Bakgrund. Föräldrar upplever oro över att cystisk fibros ska få deras barn att uppleva sig annorlunda. På grund av en långvarig relation upplever sjuksköterskor det känslomässigt krävande att vårda en patient med cystisk fibros i livets slutskede. Problem. Få kunskap om den som är drabbad av CF upplever att sjukdomen är ett hinder för att leva. Syfte. Beskriva upplevelser av att leva med cystisk fibros. Metod. En kvalitativ ansats har använts i form av en litteraturstudie med beskrivande syntes av publicerade artiklar. Resultat. Det framkommer att människor med cystisk fibros har varierande upplevelser av begränsningar och autonomi. De upplever sig som normala utifrån sin livsstil samtidigt som de känner sig annorlunda. Ungdomar upplever svårigheter i vardagen och genomgår en process för att acceptera sjukdomen som en del av livet. Att uppleva ansvar över sin vård och sitt liv skapar upplevelse av självständighet vilket underlättar för den drabbade att uppleva sig som normal. Slutsatser. Det är svårt att acceptera ett liv med CF, den drabbade upplever sig som annorlunda samtidigt som de kämpar för att uppleva sig som normala. Ytterligare forskning behövs om vårdrelationen mellan sjuksköterska och patienten som är drabbad av CF. / Background. Parents experience concern because cystic fibrosis will make their children experience themselves different. Because of a lengthy nurse-patient relationship the nurses‟ experience it is emotionally demanding to care for a patient with cystic fibrosis in the final phase of life. Problem. To get knowledge if the one affected by cystic fibrosis experience that the disease is an obstacle in life. Purpose. To describe experiences of living with cystic fibrosis. Method. A qualitative approach was used in the form of a literature study with a descriptive synthesis of published articles. Results. It appears that people with cystic fibrosis experience varied perceptions of limitations and autonomy. They experience themselves as normal as seen from their lifestyle at the same time as they felt different. Young people experience difficulties in their everyday life and go through a process of accepting the disease as a part of life. To experience responsibility over your care and life creates an experience of independence which makes it easier for the ones‟ affected to experience themselves as normal. Conclusions. It is difficult to accept a life with cystic fibrosis, the affected ones experience themselves as different at the same time as they struggle to experience themselves as normal. Further research is needed about the nurse-patient relationship between the nurse and the patient that is affected by cystic fibrosis.

There is a noticeable absence of studies reflecting the personal views and experiences of black British African Caribbean (BBAC) people as students and clinical participants in UK nursing careers. Previous research about their nursing career choices has always been reported as part of other mixed BME cohorts and migrant groups. Indications in the literature suggest that they were being actively discouraged by their families from choosing nursing as a career, because of their parents’ and grandparents’ negative experiences as migrant workers in the NHS, leading to very low or non-participation in the profession. This study set out to address this gap by giving them a distinct voice, independent of other cohorts. It explored the factors which influence their decision and their experiences, throughout a variety of life stages, from school through to university and into clinical practice. This was to identify whether the findings from earlier research are still relevant from their perspectives rather than that of their parents. Participants and schools in the study were recruited by purposive sampling, and data was collected in three phases, a pilot study phase, a survey phase and an interview phase. A quantitative and qualitative interpretive approach were adopted underpinned by a mixed methods design. Descriptive statistical analysis of the survey and qualitative content analysis (QCA) of the interview transcripts were utilised to enable interrogation of the data. Findings are discussed within the context of available empirical evidence, related policy perspectives and theoretical underpinnings. Four main themes emerged from the study, as specific influencing factors on their experiences. These are: careers advice and choice for nursing, support, discrimination/racism and personal resilience. The findings reveal that BBAC people receive little or no careers advice about nursing at any of their life stages. Consequently, they make uninformed decisions about modern nursing careers, leaving a gap in their knowledge. However, they are not discouraged from choosing nursing as a career, by their families. When they choose a nursing career, they are fully supported and encouraged by their parents and families, in order to survive as students and clinical practitioners. However, institutional support as students and practitioners is weak and very poor. Despite this, they do not intend to actively discourage their own children from making nursing a career choice. Racism, discrimination and racialisation remain core factors influencing their social, educational and other lived experiences, despite numerous equality legislation and implementation. These have a continuous negative impact on them as visible minority students and practitioners in the NHS. They respond to these negative experiences by developing personal resilience aided by strong social and cultural support provided by their families and community. These findings make a unique contribution to the knowledge base by giving BBAC participants their own distinct voice. This was achieved through listening to them at varied points in their life stages, from school through to university and as eventual professionals in nursing. This is important new knowledge, which has ensured a clear recognition of their personal perspectives, in their own voices. These insightful new observations are necessary to build a specific knowledge base about them and are very positive for future participation of BBAC people in nursing careers and the NHS. An adapted model for inclusive participation is proposed, based on the findings of the research.