Made available in DSpace on 2017-06-01T18:08:40Z (GMT). No. of bitstreams: 1 Leda Viana.pdf: 944185 bytes, checksum: 98dc4ffe5bebbc00fe16f8d52ed04244 (MD5) Previous issue date: 2004-01-12 / To have a child with cancer and hospitalized is a painful situation to all family. In most cases, is the mother who stays whit the child in the hospital, being her involvement recognized as fundamental for medical treatment and his recovery. That s why, it s necessary an understanding about her real necessities faced with universe of infant cancer. Therefore this study focus on sense of the livings of mothers-being close of children in cancer treatment. This research is quality, with phenomenologic grounding, in which, we used like devices the free observations and mothers-being close talks. In among specialties about the livings of mothers-being close , we highlight some expressions that are shared and told by her: faced with diagnosis cancer, they express feelings of unbelievable, despair and disgust; during the going with her child, the mothers tell to feel fear, helpless; they seek desperately a cause for the sickness of their children; they express grateful to the hospital; they show necessity for obtain information about cancer. We understand the mothers-being close , during the going into the hospital, need, especially, emotion support, effective and systemic careful, so that, can contribute effectively in the treatment and recovery of their children / A realidade de ter um filho com câncer e hospitalizado, é uma situação penosa para toda família. Na maioria dos casos, é a mãe que acompanha o internamento, sendo sua participação reconhecida como fundamental no tratamento e recuperação do filho. Para tanto, é necessário uma compreensão de suas reais necessidades frente ao universo do câncer infantil. Este estudo vem focalizar, portanto, o sentido das vivências de mães-acompanhantes de filhos no tratamento do câncer. Trata-se de uma pesquisa qualitativa de base fenomenológica, na qual buscamos trabalhar com observações livres e narrativas de mães que estão vivenciando o acompanhamento ao tratamento de filhos com câncer. Dentre as singularidades dessas vivências, destacamos algumas expressões que são compartilhadas e narradas pelas mães: diante do diagnóstico de câncer, expressam sentimentos de incredulidade, revolta, desespero; na hospitalização, relatam sentir temor, desamparo; buscam incessantemente uma causa para o adoecimento dos filhos; explicitam gratidão pelo hospital; demonstram necessidade de obter informações sobre o câncer. Entendemos que as mães- acompanhantes, durante a internação, necessitam, sobretudo, de suporte emocional, atenção efetiva e sistêmica, para que, assim, possam contribuir ativamente no tratamento e restabelecimento dos filhos

Made available in DSpace on 2017-06-01T18:08:43Z (GMT). No. of bitstreams: 1 Joselia.PDF: 789887 bytes, checksum: 548bf970932ee94bb2ffa627cf3dcb12 (MD5) Previous issue date: 2003-02-27 / The main goal of this research is to reflect on the severely-burned patient who is in a limit situation and who has been offered current psychological help, so that he/she is able to face the necessary treatment. This severe health situation leads the patient into a deep depression and consequently makes him/her feel that his/her life may come to an end some time in the near future. Therefore the severely-ill patients feel themselves depressed and helpless. Because they underwent very serious burns and due to their high level of morbidity they feel emotinally impaired. They need strength so that they are able to stand and face treatment. Moreover, they need to be conscious of their own deep suffering in order to face it with courage and in a positive way. The methodology chosen has a phenomenal and existential basis. Hence interviews were made with the patients and the medical staff as well so that one can understand how this tough experience happens and also what it means to the patient. Based on the patients report it was found that they feel anxious and anguished both for not knowing what is ahead for them, e. g. if they will get better and also because they are aware of death: they know they may die! The author decides to name vividação that very situation which Frankl mentions when the patients make use of their own courage, hope and sympathy to overcome anxiety and suffering. Heidegger thinks that anguish and anxiety both force the patients to care for themselves, and turn them strong in their deep inner loneliness. This fact shows that vividação is in fact ação vivida , e. g. the patients themselves fighting to defeat all that anguish, anxiety and suffering / O objetivo deste estudo foi refletir sobre o paciente grande queimado na situação-limite em que se encontra, e quais os recursos psicológicos presentes para que ele possa enfrentar, junto com as ações da equipe de saúde, o tratamento necessário. O adoecimento agudo põe este ser/paciente numa situação de (des)continuidade existencial. Desestabiliza-se emocionalmente, pela experiência vivida e pelo seu alto grau de morbidade. Precisa de força para suportar e enfrentar o tratamento e se (re)conhecer em seu sofrimento. Para compreender como essa experiência acontece e que sentido o paciente dá à situação, escolhi uma metodologia de cunho fenomenológico existencial e, através de entrevistas com os pacientes e com os profissionais da equipe, fui percorrendo o caminho que cunhei vividação, articulando-o ao que os estudiosos do cuidado podiam me dizer. Ouvindo as narrativas, pude concluir que, nessa experiência, a angústia revela-se, por um lado, pela incerteza e, por outro lado, pela certeza da finitude. Tanto no limite do paciente, quanto no cuidado da equipe hospitalar, ela é uma só. Ouvindo Frankl encontrei o sentido da vividação na coragem, na esperança e na solidariedade, enquanto que à luz de Heidegger, a angústia mobiliza o cuidar de si e o encontrar-se na solicitude, indicando que vividação é ação vívida e percorre a serenidade para manter-se corajosamente sendo

Made available in DSpace on 2017-06-01T18:08:44Z (GMT). No. of bitstreams: 1 ivana carvalheira.pdf: 1499667 bytes, checksum: beb0cba4ab3133ac41bacec304771573 (MD5) Previous issue date: 2003-03-28 / Considering the pain and suffering of the burned child who is in hospital, this author was concerned mostly with the kinds of current clinical help which are offered by the psychology professionals staff. From this view point when one researched about the saber fazer , that is, the psychological and clinical know-how, there were a great number of possibilities as to the fazer saber , e.g. how to reach the suffering child in his/her innerself and let him/her know that there is someone who in fact can help. It was found out that there were a number of attitudes, actions, interventation and interpretation which the psychologist could make use of in his relationship and care for the subject, the burned child. Therefore, the psychologist and/or researcher should be conscious about how broad the psychological clinical field is, and further he/she needs to understand clearly what may help as well as what may prevent a certain contextual action . One should start from understanding the subject s individual experience as a unique human being. This study aims to take a rather different look at the burned child specific experience, and tries to provide a new meaning to the psychological clinical action, inside a hospital, enlightened by both the existential phenomenon and attitudes for the psychological clinical action. The qualitative methodology was chosen, and it was inspired by the narrator himself. It was also supported by the phenomenal method for interpretation. The material analysed is made up of narratives based on the psychologist/researcher experiences, as well as from the burned child and the mother, who were in the Burned Treatment Center (BTC). In addition, reports from professionals belonging to the same health staff were considered. Finally , special attention was given to both the experienced/affectionate knowledge and the theoretical one, all deriving from talks to area field experts. It was discovered that the psychological action done at the BTC is in the pratical-theoretical field from the Psychological Advice, and it is deemed as an educational and psychological-clinical practice, in an interdisciplinary dimension of a clinical social action. M oreover, some special peculiarities were found from the communication among the professional psychologist, the burned child and the mother. Those peculiarities were the tools which facilitated the psychologist / Considerando a experiência de aflição da criança queimada hospitalizada, buscou-se pensar, como maior propriedade, sobre os modelos assistenciais clínicos instituídos, disponibilizados no atendimento a sua demanda psicológica. Nessa perspectiva, ao pesquisar sobre o saber/fazer clínico psicológico, revelaram-se múltiplas atitudes, ações, intervenções, orientações, interpretações, possíveis e cabíveis, ao psicológico na relação/cuidado com o sujeito. Lançando como profissional e/ou pesquisador no vasto campo da clínica psicológica , é importante compreender o que facilita ou dificulta uma ação situada. Parte-se de uma compreensão de ação implicada como constituinte no modo de ser humano: sujeito que age. Assim, este trabalho visa, a partir de uma experiência específica, trazer um outro olhar, ressignificando o fazer clínico psicológico no contexto do hospital, à luz da fenomenologia existencial e de dispositivos para a ação clínica psicológica. Recorreu- se à metodologia qualitativa, inspirada na figura do narrador e amparada no método fenomenológico para interpretação. A matéria-prima desta obra consiste em narrativas da experiência do psicólogo/pesquisador e dos interlocutores nos atendimentos, criança e sua mãe, no Centro de Tratamento de Queimados, além de relatos de profissionais dessa mesma equipe de saúde. Ao final, procurou-se uma articulação entre o conhecimento vivido/afetivo e o conhecimento teórico, a partir do diálogo com autores. Vislumbrou-se que a ação psicológica no C.T.Q. situa-se no campo teórico-prático do Aconselhamento Psicológico, como prática clínico- psicológica e educacional, numa dimensão interdisciplinar de ação social clínica. Foram, ainda, evidenciadas peculiaridades da comunicação entre a psicóloga, a criança e sua mãe, compreendidas como utensílios/utilitários facilitadores da intervenção psicológica. Espera-se, com este trabalho, apontar aberturas para ousadias responsáveis na atuação clínica, com implicações para o estudo e prática interdisciplinar

Bakgrund Det behövs ökade kunskaper om hur sjuksköterskan kan involvera familjen och utföra en familjecentrerad omvårdnad. Ett tydligt arbetssätt kring familjecentrerad omvårdnad kan underlätta utförandet av arbete i att involvera familjen i omvårdnaden. Sjuksköterskor behöver utveckla förståelse av vad familjen innebär för den sjuka barnet och ta det som utgångspunkt i familjecentrerat arbetssätt. Syfte Syftet är att beskriva sjuksköterskornas erfarenhet av familjecentrerad omvårdnad till barn som är inneliggande på sjukhus. Metod Strukturerad litteraturstudie med inslag av den metodologi som används vid systematiska översikter. Elva artiklar analyserades, åtta kvalitativa, två kvantitativa och en mixad metod från databaser PubMed och CINAHL. Resultat Sjuksköterskorna upplever att familjecentrerad omvårdnad, när den appliceras korrekt och med tillräckliga kunskaper, är positiv och gör att omvårdnadsarbetet blir av god kvalitet. Det framkommer också att relationen mellan sjuksköterskor och familjen förstärker kommunikationen och delaktighet. Däremot upplever sjuksköterskorna att de inte har tillräckliga kunskaper och tydliga rutiner vilket leder till att alla sjuksköterskor jobbar på olika sätt. Slutsats Sjuksköterskor behöver mer kunskap kring familjecentrerad omvårdnad. Att involvera familjen har många fördelar och underlättar sjuksköterskornas arbete men det kräver att sjuksköterskorna har tillräckligt med kunskap om familjecentrerad omvårdnad. Om sjuksköterskan inte har tillräckligt med verktyg så upplevs det i stället som något negativt. / Background More knowledge about how nurses can involve the family and perform family-centred careis needed. A clear way of working around family-centred care facilitates the performance of work and nurses are positive about involving the family in caring. Nurses need to develop an understanding about the family´s importance to the sick child and take that as a starting point in family-centred work. Aim The aim it’s to describe nurse’s experiences of family centred care of hospitalized children. Method A structure literature study with elements of the methodology used in systematic reviews. There’s a total of eleven studies, eight qualitative, two quantitative and one mixed methods from database PubMed and CINAHL. Results The nurses feel that family-centred care, when applied correctly and with sufficient skills, is positive and makes nursing work of good quality. Also, the relations-ships between the nurses and families enhances the communication and the participation of the families in the care. However, nurses experience that do not have sufficient knowledge and routines about family-centred care witch lead to every nurse work on different ways. Conclusions Nurses needs more knowledge about family-centred care. To involve family, have many benefits and facilitates nurse´s work but the needs at the nurse have good knowledge about how family-centred care. If the nurse does not have sufficiently tools is family-centred care experiences as something negative.