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MACHADO Luciana - Jovens de Fibra.pdf: 451490 bytes, checksum: 2dedb779d4a78f985686f98d13a38384 (MD5) / Fundação Oswaldo Cruz. Instituto Fernandes Figueira. Departamento de Ensino. Programa de Pós-Graduação em Saúde da Criança e da Mulher. Rio de Janeiro, RJ, Brasil / A adequação das necessidades dos jovens que sofrem com
adoecimento crônico às demandas do tratamento prolongado foi sempre um
desafio para a equipe de saúde, o paciente e sua família. Nesse cenário, a
fisioterapia compõe a complexa rede de cuidados na rotina dos adolescentes
com Fibrose Cística (FC). O objetivo desse estudo consistiu na análise da
vivência do adoecimento crônico dos adolescentes com Fibrose Cística, em
relação ao tratamento de fisioterapia. Para tanto, a metodologia utilizada foi
baseada na análise temática obtida por meio de entrevistas semiestruturadas
com os adolescentes de FC. Os sujeitos tinham entre 10 a 18 anos e eram
acompanhados pelo setor de Pneumologia do Instituto Fernandes Figueira. Os
resultados apontaram, a partir dos relatos, que a fisioterapia limita a realização
de outras atividades de interesse dos jovens, em virtude da disciplina e
regularidade do tratamento. A realização dos exercícios era geralmente
desagradável e foi identificada como um momento de enfrentamento da
doença. Muitos sujeitos desconheciam a função das técnicas aplicadas durante
o atendimento fisioterapêutico e, por vezes, não viam sentido no que foi
proposto. Na ótica dos adolescentes entrevistados, a fisioterapia apareceu
como uma intervenção pontual no cotidiano e não relacionavam seus
benefícios à qualidade de vida. A conduta restrita à técnica e, em muitos casos,
a promoção da participação passiva do jovem, dificultavam sua aproximação
com o tratamento fisioterapêutico. Discussão: Os diferentes aspectos
presentes na vida dos adolescentes com FC influenciam não só o adoecimento
crônico, mas também seu tratamento. Considerando a interação entre
profissional de saúde - paciente, o fisioterapeuta deve estar atento para o seu
papel no processo de tratamento destes sujeitos. Sua atuação deve
transcender às questões da doença, priorizando também o bem estar e a vida
social dos adolescentes com FC. Sendo assim, o olhar ampliado do
fisioterapeuta e a humanização no cuidado com esse público são tão
fundamentais quanto a técnica escolhida, consistindo, muitas vezes, em um
valioso auxílio para o enfrentamento da doença. / The adequacy of young people needs that suffers with chronic illness to
the demands of prolonged treatment has always been a challenge for the health
care team, patients and their family. In this context, physiotherapy forms the
complex network of health care in the routine of adolescents with Cystic
Fibrosis (CF). The aim of this study was the analysis about living with chronic
illness through the perspectives of adolescents with Cystic Fibrosis, in relation
to physiotherapy treatment. Hence, the methodology applied was based on the
thematic analysis obtained through semi-structured interviews with adolescents
with CF. Subjects were between 10 and 18 years old and were undergoing
treatment at Pulmonology clinic in the Instituto Fernandes Figueira. The
results from data collected signify that physiotherapy limits young people to
enroll in others activities of their interest, on account of discipline and regularity
of the treatment. The exercises regime was normally unpleasant and was
shown as a moment of facing their disease. Many subjects did not know about
the function of techniques that were applied during physiotherapy assistance,
and sometimes, could not make any sense of what was proposed. In the
interviewed adolescent’s opinion, physiotherapy was revealed as a punctual
intervention in their daily life and its benefits were not related to quality of life. A
narrow view of care, and in many cases, an incentive for the young to
participate in a submission way, hindered their approach to physiotherapy.
Discussion: The different aspects present in the lives of adolescents with CF
not only influence chronic illness, but also its treatment. Considering the
interaction between health care professional and patient, the physiotherapist
must be aware of their role in the organizational of work of these subjects. The
actions of this professional should go beyond the issues of disease, also
prioritizing the well-being and social life of adolescents with CF. Thus, the
physiotherapist’s broader view and humanization care of young people with CF
is as important as the chosen technique, consisting often in a valuable aid for
facing the disease. / The adequacy of young people needs that suffers with chronic illness to
the demands of prolonged treatment has always been a challenge for the health
care team, patients and their family. In this context, physiotherapy forms the
complex network of health care in the routine of adolescents with Cystic
Fibrosis (CF). The aim of this study was the analysis about living with chronic
illness through the perspectives of adolescents with Cystic Fibrosis, in relation
to physiotherapy treatment. Hence, the methodology applied was based on the
thematic analysis obtained through semi-structured interviews with adolescents
with CF. Subjects were between 10 and 18 years old and were undergoing
treatment at Pulmonology clinic in the Instituto Fernandes Figueira. The
results from data collected signify that physiotherapy limits young people to
enroll in others activities of their interest, on account of discipline and regularity
of the treatment. The exercises regime was normally unpleasant and was
shown as a moment of facing their disease. Many subjects did not know about
the function of techniques that were applied during physiotherapy assistance,
and sometimes, could not make any sense of what was proposed. In the
interviewed adolescent’s opinion, physiotherapy was revealed as a punctual
intervention in their daily life and its benefits were not related to quality of life. A
narrow view of care, and in many cases, an incentive for the young to
participate in a submission way, hindered their approach to physiotherapy.
Discussion: The different aspects present in the lives of adolescents with CF
not only influence chronic illness, but also its treatment. Considering the
interaction between health care professional and patient, the physiotherapist
must be aware of their role in the organizational of work of these subjects. The
actions of this professional should go beyond the issues of disease, also
prioritizing the well-being and social life of adolescents with CF. Thus, the
physiotherapist’s broader view and humanization care of young people with CF
is as important as the chosen technique, consisting often in a valuable aid for
facing the disease.
| Identifer | oai:union.ndltd.org:IBICT/oai:www.arca.fiocruz.br:icict/4098 |
| Date | January 2012 |
| Creators | Machado, Luciana Araújo Lima |
| Contributors | Mitre, Rosa Maria de Araujo |
| Publisher | Instituto Fernandes Figueira |
| Source Sets | IBICT Brazilian ETDs |
| Language | Portuguese |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis |
| Source | reponame:Repositório Institucional da FIOCRUZ, instname:Fundação Oswaldo Cruz, instacron:FIOCRUZ |
| Rights | info:eu-repo/semantics/openAccess |
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