted that the prevalence of HIV infection among pregnant women is likely to remain high for at least the next two decades, because of the number of people receiving life-long antiretroviral therapy (ART) in South Africa. It is still increasing and was predicted to plateau at around 3 million in 2016. South Africa has implemented a Prevention of Mother-To-Child Treatment programme in which all women who are pregnant are tested for HIV at the ante-natal clinics. If they are diagnosed with HIV, they are immediately enrolled in the PMTCT programme.
Despite the remarkably successful implementation of the PMTCT programme in South Africa, women diagnosed with HIV during pregnancy face many challenges. This research found that the HIV diagnosis has a complex mix of emotional, psychosocial, relationship, economic and even legal issues that arise directly from the HIV diagnosis. HIV diagnosis provides concrete evidence that being HIV positive and pregnant at the same time is not a good experience; one is often filled with mixed emotions and uncertainties. The findings also indicate sadness and fear among HIV positive pregnant women, sadness in response to their HIV-positive status and the possibility of not seeing their babies grow up. The reality of an HIV diagnosis in pregnancy remains the same globally and continues to affect women who are diagnosed with HIV during pregnancy. A multidisciplinary approach is the most effective way to address the medical, psychological, social, and practical challenges. The biopsychosocial approach was also found applicable in underpinning this study.
The goal of the study was to explore and describe the experiences of pregnant women diagnosed with HIV while pregnant and how diagnosis influences their maternal needs. The guiding research question was: What are the experiences of women diagnosed with HIV during pregnancy?
A qualitative research approach was followed with a phenomenological research design. The population for this study was women who were diagnosed with HIV during their pregnancy in a state health centre, in Gauteng. Non probability purposive sampling was utilized to select a sample of 10 women who were diagnosed with HIV during pregnancy, who attended antenatal sessions in the health centre were selected. Their informed consent was obtained. Semi-structured individual interviews were conducted with participants. Interviews were voice recorded with the permission of the participants, and were transcribed by the researcher. Data gathered were analysed by the researcher and themes and sub-themes were identified. The research findings were presented by providing a biographic profile of the research participants, followed by a thematic analysis of the themes and sub-themes from the transcriptions. Literature control and verbatim quotes from the interviews were used to support the findings. The themes included the following: Theme One - Knowledge of HIV/AIDS; Theme Two - HIV diagnosis; Theme Three - Experiences of living with HIV Status; Theme Four HIV Treatment; Theme Five - Knowledge of mother to-child transmission; Theme Six - Relationship and disclosure and recommendations. / Mini Dissertation (MSW)--University of Pretoria, 2016. / Social Work and Criminology / MSW / Unrestricted
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