There is little research on the coping strategies of direct support professional caregivers working with the intellectually disabled (ID) and developmentally disabled (DD). The study was guided by Lazarus and Folkman's (1984) theory of the transactional model of stress and coping. The purpose of this study was to assess whether there is a correlation among the independent variables of coping and personality characteristics with stress as the dependent variable. A convenience sample of 69 professional caregivers was used. Data were collected using the Ways of Coping Questionnaire, Perceived Stress Scale, NEO-FFI-3, and a demographic questionnaire. A correlational analysis was conducted to assess the variables. Findings revealed a moderate correlation between confrontive coping and stress while the coping styles of distancing, self-controlling, and seeking social support were weakly correlated with stress. Additional results were a strong correlation between neuroticism and stress and a moderate correlation between conscientiousness and stress. Furthermore, a multiple regression analysis was conducted to determine if neuroticism, conscientiousness, and extroversion could predict stress. The analysis indicated that the variance in stress was predicted by neuroticism. Recommendations for future research include using a larger sample size, controlling for selection bias, and examining which coping styles are more useful in coping with stressful situations. A longitudinal design to examine cause and effect is also recommended. This study provides insight into the way professional caregivers cope with stress and the results can be used to develop a screening tool.

In the State of Indiana, for students over the age of 14 who have been diagnosed with intellectual or developmental disabilities, the transition from special education to Medicaid waiver oversight should occur seamlessly, but gaps in integrated and aligned goal development strategies remain. As a consequence, students who need adult-based support may not be receiving the full scope of services to which they are entitled. Using common-pool resource theory as a foundation, the purpose of this explanatory case study of transitional services to Indiana Medicaid was to understand, from the perspective of disability support service staff, the barriers to effective quality of life outcomes and collaboration among government agencies involved in the transition process. In-depth interview data were collected from a total of 6 vocational rehabilitation specialists, directors, and transition coordinators. These interview data were inductively coded and thematically analyzed according to identified common pool action areas. Key research findings included: (a) the need for implementation of student self-determination principles, (b) a strengthening of sustainable goal development directed toward student employment, and (c) an overall enhanced collaboration between key disability service support staff roles to create sustainable structures. Positive social change opportunities include recommendations to the Indiana Division of Disability and Rehabilitation Services to improve the overarching student-to-adult transition process, reduce redundant funding streams, and streamline goal development to create a sustainable, collaborative experience for students over their lifespan of support.

In this qualitative study, the social construct of community citizenship as perceived in the worldviews of adults with developmental disabilities living in a large eastern city was explored. While authors report government-sponsored institutionalization and custodial care is no longer as common, the voices of people with developmental disabilities are still to be heard on what they think about being participating members of their communities rather than segregated as they once were. This study provided a group of adults with developmental disabilities an opportunity to help others better understand their thoughts about belonging. A combined case study and photovoice research approach was used in the study. Five adult participants were supplied with cameras with which to take photographs of what they felt best represented their interpretation of belonging and community citizenship. Each was later interviewed to provide descriptions of their pictures. The data were then evaluated with the assistance of qualitative analysis software to determine themes. The findings indicated the participants placed high personal value on gainful employment and expressions of respect from others. In keeping with Maslow's hierarchy of needs thesis as well as the self-actualization and self-determination theories, a sense of belonging is vital to emotional health and well-being. The results of this study contribute to social change by affirming what participants communicated "an inclusive community is one that promotes and provides equitable opportunities for employment, respect, decision-making, and participation."

Currently a lack of guidelines for Criterion B of the DSM-IV-TR (American Psychiatric Association, 2000) hampers diagnosis of children with developmental coordination disorder (DCD). The Performance of Activities of Daily Living Questionnaire (PADL-Q; Dewey, Larkin & Summers, 2004) is a new parent-reported instrument developed to quantify the level of interference in activities of daily living (ADL) experienced by children with DCD and was tested for its efficacy in addressing Criterion B. Thirty-two children aged between 5 and 10 years comprising two matched groups, 16 with DCD (8 boys and 8 girls) and 16 without DCD (8 boys and 8 girls) participated in the study. The aim of the research was to investigate the ability of the PADL-Q to identify differences between children with and without DCD. A further 5 children, in the same age range, who did not have DCD added data that was used to ascertain relationships between the constituent assessments. All children were tested using the MAND (McCarron, 1982) whilst their parents completed the PADL-Q. A set of Tests of Activities of Daily Living (TADL) tasks were devised for the children to perform that further validated parents ratings of children?s ADL performance. A Group x Gender MANCOVA, controlled for age, of the PADL-Q total scores demonstrated that there was a significant difference between the children with and without DCD (F(3,25) = 9.44, p < .001; Wilks' lambda = 0.47). Follow-up univariate tests showed a Group x Gender interaction and simple main effects of this interaction indicated that the PADL-Q did not discriminate between the DCD and non-DCD boys. The ability of the PADL-Q to identify DCD was explored in the concurrent validity against the MAND when using a diagnostic cut-off point. The PADL-Q demonstrated 100% specificity and positive predictive values but only 19% sensitivity and 62% negative predictive values. There was a moderately strong relationship (r = .71), between the PADL-Q total score, considered a measure of Criterion B, and the MAND, a measure of Criterion A (DSMIV- TR, 2000). A two factor (Group x Gender) ANCOVA, controlled for age, of the TADL items revealed a statistically significant effect for DCD only (F(1,19) = 34.65, p < .001). There was a moderate correlation (r = -.64) between the PADL-Q total score and the TADL tasks, indicating that parent-reports are supported by their child?s performance. The PADL-Q appears to have potential as part of the DCD diagnostic process; however, further refinement on a larger sample is necessary before it can be used as an easily-administered guide to ADL performance levels in children.

Rett syndrome (RTT) is a rare, severe neurodevelopmental disorder, which partly develops in a predictable way, and influences many bodily functions. Regression, i.e. loss of earlier achieved abilities, is one of the clinical criteria for RTT. Research on motor function has to some extent focused on this loss, and less on the possibility to keep, regain or develop abilities. RTT is mainly verified in girls/women, and the prevalence of classic RTT in Sweden for girls born between 1965 and 1976 was 1 in 10.000-12.000. Clinical criteria are used for diagnosis, but since 1999 RTT can be confirmed by a genetic test. As there is no cure so far, development of clinical intervention and management is important, and with good treatment it is possible to improve quality of life. The main aim was to acquire more knowledge about motor development in RTT, both, early development, and development over time. Another aim was to study if there were deviating orthostatic reactions when rising from sitting to standing, and during standing, compared with normally developed, healthy people, matched by sex and age. Clinical experience as well as reports from parents showed that some people with RTT had lost abilities, some had been able to keep abilities, and some had been able to learn new abilities after regression. For good results, the person with RTT had to be motivated, and the intervention jointly planned; it was also important to realize that dyspraxia causes dependence on other people’s initiatives. Information about one person with RTT, collected over several years, showed the possibility to develop in some areas over time and the tendency to deteriorate in other areas. Studying orthostatic reactions when rising to standing, and standing for three minutes, revealed that those with RTT mainly had the same reactions as the healthy controls. The quicker initial drop in systolic blood pressure in people with RTT, when rising, has not been documented earlier.   In conclusion, this thesis shows that it is possible for some people with RTT to keep abilities, regain abilities, and also learn new abilities after regression. Since those with RTT recovered their blood pressure in the same way as the healthy controls, there is no reason to recommend limitations in standing, though the quicker initial drop in systolic blood pressure should be noted. The deterioration in walking found in our previous studies does not seem to be due to deviation in orthostatic reactions. Individual analysis, as well as good knowledge about the development of the disorder and variation in its expression, is essential. Since many people with RTT live to adulthood, planning for lifelong intervention and care is most important.

The current study investigated types of social support needs through a number of domains reported by parents of children with autism spectrum disorder (ASD) along with the relationship of these needs to reported parental stress. Female participants (N = 35) in the South Central Kentucky region responded to a number of measures regarding perceptions of their current stress levels on the Parenting Stress Index - Short Form (PSI-SF) and their perceptions on social support needs through a modified version of the Family Needs Questionnaire (FNQ). The results indicated that there was a moderately strong correlation between social support needs and parental stress. For exploratory analyses, the results indicated that several social support domains significantly correlated with parental stress. Further research was recommended to explore the seven social support need domains used in the current study with ASD families.

Syftet med studien är att undersöka hur några lärare i grundsärskolan arbetar med läsinlärning vad gäller elever med utvecklingsstörning. Studien redogör för deras arbete med läsinlärningsmetoder, läromedel, individanpassning, pedagogiska hjälpmedel samt vilka hinder och möjligheter som uppstår. Studiens teoretiska utgångspunkt är det sociokulturella perspektivet och vilken ses som en övergripande teori för lärande och utveckling. I studien används kvalitativ undersökningsmetod där materialet samlades in med hjälp av intervjuer. Det insamlade materialet analyserades och tolkades utifrån en hermeneutisk ansats. Resultatet visar att läsundervisningen har stor betydelse för elevernas utveckling och möjlighet till delaktighet i samhället. Elevernas läsning sågs som en mycket viktig förmåga att utveckla och som kräver erfarenhet och kunskap. Det blev tydligt när läromedel som finns att tillgå många gånger inte uppfyller elevens behov. Individanpassningen av läsinlärningen kan på så sätt försvåras eftersom läromedel inte är utformade på lämpligt sätt. Eleverna på grundsärskolan behöver konkret material och som pedagogiska hjälpmedel sågs de digitala verktygen som en tillgång i lärsituationer. / The aim of this study is to investigate how some teachers work with learning to read in the compulsory school for pupils with learning disabilities. The study describes how they work with methods for reading, educational resources, individual study plans, pedagogical aids and impediments and possibilities that arise. The study’s theoretical basis is the sociocultural perspective which is considered as an wholistic approach to learning and development. The study has a qualitative research and the data is based on interiews. The colleced data is analysed from a hermeneutic approach. The result shows that reading instruction is of great importance for students’ development and opportunities for participation in society. Students’ reading was seen as a very important ability to develop, and that requires experience and knowledge. This became clear when teaching materials which are available but many times do not meet students’ needs. Individual adaptation of learning to read can thus be difficult because teaching material is not formed appropriately. Students in compulsory school for pupils with learning disabilities require specific materials and digital tools were seen as assets as teaching aids in learning situations.

Currently, there is no known research on teaching gun safety skills to individuals with developmental disabilities. Research has shown that children typically engage in gunplay behaviors if they find a firearm. These behaviors can lead to unintentional firearm injuries and even death, especially for young children. Previous research has shown the success of video modeling for teaching various skills to individuals with autism. This study examined the effectiveness of video modeling for teaching gun safety skills to three children with autism spectrum disorder, and found that video modeling was effective for one participant, but in situ training was needed to promote maintenance. For a second participant, IST was effective for skill acquisition and maintenance. Finally, a modified IST procedure was effective for a third participant when implemented by a trainer but not when implemented by his mother.

Teachers’ responses as well as the children’s types of disabilities have a great impact on how often and in what ways the children will communicate with the teachers. (Lee, 2001; Wu, 2003). Limited research on teacher-student interactions in special education classroom settings raises a series of questions regarding the teachers’ perspectives, teacher training, children’s communication behaviors and their learning of social communication skills. The purpose of this study was to explore the nature of interactions between teachers and young children with developmental disabilities including severe/multiple developmental disabilities (SMDD) during communication interventions and how both were mutually influenced by such interactions. Specifically, the guiding questions were: (a) How did teachers interact with young children with developmental disabilities during interventions? (b) Why did the teachers choose certain types of responses and strategies/techniques during interventions? and (c) What were the outcomes of the communication interventions for young children with developmental disabilities including SMDD? Using naturalistic inquiry as the research method, and drawing on sociocultural theory, this research constructed a case study of teacher-student interactions during communication intervention in one classroom in south Taiwan. Participants included three special educators and four students with developmental disabilities. Data sources included classroom observations, interviews with teachers, and document analysis. Data were analyzed using the constant-comparative method and discourse analysis. The findings revealed that the three teacher participants made efforts to shape the young children’s learning attitudes and behaviors. Yet, how they responded to the individual child was varied in terms of the young children’s disabilities, their capabilities for communication, and their specific challenging behaviors. The communication interventions resulted in some positive outcomes of the children’s social communication skills. However, the teachers’ lack of knowledge and training of implementing assistive technologies limited their ability to carry out effective communication interventions for the child with SMDD. Further, the teachers’ concerns for the children’s utilization of appropriate social communication manners were influenced greatly by their own their professional training and perspectives which might be influenced by Chinese culture and Confusion’s philosophy. These findings have implications for further research, classroom practice, and teacher education. / text

To compare health care use from neonatal discharge to 18 months corrected age of two groups of extremely preterm children (&lt; 26 vs. 26-29 weeks of gestation), we used a province-wide database containing neonatal and follow-up data on 254 infants (77% of survivors) born at &lt; 29 weeks of gestation and cared for at 3/6 neonatal units in Quebec in 2003-2004. Neonatal data were abstracted from medical records by trained personnel. At 18 months corrected age, neurodevelopmental status was assessed by psychologists and paediatricians. Data on health care use were collected from charts and parent interviews. Descriptive statistics are provided and logistic regression analysis was carried out to evaluate perinatal and social determinants of re-hospitalization and frequent use of health services resources. Results show that 57% of infants born at &lt; 26 weeks (n=49) and 49% of those born at 26-29 weeks (n=205) were re-hospitalized, mostly for respiratory illness. Both groups used a significant amount of health resources: 61% vs. 59%, respectively, received physical or occupational therapy, 29% vs. 17%, respectively, required long-term rehabilitation, 38% vs. 28%, respectively, used prescribed medication, and 59% vs. 33%, respectively, required home medical equipment (home oxygen, apnea monitors, orthopaedic devices and visual aids). Risk of re-hospitalization was associated with severe brain injury, use of an apnea monitor, and older age at neonatal discharge. Multiple birth, severe brain injury, suspected neonatal sepsis, and single-parent household were independently associated with the risk of using health care services above average. These results highlight the importance of resource allocation to preterm infants for medical and rehabilitation services after discharge from the neonatal intensive care unit.