Feeding disorders are common in disabled children, and family reactions are critical factors influencing the severity and course of this problem. This study hypothesized that feeding disorders in disabled children would be significantly more stressful to parents than other childhood disabilities; that pediatric feeding disorders would be more stressful in single parent families than two parent families; and that childhood feeding disorders would be less stressful to fathers than to mothers.Two copies each of the Friedrich Questionnaire on Resources and Stress (QRS-F) and a demographic data survey were sent to 79 families of disabled children. Responses were received from 47 subjects representing 31 households. Analysis of Variance of the QRS-F scores indicated significantly greater stress levels in families of disabled children who received tube feedings, but not in families whose disabled children required special assistance with oral feeding. There was an inadequate number of responses from single parent families to statistically compare their stress levels to two parent families with feeding disordered children. The comparison of fathers and mothers of disabled children with feeding disorders did not yield a statistically significant difference in stress levels.The greater stress levels found in parents of disabled children who received tube feedings shows a need to provide improved education and training programs, as well as support after hospital discharge, to families with tube fed children. / Department of Family and Consumer Sciences

Thesis (Ph. D.)--University of Sydney, 2007. / Title from title screen (viewed 9 January 2008). Submitted in fulfilment of the requirements for the degree of Doctor of Philosophy to the School of Occupation and Leisure Sciences, Faculty of Health Sciences. Degree awarded 2007; thesis submitted 2006. Includes bibliographical references. Also issued in print.

Parents' perceptions of their child's behavior may differ for mothers and fathers. Differences in parental perception may also be apparent in cases of special needs adoptive families with high demands of their child for time, interventions and attention. This paper examines the differences in mother-child and father-child interactions, child behavior as reported by mothers, and fathers and changes in both after participation in an intervention program. Results suggest notable differences between mothers' and fathers' parent-child interaction scores and reports of child behavior. In addition, interaction scores and behavior reports showed some correlations. Finally, there seemed to be notable differences in the trends for the Child Behavior Checklist compared to the two attachment measures (Randolph Attachment Disorder Questionnaire and Beech Brook Attachment Disorder Checklist). Several possible explanations for mother and father differences are discussed.

This was an exploratory-descriptive study of fifty children afflicted with myelomeningocele, ages one through six, who were known to the Myelomeningocele Clinic of the Crippled Children’s Division. The study identified the degree of multiple physical, emotional, and environmental stress factors that families must be prepared to cope with. The study identified eleven factors felt to play an important role in family dynamics and how they related to the families response to their child with myelomeningocele. The factors were tested and found to be valid by the use of a pre-test on ten case records. Medical records were then obtained from the Crippled Children's Division for chart review purposes and the appropriate material was recorded. Scores were developed that indicated the degree of stress ranging from minimal involvement to maximum involvement. The study found that a majority of the families in the sample live within commuting distance to needed medical services, have transportation available to them and generally utilize the necessary medical care appropriately. The remainder of the study showed, however, that families could be expected to face a variety of other problems that could only serve to increase family stress. Most of the families had limited financial resources. Over one-half of the families needed special education for their children. A majority of families had no medical insurance. Fifty-eight percent of the families were found to have additional stressful problems to cope with e. g., marital stress, sibling rivalry, additional ill members, etc. Added to this was the information that the child with myelomeningocele was found to be greatly involved in a multiplicity of medical problems at many different levels of functioning. e. g., orthopedic, bowel, neurosurgical, etc., that would be expected to add to the already stressful family dynamics. Among the recommendations developed was a plea for the expansion of the satellite clinic concept, development of parent groups on a geographical basis, development of educational programs for educators and community service personnel, brief orientation programs for parents with the goal of helping them understand and integrate the health care system that they find themselves in.

Sibling relationships are dynamic within any family context and disabilities add a different and even more complex dimension to a family context. In addition, inclusion is a relatively new concept in South Africa, especially as an inclusive society. This means that it is challenging for a family that has children with disabilities to live and function in the greater society as children with disabilities have specialised needs and expectations. However, siblings of children with disabilities have their own needs and expectations as participating individuals within a family context and within society; therefore it is of relevance to be fully aware of their personal views, perceptions, understanding and challenges they are confronted with. The primary aim of this study was to gain a rich and in-depth understanding of how the disabilities of a child could impact on a non-disabled sibling. With the above mentioned taken into account, siblings of children with disabilities are faced with an array of unique challenges that may change as the siblings develop, therefore, this study focused on siblings who are in their middle childhood phase (six to twelve years old). Qualitative research methods were applied to gain an in-depth understanding of the children‘s experiences and views. The review of the literature provided the theoretical framework against which the qualitative research was conducted. Semi-structured interviews were constructed from the comprehensive literature review. Observations and documents were also used as research instruments to collect descriptive and supportive data. Interpretations were made from the data collected. The literature review exposed and recognised variances regarding sibling experiences about living with children with disabilities. Five information rich participants were interviewed. The findings of this empirical investigation revealed that not all the siblings identified the same experiences as shared experiences of being siblings to children with disabilities. Therefore, it is recommended that the challenges these siblings are faced with should be taken into account since it has been revealed that there seems to be a need to support these siblings and their families. The whole family is a nested system interacting with each other, within the family system and with other systems beyond the family system, including the wider community and society. Thus, siblings need regular, understandable and updated information as they grow up, regarding the challenges the families are faced with, pertaining to the disabilities experienced, within this nested system. / Psychology of Education / M. Ed. (Guidance and Counseling)

by Lo Choi Ha. / Thesis (M.S.W.)--Chinese University of Hong Kong, 1992. / Includes bibliographical references (leaves [1-15]). / Acknowledgement --- p.i / Abstract --- p.ii -iv / Chapter / Chapter 1 --- Introduction / Chapter 2 --- Literature Review --- p.9-82 / Chapter 3 --- Conceptual Framework --- p.83 -97 / Chapter 4 --- Research Methodology --- p.98-116 / Chapter 5 --- Results --- p.117-230 / Chapter 6 --- Discussion of the Findings --- p.231-267 / Chapter 7 --- Recommendations --- p.268 -281 / References / Appendix A: Tables of Reliability / Chapter B: --- Table of Mean and Standard Deviation / Chapter C: --- Questionnaire (English Version) / Chapter D: --- Questionnaire (Chinese Version)

This study concerned the paucity of group counseling procedures designed specifically for use with parents of handicapped children. Purposes of the study were- (1) design of an affective-cognitive group counseling procedure, (2) investigation of affective-cognitive group counseling procedural effects with parents of handicapped children, (3) determination of procedural effects in a. changing the intra- and interpersonal attitudes of parents, b. increasing parents' knowledge of Positive Behavior Management, and (4) determining comparative procedure effects. Four research hypotheses related to the efficacy of the affective-cognitive group counseling procedure were formulated and tested at the .05 level of confidence. Statistical analysis of data indicated that parents participating in the affective-cognitive group counseling procedure did not achieve significantly higher posttest mean scores on the Acceptance of Self and Others test or in the five areas of the Parent Attitude Survey Scale than did parents participating in the affective, cognitive, or control group. Data did reveal that parents participating in the cognitive group did achieve significantly higher adjusted posttest mean scores on the Positive Behavior Management Assessment than did parents participating in the affective-cognitive, affective, or control group. Data also indicated that parents in the affective-cognitive group did not obtain greater mean scores on goal-attainment than did parents in the other three groups. On the basis of statistical findings, all four hypotheses were rejected.

Sibling relationships are dynamic within any family context and disabilities add a different and even more complex dimension to a family context. In addition, inclusion is a relatively new concept in South Africa, especially as an inclusive society. This means that it is challenging for a family that has children with disabilities to live and function in the greater society as children with disabilities have specialised needs and expectations. However, siblings of children with disabilities have their own needs and expectations as participating individuals within a family context and within society; therefore it is of relevance to be fully aware of their personal views, perceptions, understanding and challenges they are confronted with. The primary aim of this study was to gain a rich and in-depth understanding of how the disabilities of a child could impact on a non-disabled sibling. With the above mentioned taken into account, siblings of children with disabilities are faced with an array of unique challenges that may change as the siblings develop, therefore, this study focused on siblings who are in their middle childhood phase (six to twelve years old). Qualitative research methods were applied to gain an in-depth understanding of the children‘s experiences and views. The review of the literature provided the theoretical framework against which the qualitative research was conducted. Semi-structured interviews were constructed from the comprehensive literature review. Observations and documents were also used as research instruments to collect descriptive and supportive data. Interpretations were made from the data collected. The literature review exposed and recognised variances regarding sibling experiences about living with children with disabilities. Five information rich participants were interviewed. The findings of this empirical investigation revealed that not all the siblings identified the same experiences as shared experiences of being siblings to children with disabilities. Therefore, it is recommended that the challenges these siblings are faced with should be taken into account since it has been revealed that there seems to be a need to support these siblings and their families. The whole family is a nested system interacting with each other, within the family system and with other systems beyond the family system, including the wider community and society. Thus, siblings need regular, understandable and updated information as they grow up, regarding the challenges the families are faced with, pertaining to the disabilities experienced, within this nested system. / Psychology of Education / M. Ed. (Guidance and Counseling)

This study examined the effects of an Adlerian-based parent education program on parental stress and perception of Learning Disabled (LD) childrens' behavior. Forty parents, randomly assigned to treatment or waiting-list control groups, took the Parental Stress Index (PSI) and the Adlerian Parental Assessment of Child Behavior Rating Scale (APACBS) as pre and post tests. Parents in the treatment group attended a six-session Active Parenting program. No significant differences were found on the analysis of covariance for perceived parental stress following the parent education program. Seventy percent of the parents in this study had total PSI scores in the range defined as high stress by the PSI author. All of the PSI Child Domain pretest z scores were elevated indicating that parents perceive their LD children to be demanding, moody, distractible, and unadaptable. LD children's behavior is perceived as unacceptable and does not positively reinforce parents. The elevated z scores on the PSI parent Domain pretest indicate that parents of LD children feel less competent as parents and experience less attachment to their children than do parents of normal children. No significant differences were found on the APACBS following treatment, but 80 percent of the parents in the treatment group did perceive some positive behavior change. A positive correlation was found between the PSI and the APACBS indicating that perceived parental stress and child behavior are related. Parents identified 67 perceived stresors of raising LD children on a questionnaire. The results of this study indicate that parents of LD children perceive themselves to experience greater parenting stress than parents of normal childrenn. This perceived parental stress was not reduced and perception of children's behavior was not improved after participation in the Active Parenting program. Therefore, parent education groups for parents of LD children may need to be smaller, provide more time to address the issues specific to raising an LD child, and include a stronger counseling emphasis in order to provide more emotional support for these highly stressed parents.

The thesis deals with the topic of foreigner's families living in the Czech Republic who have children with disabilities. The purpose of the thesis is to find out how these families perceive their situation, what are their needs, what resources they use and which obstacles they encounter. The first part of the thesis focuses on theoretical concepts of disability, including the description of different types of disabling conditions, the situation of families with disabled children and the social support system in the Czech Republic. The fundamental information about foreigners in the Czech Republic together with main concepts of culture and multiculturalism are also presented. The existing research findings from Canada, USA and UK are explored at the end of the first part. The second part is dedicated to the author's qualitative research using semi-structured interview and open coding. The research findings are described in seven categories - cultural and language aspects, living with a child with disability, health care, institutional support, information sources, informal support and parent's strategies for handling the situation, and unfulfilled needs including suggestions for improvement.