Little is known about the experience of families of children with autism spectrum disorder (ASD) in community settings. The purpose of this research is to learn about the family experience when visiting a science museum, focusing on the motivations of the family, environmental features of the museum, strategies used by family members, and definitions of a successful visit to the museum. Data were collected through semistructured interviews and observations of four families that included a child with ASD. The families in this study appear to want the same community experiences for their children as families with typically developing children. Both the motivations for the visit and features of the environment appeared to influence the family’s approach and strategies they employed for a successful visit. Strategies included those completed before the visit (visitor planning strategies), as well as during the visit (strategies at the museum). The strategies enabled families to enjoy and experience success within the museum environment. The information learned in this study may help families with a child with ASD prepare for and use features of the museum to enjoy successful museum visits. Recommendations are provided for museums seeking to create inclusive opportunities for all families.

Bakgrund: Den kroniska sjukdomen diabetes typ 1 har under 2000- talet ökat i västvärlden. Diabetes typ 1 kan drabba alla människor i alla åldrar men uppstår främst hos barn och ungdomar i åldrarna 0-18 år. Förhållningssättet familjefokuserad omvårdnad används inom vård och omsorg för att fokusera på den betydelse som en familj har för individens upplevelse av sjukdom och ohälsa.Syfte: Beskriva familjens upplevelser av att leva med ett barn som har diabetes typ 1.Metod: En litteraturöversikt baserad på 10 stycken kvalitativa artiklar.Resultat: Fem kategorier har utvecklats utifrån vad föräldrar och syskon upplever i vardagslivet tillsammans med barnet som lever med diabetes typ 1. Dessa kategorier är Skuld och sorg, Oro, rädsla och brist på kontroll, Tvivel och känsla av kunskap, Frustration och orättvisa samt Acceptans. Slutsats: Resultatet visar att det finns många upplevelser och känslor som framkommer hos en familj som lever med ett barn som har diabetes typ 1. Det kan som familj vara svårt att anpassa sig till en helt ny livssituation, bibehålla kontrollen över situationen samt att veta hur egenvård ska utföras utifrån barnets bästa. / Background: The chronic disease diabetes has increased during the 21st century in the western countries. Diabetes type 1 can affect everyone but mostly it can be seen in children and youth between ages 0-18 years. Family focused care is an approach which are used in the healthcare. This approach is focused on the family influence of the individual perception of sickness and unhealth.Aim: Describe the family’s experiences when living with a child with diabetes type 1.Method: A literature study, made out of 10 qualitative studies.Results: Five categories have been developed based on what parents and siblings experienced in the daily life with a child diagnosed with diabetes type 1. These categories are Guilt and grief, Worry, fear and lack of control, Doubts and feeling of knowledge, Frustration and injustice and Acceptance.Conclusions: A lot of different emotions and experiences are seen within the family who lives with a child diagnosed with diabetes type 1. It can be difficult for the family to adjust to a completely new life which involves to remain in control over the situation and to know how self-care shall be executed regarding the child best interest.

Background: Patient experience has become an essential quality indicator in healthcare. Purpose: The purpose of this thesis was to conduct a concept analysis of the patient experience. Methods: Walker and Avant’s methodology served as the framework for this concept analysis. Data were retrieved from seven databases and one search engine. The literature search used keywords related to "patient experience" and included articles published at any time up until March 2018. A total of 257 articles and organizational websites were included in the analysis after meeting the inclusion criteria. Results: Twenty attributes were found to define the patient experience: communication, respect for patients, information/education, patient-centered care, comfort/pain, discharge from hospital, hospital environment, professionalism/trust, clinical care/staff competency, access to care, global ratings, medication, transitions/continuity, emotional dimension, outcomes, hospital processes, safety/security, interdisciplinary team, social dimension, and patient dependent features. Conclusion: The results of this study will guide and clarify the critical concepts towards an explicit definition of the patient experience.

Background: Every year 250,000 children worldwide receive the unimaginable diagnosis of cancer. A cancer diagnosis inflicts a major impact on the family situation. They must deal with an entirely, both emotionally and socially new situation they are not prepared for. It is of great importance that the nurse has adequate knowledge to be able to provide the best possible care to the entire family. Aim: The aim of this study was to describe the family members' experiences of losing a child in cancer. Method: A method to contribute to evidence-based nursing with ground in analysis of qualitative research was performed to get a better understanding of families' experiences. An analysis of thirteen qualitative articles was carried out. The analysis resulted in five main themes and sixteen subthemes. Results: The results of the study showed that families losing a child in cancer are having a heart-breaking time. They described combative feelings between hope and despair. The mothers often took care of the sick child at home and the fathers kept their minds busy while working. The families put all their own needs and sorrows aside. The siblings felt lonely since the parents took care of the sick child. After the passing, the family kept a bond to the deceased child through memories and dreams. Conclusion: The families experienced a greater need of support from the nurses and the hospital staff, during the time when the child was sick and after the death.

The diagnosis of children with Attention Deficit Hyperactivity Disorder (ADHD) has increased over the last few years in Australia. ADHD is currently understood largely through a medical perspective, and in that context, the treatment recommended is stimulant medication. ADHD is a mental health label given to children who exhibit challenging behaviour. These children are diagnosed according to the categories stated in the Diagnostic Statistical Manual (DSM) – IV. To date, there is no medical test children can undertake to show that they ‘have’ ADHD. This research focuses on an alternative view of ADHD. Focussing upon families’ experience of ADHD, and the medicalisation of children’s behaviour, it argues that behaviour is socially influenced and constructed. It is because insufficient attention has been given to the family experience and the social implications of ADHD, that the child is often seen as ‘the problem’. The gap in our understanding of ADHD is situated in our understanding of the broader social context. To challenge this I will explore perceptions of the ‘good child’, ‘good mothers’ and the social consequences of inappropriate behaviour. Each family was interviewed five times every three months over a two-year period. Their stories and experiences are presented in this thesis.