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Previous issue date: 2010-10-22 / Hansen's disease, despite significant advances regarding the diagnosis, treatment and control still carries an immense burden of stigma as a result, mainly of its socio-historical marked by prejudice and isolation of patients, translated by suffering, abandonment and psychosocial problems. Thus, the study set out to rescue the life stories of former leprosy patients with a leprosarium history; recovering the life trajectory stories of these former patients and to identify common factors to these life stories. Exploratory-descriptive study with a qualitative approach, using the Life History Research Methodology. The sample was composed by twelve former leprosy patients who lived while undergone treatment in the Colony Hospital St. Francisco de Assis, located in Natal, Rio Grande do Norte. The network was composed without considering sex and age limit, patients that lived in the Colony Hospital for at least six months and who agree to participate freely in the study. The subjects with special physical needs (hearing) or mental disabilities and those who do not agree to participate were excluded. A semi-structured interview was used to data collection, the interviews were recorded in the household context of individual, residents in neighborhoods Felipe Camar?o, Km 6 and Jardim America, more precisely at Nova Vida village, all located in that district. The data collected were subjected to the technique of thematic content analysis. This study had obtained an appropriate consent of the UFRN Research Ethics Committee under the protocol No. 016/2010. After extensive and careful readings of life stories we identified three themes that guided the data analysis: behavioral stages, social exclusion and, stigma and prejudice. Thus, it is clear that the practice of compulsory confinement of patients in nursing homes and the mythical image of Hansen's disease as being ugly and deformed, contributed to solidifying the historical stigma surrounding the disease and its patients, raising in society and family attitudes and feelings of exclusion, prejudice and fear. Moreover, there are remarkable stories in the lives of these interviewed reporting suffering, denials, anger that reverberate to this day, affecting negatively the social and family reintegration of these individuals. As a result, we see the need for managers and local health professionals, especially nurses, rethink existing strategies for social rehabilitation of the patient and ex-leprosy patient aiming to suppression unjust and harmful stigma rooted in image and stories of these individuals / A hansen?ase, apesar dos significativos avan?os no que concerne a seu diagn?stico, ao controle e tratamento, ainda hoje apresenta uma carga incomensur?vel de estigma em consequ?ncia, principalmente, de sua constru??o s?cio-hist?rica, marcada pelo preconceito e o isolamento dos doentes, traduzidos pelo sofrimento, abandono e pelos problemas psicossociais. Destarte, o estudo objetivou resgatar a trajet?ria de vida de ex-portadores de hansen?ase com hist?rico asilar, recuperar as hist?rias da trajet?ria de vida desses ex-portadores e identificar os fatores comuns a essas hist?rias de vida. Estudo explorat?rio-descritivo, com abordagem qualitativa, utilizando-se como referencial metodol?gico a hist?ria oral de vida. A col?nia do estudo foi formada por doze ex-portadores de hansen?ase que foram asilados na Col?nia S?o Francisco de Assis, locado no munic?pio de Natal, Rio Grande do Norte. A rede foi composta por colaboradores independentes do sexo e sem idade limite m?ximo, que viveram na Col?nia por um per?odo m?nimo de seis meses e, que concordarem em participar livremente do estudo. Foram exclu?dos da rede colaboradores portadores de necessidades f?sicas (audi??o) ou mentais e, que n?o concordarem em participar do estudo. Como instrumento de coleta de dados, utilizou-se a entrevista semiestruturada, gravada individualmente em contexto domiciliar dos colaboradores, residentes nos bairros Felipe Camar?o, Km 6 e Jardim Am?rico, mais precisamente no Conjunto Nova Vida, todos situados no referido munic?pio. Os dados foram analisados segundo a t?cnica de an?lise de conte?do tem?tica. O estudo foi aprovado pelo Comit? de ?tica em Pesquisa da Universidade Federal do Rio Grande do Norte, sob parecer de n? 016/2010. Ap?s sucessivas e cuidadosas leituras das hist?rias de vida foram identificados tr?s eixos tem?ticos norteadores da an?lise dos dados: est?gios comportamentais, exclus?o social e, estigma e preconceito. Dessa forma, percebeu-se que a pr?tica do confinamento compuls?rio dos enfermos em institui??es asilares concomitante a imagem m?tica do leproso como ser repulsivo e deformado, contribuiu para solidifica??o hist?rica do estigma em torno da doen?a e do doente, despertando na sociedade e na fam?lia atitudes e sentimentos de exclus?o, preconceito e medo. Ademais, observou-se nas hist?rias de vidas dos colaboradores relatos marcantes de sofrimento, nega??o, rejei??o, revolta que repercutem at? os dias atuais, interferindo negativamente na reintegra??o social e familiar desses indiv?duos. Com isso, aponta-se a necessidade de gestores e profissionais locais da sa?de, sobretudo enfermeiros, de repensarem as estrat?gias vigentes de reabilita??o social do doente e ex-doente de hansen?ase, visando ? supress?o de uma estigmatiza??o injusta e nociva enraizada na imagem e hist?ria de vida desses indiv?duos
| Identifer | oai:union.ndltd.org:IBICT/oai:repositorio.ufrn.br:123456789/14717 |
| Date | 22 October 2010 |
| Creators | Videres, Arieli Rodrigues Nobrega |
| Contributors | CPF:05261856272, http://lattes.cnpq.br/3568948187738623, S?, Lenilde Duarte de, CPF:48661767415, http://lattes.cnpq.br/6801469017582405, Miranda, Francisco Arnoldo Nunes de, CPF:04960360330, http://lattes.cnpq.br/9242337504601387, Menezes, Rejane Millions Viana, CPF:23039310453, http://lattes.cnpq.br/9130470143761299, Simpson, Cl?lia Albino |
| Publisher | Universidade Federal do Rio Grande do Norte, Programa de P?s-Gradua??o em Enfermagem, UFRN, BR, Assist?ncia ? Sa?de |
| Source Sets | IBICT Brazilian ETDs |
| Language | Portuguese |
| Detected Language | Portuguese |
| Type | info:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis |
| Format | application/pdf |
| Source | reponame:Repositório Institucional da UFRN, instname:Universidade Federal do Rio Grande do Norte, instacron:UFRN |
| Rights | info:eu-repo/semantics/openAccess |
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