Many countries have seen an increase in the last 20 years in the number of children cared for by their Grandparents (Edwards & Sweeney, 2007; Edwards & Taub, 2009; Worrall, 2009). In the UK, Looked After Children (LAC) are increasingly being placed with kinship carers, formally known as ‘Family and Friends Care’ following guidance from The Children’s Act (2004). Support for this growing group of carers appears sporadic, and there has been some delay both in practice and procedures in responding to this increase in placement type. Children who are looked after by any carer other than their birth parents are more likely to experience difficulties within the educational context (Dent & Cameron, 2003). The increasing number of these children has implications for child and educational psychologists and other professionals within Children’s Services, as research suggests that children’s success in school depends upon contextual variables associated with the child, their home and school environments. This study explores the characteristics of kinship carers, how they perceive their role and the support currently available to them and also examines the reported educational progress made by children in their care. In addition, this exploratory study considers whether a model developed from Positive Youth Development (PYD) is a useful conceptual framework for professionals supporting KCs. This research uses a case study design; qualitative data has been obtained using semi-structured interviews and analysed using thematic analysis. Difficulties and support requirements varied across kinship carers, the majority of whom were pleased with the support they received, particularly from their families. There were some criticisms of Children’s Services support. Recommendations are made for both Children’s Services staff generally and child and educational psychologists specifically.

There have been significant changes in the clinical management of cerebral palsy (CP) during the past 2 decades. Gastrostomy tubes and nutritional supplements have been paramount in enhancing the life expectancy of those with CP. The literature shows that as many as 90% of children with CP can now expect to live to adulthood.1-4 As a result, CP is no longer considered to be a condition limited to childhood. However, emerging populations pose new challenges to those who provide health care support. This article presents an overview of what we know about the health care needs of adults with CP. / From the Laurentian University, Sudbury, Ontario; The Hospital for Sick Children, Toronto, Ontario; and The Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada. / Dr Young is supported by a Canadian Institutes of Health Research Canada Research chair.

Antalet anhörigvårdare i Sverige är många. För att de anhöriga ska orka vårda sina närstående 24 timmar om dygnet, sju dagar i veckan behöver det finnas ett stöd. De anhörigstöd som finns varierar från kommun till kommun. Ett anhörigstöd som har utarbetats för att underlätta insatsbehovet är COAT- Carers Outcome Agreement Tool som syftar till att kartlägga anhörigas behov, planera och följa upp anhörigstöd. COAT har en grund i partnerskapsmodellen och i modellen ses den anhörige som experten på situationen runt den närstående. De studier som är gjorda med anhöriga har mycket positiva resultat. Det är få studier gjorda utifrån personalperspektivet därför avsåg vi att undersöka deras individuella erfarenheter utav att använda COAT. Tio stycken kvalitativa intervjuer med personal är utförda i studien och analyserades med hjälp av en innehållsanalys. Fem kategorier trädde fram i analysen och presenteras i resultatet. I kategorierna beskriver vi det som personalen berättat i intervjuerna. Personalen är uteslutande positiva till instrumentet och de anser att det bör användas i större utsträckning. Diskussionen är formad utifrån våra forskningsfrågor och diskuteras med stöd av tidigare forskning. Vi diskuterar olika begrepp och relaterar dem ur personalens synvinkel gentemot den anhörige och dennes familj. / Program: Specialistsjuksköterskeutbildning med inriktning mot distriktssköterska

Long-term conditions (LTCs) such as diabetes, cardiovascular diseases, respiratory diseases and cancers are recognised as the greatest challenge facing public healthcare systems globally in the 21st century. Healthcare provision for people with LTCs is shifting towards a model that puts patients at the centre of their own care through supported self-care. Self-care support has emerged as a distinct concept in the management of LTCs and is now considered an inseparable component of high quality healthcare provided by healthcare professionals. People with LTCs are regular users of community pharmacy where dispensing and other services provide opportunities for self-care support. While self-care support as a concept has been explored extensively in health disciplines like nursing, medicine and health psychology, there is a paucity of published literature in community pharmacy. The main aim of this programme of work was to explore the place and contribution of community pharmacy in self-care support of LTCs. A preliminary scoping literature review captured and synthesised the overarching components of self-care support of LTCs into a single theoretical framework consisting of collaborative care planning, self-care information and advice, self-care skills support and training, self-care support networks and self-care technology. The research programme of work employed a mixed methods design consisting of three Work Streams. The qualitative arm of the programme consisted of semi-structured interviews with 24 patients with LTCs and 24 community pharmacists in England and Scotland; these informed the quantitative arm, which was a cross-sectional, online survey of 10,000 community pharmacists in England. The survey instrument was informed and developed from the findings of the pharmacists’ interviews in combination with existing literature. Data collection and analysis in the three work streams incorporated the theoretical framework of self-care support. The qualitative data analyses were undertaken thematically, while quantitative data were analysed using a range of descriptive and inferential statistics. Interviews with patients explored their ‘lived experience’ with LTCs and found that self-care was an integral part of daily living; patients engaged in self-care in a variety of ways to attain normality in their lives. Patients used a wide range of resources for self-care support; family/carers, friends and healthcare professionals (mainly doctors and nurses). Patients viewed and used community pharmacy mainly for the supply of prescribed medicines and suggested that community pharmacy played minimal roles in self-care support. The interviews and survey of community pharmacists showed that pharmacists recognised the broad range of activities and principles of self-care. However, in terms of pharmacists’ contributions to self-care support, their perspectives were narrower and focussed on providing information and advice on medicines-use to patients, while other activities such as lifestyle advice were provided opportunistically. They indicated that they were already providing medicines-focussed self-care support through the services available in community pharmacy. The theoretical framework allowed detailed exploration of how community pharmacists operationalised the different elements of self-care support of LTCs. Collaborative care planning was viewed as important but not within the remit of community pharmacy. Self-care information and advice was unidimensional and provided opportunistically and one-off, using the paternalistic biomedical model. Pharmacists valued the roles of patients’ personal communities but were not proactive in signposting to other support networks. Self-care skills training and support and the use of self-care technologies were limited. Barriers to providing self-care support were priority accorded to dispensing activities, the structure of the community pharmacy contract, lack of incentives to provide self-care support and patients’ expectations and lack of awareness of community pharmacy’s role in LTCs management. The theoretical framework of self-care support of LTCs provided novel insights into the perspectives of patients and community pharmacists. The findings highlighted the need for a coherent LTC strategy if community pharmacy is to align with the self-care support paradigm. Recommendations are made for a comprehensive package of care, underpinned by self-care support. A case is also made for incorporating the often ‘unheard’ patient voice into community pharmacy research and interventions.

Indiana University-Purdue University Indianapolis (IUPUI) / Access to healthcare services is important for improving health outcomes, preventing and managing illness, and achieving health equity. The geographic maldistribution of physicians has a negative impact on rural areas compared to urban, particularly as it relates to access to healthcare. Rural hospitals have been closing or converting to another form of healthcare service at an increasing rate, adding another element to the existing complexities in rural access to care. Although a hospital closure in any location may have a considerable impact on the community, the closure of a rural hospital may have disproportionately more substantial implications for the economy and employment, health outcomes, and access to care. The contributing factors preceding rural hospital closures have been studied, but less is known about the full impact of rural hospital closures on the community. There is some evidence of shortages in healthcare providers and services, and therefore communities may employ multiple strategies to mitigate the shortages and provide services, including utilizing telehealth/virtual services. This dissertation proposes to examine the effects of rural hospital closures on the community, healthcare services, access to care, and provide a qualitative assessment of telehealth as a strategy to bridge gaps in provider access. This dissertation includes three studies: 1) a systematic review of the literature to examine the impact of rural hospital closures on the community; 2) an empirical study that utilizes a generalized difference in difference design with county and year fixed effects to estimate the relationship between rural hospital closures and nursing homes; and 3) a qualitative study exploring the perceptions and experiences of the nurses that piloted a virtual care support project, providing insights into crucial elements important to the implementation of similar models and the role of telehealth in bridging healthcare workforce gaps.

L’annonce d’un diagnostic de cancer devrait être considérée par les professionnels de la santé, comme un processus constitué de plusieurs étapes que doit traverser la personne atteinte, plutôt que comme un évènement en soi (Tobin & Begley, 2008). Lors de la période entourant l’annonce du diagnostic, la personne peut être confrontée à des difficultés reliées à la navigation dans un système de santé complexe, en plus des sentiments négatifs engendrés par la crainte de la maladie. Pour soutenir les personnes atteintes de cancer, le programme québécois de lutte contre le cancer (PQLCC), a instauré le rôle de l’infirmière pivot en oncologie (IPO) en 2000. À l’heure actuelle, peu d’études, à notre connaissance, se sont attardées au soutien de l’IPO dans cette période. La présente étude avait pour but, d’explorer les perceptions de personnes atteintes de cancer quant au soutien offert par l’IPO, dans la période entourant l’annonce du diagnostic. L’étudiante-chercheuse s’est inspirée du Cadre de soins de soutien de Fitch (1994) pour entreprendre cette étude qualitative descriptive. Des entrevues individuelles auprès de sept personnes atteintes de différents cancers ont été réalisées. L’analyse de données a été effectuée à l’aide de la méthode de Miles et Huberman (2003), par la transcription intégrale des entrevues. Elle a permis d’identifier trois thèmes soit : le soutien formel requis pour faire face au chaos, le soutien informationnel et émotionnel à parfaire et le soutien disponible apportant sécurité et assurance. Les résultats ont mis en évidence les perceptions de personnes atteintes de cancer quant au soutien offert par l’IPO soit la nécessité de rendre accessible les soins et services de l’IPO plus tôt dans la période entourant l’annonce du diagnostic. Les personnes atteintes de cancer ont besoin d’être aidées à faire face aux difficultés rencontrées lors de cette période, notamment à l’incertitude reliée aux résultats d’examens diagnostics, à l’incompréhension des informations reçues et aux sentiments négatifs engendrés par la menace de la maladie. Les résultats évoquent le souhait des participants, à l’effet que, l’offre de soutien de l’IPO, soit axée sur leurs besoins essentiellement dans les domaines informationnel et émotionnel. Ils auraient souhaité pouvoir, partager leur expérience avec l’IPO, mieux comprendre le diagnostic de cancer et savoir davantage à quoi s’attendre lors du début des traitements. Par ailleurs, savoir que le soutien de l’IPO est disponible apporte aux personnes atteintes de cancer une assurance et une confiance en leur capacité à faire face aux traitements et leur apporte un sentiment de sécurité. / The announcement of a diagnosis of cancer should be considered by health professionals, a composed process of several steps that must pass through the person, rather than as an event in itself (Tobin & Begley, 2008). During the period surrounding the announcement of the diagnosis, the person may be faced with difficulties related to navigation in a complex health system, in addition to the negative feelings engendered by the fear of disease. To support people with cancer, the PQLC (French acronym of the Quebec Cancer Control Program) has established the oncology nurse navigator (ONN) role in 2000. At the present time, few studies, to our knowlecdge, are both in support of the ONN in this period. This study was designed, to explore the perceptions of people with cancer as regards the support offered by the ONN, in the period surrounding the announcement of the diagnosis. The student-researcher is inspired by the framework of Fitch supportive care (1994) to undertake this descriptive qualitative study. Individual interviews with seven people with different types of cancer were performed. Data analysis was performed using the method of Miles and Huberman (2003), by the full transcripts of the interviews. It has identified three themes is: formal support required to deal with the chaos, the informational and emotional to perfect and available support bringing security and insurance. The results highlighted the perceptions of people with cancer as regards the support offered by ONN or the need for accessible health care and services of the ONN earlier in the period surrounding the announcement of the diagnosis. People with cancer need to be helped to cope with the difficulties encountered during this period, including uncertainty about the results of diagnostic tests, to the bemusement of the information received and the negative feelings engendered by the threat of the disease. The results suggest the wish of the participants, to the effect that, the offer of support from the ONN, focuses on their needs mainly in both informational and emotional. They would have liked to be able to share their experience with the IPO, better understand the diagnosis of cancer and know more what to expect at the beginning of treatment. On the other hand, know that the support of the ONN is available brings to people with cancer insurance and a confidence in their ability to cope with treatment and brings them a sense of security.

Resume My dissertation follows early child support and care offered to children of early and pre- school age with risk psychomotor development. This support includes not only help to children with physical, mental or sensual defects, but also help to their patents, who participate in the research by filling anonymous questionaires regarding their satisfaction or displeasure with given subjects. The results of the research show among other two fundemental outcomes based on positive evaluation of the specialists who were taking care of the children and their parents. It also shows the satisfaction with consulting services to the parents who are using using them.

The number of older persons is growing at a shocking rate. In spite of this reality, the South African health care sector does not prioritise older persons, causing their health to be poorly managed. Not only does poor health management affect the health of the older person, but also economic factors. This causes a high burden on the public health sector of South Africa, with specific reference to the Primary Health Care (PHC) clinics. PHC clinics in this country are not only overcrowded due to staff shortages, but also owing to the rapidly ageing population and the large number of younger persons affected by the high unemployment rate of South Africa. The above-mentioned factors keep the professional nurses in the clinic from spending time on proper physical examinations and provision of health education to older persons. This causes older persons to lack knowledge regarding self-care, potentially leading to unintentional self-neglect, which decreases their quality of life. Studies conducted on older persons concluded that the older person wants to be involved in health promotion, but needs the necessary knowledge to take care of him- or herself. Therefore, the researcher's overarching aim with this study was to develop guidelines to facilitate self-care amongst older persons. Such guidelines aim at constituting an indirect approach to promote the health of the older person. Health education on self-care should be conducted in self-care support groups, since community experience teaches that some older persons in the community do not apply self-care skills learned without some form of support. The aim with these guidelines is to decrease unintentional self-neglect by empowering the older person to make autonomous decisions regarding self-care, in order to increase quality of life. RESEARCH AIM AND OBJECTIVES In order to reach the overarching aim of this study, which comprises the development of guidelines to facilitate self-care amongst the older persons in the Potchefstroom district, the study firstly includes a literature review to understand self-care and related constructs from a theoretical perspective. Secondly, the Appraisal of self-care agency scale-A (ASA-A) and Exercise of self-care agency scale (ESCA) were used as questionnaires to assess the self-care of the selected older persons. Lastly, after determining the self-care of the older persons, the study investigates the relationship between these two questionnaires through correlational analysis. RESEARCH DESIGN A quantitative, descriptive, correlational and contextual design was used in this study to .reach the overarching aim and respective objectives. RESEARCH METHOD The researcher firstly conducted a literature review to understand self-care and related constructs. Thereafter the researcher employed two structured questionnaires, the ASA-A and ESCA, were employed to collect data. The questionnaires were developed to measure self-care (self-care is determined by measuring the self-care agency). These questionnaires were based on Dorothea OrenYs self-care deficit theory of nursing, the same theory that this research study is based on. Minor adaptations were made to both the questionnaires prior to administration to the predominantly Setswana-speaking older population. The study formed part of the larger Multinational Prospective Urban and Rural Epidemiological study (PURE-SA study - ethical approval number 04M10). All the older persons identified in the peri-urban population of the PURE-SA study living in the Potchefstroom district and who were willing to participate were included in the sample. Trained fieldworkers assisted the researcher in data collection. Of the 198 older persons, 192 participated, accumulating to a 98% response rate. Lastly the researcher correlated the ASA-A and ESCA to determine their relationship as an added benefit to this research study. RESULTS The findings indicate that although the studied older population was of a lower socio-economic status with a lower literacy level, their overall self-care was relatively good. Seven self-care deficits were identified namely time management skills affecting self-care, energy deficit affecting self-care, sleep deprivation, lack of knowledge and ability to acquire knowledge with regard to health and self-care, lack of a rest, exercise and self-care programme, self-care deficit caused by physical deterioration and, lastly, the lack of performance of activities to prevent/decrease self-care deficits. These identified self-care deficits supported the development of guidelines to facilitate self-care amongst older persons, together with Menon's psychological health empowerment model, as well as an in-depth literature review on self-care and related constructs to understand self-care from a theoretical perspective. Furthermore, the study compared the ASA-A and ESCA questionnaires to determine the relationship between these questionnaires. The two questionnaires had a very good correlation with each other, conclusion that either of these two questionnaires could be used to measure self-care of a population. / Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2010.

The number of older persons is growing at a shocking rate. In spite of this reality, the South African health care sector does not prioritise older persons, causing their health to be poorly managed. Not only does poor health management affect the health of the older person, but also economic factors. This causes a high burden on the public health sector of South Africa, with specific reference to the Primary Health Care (PHC) clinics. PHC clinics in this country are not only overcrowded due to staff shortages, but also owing to the rapidly ageing population and the large number of younger persons affected by the high unemployment rate of South Africa. The above-mentioned factors keep the professional nurses in the clinic from spending time on proper physical examinations and provision of health education to older persons. This causes older persons to lack knowledge regarding self-care, potentially leading to unintentional self-neglect, which decreases their quality of life. Studies conducted on older persons concluded that the older person wants to be involved in health promotion, but needs the necessary knowledge to take care of him- or herself. Therefore, the researcher's overarching aim with this study was to develop guidelines to facilitate self-care amongst older persons. Such guidelines aim at constituting an indirect approach to promote the health of the older person. Health education on self-care should be conducted in self-care support groups, since community experience teaches that some older persons in the community do not apply self-care skills learned without some form of support. The aim with these guidelines is to decrease unintentional self-neglect by empowering the older person to make autonomous decisions regarding self-care, in order to increase quality of life. RESEARCH AIM AND OBJECTIVES In order to reach the overarching aim of this study, which comprises the development of guidelines to facilitate self-care amongst the older persons in the Potchefstroom district, the study firstly includes a literature review to understand self-care and related constructs from a theoretical perspective. Secondly, the Appraisal of self-care agency scale-A (ASA-A) and Exercise of self-care agency scale (ESCA) were used as questionnaires to assess the self-care of the selected older persons. Lastly, after determining the self-care of the older persons, the study investigates the relationship between these two questionnaires through correlational analysis. RESEARCH DESIGN A quantitative, descriptive, correlational and contextual design was used in this study to .reach the overarching aim and respective objectives. RESEARCH METHOD The researcher firstly conducted a literature review to understand self-care and related constructs. Thereafter the researcher employed two structured questionnaires, the ASA-A and ESCA, were employed to collect data. The questionnaires were developed to measure self-care (self-care is determined by measuring the self-care agency). These questionnaires were based on Dorothea OrenYs self-care deficit theory of nursing, the same theory that this research study is based on. Minor adaptations were made to both the questionnaires prior to administration to the predominantly Setswana-speaking older population. The study formed part of the larger Multinational Prospective Urban and Rural Epidemiological study (PURE-SA study - ethical approval number 04M10). All the older persons identified in the peri-urban population of the PURE-SA study living in the Potchefstroom district and who were willing to participate were included in the sample. Trained fieldworkers assisted the researcher in data collection. Of the 198 older persons, 192 participated, accumulating to a 98% response rate. Lastly the researcher correlated the ASA-A and ESCA to determine their relationship as an added benefit to this research study. RESULTS The findings indicate that although the studied older population was of a lower socio-economic status with a lower literacy level, their overall self-care was relatively good. Seven self-care deficits were identified namely time management skills affecting self-care, energy deficit affecting self-care, sleep deprivation, lack of knowledge and ability to acquire knowledge with regard to health and self-care, lack of a rest, exercise and self-care programme, self-care deficit caused by physical deterioration and, lastly, the lack of performance of activities to prevent/decrease self-care deficits. These identified self-care deficits supported the development of guidelines to facilitate self-care amongst older persons, together with Menon's psychological health empowerment model, as well as an in-depth literature review on self-care and related constructs to understand self-care from a theoretical perspective. Furthermore, the study compared the ASA-A and ESCA questionnaires to determine the relationship between these questionnaires. The two questionnaires had a very good correlation with each other, conclusion that either of these two questionnaires could be used to measure self-care of a population. / Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2010.

Orientador: Gastão Wagner de Souza Campos / Tese (doutorado) - Universidade Estadual de Campinas, Faculdade de Ciências Médicas / Made available in DSpace on 2018-08-26T14:32:56Z (GMT). No. of bitstreams: 1 Gutierrez_AdrianaCoser_D.pdf: 3103957 bytes, checksum: 5fd06fd854f87a789c17ff8a4a824368 (MD5) Previous issue date: 2014 / Resumo: Esta pesquisa analisa o processo de trabalho do Núcleo de Apoio à Saúde da Família (NASF), valendo-se do conceito de apoio matricial proposto por Campos. Apresenta-se como estudo qualitativo de caráter exploratório, com base em estudo de caso da experiência de implantação, no ano de 2010, do NASF no Território-Escola Manguinhos, vinculado à Fundação Oswaldo Cruz e fruto da parceria com a Secretaria Municipal de Saúde do Rio de Janeiro. Seu objetivo central é analisar o processo de trabalho do NASF do Território-Escola Manguinhos, a partir da contribuição do apoio matricial proposto por Campos (1998) sob a perspectiva de quem apoia, é apoiado e do gestor da atenção básica. Busca conhecer, em contexto, a realidade dos trabalhadores em saúde, de forma a observar o modo de organização proposto pela equipe do NASF, com vistas a contribuir para aprimoramento do conhecimento no que se refere à atenção primária e ao trabalho de equipes de saúde da família. Construiu-se o desenho desta pesquisa após identificação dos aportes teóricos que sustentam a análise do objeto desta investigação, assim como dos elementos que se pretende explorar e da estratégia de análise desses materiais. Compreende-se que a metodologia de estudo de caso proposta é estratégica para a área da gestão em saúde, por descrever em profundidade e em detalhe o objeto em seu contexto. Logo, as estratégias para a elaboração do material empírico são a análise histórico-estrutural do campo e do processo de implementação do NASF, a análise documental e entrevistas semiestruturadas aplicadas aos gestores e aos profissionais do NASF e do ESF. Para a análise e a interpretação do material elaborado no campo, partiu-se do compromisso com a fidedignidade à compreensão dos dados empíricos, referindo-se às relações sociais e dinâmicas e vivas, segundo o proposto por Minayo (2002). Optou-se pela análise hermenêutico-dialética proposta pela autora, por possibilitar o exame e interpretação do discurso dos sujeitos entrevistados com base nas práxis. Conclui com proposições a partir das semelhanças e contradições dos discursos dos diferentes participantes implicados na organização do NASF Manguinhos / Abstract: This research analyses the work process performed by the Family Health Care Support Unit (NASF) based upon the concept of matrix support suggested by Campos. This is presented as a qualitative study of explanatory character, based on NASF¿s establishing experience at the Manguinhos school territory case study, associated with Oswaldo Cruz Foundation, and as a product of a partnership with Rio de Janeiro¿s City Health Secretariat. The study¿s main objective is to analyze the contribution of a matriarchal support suggested by Campos (1998) applied in NASF¿s work process in the Manguinhos school territory, by the supporter¿s, supported¿s and basic health care manager¿s perspective. It explores into the health care workers¿ reality in context observing the organization methods proposed by NASF, focusing on the improvement of knowledge on primary health care and family health care team work. The research¿s design occurred with the identification of theoretical contributions that give foundation to the investigation¿s object analysis, the elements about to be explored and the materials analysis strategy. It is understood that the case study method suggested is strategic to the health care management field for its depth on object¿s description and detail, in context. Therefore empiric material consists of NASF¿s establishing process and the field¿s structural-historical analysis, documents¿ and semi-structured interviews done to management and NASF¿s and ESF¿s crew analysis. The analysis and interpretation of field generated material was committed to reliability on empirical data¿s comprehension, concerning social and dynamic and alive relations, according to Minayo (2002). An hermeneutic-dialectic analysis was chosen as suggested by the author, for the reason that it makes possible to consider and interpret the interviewed subjects¿ speech, praxis based. The conclusion comprises the participants¿ different speeches in resemblance and contradictions within Manguinhos NASF / Doutorado / Saude Coletiva / Doutora em Saúde Coletiva