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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
1

Familjens upplevelse av att leva med barn som haren neuropsykiatrisk funktionsnedsättning : En litteraturbaserad studie / The family's experience of living with children whohas a neuropsychiatric disabylity : A literature-based study

Bååw Wennerstrand, Nina, Thorsén, Sofia January 2017 (has links)
Background: The two most common neuropsychiatric disabilities are attention deficithyperactivity disorder (ADHD) and autism spectrum disorder (ASD). Functional impairmentsentail some difficulties for the child that affects the family situation such as interaction withother people and learning and memory difficulties. Aim: The aim of this study was to illuminate the family's experience of living with childrenwho have a neuropsychiatric disability. Method: A qualitative approach was used for this literature based study. The CINAHL and PubMed databases were used to search for scientific articles. Through systematic searches we found ten articles and these were analyzed using Friberg's five-step method. Results: The result is presented on the basis of three themes: An everyday battle, Experiences of understanding and support from the outside world and Family life in light and darkness. It shows that it was a daily struggle for family members in their daily lives. The parents experienced a lack of understanding from the outside world and received limited support. Several parents felt socially isolated and alone. Their daily situation ended up in strong emotions. Conclusion: This study provides an understanding of how family members experience their everyday situation with the child with neuropsychiatric disability. The family relationship was affected in one way or another and it was important for family members to receive support. The nurse has an important responsibility to provide the support and care that family members need to avoid suffering.
2

Upplevelsen av att stå bredvid en cancersjuk syster eller bror

Sundling, Linn, Pehrsson, Alva January 2022 (has links)
Introduktion: Idag drabbas cirka 350 barn i Sverige av cancer varje år. I många fall har det sjuka barnet friska syskon som hamnar på sidan av sjukdomen, till följd av bland annat tuffa behandlingar och biverkningar som kräver föräldrarnas uppmärksamhet. Syfte: Syftet var att beskriva hur syskon till cancersjuka barn upplever sjukdomstiden och därmed få en fördjupad förståelse för deras situation. Metod: En allmän deskriptiv litteraturöversikt baserat på tio kvalitativa originalartiklar genomfördes. Litteratursökningarna utfördes i databaserna CINAHL och PubMed samt kompletterades med en manuell genomgång av referenslistor. Alla artiklar granskades utifrån SBU:s granskningsmall för bedömning av studier med kvalitativ design. Resultatanalysen genomfördes med hjälp av Graneheim och Lundmans kvalitativa innehållsanalys. Resultat: Resultatet visade att syskonen upplevde flertalet förändringar som påverkade deras liv i olika utsträckning. Dessa förändringar återfanns inom familje-, och vänskapsrelationer, skolan och vardagen. Resultatet visade också på flertalet känslor som syskonen upplevde till följd av sjukdomen men också på olika strategier som de fann för att hantera situationen på. Det framkom även att det fanns olika behov som var viktiga att tillgodose för syskonen under sjukdomstiden, såsom stöd och involvering. Avslutningsvis påvisades även en del positiva effekter som cancersjukdomen förde med sig. Slutsats: Syskonen rapporterade både negativa och positiva upplevelser till följd av sjukdomen. Många syskon uppskattade bland annat att bli informerade, stöttade och involverade av både familjen och andra personer i dess omgivning. Involvering av det friska syskonet var något som även sjuksköterskan kunde bidra med på ett värdefullt sätt i hens omvårdnadsarbete. / Background: Today, around 350 children gets diagnosed with cancer in Sweden each year. The sick child does often have a healthy sibling who gets put aside due to the fact that the tough treatments and side effects often require the parents attention.  Purpose: The aim was to describe how siblings of children with cancer experience the duration of the illness and thereby get a deeper understanding of their situation.  Method: A general descriptive literature review based on ten qualitative original articles was conducted. The literature searches were performed in the databases CINAHL and PubMed and was supplemented with a manual review of reference lists. All articles were reviewed by using the SBU review template for reviewing studies with qualitative design. The result analysis was conducted with the help of Graneheim and Lundmans qualitative content analysis.  Result: The main findings showed that the siblings experienced multiple changes that affected their lives to different extents. These changes were found in friends- and family relationships, school and everyday life. The result also established several feelings that the siblings experienced due to their siblings' illness, but also different strategies to cope. Different needs that were important to meet were also identified, such as support and involvement. In conclusion, some positive effects of the cancer illness were also detected.    Conclusion: The siblings reported both negative and positive experiences as a result of the disease. A lot of siblings appreciate when they get informed, supported and involved by both their family and other persons in their surroundings. Involvement of the healthy sibling was something that the nurse could contribute with in a valuable way in her nursing care.

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