Made available in DSpace on 2016-04-29T13:31:32Z (GMT). No. of bitstreams: 1 Juliana A Oliveira.pdf: 795655 bytes, checksum: cd71278ab84392899b8db3021d0e1f1b (MD5) Previous issue date: 2007-05-21 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior / The Reform of Psychiatric services in Brazil is in process of consolidation and the transition from treatment at psychiatric hospitals to rehabilitation and shelter services is still under way. As such, due to a variety of reasons, some clients of these services prefer to remain at psychiatric hospitals instead of returning to their homes. Research was carried out at a psychiatric hospital attached to SUS (Sistema Único de Saúde) and located in the city of São Paulo, in order to better understand the reasons for the resistance to disinterment. Information was gathered with clients and professionals using a diversity of research strategies (observations, conversations, interviews and participation in routine activities) during the visits made to the institution between August 2005 and March 2006. Interviews were carried out with patients that, according to the various health professionals working at this institution, externalized the "desire to remain in the internment" and with a Charity Sister that assumed the role of "spokesman" for the professional team. The analysis was base on Discursive Social Psychology in dialogue with a constructionist perspective. The desire to remain at the hospital was based on multiple factors, including lack of financial conditions, of housing, family, work and social relationships, as well as the progressive weakening of these social bonds due to frequent psychiatric internments. Moreover, the psychiatric hospital seems to function as a protective shell from a society that is intolerant with regards to mental illness. However, the desire to remain in hospital seems to be more related to lack of alternatives than to internment itself as the people that were interviewed often were sad and their speech presented many lapses and contradictions indicating paradoxical positions regarding staying in and leaving. We conclude that it is urgent to implement the proposals of the Psychiatric Reform, specially concerning strategies for strengthening social bonds in order that the desire to return to social life can truly blossom / Partindo do pressuposto que a Reforma Psiquiátrica está em pleno processo de construção e que em decorrência de seus pontos falhos, alguns usuários podem querer continuar vivendo em hospitais psiquiátricos, o presente estudo investiga, por meio das práticas discursivas de usuários e trabalhadores de um serviço de Saúde Mental da cidade de São Paulo, os sentidos que sustentam o suposto desejo de permanecer internado . Para coleta de informações elegimos um hospital psiquiátrico da cidade de São Paulo, predominantemente vinculado ao SUS, onde fizemos visitas durante o período de agosto de 2005 a março de 2006, distribuídas entre observação das rotinas, participação nas variadas atividades, entrevistas com usuárias que verbalizaram o desejo de permanecer no internamento e uma Irmã de Caridade, porta-voz da equipe profissional. A análise das informações coletadas foi sustentada a partir da perspectiva do construcionismo social. De modo geral, as entrevistas contribuíram para melhor entender o suposto desejo de permanecer no hospital psiquiátrico . A falta de condições financeiras, habitação, trabalho, relacionamentos sociais, além de internações psiquiátricas recorrentes, pareceram dificultar a reinserção social, bem como diminuir a proximidade com a família. Além disso, o hospital psiquiátrico pareceu tornar-se uma proteção do usuário em uma sociedade intolerante perante a loucura. É válido destacar as falas das usuárias sobre o hospital e a experiência de internação psiquiátrica foram acompanhadas de lapsos de linguagem e feições entristecidas, retratando o sofrimento da internação e a contradição presente em optar pela vida intra-muros. A partir dessas reflexões indaga-se sobre a urgência do fortalecimento efetivo da rede social extra-muros, a partir da estruturação da Reforma Psiquiátrica, de modo a possibilitar o desejo de retorno ao convívio social

The past two decades have witnessed transition from in-patient hospital settings to Community and Home Based Care in Zimbabwe. This is because of an increase in the number of people developing chronic health conditions such as diabetes, hypertension and cancers, and thus needing longer treatment durations. The increase in chronic conditions has mainly been attributed to the increase in incidence and prevalence of Human Immunodeficiency Virus and Acquired Immune-deficiency Syndrome in Sub-Saharan Africa. Many Governments, including that of Zimbabwe, endorsed and promoted community and home based care to provide a continuum of care to the chronically ill. Despite the implementation of Community and Home Based Care programmes, no studies known to the researcher have been done to investigate the congruency of service users’ needs and the programme goals. Purpose: The purpose of the study is twofold; firstly to explore whether Community and Home Based Care interventions provide services that effectively meet users’ goals in a dynamic social environment and secondly, to develop guidelines for enhancing care provision as well as congruency of service users’ needs and programme goals. Methods: A mixed-method approach combining qualitative and quantitative data collection and analysis was used. Concurrent collection of data with equal status was placed on both qualitative and quantitative data. For qualitative data interviews and focus groups were used with home based care service users, family care givers, and health providers. Structured questionnaires were used for the quantitative data. Framework: Imogene King’s Interacting Systems Framework and Theory of Goal Attainment were adopted to guide the study. These were utilised because of the assumption that mutual agreement on goals for effective care can be achieved through nurse-client interactions and communication Research findings: Community and Home Based Care programme in Zimbabwe does not comprehensively meet the needs of its service users. Service users have diverse needs and goals depending on the specific condition and symptoms they experience. They perceive access to medication for symptom management and pain control, food and financial stability, as priority needs. The study found that nursing services provided in Community and Home Based Care generally align with the physical needs of service users and was deficient in addressing the socio-economic and psycho-social needs of service users. Conclusion: No single sector can achieve the users’ and the programme`s goals of quality health on its own. The goals may only be realised when other stakeholders and relevant sectors contribute to the Community and Home Based Care programme, which requires diverse resources. Guidelines to enhance integration of Community and Home Based Care with social services were developed. / Health Studies / D.Litt. et Phil. (Health Studies)

Cette recherche aborde la médication psychiatrique à partir du point de vue des usagers. Des entrevues en profondeur ont été réalisées auprès de dix personnes utilisatrices en provenance d’une ressource communautaire et alternative en santé mentale. Les répondants éprouvent ou ont éprouvé des problèmes importants de santé mentale. La majorité des usagers de notre échantillon consomme des neuroleptiques. Les participants sélectionnés ont cheminé avec l’approche de la gestion autonome de la médication en santé mentale (GAM). La GAM constitue un terrain fertile, car l’approche favorise la réflexion critique, la diversité de pratiques autour de la médication psychotrope. Un état des connaissances portant sur l’expérience subjective de la médication est présenté. Les effets de la médication sur les personnes et leur contexte de vie ainsi que les aspects symboliques ont été analysés. Parmi les effets majeurs de la médication, on compte : l’effet de « gel », la grande fatigue, les difficultés d’attribution, le désir d’arrêt et les effets paradoxaux. La médication peut avoir des effets positifs ou négatifs sur l’entourage, le travail, les études ou autres implications sociales. Le rapport des usagers relatif à la médication a évolué vers un usage planifié, modulé et moindre. À cet effet, les dix usagers sont passés d’une phase de « novice » à une « d’expert ». Les résultats de cette recherche indiquent que la notion d’observance au traitement doit être revisitée et la notion d’efficacité élargie. Cette étude qualitative démontre que les versants « intérieurs » de la médication, l’expérience subjective et l’intersubjectif apportent une perspective plutôt rare, mais riche, du médicament en tant qu’objet social. / This research looks at psychiatric medication from the perspective of service users. In-depth interviews were conducted with 10 service users from a community-based, alternative mental health resource. The respondents experience or have experienced serious mental health problems. The majority of service users in our sample take neuroleptics. Selected participants followed the mental-health approach known as GAM: Gaining Autonomy & Medication Management. GAM provides a perfect ground, since this approach encourages critical thinking and promotes diverse practices around psychotropic medication. Current knowledge around the subjective experience of medication is presented. The effects of medication on people and their life contexts are analyzed, as well as their symbolic aspects. Among the main effects of medication are: the “anaesthetizing” effect, intense fatigue, difficulties of attribution, the desire to quit and paradoxical effects. Medication can have positive or negative effects on one’s circle of family and friends, work, studies or other social commitments. The relationship between service users and their medication has evolved toward a planned, adapted and reduced use. In this sense, the 10 service users went from a “novice” phase to that of “expert”. Results from this research show that the notion of treatment compliance must be revisited, and the concept of efficiency, broadened. This research shows that the “interior” dimensions of medication, the subjective experience and intersubjectivity provide rare and rich insights into medication as a social object.

Cette recherche aborde la médication psychiatrique à partir du point de vue des usagers. Des entrevues en profondeur ont été réalisées auprès de dix personnes utilisatrices en provenance d’une ressource communautaire et alternative en santé mentale. Les répondants éprouvent ou ont éprouvé des problèmes importants de santé mentale. La majorité des usagers de notre échantillon consomme des neuroleptiques. Les participants sélectionnés ont cheminé avec l’approche de la gestion autonome de la médication en santé mentale (GAM). La GAM constitue un terrain fertile, car l’approche favorise la réflexion critique, la diversité de pratiques autour de la médication psychotrope. Un état des connaissances portant sur l’expérience subjective de la médication est présenté. Les effets de la médication sur les personnes et leur contexte de vie ainsi que les aspects symboliques ont été analysés. Parmi les effets majeurs de la médication, on compte : l’effet de « gel », la grande fatigue, les difficultés d’attribution, le désir d’arrêt et les effets paradoxaux. La médication peut avoir des effets positifs ou négatifs sur l’entourage, le travail, les études ou autres implications sociales. Le rapport des usagers relatif à la médication a évolué vers un usage planifié, modulé et moindre. À cet effet, les dix usagers sont passés d’une phase de « novice » à une « d’expert ». Les résultats de cette recherche indiquent que la notion d’observance au traitement doit être revisitée et la notion d’efficacité élargie. Cette étude qualitative démontre que les versants « intérieurs » de la médication, l’expérience subjective et l’intersubjectif apportent une perspective plutôt rare, mais riche, du médicament en tant qu’objet social. / This research looks at psychiatric medication from the perspective of service users. In-depth interviews were conducted with 10 service users from a community-based, alternative mental health resource. The respondents experience or have experienced serious mental health problems. The majority of service users in our sample take neuroleptics. Selected participants followed the mental-health approach known as GAM: Gaining Autonomy & Medication Management. GAM provides a perfect ground, since this approach encourages critical thinking and promotes diverse practices around psychotropic medication. Current knowledge around the subjective experience of medication is presented. The effects of medication on people and their life contexts are analyzed, as well as their symbolic aspects. Among the main effects of medication are: the “anaesthetizing” effect, intense fatigue, difficulties of attribution, the desire to quit and paradoxical effects. Medication can have positive or negative effects on one’s circle of family and friends, work, studies or other social commitments. The relationship between service users and their medication has evolved toward a planned, adapted and reduced use. In this sense, the 10 service users went from a “novice” phase to that of “expert”. Results from this research show that the notion of treatment compliance must be revisited, and the concept of efficiency, broadened. This research shows that the “interior” dimensions of medication, the subjective experience and intersubjectivity provide rare and rich insights into medication as a social object.