Living arrangements play a key role in affecting participation of people with intellectual disabilities (PwIDs) in the community. Yet, the role of living arrangements in affecting participation has received relatively scant attention, especially from the insider's perspectives. This qualitative study sought to gain an insider's perspective from PwIDs in understanding the meaning of community participation, and the role of different community living arrangements in promoting community participation. Five adults with intellectual disability who were living independently with support were interviewed for this study. A model of full participation was developed to address the relationship between community living and community participation constituting four themes; level and type of support, learning experiences, freedom and choice, and privacy and safety. No gold standard for ideal community participation emerged from the study. Community participation of PwIDs was identified as involvement in meaningful and learning activities as required by the person. / October 2015

The objective of the study was to explore social integration of people with intellectual disabilities (ID) in the workplace and to identify the characteristics of positive workplace culture for them. An in-depth qualitative case study was conducted at two worksites to explore the process of social integration. Sources of information included company documents, on site observations, and interviews that were conducted for the following purposes: 1. to describe employees with IDs’ perceptions and needs of social integration and their experiences of social relationships in work settings; 2. to explore co-workers’ perceptions of and relationships with employees with ID; and 3. to identify what characteristics of workplace culture contributed to or detracted from social integration for people with ID. One workplace was an educational organization where four workers with ID were employed, the other a restaurant franchise where one worker with ID was employed. The participants with ID from both worksites believed people with and without disabilities should work together and felt they were included in their workplaces. The co-workers interviewed had positive opinions of fellow employees with ID. Several characteristics of workplace culture had an impact on social integration for employees with ID, including a job structure that promotes social interactions, work pace within the work setting, group or individual employment, culture of acceptance within the work setting, and a supportive managerial approach. The results of the current study have provided strategies to enhance social integration for employees with ID, and highlighted a number of potentially beneficial workplace conditions that merit additional study. Service providers can act as advocates to help create a work environment that emphasizes acceptance and respect for workers in this population. / Thesis (Master, Rehabilitation Science) -- Queen's University, 2008-02-01 15:55:38.935 / South Eastern Ontario Community-University Research Alliance in Intellectual Disabilities

[Truncated abstract] Background Performance measurement in the not-for-profit sector is extremely important in terms of measuring the efficiency and effectiveness of organisations in achieving their goals. Performance indicators assist management in strategic decision making and fulfilling their accountability obligations for the best use of limited resources to funders, purchasers, consumers, and other stakeholder groups. Aim This thesis seeks to further the research into performance measurement in the notfor- profit sector by evaluating the effectiveness of different methods of employment (open employment and supported employment) for people with intellectual disabilities. The disability employment sector is selected as the sector in which to undertake this research, as there are hundreds of disability employment agencies across Australia, which either support people with intellectual disabilities in supported employment or place them into open employment; each of whom contracts directly with the Australian Commonwealth Government for the services they must provide in order to receive funding. Method The Eggleton (1991) performance measurement framework is used to justify the measurement of the effectiveness of the different methods of employment based on the job satisfaction and quality of life of individuals participating in each method of employment. Job satisfaction is measured using a refined version of the Barlow and Kirby (1991) job satisfaction questionnaire, while quality of life is measured using both a refined version of the Schalock and Keith (1993) quality of life questionnaire, and the original questionnaire. One hundred and seventeen people with intellectual disabilities, who were employed in either supported employment or open employment, are interviewed. Statistical analyses are conducted on the entire sample, and also on various sub-samples that control for differences between participants in open employment and supported employment in terms of the type of occupation performed, living environment, and functional work ability.

Bakgrund Intellektuell funktionsnedsättning [IF] omfattar komplexa och varierande hälsoproblem. Personer med IF lider ofta av samsjuklighet och är därför en vanligt förekommande patientgrupp inom hela den somatiska hälso- och sjukvården. Det är däremot inte lika vanligt förekommande att det finns hälso- och sjukvårdspersonal som besitter speciell kunskap om personer med IF. Hälso- och sjukvårdspersonalens begränsade kunskap om IF i kombination med kommunikationshinder som kan uppstå i vårdmötet riskerar att resultera i att personcentreringen i omvårdnaden brister och patienter med IF löper en högre risk att drabbas av vårdskador jämfört med personer utan IF. Syfte Syftet med denna litteraturöversikt var att undersöka hur personer med intellektuell funktionsnedsättning och deras vårdare upplever den somatiska hälso- och sjukvården. Metod Databassökningar utfördes i PubMed och CINAHL och 14 vetenskapliga originalartiklar som uppfyllde författarnas inklusionskriterier valdes ut för att inkluderas i resultatet. Samtliga 14 artiklar kvalitetsgranskades utifrån Sophiahemmet Högskolas bedömningsunderlag för vetenskaplig klassificering och kvalitet. Författarna utförde sedan en integrerad dataanalys för att sammanställa resultatet. Resultat Tre huvudteman och sju underteman identifierades efter att ha sammanställt resultaten av de 14 originalartiklarna. Dessa tre huvudteman var: upplevelser av information och kommunikation; upplevelser av kunskap och attityder; och upplevelser av relation och tillit. Resultatet belyste att personer med IF och deras vårdare upplevde bristande kommunikation, otillräcklig kunskap och negativa attityder hos hälso- och sjukvårdspersonalen. Dessa brister tillsammans med otillgänglig information, undermåliga vårdanpassningar och dålig kontinuitet resulterade i bristande tillit till hälso- och sjukvården och dess personal. Slutsats För att främja en personcentrerad och patientsäker vård och förbättra personer med IF:s och deras vårdares upplevelser av den somatiska hälso- och sjukvården är det nödvändigt att sjuksköterskor får en ökad kunskap om IF och kommunicerar med personer med IF på ett tydligt och respektfullt sätt. / Background People with intellectual disabilities [ID] have complex and varied health issues and commonly suffer from co-morbidity. Therefore, it is not uncommon to find patients with ID within the somatic health care system. It is, however, not as common for health care staff to possess knowledge about people with ID. The health care staff's limited knowledge of ID in combination with communication barriers that can arise often result in a lack of person-centered care. Patients with ID are therefore at a greater risk of getting harmed in health care compared to people without ID. Aim The aim of this literature review was to investigate how people with intellectual disabilities and their carers experience somatic health care. Method Database searches were performed in PubMed and CINAHL and resulted in the inclusion of 14 original scientific articles that met the authors' inclusion criteria. All 14 articles were quality-checked based on Sophiahemmet University's assessment document for scientific classification and quality. The results were then compiled using integrated data analysis. Results Three main themes and seven sub-themes were identified after collating the results of the 14 original articles. The three main themes were: experiences of information and communication; experiences of knowledge and attitudes; and experiences of relationship and trust. The result highlighted that people with ID and their carers experienced inadequate communication and knowledge, as well as negative attitudes from health carestaff. These faults, in combination with inaccessible information, substandard care adaptations and poor continuity, resulted in a lack of trust in the health care system and itsstaff. Conclusions It is of necessity that nurses gain an increased knowledge about people with ID and learn how to communicate with them in a clear and respectful manner, to ensure that people with ID receive a safe and person-centered care and to improve people with ID and their carers' experiences of health care.

My diploma thesis is called The Palliative Care of Dying People with Intellectual Disabilities in Sheltered Housing. The purpose of the text is to create an overview study of palliative care about dying people with mental disabilities. The reason why I have decided to focus on such a relevant issue is a wide shortage of information in Czech Republic compared to other countries. People with mental disabilities nowadays tend to live longer and the question of palliative care for them is crucial. My thesis is divided into six main sections. In the first section I talk about the ethics dilemma of palliative care. By ethics dilemma I mean problems that are needed to be dealt with in palliative care. One of them is the decision if it is adequate to die in an institution or in a home environment. In this section for instance it is described if it is necessarily to tell the truth the patients about their health conditions. The text is also referring to the medical advances comparing to quality of life of dying people. I also describe what the quality of life means to people and how to reach the highest level of quality of life in palliative care. In the second part of my thesis I describe the social, health and other services which are suitable for dying people and their relatives. Most of the named...

The diploma thesis is called: Transformation of social services from the perspective of social workers in residential services in Příbram. The aim of my work is to briefly describe the process, development and objectives of transformation and deinstitutionalization of social services and to supplement it with an empirical qualitative survey. This topic is currently very topical and becomes a big dilemma from the point of view of all workers who are interested in the social area. The main aim of my work is to collect essential information with the help of professional literature and to put forward practical recommendations that will be useful in connection with the possibilities of people with mental disabilities in Příbram. I give these recommendations during the discussion and at the conclusion. I also found out how social workers who work in residential facilities for people with mental disabilities in Příbram or the department of social services Příbram perceive the transformation of social services. The aim of the thesis is not to analyze the transformation of social services in the Czech Republic in its entirety. The aim of my work is neither representative research nor scientific data analysis. I drew from the articles of professional journals and books especially Czech specialists who are...

Submitted by Alison Vanceto (alison-vanceto@hotmail.com) on 2016-10-14T12:58:50Z No. of bitstreams: 1 DissPZ.pdf: 2379902 bytes, checksum: 3d85c7cb172086f952ad3307da8052e5 (MD5) / Approved for entry into archive by Ronildo Prado (ronisp@ufscar.br) on 2016-10-14T17:40:26Z (GMT) No. of bitstreams: 1 DissPZ.pdf: 2379902 bytes, checksum: 3d85c7cb172086f952ad3307da8052e5 (MD5) / Approved for entry into archive by Ronildo Prado (ronisp@ufscar.br) on 2016-10-14T17:40:46Z (GMT) No. of bitstreams: 1 DissPZ.pdf: 2379902 bytes, checksum: 3d85c7cb172086f952ad3307da8052e5 (MD5) / Made available in DSpace on 2016-10-14T17:51:07Z (GMT). No. of bitstreams: 1 DissPZ.pdf: 2379902 bytes, checksum: 3d85c7cb172086f952ad3307da8052e5 (MD5) Previous issue date: 2016-02-25 / Não recebi financiamento / This research aimed to evaluate the effectiveness of the "Community Life Program" for parents/family in order to promote independence in life activities in the community for young people with Intellectual Disabilities. Participants were four young people with intellectual disabilities aged 19-29 years who formed dyads with their family member. The research took place in two cities in São Paulo State, Brazil, in community places near the residence of these young people. With dyads 1 and 3 it was worked shopping activities and with the dyads 2 and 4 it was worked activities related to moving around community. It was employed the intermittent multiple baseline design across subjects to verify the effects of program implementation and to demonstrate the validity of experimental control and manipulation of the study variables. The independent variable was introduced at different moments for participants. The dependent variable was analyzed before, during and after the implementation of the program. The “Community Life Program” was employed based in theoretical and practical intervention sessions. In the theoretical sessions it was used instructional material to assist parents/family members during the sessions and also in the absence of the researcher. The practice sessions were recorded and analyzed by the observation protocol. The results showed that, when the intervention was started with the implementation of the program, parents/family started demonstrating more appropriate responses, which favored the learning of young people with intellectual disabilities, which increased the percentage of independence in performing the activities. These results were maintained over time in all dyads and generalized to other contexts in dyads 1, 2 and 4. The dyad 3 did not perform generalization sessions due to non-availability of the mother. The good performance achieved by the participants may have been possible due to changing environmental contingencies provided from the implementation of the "Community Life in the program." It is noteworthy that teaching the activity for each of the young people provided learning in various skills that generalized to other functional activities. This study presents contributions on the implementation of a program to assist parents / family in education of young people with intellectual disabilities, especially with regard to the teaching of adaptive activities in the "Community Life" to promote the inclusion and participation in society and improve quality of life. / Esta pesquisa teve como objetivo geral avaliar a eficácia do “Programa Vida na Comunidade” para pais/familiares com a finalidade de favorecer a independência em atividades de vida na comunidade de jovens com Deficiência Intelectual. Participaram do estudo quatro jovens com deficiência intelectual na faixa etária de 19 a 29 anos, que formaram díades com seus respectivos familiares. A pesquisa ocorreu em duas cidades do interior paulista em locais da comunidade próximos à residência dos jovens. Com as díades 1 e 3 foi trabalhada a atividade “fazer compras” e com as díades 2 e 4 a atividade “deslocar-se na comunidade”. Utilizou-se o delineamento de linha de base múltipla intermitente entre sujeitos para verificar os efeitos da implementação do programa e demonstrar a validade interna, o controle experimental e a manipulação das variáveis do estudo. Introduziu-se a variável independente em diferentes momentos para os participantes e analisou-se os efeitos na variável dependente antes, durante e após a implementação do programa. Atividades teóricas e práticas de intervenção foram trabalhadas no “Programa Vida na Comunidade”. Nas sessões teóricas foi utilizado um material instrucional para auxiliar os pais/familiares durante as sessões e também na ausência da pesquisadora. As sessões práticas foram gravadas e analisadas por meio do protocolo de observação. Os resultados demonstraram que, ao iniciar a implementação do programa, os pais/familiares passaram a emitir mais respostas adequadas, o que favoreceu a aprendizagem dos jovens com deficiência intelectual e aumentou a porcentagem de independência na realização das atividades. Esses resultados foram mantidos ao longo do tempo em todas as díades e generalizados para outros contextos nas díades 1, 2 e 4, visto que a díade 3 não realizou as sessões de generalização devido à não disponibilidade da mãe. O bom desempenho alcançado pelos participantes pode ter sido possível devido à mudança de contingências ambientais proporcionadas a partir da implementação do “Programa Vida na Comunidade”. Ressalta-se que o ensino de uma atividade para cada um dos jovens proporcionou a aprendizagem de diversas habilidades que podem ser generalizadas a outras atividades funcionais. O presente estudo apresenta contribuições sobre a aplicação de um programa para auxiliar pais/familiares no ensino de jovens com deficiência intelectual, principalmente com relação ao ensino de atividades adaptativas na área de “Vida Comunitária”, favorecendo a inclusão e participação na sociedade e a melhora na qualidade de vida.

This diploma thesis, "Institute or field services?", deals with the topic of social services for people with intellectual disabilities. It focuses on the analysis of various types of social services - field, outpatient and residential services - due to the specific needs of different clients with intellectual disabilities. The aim of the thesis is to determine the structure of clients in residential institutions for people with intellectual disabilities and to identify factors on which families choose to use specific social services and determine the views of stakeholders in the field of social services on the benefits and limits of those types of services for people with intellectual disabilities. The issue of social services is assessed through the theoretical concept of rights of people with intellectual disabilities and the concept of de-institutionalization of social services. As a research method the questionnaire was used for providers of residential services in the capital city of Prague and interviews with various stakeholders in the field of services for people with intellectual disabilities. The conclusion discusses the most important issues in the care of people with intellectual disabilities and specific recommendations for improving the issue.