The three primary purposes of this study were to (1) acquire knowledge of parents’ psychological experiences obtaining a diagnosis and accessing services for their child with ASD by examining the actual situation, as lived through and experienced by the parents, (2) gain knowledge of the meaning of advocacy and empowerment from parents who are living these experiences, and (3) derive possible implications for enhancing services provided by mental health professionals, service providers, and policy-makers to parents of children with autism. I utilized a sequential transformative integrated design, drawing data in Wave II of a larger, on-going investigation examining child, family, and community variables associated with early identification and treatment of autism spectrum disorders in the Pacific Northwest. I conducted a descriptive exploratory analysis to describe all participants from Wave II with respect to measures of sociodemographic variables, parental satisfaction with services, family empowerment, and reported relationships among these variables. Next, I conducted in-depth semi-structured interviews with six participants identifying as low-income and/or ethnic minorities to explore their experiences throughout the process of obtaining a diagnosis and accessing services for their child with ASD. Interviews were recorded and transcribed. Data were analyzed using a phenomenological reduction and integrated with quantitative results. Constituent elements of the parent experiences included, but were not limited to: a desire and/or appreciation for sources of support and information regarding services; engaging in ongoing research and networking to learn about services; a need to be the expert on their child; and fear regarding availability of future services and child’s future after parents die. Constituent elements of empowerment and advocacy showed that these were conceptually and experientially related to one another, such that advocacy functioned as a behavioral manifestation of empowerment for parents in this study. Findings contribute to the literature on family experiences with the diagnostic and service utilization processes for ASD. Findings are discussed in regards to recommendations and implications for mental health professionals, service providers, and policy-makers working towards fostering more supportive and equitable diagnostic and service utilization pathways for these families.

The Autism Spectrum Disorder (ASD) is characterized by impairments in socio communicative and behavioral dimensions. The early the diagnosis is made and started the interventions, the better will be the outcomes. The interventions must be addressed to the core needs of each subject and consists in providing, by a transdisciplinary team, services directed not only to the child, but also to the whole family. Including the family as critical piece of the intervention places them as an active agent, working side by side with the professionals in favor of the son s development. Therefore, it is necessary that the parents receive a specific training about interventions and autism, retaining this knowledge. The Family empowerment is a terminology to designate this continuous ability of groups or subjects to act for their own benefit to achieve better control over their lives and faiths. Moreover, the literature has shown that family empowerment is highly associated to gains in interventions with children with autism, highlighting its importance for intervention´s effectiveness. This study aims to measure the effects of an intervention based on parents training about the development of communicative and interactional skills of their autistic son, as well as verify the influences of this kind of intervention over family empowerment. It was used an quase experimental design, A-B type, in a single case research, where the participants was a child with ASD and 15 months old, his father and his mother. The results showed that parental training program promoted an increase in socio communicative skills of the mother-child dyad, both in joint attention and topic sharing, as in affective contact. It was observed an increase in parental empowerment levels between pre- and post-intervention, understood as an influence of the training program. Finally, it is concluded that the family centered intervention, more specifically the parental training, is shown as an available possibility to promote early development of sociocomunicativas skills of children with ASD. / O Transtorno do Espectro Autista (TEA) é caracterizado por déficits nas dimensões sociocomunicativas e comportamentais, as quais se manifestam ainda precocemente no desenvolvimento infantil. Quanto antes for realizado o diagnóstico e iniciada a intervenção sobre essas dificuldades, melhores os resultados. As intervenções precisam ser direcionadas especificamente para as necessidades de cada indivíduo e consistem na prestação, por parte de uma equipe transdisciplinar, de serviços dirigidos não somente à criança, mas também à família. A inclusão da família como parte imprescindível da intervenção a coloca como um agente ativo, atuando ao lado dos profissionais a favor do desenvolvimento do filho. Para tanto, torna-se necessário que os pais recebam informações específicas sobre intervenção e autismo, apropriando-se destes saberes. O empoderamento familiar tem sido a terminologia utilizada para designar essa capacidade contínua para agirem em seu próprio benefício, visando a alcançar maior controle sobre suas vidas e destinos. Neste sentido, a literatura tem mostrado que o empoderamento familiar encontra-se fortemente associado aos avanços nas intervenções com crianças com deficiência, destacando sua importância para sua efetividade. O objetivo desse estudo foi avaliar os efeitos de uma intervenção baseada na orientação a pais sobre o desenvolvimento de habilidades comunicativas e interativas do filho com autismo, assim como relacionar as influências dessa intervenção ao empoderamento familiar. Foi utilizado um delineamento quase experimental do tipo A-B, em que os participantes foram uma criança com TEA com 15 meses de idade, seu pai e sua mãe. Os resultados mostraram que o programa de orientação a pais promoveu um aumento das habilidades sociocomunicativas da díade mãe-criança, tanto na atenção compartilhada e compartilhamento de tópico, como no contato afetivo. Foi observado o aumento dos níveis de empoderamento parental entre as fases pré e pós intervenção, sendo este entendido como uma influência do programa de orientação. Por fim, considera-se que a intervenção centrada na família, mais especificamente através da orientação parental, se mostra como uma possibilidade de favorecer o desenvolvimento precoce das habilidades sociocomunicativas de crianças com TEA.