An estimated 33.0 million people are currently living with HIV/AIDS worldwide. Of these, 15.5 million are women, and 2.2 million children under the age of 5 years who have mainly been infected through mother-to-child transmission. Mothers and babies are increasingly infected and about 90% of these are in sub-Saharan Africa. The same trend can be identified in South Africa, which has one of the highest incidences and prevalence rates of HIV/AIDS in the world with 5-6 million people living with HIV/AIDS. Women of childbearing age constitute 55% of all HIV positive adults and a quarter of pregnant women (28%) in South Africa are HIV positive. The HIV/AIDS epidemic is overburdening hospital systems and it will continue to grow within the context of already massively overstretched public resources. This increase also impacts on health services in the North West Province which are facing an alarming increase in mothers and babies living with HIV/AIDS. One of the strategies that are implemented to reduce maternal deaths is the Prevention-of-Mother-to-Child Transmission (PMTCT) Programme and massive roll out of Antiretrovirals during puerperium. One of the goals of the PMTCT programme is to prevent transmission of HIV/AIDS from mothers to babies and reduce child, perinatal and neonatal morbidity and mortality. This strategy is integrated with Non-Governmental Organizations (NGOs) and community-based organizations (CBOs) in care of mothers and babies living with HIV/AIDS during puerperium. Successful implementation of this programme requires social support and community involvement because of short hospitalization during the postnatal period. Caregivers are trained to perform various tasks and fulfil certain roles due to lack of human resources. Caregivers implementing the PMTCT programme experience problems which lead to stress and one of the causes of this stress manifests in feelings of inadequacy and isolation. They are faced with problems pertaining to mothers not adhering to treatment, and poverty is an additional source of stress as it negatively affects the quality of the PMTCT services they need to provide. This research was conducted in the Bojanala region, Rustenburg Sub-District of the North West Province in South Africa. A descriptive, exploratory, qualitative research design was utilized to explore and describe the lived experiences of caregivers while implementing the PMTCT programme as well as perceptions of health workers coordinating the PMTCT programme in order to gain a more thorough understanding of the support needed by caregivers during puerperium. Two populations were used. In population one, purposive sampling was used to select caregivers. In population two inclusive sampling was used to select health workers. In-depth interviews were conducted with both populations with the aim to collect data. From the research findings similarities were identified between the two populations regarding support, namely: (a) Caregivers need personal support in the form of counselling as well as support networks to enable them to deal with the problems they are faced with. (b) Caregivers need financial support to afford basic essentials and better remuneration to meet their financial needs. (c) Caregivers need to be trained in areas in which they lack knowledge -continued development and empowerment is essential. They also need to be trained specifically in PMTCT and they need a PMTCT consultant to always be available to support them. (d) Improvement of the PMTCT services by providing transport to follow up mothers, protective resources to protect themselves against infections as they are at risk of infections, water is essential as a basic human right, provision with food parcels to mothers who are poverty stricken and the PMTCT health services to be intensified from the antenatal period. (e) Management to establish a caring environment by displaying a caring attitude, respecting them and providing them with rewards to improve morale and performance. Recommendations were made for the fields of nursing education, nursing research and community health practice with recommendations to establish a structure of support for caregivers to enhance the PMTCT programme during puerperium. These recommendations were discussed under the five themes presented above. / Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2010.

An estimated 33.0 million people are currently living with HIV/AIDS worldwide. Of these, 15.5 million are women, and 2.2 million children under the age of 5 years who have mainly been infected through mother-to-child transmission. Mothers and babies are increasingly infected and about 90% of these are in sub-Saharan Africa. The same trend can be identified in South Africa, which has one of the highest incidences and prevalence rates of HIV/AIDS in the world with 5-6 million people living with HIV/AIDS. Women of childbearing age constitute 55% of all HIV positive adults and a quarter of pregnant women (28%) in South Africa are HIV positive. The HIV/AIDS epidemic is overburdening hospital systems and it will continue to grow within the context of already massively overstretched public resources. This increase also impacts on health services in the North West Province which are facing an alarming increase in mothers and babies living with HIV/AIDS. One of the strategies that are implemented to reduce maternal deaths is the Prevention-of-Mother-to-Child Transmission (PMTCT) Programme and massive roll out of Antiretrovirals during puerperium. One of the goals of the PMTCT programme is to prevent transmission of HIV/AIDS from mothers to babies and reduce child, perinatal and neonatal morbidity and mortality. This strategy is integrated with Non-Governmental Organizations (NGOs) and community-based organizations (CBOs) in care of mothers and babies living with HIV/AIDS during puerperium. Successful implementation of this programme requires social support and community involvement because of short hospitalization during the postnatal period. Caregivers are trained to perform various tasks and fulfil certain roles due to lack of human resources. Caregivers implementing the PMTCT programme experience problems which lead to stress and one of the causes of this stress manifests in feelings of inadequacy and isolation. They are faced with problems pertaining to mothers not adhering to treatment, and poverty is an additional source of stress as it negatively affects the quality of the PMTCT services they need to provide. This research was conducted in the Bojanala region, Rustenburg Sub-District of the North West Province in South Africa. A descriptive, exploratory, qualitative research design was utilized to explore and describe the lived experiences of caregivers while implementing the PMTCT programme as well as perceptions of health workers coordinating the PMTCT programme in order to gain a more thorough understanding of the support needed by caregivers during puerperium. Two populations were used. In population one, purposive sampling was used to select caregivers. In population two inclusive sampling was used to select health workers. In-depth interviews were conducted with both populations with the aim to collect data. From the research findings similarities were identified between the two populations regarding support, namely: (a) Caregivers need personal support in the form of counselling as well as support networks to enable them to deal with the problems they are faced with. (b) Caregivers need financial support to afford basic essentials and better remuneration to meet their financial needs. (c) Caregivers need to be trained in areas in which they lack knowledge -continued development and empowerment is essential. They also need to be trained specifically in PMTCT and they need a PMTCT consultant to always be available to support them. (d) Improvement of the PMTCT services by providing transport to follow up mothers, protective resources to protect themselves against infections as they are at risk of infections, water is essential as a basic human right, provision with food parcels to mothers who are poverty stricken and the PMTCT health services to be intensified from the antenatal period. (e) Management to establish a caring environment by displaying a caring attitude, respecting them and providing them with rewards to improve morale and performance. Recommendations were made for the fields of nursing education, nursing research and community health practice with recommendations to establish a structure of support for caregivers to enhance the PMTCT programme during puerperium. These recommendations were discussed under the five themes presented above. / Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2010.

Paternal incest is the intimate sexual contact between biological, step or foster fathers and their children. These father-figures include the live-in partners of the non-offending mother. The actual incidence of paternal incest in South Africa is not known; however, the South African Police Services report the incidence of incest in the Western Cape for 2011/2012 to be the second highest in South Africa. When children reveal the incest to any person, this is called disclosure. After disclosure and with the removal of the paternal figure from the family unit, the mother or grandmother is responsible for the sole care of the child-victim and becomes the primary caregiver. However, in the South African context it is traditionally accepted that the grandmother assumes the role of primary caregiver of the child where the child’s mother and/or father are unable to fulfil their parental role adequately. Therefore in this study, “primary caregivers” refers to mothers and maternal grandmothers. In the South African context, limited studies have been done that explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest. There is also a lack of information on how to support these primary caregivers in the abovementioned context. The aim of this study was firstly to explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest and secondly to use these experiences to suggest guidelines that may be utilised by practitioners (such as social workers and registered counsellors) to develop support programmes for these caregivers. The research was conducted at a non-profit organisation in the Western Cape Province of South Africa, that provides psychosocial services and where cases of paternal incest are referred for intervention. A qualitative, phenomenological research design was applied in this study to obtain rich data. Six primary caregivers were chosen through purposive sampling, on the basis that their children or grandchildren were exposed to paternal incest within the last five years. Of these, four were mothers and two were maternal grandmothers who were responsible for the children. Data was collected through in-depth interviews and was analysed thematically. Two main themes emerged from the study. The first theme involved reactions to the disclosure and its aftermath, which encompassed emotional, cognitive and physiological reactions that are similar to secondary traumatisation. The second theme was coping strategies that emerged to deal with the disclosure and its aftermath, which encompassed effective coping strategies (behavioural coping strategies to actively solve problems and the presence of social support), unhealthy or negative coping strategies (behavioural coping strategies of avoidance) and threats to coping (a lack of social support). The contribution of this study lies in the suggestion of guidelines for the support of primary caregivers whose children or grandchildren were exposed to paternal incest. These guidelines include the provision of emotional support, multidisciplinary practitioner support and educational support programmes. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

Paternal incest is the intimate sexual contact between biological, step or foster fathers and their children. These father-figures include the live-in partners of the non-offending mother. The actual incidence of paternal incest in South Africa is not known; however, the South African Police Services report the incidence of incest in the Western Cape for 2011/2012 to be the second highest in South Africa. When children reveal the incest to any person, this is called disclosure. After disclosure and with the removal of the paternal figure from the family unit, the mother or grandmother is responsible for the sole care of the child-victim and becomes the primary caregiver. However, in the South African context it is traditionally accepted that the grandmother assumes the role of primary caregiver of the child where the child’s mother and/or father are unable to fulfil their parental role adequately. Therefore in this study, “primary caregivers” refers to mothers and maternal grandmothers. In the South African context, limited studies have been done that explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest. There is also a lack of information on how to support these primary caregivers in the abovementioned context. The aim of this study was firstly to explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest and secondly to use these experiences to suggest guidelines that may be utilised by practitioners (such as social workers and registered counsellors) to develop support programmes for these caregivers. The research was conducted at a non-profit organisation in the Western Cape Province of South Africa, that provides psychosocial services and where cases of paternal incest are referred for intervention. A qualitative, phenomenological research design was applied in this study to obtain rich data. Six primary caregivers were chosen through purposive sampling, on the basis that their children or grandchildren were exposed to paternal incest within the last five years. Of these, four were mothers and two were maternal grandmothers who were responsible for the children. Data was collected through in-depth interviews and was analysed thematically. Two main themes emerged from the study. The first theme involved reactions to the disclosure and its aftermath, which encompassed emotional, cognitive and physiological reactions that are similar to secondary traumatisation. The second theme was coping strategies that emerged to deal with the disclosure and its aftermath, which encompassed effective coping strategies (behavioural coping strategies to actively solve problems and the presence of social support), unhealthy or negative coping strategies (behavioural coping strategies of avoidance) and threats to coping (a lack of social support). The contribution of this study lies in the suggestion of guidelines for the support of primary caregivers whose children or grandchildren were exposed to paternal incest. These guidelines include the provision of emotional support, multidisciplinary practitioner support and educational support programmes. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

This research involves the exploration of the potential, as well as the problems, of early adolescents’ relationships in the context of the school-and-home in a high-risk community in South Africa. Although researchers indicate that school performance and academic success is of key importance concerning positive youth development (You & Nguen, 2011), many South African adolescents are still part of the high incidence of repeating greades and drop-out statictics in this country (Louw, Bayat & Eigelaar-Meets, 2011). This study highlights one of the factors for school success, namely, the involvement of primary care givers in the school community. There is a need to explore adolescents’ perceptions of their primary care givers’ involvement in the school community, within the context of a high-risk South African community, since research within Positive Psychology also explores those resources which promote wellbeing and resilient coping. This study made use of the qualitative method and the results have been presented in an article format, as part of the dissertation. The aim of the article was to explore early adolescents’ perceptions of their primary care-givers’ involvement in the school community in a high-risk community. Participants (N=12) between the ages of twelve to fourteen years, from one school in the Delft Community, Cape Peninsula, were chosen in an un-biased fashion. The Delft community is one of the twenty identified high-risk communities in South Africa. Demographic information shows that the majority of the participants’ care-givers are not the biological parents. The findings indicate that early adolescents percieve their primary caregivers’ involvement in the school community, in a high-risk community, in the following ways: The meeting of basic needs, such as the provision of food, clothing and a home is essential for the adolescent’s school career; the emotional colour of the involvement of care givers is mostly negative, since school visitations involve the handling of problems, or the prevention of further problems; the early adolescent’s understanding of school success greatly matches that of his/her primary care- givers and is seen mostly in terms of either “pass” or “fail”; and early adolescents’ school careers and primary care-givers’ involvement within the context of a high-risk community involve experiences such as the exposure to continued poverty with various implications such as hunger, walking to school in an unsafe environment, as well as gang-violence, crime and substance abuse. This study shows that, besides the challenges that are associated with the adolescent life-phase, early adolescents also have to deal with various other problems that emanate from a high-risk community. These problems are generally matters of survival, and it is clear that these risks further strain well-being and the development thereof. Poor involvement of primary caregivers in the school community is one of the realities which early adolescents in a high-risk community have to deal with, and this poor involvement is indicative of not providing life essentials, as well as personal interest and encouragement. It is further the experience of negative emotions, such as fear in general and the “scared-ness” indicates adolescents’ fear for their own safety, as well as that of their friends and family. The participants in this study have all been affected directly and/or indirectly by the trauma of gang violence and the untimely death of a family member. In the midst of these challenges, the primary caregivers are mostly uninvolved in these vulnerable adolescents’ lives. Primary care-givers visit the school community mainly when they are summoned to handle “problems”. Primary care-givers generally have a negative association with the school community. The less negative experience of emotions indicates the absence of serious problems, such as the not-completion of school work. The scarce occurrence of positive emotions, such as primary care-givers that show compassion with early adolescents when they experience disappointment, is actually part of the participants’ experiences. The primary care- givers’ active helping with the early adolescents’ school tasks is uncommon and it is mostly focused on the prevention of the repetition of school grades. The presence of a family member (extended family) with school meetings has great value for the early adolescents’ perception of family as a protective factor for the well-being of the young person. This study presents an important contribution to Positive Psychology, as valuable information is presented to understand the early adolescent’s well-being and the context thereof. The specific descriptions of early adolescents’ perceptions of the involvement of their primary care-givers in the school community provide a description of the potential which can be unlocked in school-and-life choices. Findings have implications for policies regarding the promotion of well-being. Recommendations for further study are given. Possibilities for application includes the importance of the ecological impact and of partnerships, so that problems and the development of well-being can be addressed by primary care givers, school communities, faith communities, NGOs and universities. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

Child sexual abuse (CSA) is found to occur in alarming proportions worldwide. In South Africa, children represent almost half of the victims of known sexual abuse, and this is becoming a great concern, even being described as a silent epidemic. This alarming fact as well as the researcher’s experiences as a social worker in this field, resulted in her reviewing literature, in order to gain further insight into the current situation in South Africa. It was discovered that the number of successful CSA court cases reported to the Childline Western Cape centres, was significantly low, and that numerous complaints were being received by her colleagues at Childline from caregivers, regarding their dissatisfaction with the judicial system after reporting CSA. This dissertation therefore serves as a qualitative exploration of caregivers’ experiences of the South African judicial system after CSA has been reported. For the purpose of this study, the researcher used a descriptive qualitative research design so as to thoroughly describe the caregivers’ experiences. Semi-structured interviews were conducted with eight participants to gain rich descriptions of their experiences in this area. Three main themes that emerged through the content analysis were: the experiences with officials from the SAPS as part of the judicial system; the experiences with regard to social service delivery; and the experiences with the court and personnel as part of the judicial system. Several conclusions were drawn. The first was that there were both positive and negative experiences with officials from SAPS. A further conclusion was that the lack of knowledge about procedures needing to be followed in cases of CSA, as well as the uncertainty shown by some SAPS officials with regard to how to go about dealing with child victims of sexual abuse, gave some participants the impression that SAPS officials lack adequate training in this regard The researcher concluded from the empirical findings and the literature that there is a general sense that CSA investigations are poorly conducted. Another conclusion was that literature on statutory social service delivery in South Africa and the evaluation thereof seemed sparse. However, from the empirical findings regarding the participants’ descriptions, their experiences, particularly with statutory social workers, were negative. Finally, the researcher concluded that though literature indicated that several changes had been made in the judicial system so as to better deal with child victims of sexual abuse, the experiences of the participants indicated that challenges are still being experienced. The empirical findings indicated that caregivers of child victims of sexual abuse and their children had experienced great frustration when dealing with the judicial system after CSA had been reported. These frustrations were due to the investigation of CSA cases, the court process, and the lack of communication from prosecutors and other professionals in the judicial system. / Thesis (MSW)--North-West University, Potchefstroom Campus, 2013.

This research involves the exploration of the potential, as well as the problems, of early adolescents’ relationships in the context of the school-and-home in a high-risk community in South Africa. Although researchers indicate that school performance and academic success is of key importance concerning positive youth development (You & Nguen, 2011), many South African adolescents are still part of the high incidence of repeating greades and drop-out statictics in this country (Louw, Bayat & Eigelaar-Meets, 2011). This study highlights one of the factors for school success, namely, the involvement of primary care givers in the school community. There is a need to explore adolescents’ perceptions of their primary care givers’ involvement in the school community, within the context of a high-risk South African community, since research within Positive Psychology also explores those resources which promote wellbeing and resilient coping. This study made use of the qualitative method and the results have been presented in an article format, as part of the dissertation. The aim of the article was to explore early adolescents’ perceptions of their primary care-givers’ involvement in the school community in a high-risk community. Participants (N=12) between the ages of twelve to fourteen years, from one school in the Delft Community, Cape Peninsula, were chosen in an un-biased fashion. The Delft community is one of the twenty identified high-risk communities in South Africa. Demographic information shows that the majority of the participants’ care-givers are not the biological parents. The findings indicate that early adolescents percieve their primary caregivers’ involvement in the school community, in a high-risk community, in the following ways: The meeting of basic needs, such as the provision of food, clothing and a home is essential for the adolescent’s school career; the emotional colour of the involvement of care givers is mostly negative, since school visitations involve the handling of problems, or the prevention of further problems; the early adolescent’s understanding of school success greatly matches that of his/her primary care- givers and is seen mostly in terms of either “pass” or “fail”; and early adolescents’ school careers and primary care-givers’ involvement within the context of a high-risk community involve experiences such as the exposure to continued poverty with various implications such as hunger, walking to school in an unsafe environment, as well as gang-violence, crime and substance abuse. This study shows that, besides the challenges that are associated with the adolescent life-phase, early adolescents also have to deal with various other problems that emanate from a high-risk community. These problems are generally matters of survival, and it is clear that these risks further strain well-being and the development thereof. Poor involvement of primary caregivers in the school community is one of the realities which early adolescents in a high-risk community have to deal with, and this poor involvement is indicative of not providing life essentials, as well as personal interest and encouragement. It is further the experience of negative emotions, such as fear in general and the “scared-ness” indicates adolescents’ fear for their own safety, as well as that of their friends and family. The participants in this study have all been affected directly and/or indirectly by the trauma of gang violence and the untimely death of a family member. In the midst of these challenges, the primary caregivers are mostly uninvolved in these vulnerable adolescents’ lives. Primary care-givers visit the school community mainly when they are summoned to handle “problems”. Primary care-givers generally have a negative association with the school community. The less negative experience of emotions indicates the absence of serious problems, such as the not-completion of school work. The scarce occurrence of positive emotions, such as primary care-givers that show compassion with early adolescents when they experience disappointment, is actually part of the participants’ experiences. The primary care- givers’ active helping with the early adolescents’ school tasks is uncommon and it is mostly focused on the prevention of the repetition of school grades. The presence of a family member (extended family) with school meetings has great value for the early adolescents’ perception of family as a protective factor for the well-being of the young person. This study presents an important contribution to Positive Psychology, as valuable information is presented to understand the early adolescent’s well-being and the context thereof. The specific descriptions of early adolescents’ perceptions of the involvement of their primary care-givers in the school community provide a description of the potential which can be unlocked in school-and-life choices. Findings have implications for policies regarding the promotion of well-being. Recommendations for further study are given. Possibilities for application includes the importance of the ecological impact and of partnerships, so that problems and the development of well-being can be addressed by primary care givers, school communities, faith communities, NGOs and universities. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

Child sexual abuse (CSA) is found to occur in alarming proportions worldwide. In South Africa, children represent almost half of the victims of known sexual abuse, and this is becoming a great concern, even being described as a silent epidemic. This alarming fact as well as the researcher’s experiences as a social worker in this field, resulted in her reviewing literature, in order to gain further insight into the current situation in South Africa. It was discovered that the number of successful CSA court cases reported to the Childline Western Cape centres, was significantly low, and that numerous complaints were being received by her colleagues at Childline from caregivers, regarding their dissatisfaction with the judicial system after reporting CSA. This dissertation therefore serves as a qualitative exploration of caregivers’ experiences of the South African judicial system after CSA has been reported. For the purpose of this study, the researcher used a descriptive qualitative research design so as to thoroughly describe the caregivers’ experiences. Semi-structured interviews were conducted with eight participants to gain rich descriptions of their experiences in this area. Three main themes that emerged through the content analysis were: the experiences with officials from the SAPS as part of the judicial system; the experiences with regard to social service delivery; and the experiences with the court and personnel as part of the judicial system. Several conclusions were drawn. The first was that there were both positive and negative experiences with officials from SAPS. A further conclusion was that the lack of knowledge about procedures needing to be followed in cases of CSA, as well as the uncertainty shown by some SAPS officials with regard to how to go about dealing with child victims of sexual abuse, gave some participants the impression that SAPS officials lack adequate training in this regard The researcher concluded from the empirical findings and the literature that there is a general sense that CSA investigations are poorly conducted. Another conclusion was that literature on statutory social service delivery in South Africa and the evaluation thereof seemed sparse. However, from the empirical findings regarding the participants’ descriptions, their experiences, particularly with statutory social workers, were negative. Finally, the researcher concluded that though literature indicated that several changes had been made in the judicial system so as to better deal with child victims of sexual abuse, the experiences of the participants indicated that challenges are still being experienced. The empirical findings indicated that caregivers of child victims of sexual abuse and their children had experienced great frustration when dealing with the judicial system after CSA had been reported. These frustrations were due to the investigation of CSA cases, the court process, and the lack of communication from prosecutors and other professionals in the judicial system. / Thesis (MSW)--North-West University, Potchefstroom Campus, 2013.

Thesis (PhD)--Stellenbosch University, 2014. / ENGLISH ABSTRACT: Due to a lack of research, which, in turn, resulted in a shortage of applicable literature that focused on the experiences and socio-emotional needs of family members as carers of AIDS-patients, the researcher decided to undertake this research project. The aim of this was to investigate the experiences and socio-emotional needs of family members as AIDS care givers. To lead the research, the researcher made use of a qualitative research approach. Attention was also given to the description of HIV/AIDS, as well as the prevention and treatment of HIV/AIDS. The impact of HIV/AIDS was also given attention, and it was done from an ecological perspective. Within the qualitative research paradigm a phenomenological, explorative, descriptive and contextual research design was utilised. The boundaries for data collection were delineated to the George area. Semi-structured interviews were conducted with family members who acted as primary care givers of AIDS-patients who were recruited by means of purposive sampling and the snowball sampling technique. The data collected were analysed according to the steps for qualitative data analysis as proposed by Tesch (in Cresswell, 1994). To ensure the trustworthiness of the research findings, data verification was executed according to Guba’s model (in Krefting, 1991). The following twelve themes emanated from the process of data analysis: - Knowledge of the disease - Caring for people with AIDS - Risky behaviour - Other people’s reactions - Care givers’ feelings and reactions - Support that was received with the care giving - Effect of the care giving on the relationship between the care giver and the patient - Changes in the care givers’ life because of the care giving of AIDS patients - Experiences regarding the dying process - Needs regarding the caring of the patient - Services that are needed - Advice from the participants to other family members as AIDS care givers. The following recommendations were made based on the conclusions derived from the research findings: Information sessions by Social Workers in collaboration with the different clinics on certain days; a community based project to recruit volunteers to support family care givers on a regular basis; look at facilities, like old age homes and hospices, that can give respite for a week to three weeks; connect family care givers to support groups in the community; make use of the media to give information regarding HIV/AIDS to the broader community; a centralized food and clothes bank from which care givers can draw affordable food and clothes. An application for funding can be done at the Department of Social Development or the Department of Health. Another recommendation that is made is to investigate the possibility of a community based project that provides cleaning and washing services to family members as care givers, as well as the patients. This can even become a job creation project. Other recommendations are: to investigate an alternative form of transport that is wheelchair accessible and patient friendly; to train home based carers to help family members as AIDS care givers; to train home based carers to be of assistance with counseling of patients with regard to their medication; to train home based carers as AIDS care givers to help family members to reach out to other support services or groups; that care givers should be careful about expectations of other people and that they should be confident enough to verbalize their expectations; that Social Workers should investigate if the family member, as AIDS care giver, as well as the patient, gets the necessary support on all levels of the ecological perspective, and if not, he/she must look at ancillary sources and mobilize it to give support to the family care giver as well as to the patient; that professionals need to keep in mind the advice the participants was given to other family members as care givers when they are working with these families. A recommendation was also made to do a follow-up research on the same topic in the White, Indian and Black communities and especially that further emphasis should be placed on their needs, as participation by this population groups were scarce or could not be obtained at all. / AFRIKAANSE OPSOMMING: Weens ‘n gebrek aan navorsing, en gevolglik ook aan literatuur rakende die belewenisse en sosio-emosionele behoeftes van familielede as primêre VIGS-versorgers, het die navorser besluit om hierdie navorsingsprojek te onderneem. Die doel hiermee was om die belewenisse en sosio-emosionele behoeftes van familielede as primêre VIGS-versorgers te verken en te beskryf. Om die navorsing te rig, is ‘n kwalitatiewe navorsingsbenadering vir die doel gebruik. Aandag is ook gegee aan die beskrywing en voorkoms van MIV/VIGS, asook die voorkoming en behandeling van MIV/VIGS. Die impak van MIV/VIGS is ook breedvoerig bespreek en is dit vanuit ‘n ekologiese perspektief gedoen. Binne die kwalitatiewe navorsingsbenadering is daar van ‘n fenomenologiese, verkennende, beskrywende en kontekstuele navorsingsontwerp gebruik gemaak. Die grense vir data-insameling het binne die George-area geval. Semi-gestruktureerde onderhoude is gevoer met familielede wat as primêre VIGS-versorgers optree, en wat deur middel van ‘n doelgerigte steekproeftrekking en die sneeubaltegniek vir deelname aan die navorsing gewerf is. Die ingesamelde data is ontleed aan die hand van die agt stappe van kwalitatiewe data-ontleding van Tesch soos uiteengesit in Creswell (1994). Guba se model soos dit in Krefting (1991:214-221) uiteengesit is, is gebruik om die vertrouenswaardigheid van die navorsingsdata te verifieer. Twaalf temas het na aanleiding van die prosesse van data-ontleding na vore gekom, naamlik: - Kennis van die siektetoestand - Versorging van VIGS-lyers - Risiko-gedrag - Ander mense se reaksie - Versorger se gevoelens en reaksies - Ondersteuning wat ontvang is met die versorging - Effek van pasiënt se versorging op die verhouding tussen versorger en pasiënt - Verandering van versorger se lewe as gevolg van die versorging van die VIGS-lyer - Belewenisse ten op sigte van die sterwensproses - Behoeftes ten opsigte van die versorging van die pasiënt - Dienste wat benodig word - Raad deur deelnemers aan ander familielede as VIGS-versorgers. Voortspruitend uit die navorsingsbevindinge, is tot sekere gevolgtrekkings gekom waaruit die volgende aanbevelings gemaak is: dat inligtingsessies deur maatskaplike werkers in samewerking met die verskillende klinieke op sekere dae gehou sal word; dat ‘n gemeenskapsprojek van stapel gestuur word om vrywilligers te werf wat op ‘n gereelde basis aan VIGS-versorgers ondersteuning bied; dat daar gekyk word na respite by ouetehuise of ‘n hospice vir ‘n tydperk van ongeveer drie weke om aan versorgers ‘n ruskans te gee; dat versorgers betrek word by ondersteuningsgroepe in die gemeenskap; dat die media gebruik word om inligting oor VIGS aan die breë gemeenskap deur te gee; dat aandag gegee word aan ‘n gesentraliseerde voedsel- en klerebank waarvandaan versorgers voorraad kan onttrek. Aansoek vir befondsing kan gedoen word by Departement Maatskaplike Ontwikkeling of Departement Gesondheid. Verdere aanbevelings wat gemaak kan word, is: dat ‘n gemeenskapsprojek van stapel gestuur word om skoonmaakdienste en hulp met wasgoed was tot die beskikking van die VIGS-versorger te stel wat selfs as ‘n werkskeppingsprojek begin kan word; dat ‘n alternatiewe vorm van vervoer wat deur die familielid en pasiënt benut kan word, en wat geskik is vir pasiënt vervoer, ondersoek sal word; dat opleiding van tuisversorgers as hulp vir familielede as VIGS-versorgers aandag sal kry; dat opleiding van tuisversorgers om behulpsaam te wees met berading van pasiënte rakende hulle medikasie dringende aandag sal geniet; dat familielede as VIGS-versorgers uitreik na ander ondersteuningsbronne vir hulp; dat versorgers versigtig sal wees ten opsigte van verwagtinge van ander, maar dat hulle ook vrymoedigheid sal neem om hulle verwagtinge te verbaliseer; dat die maatskaplike werker sal ondersoek instel of die familielid as primêre VIGS-versorger, sowel as die pasiënt, vanuit al die vlakke van die ekologiese perspektief die nodige ondersteuning geniet, en indien nie, moet daar gekyk word na hulpbronne en dit moet gemobiliseer word ten einde hierdie noodsaaklike ondersteuning te bied; dat die raad wat deur die deelnemers aan die navorsing aan ander familielede as VIGS-versorgers voorsien is, in gedagte gehou sal word wanneer met hierdie families gewerk word. ‘n Aanbeveling is ook gemaak dat opvolg navorsing oor dieselfde onderwerp gedoen word onder die Wit, Indiër en Swart gemeenskappe, en dat veral klem gelê word op hulle behoeftes, aangesien deelname vanuit hierdie bevolkingsgroepe skraal was, of glad nie bekom kon word nie.

Please read the abstract in the section 00front of this document / Dissertation (MA (Social Work))--University of Pretoria, 2006. / Social Work and Criminology / Unrestricted