Abstract Introduction: Vietnam has one of the fastest growing HIV- epidemics in the world. In Vietnam the primary caregivers are the family. Aim:  The aim was to examine caregiver burden and need of support among family members of persons living with HIV [PLHIV] in Ho Chi Minh City, and also to investigate the differences in these matters between genders. Method:  A descriptive cross-sectional study with quantitative method was used. The study was carried out at the Hospital of Tropical Diseases, Ho Chi Minh City, Vietnam where people living with HIV are treated. A convenience sample was used. Seventy one of 87 questionnaires were completed. Result: The largest groups reported “mild to moderate” (35%) and moderate to severe” (42%) caregiver burden. The caregivers felt that they should do more for their relative and a better job in caring for them. They also expressed that the financial situation added to the burden. The needs of support most requested were economic support, knowledge about caring, and mental support to cope. Concerning caregiver burden scale only one significant difference was found, male participants found it more embarrassing to have friends over than female participants. High caregiver burden was strongly associated with depression (p=0.00). Conclusion: High caregiver burden and feeling of depression was strongly associated. The caregivers of PLHIV are in need of different kinds of support to cope with their situation. Intervention including care plan should be given to caregivers to minimize risk of burden and depression and increase their quality of life. / Sammanfattning Introduktion: Vietnam har en av de snabbaste växande HIV-epidemierna i världen. De primära vårdgivarna vid sjukdom är familjemedlemmar. Syfte: Syftet med studien var att undersöka känslan av vårdgivarbelastning hos familjemedlemmar till personer som lever med HIV när de vårdar sin anhörig och vilka stödinsatser de behöver. Vidare var syftet att se om några skillnader mellan män och kvinnor föreligger. Metod: En deskriptiv tvärsnitts studie med en kvantitativ metod användes. Studien genomfördes på Hospital of Tropical Diseases i Ho Chi Minh City, Vietnam. Ett bekvämlighets urval användes. Sjuttioen av 87 enkäter var fullständigt ifyllda och användes för analys. Resultat:Den största delen av deltagarna upplevde ”mild till lindrig” (35%) och ”lindrig till svår” (42%) belastning. Familjevårdgivarna kände att de skulle vilja göra mer för sin anhörig och vårda dem på ett bättre sätt. De uttryckte också att den svåra ekonomiska situationen ökade belastningen. Stödinsatser som efterfrågades mest var ekonomiskt stöd, kunskap om hur man vårdar och mentalt stöd för att klara av situationen som vårdgivare. Gällande vårdgivarbelastning fanns en signifikant skillnad, män var mer generade än kvinnor när de hade besök av vänner. Hög vårdgivarbelastning var starkt associerad med känslan av depression (p=0.000). Slutsats: Hög vårdgivarbelastning och känslan av depression var starkt associerade. Vårdgivarna är i behov av stödinsatser av olika slag för att klara av sin situation. Åtgärder som inkluderar en omvårdnadsplan skulle kunna erbjudas till vårdgivarna för att minimera risken av vårdgivar- belastning, depression och öka deras livskvalité.

Due to its limiting effects on the independency of life, the Alzheimer's disease has a radical impact on a diseased person. Their dependency on others influences all their family members, though especially those ones, who are taking immediate part in the caregiving for their relatives. The new changes in the family caregivers' lifestyle have an extensive influence on their health and the care about the diseased itself. In this empirical study we intended to examine the presence and the intensity of a burden, an anxiety and a depression among the family caregivers, who are being provided with psychosocial and other professional help. It's a transverse survey among the 102 family caregivers caring for their relatives with diagnosed Alzheimer's disease or some other form of dementia. The caregivers were tested for the level of subjective burden by Zarit Burden Inventory (ZBI) and for the anxiety and the depression by Beck Depression Inventory (BDI II), Geriatric Depression Scale (GDS) and Beck Anxiety Inventory (BAI), the results were processed with the statistical analysis and Pearson correlation coefficient. In the study sample there were 83 % of women and 62 % of the caregivers were older than 50 years. According to our findings 86 % of people caring for less than 2 years and 89 % of people caring...

Currently, there are approximately 1.1 million caregivers who are caring for veterans who have served in the military following September 11 (9/11), 2001 (Ramchand et al., 2014). In this study, a mixed methods analysis of post 9/11 caregivers enrolled in the North Florida South Georgia Caregiver Support Program was completed with a convenience sample of 172 participants for quantitative analysis which included 16 participants for the phenomenological query. Correlations, t-tests, and ANOVAs were used to determine the associations among race, gender, age, caregiver type, diagnosis, tier level, and the presence of children in the home with caregiver burden as measured by the Zarit caregiver burden inventory (ZBI). T-tests resulted in a significantly higher ZBI with caregivers who had children in the home (M = 6.84; SD = 3.21) versus those who did not (M = 5.57; SD = 2.75), t (160) = -2.36, p=.02. An ANOVA was conducted across caregiver role (parent, spouse, significant other and other) and the ZBI and a significant difference was found (F [3, 159] = 1.59, p < .01, with spousal caregivers having a significantly higher ZBI score (M=6.83; SD=3.10) than parental caregivers (M = 4.46; SD=2.70). The phenomenological research focused on shared lived experiences of post 9/11 caregivers of seriously injured veterans, including their experiences with the Caregiver Support Program, the impact of having children in the home, and the utilization of technology and online support with caregiving. Differences between spousal and parental caregivers were also explored. The caregivers’ shared experiences resulted in 22 major themes which included family adjustment, subjective demands, coping techniques, social support, Veterans Affairs (VA) and Department of Defense (DOD) services, self-care, intimacy, role strain, financial resources, and life course changes as the most prevalent. Caregivers and their families had a difficult time adjusting post injury, particularly with subjective demands. Caregivers relied mainly on their own coping mechanisms to adapt to their new role and did not find social support to be helpful with caregiving. Spousal caregivers tended to have more difficulty adjusting than did parental caregivers, which was also found in the quantitative study. While the Caregiver Support Program provided many services that were helpful to the caregivers, including a financial stipend, they wanted additional services which included additional financial support and services while citing issues with program implementation and staffing as major barriers. Children added complexity to the caregiving relationship and increased burden. Children displayed behavioral changes, mostly negative, but some positive such as giving both the caregiver and the veteran a sense of purpose. Lastly, technology and online support with caregiving was used more often than not with mixed feelings about the technology and its trustworthiness; with parents not utilizing these resources as much as spousal caregivers. The study concludes with implications for current and future social work practice and research, as well as the study’s strengths and limitations.

No description available.

Background &amp; aims: Several systematic reviews have demonstrated that caring for a child with functional limitations leads to poor caregiver mental health outcomes. For instance, depression, anxiety and caregiver burden are endemic in informal (unpaid) caregivers of children with cerebral palsy (CP), a common paediatric disability. However, caregivers who receive an adequate amount of social support are likely to better adjust to the caregiving role. Given the increasing move towards family-centred care and evidence-based care, there is a need to evaluate caregivers’ mental health and to develop and implement context-specific caregiver well-being programs. The valid measurement of the impact of these programs is dependent on the availability of psychometrically robust patient-reported outcomes (PROMs). Unfortunately, most available PROMs have been developed in high-income settings, and their applicability in low-resource settings such as Zimbabwe may be questionable. The present study thus aimed to develop a context-specific caregiver strain outcome, to adapt, translate, and validate a social support outcome measure and finally to profile the mental health of caregivers of children with CP residing in Zimbabwe. Methods: The Zimbabwean Caregiver Challenges Scale (ZCCS) was developed through the amalgamation of findings from a systematic review, caregivers’ interviews and two rounds of content validation by a panel of experts. A systematic review was then undertaken to appraise the psychometric properties of the Multidimensional Scale of Perceived Social Support (MSPSS). The MSPSS was then adapted, translated into Shona, a Zimbabwean native language, and validated. In the final phase, further validation of the ZCCS and the MSPSS was done, and structural equation modelling was used to profile the mental health profile of caregivers. Results: The ZCCS yielded four factors which were ; physical &amp; economic burden, concerns for the child, family relations and community participation. The ZCCS was found to be a reliable tool as it yielded excellent Internal Consistency (IC) ratings at both sub-scale [α range: 0.765- 0.841] and scale level [α=0.925]. The Interclass Correlation (ICC) (95% CI) for ZCCS scores at baseline and after four weeks was 0.880 (0.793: 0.930), demonstrating the stability of the ZCCS. We replicated the original 3-factor structure of the MSPSS through factor analysis. Further, dichotomisation of scoring options and the deletion of one item resulted in a parsimonious solution as the 11-items solution met Rasch modelling requirements. The MSPSS-Shona version is reliable; it yielded excellent IC ratings at both sub-scale [α range: 0.833-0.892] and scale levels[α=0.8685]. The ICC rating (95% CI) for MSPSS scores at baseline and after four weeks was 0.980 (0.959: 0.990) demonstrating the stability of the MSPSS, and the person separation index (PSI) was 0.731. Both the ZCCS and MSPSS displayed construct validity; higher caregiver burden was associated with greater psychiatric morbidity and lower health related quality of life. Caregivers who received a higher amount of social support had the best mental health outcomes. Further, structural equation modelling provided evidence of the multidimensionality of the caregiver burden. Contextual factors, such as increased child age, increased caregiving duration, lower child functional capacity/more severe CP, and lower socioeconomic status were associated with poor mental health functioning. Conclusion: The thesis contributes to the body of knowledge by documenting the validation of caregivers' mental health outcomes and determination of mental health functioning of caregivers residing in low-resource settings. The ZCSS and MSPSS were both found to be valid and reliable measures within the context of Shona speaking rural and urban Zimbabweans. It is therefore suggested that both measures can be used with confidence in these contexts. Efforts should be made to integrate patient-reported outcome measures (PROMs) in routine clinical care and research and in developing and implementation of tailor-made caregiver wellness programs, within the validation contexts.

Caregiving, specifically caregiver burden, is commonly related to decreased psychological well-being. Conversely, marital quality is positively related to psychological well-being, though existing literature presents mixed findings as to whether or not a gender difference exists in this relationship. The current study examined the relationship between objective and subjective spousal caregiver burden and psychological distress with marital quality as a moderator. Gender differences in this relationship were also explored. 1,066 spousal caregivers from the National Study of Caregiving (NSOC) were used to estimate cross-sectional moderation models and plot significant interactions in Mplus. Results indicated a significant positive relationship between subjective caregiver burden and psychological distress, and higher marital quality protected against psychological distress in this relationship. The connection between objective caregiver burden and psychological distress was not significant, and no gender differences were found in the moderation of marital quality. These findings suggest that perceptions of caregiver burden are important for the psychological health of spousal caregivers, and higher marital quality may be an effective buffer of this relationship regardless of gender. Spousal caregivers who perceive caregiving to be highly burdensome may benefit from improving their marital quality to protect against negative psychological health outcomes.

Objective This study explores how caregiver relationship quality with family, patient, and patient's health care provider (HCP) is associated with subjective caregiver burden during the early treatment phase for late-stage cancer. Method Burden and relationship quality were assessed in telephone interviews with family caregivers (FCGs) of advanced cancer patients. The five subscales of the Caregiver Reaction Assessment measured burden, while relationships were measured with the Family Relationship Index, the Family Inventory of Needs subscale of met needs, and a scale assessing family discord in cancer communication. Results Multiple linear regression analyses in SPSS (v16) of 420 FCGs showed that higher quality relationship with family was associated with lower burden in FCG abandonment, health, scheduling (p<0.001) and finances (p<0.01). Higher quality relationship with patients' HCPs was associated with lower burden in FCG abandonment (p< 0.05), health, and finances (p<0.001). More discordant communication in patient relationship was associated with lower financial burden (p<0.05). Relationship quality was not associated with caregiver self-esteem. Conclusions Findings demonstrate that caregiver relationship quality with family and with HCP are important factors in understanding caregiver burden during the early treatment phase of late-stage cancer care.

Caregivers of children with autism spectrum disorder (ASD) experience unique challenges while fulfilling their long-term responsibilities and often experience and report higher levels of stress and a decrement in well-being compared to other caregivers. By using four databases (EBSCO, ProQuest, Scopus, and Web of Science), a systematic literature review was conducted on interven- tions to improve these aspects among caregivers. The selection process was limited to articles writ- ten in either English or Spanish, peer-reviewed studies, published between 2011 and 2022, and em- pirical data studies. Seven articles that conducted different interventions met the inclusion criteria and were used to analyze the conducted interventions, together with the reported outcomes. Results show a variety of interventions, differences in length, and used approaches. Regarding the outcomes, support programs were found to be effective when reducing stress and improving the well-being of the studied population; however, there is not enough evidence to conclude their long-lasting effects. Future suggestions include studying larger and more representative samples assessing the interven- tion ́s long-term effects.

Thesis (DPhil (Environmental Health))--Cape Peninsula University of Technology, 2016. / Informal caregivers play an important role in the well-being of dependent members in a household. The burdens of these caregivers are multiple and pervasive and may contribute to mental health epidemiology as a result of worry, grief, anxiety and stress. The literature review revealed that studies in caregiving and its various facets began from a pragmatically applied interest rather than from theoretical and intellectual curiosity. The majority of the research on caregiver burden involves meta-analysis of qualitative studies with little quantitative research. Also, many of these studies are concentrated on caregivers of chronically ill patients, such as those suffering from dementia, Alzheimer’s disease, and heart disease, without much attention to care burden resulting from caring for those who are not necessarily ill. Similar studies by other researchers did not consider the impact of the physical health of the care recipients or the environmental factors that are critical in the study of female caregiver burden in low-income settings. In addition, existing studies did not adequately evaluate the many potential factors that may vary and influence the lives of the caregivers, especially in a single, comprehensive model. This study attempted to provide a more complete picture of these relationships in low-income and culturally diverse settings. The study population consisted of black/African and coloured populations living in subsidised or low-cost housing settlements. In each of the two different cultural communities, 100 black/African and 100 coloured female caregivers were selected through a systematic random sampling procedure. In addition, data were also collected from caregivers in Tamale, Ghana to assess differences between the socio-demographic profiles of the caregivers in Cape Town, South Africa and Tamale, Ghana. The theoretical paradigm used in this study is the Stress Process Model by Pearlin et al., (1990). The study instrument assessed caregiver burden with both objective and subjective measures through the use of a fully structured questionnaire. The information that was collected according to the constructs of the Stress Process Model included personal and role strains and incorporated the physical health of the care recipients and environmental factors such as kitchen and toilet hygiene. Inclusion criteria for the respondents in both Cape Town and Tamale were the principal female caregivers who were present, willing, and able to give informed consent. The Statistical Package for Social Sciences (SPSS Version 22) was used for the analyses. The Chi-square test was used to assess the relationships between environmental health, the socio-demographics of the female caregivers and the health status of the care recipients. The hierarchical regression analysis in the form of a General Linear Model was used to model caregiving burden. iv The results showed that the majority of the female caregivers were in the age group 40 – 49 years and in both Cape Town and Tamale, a large proportion was in the low-income group. Also, the majority of the informal caregivers in the two samples were in care tasks as a full-time job, providing more than 40 hours of care per week. Regarding the length of time in caregiving, a large proportion of the caregivers in both Cape Town and Tamale had been in the care role for more than three years preceding the survey, and almost all the caregivers in the Cape Town sample (98.4%) did not use any form of caregiving programme to ameliorate the negative effects of caregiving. Further, the results showed statistically significant relationships between the socio-demographic characteristics of female caregivers (age, education, population group and income status) and the diarrhoea status of the care recipients. Also, a significant relationship was shown between environmental health variables of the home (kitchen hygiene and toilet hygiene) and the physical health of the care recipients. The major predictors of female caregiver burden in the samples were the physical health of the care recipients and access to social grants. On the basis of the analyses, it was recommended that the government should recognise the importance of the physical health of the care recipients and increase the amounts of social grants to the caregivers since this could improve the circumstances of both the caregivers and the care recipients. In addition, this could aid in improving the standard of living of caregivers in these households. Future research in similar settings should disaggregate the data to compare the burden of caring for caregivers of physically strong care recipients with physically ill care recipients.

There are 15.9 million adults in the United States providing care to a family member diagnosed with Alzheimer's disease. Family member caregivers experience detrimental physical and mental health stress because of their caregiving role. The purpose of this study was to determine if the independent variables of marital status, perceived social support, and gender of family member caregivers of patients with Alzheimer's disease were related to the dependent variable of caregiver burden. The variables were examined through the lens of John Bowlby's attachment theory using archival data (n = 586) from the REACH II program. The results of the analysis of variance indicated that marital status did not affect level of burden. The outcome of a correlational analysis indicated a positive linear association between burden and social support. The result of an independent samples t test was that females reported higher burden than males. The outcome of a linear regression identified marital status, social support, and gender as predictors of caregiver burden. Positive social change implications of this study include contributing to scholarly literature, providing information for families to consider when implementing a plan for long-term care, and encouraging caregivers to seek professional support to minimize burden and maximize quality of life for themselves and the care receiver. Female caregivers with many social supports were identified as high risk for severe burden, an important factor for clinicians, agencies, and healthcare providers who work with family caregivers to consider. Identifying factors that contribute to burden and developing strategies to manage these factors may reduce severity of burden and improve quality of life for both caregivers and care recipients.