In this qualitative study the focus lies on parents' experience of the influence of the cerebral palsy child on the marital relationship. This research aimed at determining the way in which parents experience the influence of the cerebral palsy child on the marital relationship. To reach the required goal, a number of objectives were set. This included setting up a theoretical framework by way of a literature study as well as consultation with experts in the field of cerebral palsy children, semi-structured interviews with parents of cerebral palsy children, analysing of data and conclusions and recommendations according to the parents' experiences. Five married couples participated as respondents during the study. Semi-structured interviews were conducted with all the participants. Each of the interviews was video-recorded and transcribed. Main themes, sub-themes and categories were identified in the transcriptions and studied in relation to the existing literature. True to the qualitative nature of the study, the aim was not to generalise the findings, but to give each couple the opportunity to tell their story. / Social Work / Thesis (M. Diac. (Spelterapie))

Parents of cerebral palsied children have the duty of educating and leading their children towards adulthood. Parents, as educators, must know about cerebral palsy and its effects on the child and the whole family. The success of the parents in assisting the child is influenced by numerous factors. One factor is the manner in which parents understand ·themselves as parents of a cerebral palsied child. Such an understanding directs their behaviour positively or negatively. Another factor is the involvement of parents in the child' life. Involvement demands perseverence, dedication, and understanding of cerebral palsy. Parents may also experience feelings of frustration or acceptance. Experience influences the quality of relationships as well as the parents' view of life and the quality of their educational role. If parents lack understanding, have an apathetic involvement and unpleasant experiences, the progress of a cerebral palsied child towards adulthood will be hampered. / Teacher Education / M. Ed. (Orthopedagogics)

The family is a miniature society, where a child is afforded the opportunity to develop, form relationships and create his/her own identity. The child's development does not always take place without certain challenges. Different internal and external factors influence a child's development. Certain external factors, for instance a child with disabilities, can have a negative or positive influence on the child. The aim of this study is to determine the influence of the child with Cerebral Palsy on the social and emotional development of siblings. The research will be done using the idiographic method. The results show that the child with Cerebral Palsy does have an influence on the emotional and social development of siblings. / Educational Studies / M.Ed. (Inclusive Education)

The family is a miniature society, where a child is afforded the opportunity to develop, form relationships and create his/her own identity. The child's development does not always take place without certain challenges. Different internal and external factors influence a child's development. Certain external factors, for instance a child with disabilities, can have a negative or positive influence on the child. The aim of this study is to determine the influence of the child with Cerebral Palsy on the social and emotional development of siblings. The research will be done using the idiographic method. The results show that the child with Cerebral Palsy does have an influence on the emotional and social development of siblings. / Educational Studies / M.Ed. (Inclusive Education)

Esta dissertação trata de uma pesquisa que teve como objetivo investigar o nível de stress e a qualidade de vida dos cuidadores de crianças com a Síndrome de Down (SD) e a dinâmica destas famílias. É composta por três artigos: o primeiro pretendeu realizar uma revisão da literatura nas seguintes bases de dados: Pubmed, MedLine, PsycInfo, e Lilacs, a partir de palavras-chave, como: Síndrome de Down e impacto familiar. Foram selecionados 48 artigos, publicados nos últimos 10 anos. Foi constatado que nos estudos que tratam do portador da SD e sua família, a maioria se referia ao impacto e ao luto diante da notícia de que seu filho era Down. Isto despertou o interesse em investigar a dinâmica de famílias de crianças Down. Este foi o ponto de partida para a realização do segundo estudo, empírico e qualitativo, que teve como objetivo analisar, através de uma Entrevista Semiestruturada, a dinâmica de famílias que possuem crianças com a SD. Os resultados foram submetidos à Análise de Conteúdo e constatou-se que o diagnóstico tardio e o despreparo emocional do médico para dar a notícia dificultam a aceitação da criança Down por parte das famílias, despertando, nos cuidadores, sentimentos de choque, tristeza, revolta e negação. Além disso, observou-se que cada momento da vida vem permeado de preocupações específicas que podem gerar stress, o que deu origem ao terceiro e último estudo desta dissertação que pretendeu analisar o stress e a qualidade de vida dos cuidadores dessas crianças, utilizando dois instrumentos: Inventário de Sintomas de Stress para Adultos de Lipp (2000) e Inventário de Qualidade de Vida (Lipp & Rocha, 1996). Os resultados deste estudo mostram que os cuidadores que trabalham são menos estressados e que aqueles que são mais estressados têm sua qualidade de vida reduzida, principalmente do ponto de vista da saúde.

Made available in DSpace on 2017-06-01T18:29:20Z (GMT). No. of bitstreams: 1 gabriela_almeida_cavalcanti.pdf: 26410845 bytes, checksum: a4951da5acb2cba47c1bbbee75af1fd0 (MD5) Previous issue date: 2013-04-12 / Esta dissertação trata de uma pesquisa que teve como objetivo investigar o nível de stress e a qualidade de vida dos cuidadores de crianças com a Síndrome de Down (SD) e a dinâmica destas famílias. É composta por três artigos: o primeiro pretendeu realizar uma revisão da literatura nas seguintes bases de dados: Pubmed, MedLine, PsycInfo, e Lilacs, a partir de palavras-chave, como: Síndrome de Down e impacto familiar. Foram selecionados 48 artigos, publicados nos últimos 10 anos. Foi constatado que nos estudos que tratam do portador da SD e sua família, a maioria se referia ao impacto e ao luto diante da notícia de que seu filho era Down. Isto despertou o interesse em investigar a dinâmica de famílias de crianças Down. Este foi o ponto de partida para a realização do segundo estudo, empírico e qualitativo, que teve como objetivo analisar, através de uma Entrevista Semiestruturada, a dinâmica de famílias que possuem crianças com a SD. Os resultados foram submetidos à Análise de Conteúdo e constatou-se que o diagnóstico tardio e o despreparo emocional do médico para dar a notícia dificultam a aceitação da criança Down por parte das famílias, despertando, nos cuidadores, sentimentos de choque, tristeza, revolta e negação. Além disso, observou-se que cada momento da vida vem permeado de preocupações específicas que podem gerar stress, o que deu origem ao terceiro e último estudo desta dissertação que pretendeu analisar o stress e a qualidade de vida dos cuidadores dessas crianças, utilizando dois instrumentos: Inventário de Sintomas de Stress para Adultos de Lipp (2000) e Inventário de Qualidade de Vida (Lipp & Rocha, 1996). Os resultados deste estudo mostram que os cuidadores que trabalham são menos estressados e que aqueles que são mais estressados têm sua qualidade de vida reduzida, principalmente do ponto de vista da saúde.

MPH / Department of Public Health / Cerebral palsy is a condition which affects the normal functioning of children. Most children with this condition rely on other people for the execution of basic skills on a daily basis. The study aim was to explore the experiences of caregivers for children with cerebral palsy in Vhembe District, Limpopo Province. A qualitative approach using explorative, descriptive, and contextual design was used for this study. Simple random sampling was used to sample eight caregivers. Data was collected using semi-structured in-depth individual interviews which were pre-tested in Vhembe District, using two caregivers who did not form part of the study. Data was analysed using thematic analysis approach. Credibility, dependability, conformability and transferability were upheld to ensure trustworthiness of the study. Ethical considerations were adhered to throughout the study. Two main themes emerged during data analysis, namely: positive experiences of caregivers and challenges faced by caregivers. The study recommends: development of a model to support caregivers in caring for children with cerebral palsy; and the investigation of the prevalence of back-pain amongst caregivers of children with cerebral palsy in Vhembe District. / NRF

This is a qualitative study of one student’s use of assistive technology in the public school system from preschool to fourth grade. The data collected for this case study include interviews, participant observation, field and diary notes, video tapes, and other documents including school records and a teacher memoir. Throughout the study, the goals were to stay open to and reflect emerging patterns rather than to fit data into previously determined categories. The report describes how Michael--with cerebral palsy that affects his speech and prevents his standing or holding a pencil--used computers, augmentative communication devices, and other electronic technology. On one level the report becomes the story of a student who moves from a separate special education facility into an elementary school where he is integrated fulltime into a fourth grade class. Discussion and conclusions explore (1) types of support he required, (2) barriers to technology use as well as problems of "abandonment" of technology acquired, (3) the effect of integration into general education on his use of technology, and (4) how providing assistive technology influences and changes teachers’ roles. / Ed. D.

This research investigated the need of Xhosa parents with children with cerebral palsy in the Eastern Cape for support through specially designed parent guidance programmes. The research problem that was investigated was: Do Xhosa parents with children with cerebral palsy need guidance programmes, and what guidelines can be given pertaining to such programmes? The aim was to determine whether Xhosa parents needed guidance programmes and if so, to provide guidelines that addressed this need. A literature study was done and thereafter a survey was conducted using a questionnaire with closed items to collect data from 180 Xhosa parents with children with cerebral palsy living in the rural areas of the Eastern Cape's former Transkei. They were sampled by using a non-random (purposive) sampling method. One hundred and two (102) parents (out of the total of 180) answered the questions in the questionnaires and returned them by mail. The same types of questions were used to interview 54 parents. The data was analyzed by a statistical analyst by Microsoft Excel spread sheets. Data was presented in the form of tables and pie charts and the researcher interpreted the outcomes in the light of the literature and her own indigenous knowledge of the Xhosa community. The implications of findings for all Xhosa parents with children with cerebral palsy are that they lack knowledge of issues such as cerebral palsy, inclusive education and how to deal with their children with cerebral palsy. Relationships within the family and the community are affected because of the children's cerebral palsy. Moreover, Xhosa parent guidance programmes are not available in the Eastern Cape or in other provinces in South Africa. As a result, guidelines are provided which may be used for constructing Xhosa parent guidance programmes. / Educaional Studies / (D.Ed. ( Education Management))

This research investigated the need of Xhosa parents with children with cerebral palsy in the Eastern Cape for support through specially designed parent guidance programmes. The research problem that was investigated was: Do Xhosa parents with children with cerebral palsy need guidance programmes, and what guidelines can be given pertaining to such programmes? The aim was to determine whether Xhosa parents needed guidance programmes and if so, to provide guidelines that addressed this need. A literature study was done and thereafter a survey was conducted using a questionnaire with closed items to collect data from 180 Xhosa parents with children with cerebral palsy living in the rural areas of the Eastern Cape's former Transkei. They were sampled by using a non-random (purposive) sampling method. One hundred and two (102) parents (out of the total of 180) answered the questions in the questionnaires and returned them by mail. The same types of questions were used to interview 54 parents. The data was analyzed by a statistical analyst by Microsoft Excel spread sheets. Data was presented in the form of tables and pie charts and the researcher interpreted the outcomes in the light of the literature and her own indigenous knowledge of the Xhosa community. The implications of findings for all Xhosa parents with children with cerebral palsy are that they lack knowledge of issues such as cerebral palsy, inclusive education and how to deal with their children with cerebral palsy. Relationships within the family and the community are affected because of the children's cerebral palsy. Moreover, Xhosa parent guidance programmes are not available in the Eastern Cape or in other provinces in South Africa. As a result, guidelines are provided which may be used for constructing Xhosa parent guidance programmes. / Educaional Studies / (D.Ed. ( Education Management))