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Ser cuidador de paciente com acidente vascular cerebral: hist?rias n?o contadas / Caregiver of a patient with stroke: untold stories

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Previous issue date: 2014-06-09 / O presente estudo objetivou compreender a viv?ncia de ser um cuidador familiar de paciente com Acidente Vascular Cerebral (AVC). A relev?ncia do estudo deve-se a exist?ncia comprovada de um elevado n?mero de cuidadores de pacientes incapacitados, em decorr?ncia do AVC, e que n?o v?m sendo objeto de investiga??o no ?mbito acad?mico, conforme refere ? literatura. Trata-se de uma pesquisa de natureza qualitativa, cujo fio condutor se pautou na hist?ria oral de vida, conforme a fundamenta??o te?rica e operacional de Meihy. Assim sendo, foram evidenciadas as seguintes etapas: a comunidade de destino, composta por todos os cuidadores familiares de pacientes com AVC; a col?nia, formada por cuidadores familiares de pacientes com AVC e que foram atendidos pelo Servi?o de Atendimento Domiciliar (SAD) do Hospital Jos? Pedro Bezerra (HJPB), na cidade do Natal/RN; a rede foi constitu?da por seis cuidadores que atendiam os crit?rios de inclus?o, e como ponto zero o primeiro volunt?rio do grupo. A popula??o foi composta por todos os cuidadores familiares atendidos pelo SAD, do HJPB tendo sido abordados atrav?s de entrevistas. Para a realiza??o da pesquisa emp?rica contou com a anu?ncia dessa institui??o e aprova??o do Comit? de ?tica em Pesquisa da Universidade Federal do Rio Grande do Norte conforme CAAE n? 24569413.0.0000.5537 e, sobretudo, com a aquiesc?ncia dos colaboradores em participar da investiga??o, assinando o Termo de Consentimento Livre e Esclarecido. Do material emp?rico foram identificadas cinco categorias de an?lise: O sentido de ser cuidador; O que mudou na vida do cuidador; Os sentimentos emergem na rela??o do cuidar; O distanciamento de familiares e amigos; Dificuldades enfrentadas pelo cuidador. Os resultados evidenciam que a vida do cuidador passa por profundas transforma??es no ?mbito da fam?lia bem como, em todas as esferas da vida. Para os cuidadores, assumir o cuidado de um familiar com AVC significa ren?ncia e doa??o, comprometendo, algumas vezes, os projetos individuais e da fam?lia como um todo. Al?m disso, ressaltam o enfrentamento de dificuldades no ?mbito da assist?ncia e humaniza??o na sa?de, informa??o, sobrecarga f?sica e emocional, al?m de problemas de ordem financeira. Apesar de todas as adversidades que comprometem a vida do cuidador foi poss?vel identificar atitudes de resili?ncia entre os cuidadores, tornando o seu fazer cotidiano menos ?rduo e com mais leveza. Espera-se, portanto, que essa pesquisa possa contribuir para uma melhor orienta??o dos profissionais junto aos cuidadores. / The present study aimed to understand the experience of being a family caregiver of a patient
with Cerebrovascular Accident (CVA). The relevance of the study is to prove existence of a
large number of caregivers of incapacitated patients, due to the CVA and it is not an academic
research object, according to the literature. It is a qualitative research, which the guiding
principle is the oral history of life, according to the theoretical foundation and operating of
Meihy. Therefore, the following steps were highlighted: the target community, composed of
all family caregivers of CVA patients; the colony, composed by family caregivers of CVA
patients assisted by Home Care Service (HCS) of the Hospital Jos? Pedro Bezerra (HJPB), in
the city of Natal/RN; the network was composed of six caregivers who met the criteria for
inclusion, and as zero point the first volunteer group. The population was composed of all
family caregivers of patients attended by the HCS, of the HJPB having been addressed
through interviews. For the empirical research there was the consent of that institution and
approval by the Ethics Committee in Research of the Federal University of Rio Grande do
Norte as CAAE 24569413.0.0000.5537 and, above all, with the acquiescence of employees in
participating in the investigation, signing an informed consent. Of the empirical material, five
categories of analysis were identified: the sense of being a caregiver; what has changed in the
life of the caregiver; the feelings emerge in the relationship of care; the distance from family
and friends; difficulties faced by the caregiver. The results show that the caregiver's life goes
through profound transformations within the family as well as in all spheres of life. For the
caregivers, assuming the care of a relative with CVA means renunciation and donation,
compromising sometimes the individual projects and the family as a whole. In addition, they
point out the confrontation of difficulties within the the assistance and humanization in
healthcare, information, physical and emotional overload, as well as financial problems.
Despite all the adversities that compromise the caregiver's life, it was possible to identify
attitudes of resilience among caregivers, making them their daily life less strenuous and with
more lightness. It is expected, therefore, that this research can contribute to a better
orientation of professionals with the caregivers

Identiferoai:union.ndltd.org:IBICT/oai:repositorio.ufrn.br:123456789/19505
Date09 June 2014
CreatorsMoura, Kalina Siqueira de
Contributors00446114472, http://lattes.cnpq.br/4120682351858267, Meneses, Rejane Millions Viana, 23039310453, http://lattes.cnpq.br/9130470143761299, Valen?a, Cec?lia Nogueira, 06139778409, http://lattes.cnpq.br/2788316719185705, Bosco Filho, Jo?o, 90467345449, http://lattes.cnpq.br/3068285662145237, Oliveira, Josineide Silveira de, 28230264449, http://lattes.cnpq.br/5439210347544379, Germano, Raimunda Medeiros
PublisherUniversidade Federal do Rio Grande do Norte, PROGRAMA DE P?S-GRADUA??O EM ENFERMAGEM, UFRN, Brasil
Source SetsIBICT Brazilian ETDs
LanguagePortuguese
Detected LanguageEnglish
Typeinfo:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis
Sourcereponame:Repositório Institucional da UFRN, instname:Universidade Federal do Rio Grande do Norte, instacron:UFRN
Rightsinfo:eu-repo/semantics/openAccess

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