Thesis (MEdPsych)--Stellenbosch University, 2008. / ENGLISH ABSTRACT: This study is aimed at gaining insight into the experiences of siblings of an individual with an intellectual and physical disability. Attaining greater insight into their lived reality, their feelings and concerns could make it possible to provide appropriate support. The review of selected literature provides information on many aspects of the these siblings' experience. Although many studies are quantitative in their approach, the literature review provides relevant and useful findings and inferences which were used to support and substantiate findings. During this qualitative study, which is situated within an interpretive phenomenological paradigm, four participants between the ages of eight and sixteen years were interviewed using semi-structured interviews. This format of interview allowed participants to use their own words to express their personal experiences. The results showed that siblings have both positive and negative experiences when another sibling has an intellectual disability. Other common difficulties include embarrassment, guilt, and the experience of differential treatment. Positive experiences and competencies include love and acceptance, personal growth, maturity, pride in siblings accomplishments, and appreciation for one's sibling. Several experiences were congruent with those mentioned in the literature. The insights into the experiences this study provides has implications for the development and provision of sibling support programmes and interventions. At present, state group support programmes for siblings are not provided within the Western Cape area. The interventions and assistance that do exist seem to be provided by the private sector only. Support can prove very costly, which means that it is not accessible to many who require it. Sibling workshop groups could provide a valuable support alternative to a currently "unsupported" group, the siblings. / AFRIKAANSE OPSOMMING: Hierdie studie poog om insig te verkry in die ondervindings van die broers en susters van 'n kind met intellektuele en fisiese gestremdhede. Beter insig in die realiteit van hul leefwyse, hulle gevoelens en bekommernisse kan beter ondersteuning aan hulle moontlik te maak. Die ondersoek van geselekteerde literatuur voorsien inligting rakende vele aspekte van die ondervindings van hierdie kinders. Alhoewel baie van die studies kwantitatief in hul benadering is, het die bestaande literatuur tog relevante en bruikbare bydraes en gevolgtrekkings verskaf wat gebruik kon word om bevindings te bevestig en te staaf. Hierdie kwantitatiewe studie het plaasgevind in 'n verklarende fenomenologiese paradigma en vier semi-gestruktureerde onderhoude is gevoer met deelnemers tussen die ouderomme van 8 jaar en 16 jaar. Hierdie formaat van onderhoudvoering dra by dat deelnemers hulle gevoelens in hul eie woorde uitdruk. Die bevindings het gewys dat broers/susters beide positiewe en negatiewe ondervindings van kinders met 'n intellektuele gestremdheid het. Ander algemene probleme sluit in skaamte, skuldgevoelens en die gevoel van gedifferensieerde behandeling. Positiewe ondervindings en vaardighede van broers en susters sluit liefde en aanvaarding, persoonlike groei, volwassenheid, trots op die broers/suster se bekwaamheid en die waardering van so 'n broer/suster in. Verskeie van die ondervindings het ooreengestem met bevindings wat in die literatuur gevind is. Die insigte in hierdie ondervindings wat deur hierdie studie voorsien word het implikasies vir programme en intervensies wat ondersteuning aan hierdie kinders bied. Tans is daar nie sodanige staatsgefinansierde ondersteuningsprogramme in die Wes-Kaap area nie. Die intervensies en ondersteuning wat wel beskikbaar is word slegs in die privaatsektor aangebied. Ondersteuning kan baie duur wees, wat beteken dat dit vir baie kinders wat dit nodig het, ontoeganklik is. Ondersteuningsgroepwerkswinkels kan 'n waardevolle alternatief bied vir die "nieondersteunde" groep, die kinders.

Chan, Yuet Ning Janice. / Thesis (M.Phil.)--Chinese University of Hong Kong, 2011. / Includes bibliographical references (leaves 126-136). / Abstracts in English and Chinese; some appendixes also in Chinese. / Abstract --- p.i / Acknowledgements --- p.iv / Contents --- p.vi / "List of Figures, Tables, and Appendices" --- p.vii / INTRODUCTION --- p.1 / Chapter CHAPTER ONE --- The Nature of Autism --- p.5 / Chapter CHAPTER TWO --- Literature Review on Psychological Adjustment of Siblings of Autistic Probands and Associating Factors --- p.16 / Chapter CHAPTER THREE --- Purpose of the Study and Hypotheses --- p.59 / Chapter CHAPTER FOUR --- Methodology --- p.66 / Chapter CHAPTER FIVE --- Results --- p.75 / Chapter CHAPTER SIX --- Discussion --- p.100 / CONCLUSION --- p.124 / References --- p.126 / Appendices --- p.137

published_or_final_version / Nursing Studies / Master / Master of Nursing in Advanced Practice

Not available / text

Training siblings as change agents for children diagnosed with autism spectrum disorders (ASD) has been shown to be beneficial in teaching a sibling to teach their brother or sister. There are very few interventions, however, that explore the range of effects that targeting particular skills has on sibling interactions. The purpose of this study was to assess the direct and collateral effects of training behavioral teaching techniques to a typically developing sibling. Four experimental conditions were assessed: baseline, sibling teaching toy play, baseline, and sibling teaching social play. Across all conditions, measures of teaching components and siblings' interactions were assessed. Results of the assessment showed that the sibling was an effective change agent and that more favorable interaction and engagement occurred when social play skills were taught. The results of this sibling intervention and guidelines for condition changes are discussed in terms of sibling relationships.

The purpose of this study is to examine the impact of parent-adolescent individuation on quality of siblings relationship among late adolescent females. Findings to date indicate that while changes are occurring in the parent-child subsystem. In accordance with the family systems theory, during the process of individuation the sibling relationship experiences some conflict or rivalry.

This study was designed to examine Adlerian personality priorities of siblings of individuals with Tourette Syndrome (TS). This study aimed to investigate whether a difference exists between TS siblings and siblings of those without disabilities on variables related to personality priorities. It was hypothesized that TS siblings would score significantly higher than the control group on the superiority and pleasing personality priorities and significantly lower on the comfort and control personality priorities. Both of the hypotheses were rejected. First, no significant difference was found between TS siblings and the control group on the superiority and pleasing personality priorities. Second, no significant difference was found between TS siblings and the control group on the comfort personality priority, and TS siblings scored significantly higher than the control group on the control personality priority.

The aim of this study is to discover how primary scholars as substitute parents, contemplate the perceiving aspect of their substitute parenting. In the theoretical chapters the demands set for adults as primary educators and their development, are viewed. A comparative study between the primary edu­ cator and the child, rounds it off. The experiencing, giving meaning to, and the consequent involvement of substitute parents in their life-world, follow. The research design, substantiates the choice of format, methods of data col­ lection and analyses. Examples of raw data gathered from various tests are presented. Finally, the consolidated data is interpreted. The findings of this study is that substitute parents experience their tasks as being pleasant. Substitute parents are generally over involved with their siblings. This culminates in the development of a strong bond between substitute parents and younger siblings. Substitute parents require support and guidance from an adult to enable them to become adults and venture in their life-world. / In bierdie studie is die leefWereld van die substituut-ouer bestudeer. Die oorhoofse doel van hierdie studie is om met behulp van teoretiese en empiriese studies, ondersoek in te stel na substituut-ouers se belewing van bulle besondere taak. Die studie neem 'n amwang met 'n beskrywing van die primere opvoeder se verantwoordelikhede en eise. Die ontwikkeling van die volwassene word daama bestudeer. Verder Is gelet op die e1se en ontwikkeling wat aan kindwecs gelykgestel word. Die doel hiermee, is om uiteindelik 'n vergelyking te kan tref tussen die volwassene en die kind. Nadat so 'n vergclyking tussen die kind en volwassene gemaak is, sal die probleme wat die kind as substituut-ouer ervaar, oorweeg kan word. Die literatuurstudie kulmincer in substituut-ouers se unieke betekenisgewing, betrokkenheid en belewing aan en by bulle leefWereld. Dan word die literatuurstudie opgevolg deur die navorsingsontwerp, keuse van steekproef­ neming asook wyses van dataverameling en -analisering. Ten slotte word daar gekyk na die verslaggewing aangaande inligting soos bekom met behulp van die verkenningsmedia, te wete individuele onderhoude met die deelnemers aan die navorsing, die Bene-Anthony gesinsverhou­ dingstoets, die Persoonlikheidsvraelys vir kinders, die projeksiemedia van Jacobs en Vrey en die Kinestetiese huisgesinstekeninge. Die gekonsolideerde data word dan geinterpreteer en weergegee ten einde die postulate soos in boofstuk 5 uiteengesit te beantwoord. Die belangrikste bevindings van die studie is dat die taak van substituut­ ouerswees vir laerskoolkinders aangenaam is. Hierdie aangename belewing van hulle taak as substituut-ouers, dra egter nie by tot die vonning van 'n positiewe selfkonsep by die substituut-ouer nie. Substituut-ouers ervaar angs en kommer aangaande hulle substituut-ouerskap. Hulle voel nie bevoeg om as substituut-ouers op te tree nie. Substituut-ouers IS oar die algemeen oorbetrokke by hulle broers en susters. Hulle sien om na hulle sibbe, verseker dat hulle veilig is en verleen hulp aan hulle, waar nodig. Hierdie betrokkenheid veroorsaak 'n sterk band tussen die leerlinge. Hierdie sterk band wat tussen die substituut-ouers en hulle sibbe bestaan, is egter afwesig tussen die substituut-ouers en hulle eie ouers. Substituut-ouers toon dan oak teen die verwagting van die navorser in, dat hulle nie beskik oor 'n verantwoordelikheidsin nie. Substituut-ouers k:an eerder beskryf word as teruggetrokke, met min deursettingsvennoe, prikkelbaar, goedhartig, onderdanig, athanklik en inskiklik. Die studie toon ten slotte dat substituut-ouers betrokke raak by hulle taak as substituut-ouers, vanwee 'n aansporingsmiddel, te wete sakgeld. Benewens vir die bogenoemde bevindings, toon die studie oak dat die ondersteuning en begeleiding van substituut-ouers deur 'n volwassene tot volwassenheid noodsaaklik is. / Psychology of Education / M. Ed. (Voorligting)

The aim of this study is to discover how primary scholars as substitute parents, contemplate the perceiving aspect of their substitute parenting. In the theoretical chapters the demands set for adults as primary educators and their development, are viewed. A comparative study between the primary edu­ cator and the child, rounds it off. The experiencing, giving meaning to, and the consequent involvement of substitute parents in their life-world, follow. The research design, substantiates the choice of format, methods of data col­ lection and analyses. Examples of raw data gathered from various tests are presented. Finally, the consolidated data is interpreted. The findings of this study is that substitute parents experience their tasks as being pleasant. Substitute parents are generally over involved with their siblings. This culminates in the development of a strong bond between substitute parents and younger siblings. Substitute parents require support and guidance from an adult to enable them to become adults and venture in their life-world. / In bierdie studie is die leefWereld van die substituut-ouer bestudeer. Die oorhoofse doel van hierdie studie is om met behulp van teoretiese en empiriese studies, ondersoek in te stel na substituut-ouers se belewing van bulle besondere taak. Die studie neem 'n amwang met 'n beskrywing van die primere opvoeder se verantwoordelikhede en eise. Die ontwikkeling van die volwassene word daama bestudeer. Verder Is gelet op die e1se en ontwikkeling wat aan kindwecs gelykgestel word. Die doel hiermee, is om uiteindelik 'n vergelyking te kan tref tussen die volwassene en die kind. Nadat so 'n vergclyking tussen die kind en volwassene gemaak is, sal die probleme wat die kind as substituut-ouer ervaar, oorweeg kan word. Die literatuurstudie kulmincer in substituut-ouers se unieke betekenisgewing, betrokkenheid en belewing aan en by bulle leefWereld. Dan word die literatuurstudie opgevolg deur die navorsingsontwerp, keuse van steekproef­ neming asook wyses van dataverameling en -analisering. Ten slotte word daar gekyk na die verslaggewing aangaande inligting soos bekom met behulp van die verkenningsmedia, te wete individuele onderhoude met die deelnemers aan die navorsing, die Bene-Anthony gesinsverhou­ dingstoets, die Persoonlikheidsvraelys vir kinders, die projeksiemedia van Jacobs en Vrey en die Kinestetiese huisgesinstekeninge. Die gekonsolideerde data word dan geinterpreteer en weergegee ten einde die postulate soos in boofstuk 5 uiteengesit te beantwoord. Die belangrikste bevindings van die studie is dat die taak van substituut­ ouerswees vir laerskoolkinders aangenaam is. Hierdie aangename belewing van hulle taak as substituut-ouers, dra egter nie by tot die vonning van 'n positiewe selfkonsep by die substituut-ouer nie. Substituut-ouers ervaar angs en kommer aangaande hulle substituut-ouerskap. Hulle voel nie bevoeg om as substituut-ouers op te tree nie. Substituut-ouers IS oar die algemeen oorbetrokke by hulle broers en susters. Hulle sien om na hulle sibbe, verseker dat hulle veilig is en verleen hulp aan hulle, waar nodig. Hierdie betrokkenheid veroorsaak 'n sterk band tussen die leerlinge. Hierdie sterk band wat tussen die substituut-ouers en hulle sibbe bestaan, is egter afwesig tussen die substituut-ouers en hulle eie ouers. Substituut-ouers toon dan oak teen die verwagting van die navorser in, dat hulle nie beskik oor 'n verantwoordelikheidsin nie. Substituut-ouers k:an eerder beskryf word as teruggetrokke, met min deursettingsvennoe, prikkelbaar, goedhartig, onderdanig, athanklik en inskiklik. Die studie toon ten slotte dat substituut-ouers betrokke raak by hulle taak as substituut-ouers, vanwee 'n aansporingsmiddel, te wete sakgeld. Benewens vir die bogenoemde bevindings, toon die studie oak dat die ondersteuning en begeleiding van substituut-ouers deur 'n volwassene tot volwassenheid noodsaaklik is. / Psychology of Education / M. Ed. (Voorligting)

The focus of this qualitative study is the way siblings of children with autism experience their nuclear family. Five participants in their middle childhood (6 to 12 years), with a younger sibling with autism, participated in the study. Individual unstructured interviews were conducted with all participants to describe their experience of their family. The interviews were, with the consent of the parents and children, video-recorded and transcribed. Eight recurring themes were identified in the transcriptions and studied relative to the existing literature. True to the qualitative nature of this study, the aim was not to generalize the findings, but to give each of the participants the opportunity to tell his/her story. The result of this study is the detailed description of how siblings of children with autism experience their nuclear family. / Social Work / M.Diac.(Play Therapy)