A qualitative phenomenological study using van Manen’s human science method was conducted to gain insight into the lived experience of patients and their family members transitioning through one hundred days post haematopoietic stem cell transplantation (HSCT). Three families between zero and five years post HSCT were recruited from a bone marrow transplant unit in central Canada. Multiple in-depth open-ended interviews and field notes were employed to arrive at a detailed description of the lived experience of patients and family members. Awakening from the cocoon emerged as the main essence of patient’s and family members’ experiences, supported by three themes: the disruptions, the chrysalis, and new beginnings. The results from this study provide evidence that the families viewed the HSCT in a positive perspective and highlight the importance of supporting families throughout the acute phase of transplantation.

A qualitative phenomenological study incorporating Photovoice was conducted to gain insight into the lived experience of patients with end-stage heart failure (ESHF). Seven participants were recruited and in-depth open-ended interviews were conducted with all participants. Three of the seven informants also opted to take part in the Photovoice portion of the project. “Working to preserve a sense of self” emerged as the essence of living with ESHF and was supported by three themes: i) the work of managing a failing and unreliable body, ii) the work of choreographing daily living; and iii) the work of charting the final chapter of one’s life. The findings from this study provide healthcare professionals with empirically grounded information and insights about the needs and everyday challenges individuals living with ESHF experience, and how clinicians can best support them. Such information is essential in order to plan meaningful, holistic, evidence-based care for ESHF patients.

A qualitative phenomenological study using van Manen’s human science method was conducted to gain insight into the lived experience of patients and their family members transitioning through one hundred days post haematopoietic stem cell transplantation (HSCT). Three families between zero and five years post HSCT were recruited from a bone marrow transplant unit in central Canada. Multiple in-depth open-ended interviews and field notes were employed to arrive at a detailed description of the lived experience of patients and family members. Awakening from the cocoon emerged as the main essence of patient’s and family members’ experiences, supported by three themes: the disruptions, the chrysalis, and new beginnings. The results from this study provide evidence that the families viewed the HSCT in a positive perspective and highlight the importance of supporting families throughout the acute phase of transplantation.

A qualitative phenomenological study incorporating Photovoice was conducted to gain insight into the lived experience of patients with end-stage heart failure (ESHF). Seven participants were recruited and in-depth open-ended interviews were conducted with all participants. Three of the seven informants also opted to take part in the Photovoice portion of the project. “Working to preserve a sense of self” emerged as the essence of living with ESHF and was supported by three themes: i) the work of managing a failing and unreliable body, ii) the work of choreographing daily living; and iii) the work of charting the final chapter of one’s life. The findings from this study provide healthcare professionals with empirically grounded information and insights about the needs and everyday challenges individuals living with ESHF experience, and how clinicians can best support them. Such information is essential in order to plan meaningful, holistic, evidence-based care for ESHF patients.

This comparative study of the experiences of gay HIV positive men living in urban and rural areas explores the dynamic interrelationship between lived experience and service provision. The literature in this field has drawn on a familiar stereotype - the urban, sexually active, gay man. This man - and his community - does not exist in a rural environment in the way it is assumed nor does it necessarily fit the experience of gay men in London. By creating a link between the questions of subjectivity and the question of how we improve services, I argue that a mechanistic construction of need may follow an assumed urban model which may not hold for all men in an urban setting, nor for men in rural areas. Gay HIV positive men are faced with new psycho-social dilemmas in relation to the virus, including unpredictability of outcome, as well as the complexity and burden of the current treatment. They engage in a constant process of renegotiating their sense of themselves in space, time and relationships. Through the use of narrative methodology, my research builds a new perspective on the experience of these individuals which can help to shape the services and policies of the future. The stories of 21 gay HIV positive men were gathered and analysed in relation to five areas of focus: community/space, relationships, identity, health and services. Rural participants were less able to build and maintain a politically strong identity and rural services need to create strategies to enable gay men to draw on the strength of a collective voice. 'Doing for' services, prevalent in rural areas, may be appropriate for the very ill but can perpetuate a culture of helplessness. The healthist discourse adopted by London services promotes individualism and responsibility. Services for HIV positive men in all areas need to hold the dynamic between 'doing for' services for the sick and dying and a healthist discourse for those who can look to their future.

This dissertation can broadly be summarized as an examination of the construction and maintenance of a specific type of “authentic” American identity through the lens of folk music. Drawing from interpretive perspectives within the sociology of culture and social psychology, social constructionism and symbolic interactionism in particular, I combine ethnographic research with 61 interviews at two different “folk musicians’ festivals” (festivals where attendees, not hired professionals, produce the music). My principal focus at these festivals concerns the various practices and stories surrounding the creation and performance of original folk music. I use the empirical platform of musicians’ festivals, where folk songwriters are plenty, combined with the theoretical synthesis of music and narrative, to examine how such practices and stories shape, and are shaped by, culture, emotion, and identity. Specifically, I am interested in the cultural “work” accomplished by the interrelationships among music and narrative at festivals, around songwriting, and in songs, particularly as such “work” relates to the (re)production and reception of folk and festival culture, participants’ emotional experiences, the construction and maintenance of participants’ personal and collective identities, and the purposeful evocation of social change. In attending to the importance of process and meaning-making, I examine the process through which one accomplishes authenticity as a folk and festival member, the creative process of songwriting, and the process through which listeners experience and interpret “good songs.” I offer the concepts (and processes) of songwriting as inquiry and songwriting in action to account for how these interrelationships “work” for songwriters and listeners, but also for sociologists, particularly in terms of including the (mostly neglected) lived and embodied dimensions of emotional experience. Throughout, I explore how stories and practices in and around the process of musical production and performance are largely influenced by broader cultural narratives that circulate in and around folk music culture, particularly as they relate to the notion of “authentic identity” through emotionality, creativity, and social justice.

The purpose of this research was to explore the experiences of children diagnosed with Autism Spectrum Disorder in a therapeutic social group. Using a social constructionist theoretical framework and drawing on disability theories, the study examined how participants’ experiences were co-constructed through relationships, language and socio-political factors. A generic qualitative research paradigm was used with particular attention paid to social constructionist methodology. Video recordings and field notes were collected over three sessions during an established therapeutic social group at a community organization with five children ages 10-13, and two adult group facilitators. Verbatim transcripts were analyzed using an inductive process that took into account and acknowledged the co-construction of the information. Salient themes were identified based on multiple readings of the data, analyzing and re-analyzing how the experiences of children in the group are constructed. The research emphasizes the strengths and skills exhibited by the children, their strong friendships with one another and how they construct their identities. The study also examines how the highly structured learning environment produced an artificial quality to “real world” experiences and questions what “normal” social skills are. The research highlights how both children and facilitators assume deficits and explores the label of autism from a socio-political lens. The study contributes to the research on lived experiences of children with autism, including insights into how practitioners can work with children rather than providing services to them. / Graduate

Magister Psychologiae - MPsych / The aim of this study was to explore how HIV positive people understand and describe their experience of taking antiretroviral treatment consistently in a strictly organised regimen. Eight participants were recruited from Ikhwezi Clinic. The participants were interviewed using an in depth interview guide. A Phenomenological data analysis was employed through which six themes emerged. The themes are forgetting and memory aids, fitting treatment into daily routine, belief in effectiveness of medication, experiences of side effects, disclosure and social support and relationship with the health care provider. The health belief model and the self-efficacy theory were applied in the study. These theories helped to understand that the decision to take treatment is not only based on the individual experiences and beliefs but the interaction with the social and environmental factors as well. Family, community and health care factors are all interconnected and play a vital role in the decision to commence and continue with HAART. The study revealed that PLWHA can adhere to antiretroviral medication if they believe in the benefits of doing so. Furthermore it became clear that experiences of men and women differ when it comes to HAART. The involvement of the inlaws as experienced by the women in this study had a negative influence in the participants' adherence routine. Further studies are needed to explore the influence of culture in decision making by women with regards to their health.

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Chronic pain disorders are estimated to affect a significant proportion of the global population. These disorders are often debilitating and pose a substantial challenge to the everyday life of those affected. Modern medicine has made great strides in understanding the physiological processes involved in chronic pain. However, chronic pain is more than merely a physiological process. Chronic pain is an embodied mode of being-in-the-world that manifests in multiple aspects of lived experience, from the ability to perform day-to-day tasks to the relationship between body and self. Consequently, it is essential to cultivate a rich appreciation of chronic pain as a lived experience. To rely solely on physiological knowledge in conceptualizing chronic pain precludes the development of such an appreciation. This work examines the ways that phenomenology can be leveraged to broaden the current medical understanding of chronic pain to better incorporate subjective experience. As a rigorous methodology for studying embodied consciousness, phenomenology provides the theoretical and conceptual tools to form a rich description of chronic pain's lived experience. First, a brief history of theories of pain is presented to contextualize the development of modern medical understandings of chronic pain. Following this, the writings of three classical phenomenologists—Husserl, Heidegger, and Merleau-Ponty—are presented, and key phenomenological concepts are introduced. Phenomenology is then used to examine the lived experience of chronic pain. Finally, means of integrating phenomenology into the current medical framework are explored.