Foster care, which represents the most common form of substitute family care in many developed countries including Czech Republic, constitutes the topic of this thesis. Foster care is managed, controlled and financed by the state. Its purpose is to provide a foster home for child, whose parents cannot, do not want to, or fail to take care of for various reasons. In Czech Republic foster care has undergone an interesting development, which reflected situation at the time, as well as empirical and theoretical knowledge in this area. Under the Communist regime, which idealized institutional care, foster care was even canceled a number of years. At present, foster care is widely used and supported by the state. Experts stress the importance of long-term foster care and her ability to redress psychological deprivation in children. On the other side, the experts warn of dire psychological consequences of institutional care. According to the Act No. 89/2012 Coll., civil code as well as several international conventions, substitute family care takes precedence over institutional care. The diploma thesis defines the basic concepts related to foster care (the right to respect for family life, the best interests of the child, substitute care for children, substitute family care, foster care and foster care for...

This thesis deals with the issue of two today very important institutes, namely the registered partnership and the alternative family care. The aim of the thesis is to focus on areas where the two institutes overlap. Current registered partnership legislation contains some problematic provisions in relation to forms of alternative family care. The text of the thesis has focused on the description of these problem areas and try to outline possible future changes even in the context of the situation on the international level.

This diploma thesis deals with the public awareness of substitute family care. The theoretical part describes the current substitute family care system, its historical context based on the SFC models, including a summary of their advantages and disadvantages. There are also mentioned the changes that will follow after change the system of substitute family care after the entry into force of the amendment to the Act on Social and Legal Protection of Children. The practical part is focused on interviews with professionals working in this area. Experts are asked about current and future substitute family care system and their experience with it, including suggestions for possible changes. Keywords: The substitute family care, adoption, foster care

Antalet anhörigvårdare i Sverige är många. För att de anhöriga ska orka vårda sina närstående 24 timmar om dygnet, sju dagar i veckan behöver det finnas ett stöd. De anhörigstöd som finns varierar från kommun till kommun. Ett anhörigstöd som har utarbetats för att underlätta insatsbehovet är COAT- Carers Outcome Agreement Tool som syftar till att kartlägga anhörigas behov, planera och följa upp anhörigstöd. COAT har en grund i partnerskapsmodellen och i modellen ses den anhörige som experten på situationen runt den närstående. De studier som är gjorda med anhöriga har mycket positiva resultat. Det är få studier gjorda utifrån personalperspektivet därför avsåg vi att undersöka deras individuella erfarenheter utav att använda COAT. Tio stycken kvalitativa intervjuer med personal är utförda i studien och analyserades med hjälp av en innehållsanalys. Fem kategorier trädde fram i analysen och presenteras i resultatet. I kategorierna beskriver vi det som personalen berättat i intervjuerna. Personalen är uteslutande positiva till instrumentet och de anser att det bör användas i större utsträckning. Diskussionen är formad utifrån våra forskningsfrågor och diskuteras med stöd av tidigare forskning. Vi diskuterar olika begrepp och relaterar dem ur personalens synvinkel gentemot den anhörige och dennes familj. / Program: Specialistsjuksköterskeutbildning med inriktning mot distriktssköterska

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Bakgrund: Familjens fortsatta omhändertagande av barnet efter en sjukhusvistelse behöver ske på ett tryggt och säkert sätt, utan fara för missförstånd eller allvarliga risker. En ökad medvetenhet och kunskap om hur föräldrars beredskap stärks inför barnets utskrivning är betydande för att undvika osäkerhet. Syfte: Studiens syfte var att beskriva föräldrars upplevelser av att deras barn blivit utskrivet till hemmet efter en sjukhusvistelse. Urval: Föräldrar till nio barn och ungdomar som av olika anledningar varit inskrivna på  sjukhus i minst tre dygn deltog i studien. Metod: Data insamlades genom semistrukturerade kvalitativa intervjuer och analyserades med innehållsanalys. Resultat: Barns utskrivning från sjukhus till hem kunde se olika ut samt upplevas på varierande sätt av föräldrar. Studien belyser vikten av en trygg utskrivning där tillräcklig information, fungerande kommunikation och en familjecentrerad omvårdnad bidrar till att öka föräldrars delaktighet och beredskap. Ett tydligt utskrivningsprogram med fasta rutiner och riktlinjer underlättade överföringen och bidrog till att  föräldrars beredskap stärktes. En tid för uppföljning i form av återbesök eller telefonkontakt skapade trygghet för familjen. Slutsats: Grundläggande för en trygg och säker övergång från sjukhus till hem var att föräldrar kände sig väl förberedda inför det fortsatta omhändertagandet av sitt barn. Tydliga utskrivningsrutiner, anpassad information och fungerande kommunikation kan bidra till att öka föräldrars beredskap. / Background: The familys further care of the child after a hospital stay needs to be done in a confident and safe way, without risk for misunderstandings or serious consequences. An increased awareness and knowledge about how to strenghten the parents readiness before discharge is significant to avoid uncertainty. Aim: The aim of the study was to describe parental experiences of discharge from hospital to home after a period when the child has been in need of hospital treatment. Sample: The parents of nine children and adolescents who have been staying at the Akademiska hospital for at least three days (for different reasons) took part of the study. Method: Data was collected through semi-structured qualitative interviews and was analyzed using content analysis. Outcome: Childrens discharge from hospital to home can be different and can be experienced in various ways by the parents. The study illuminates the weight of a confident discharge where sufficent information, adequate communication and a family centered care contribute to increased participation and readiness for the parents. A clear discharge program including fixed routines and guidelines is supporting the nurse and strengthens the parents safety. An appointment for follow-up in terms of a re-visit or phone contact leads to a feeling of safety for the family. Conclusion: Essential for a safe transition from hospital to home is that the parents feel well prepared and safe in the further care of their child. A conscious nurse combined with clear routines for discharge contributes to this preparedness.

The research investigates, qualitatively, the experience of primary caregivers of children who are ventilator-dependent and cared for at home. Advances in medical and nursing knowledge and technology have improved the biological outcome of children who are critically ill. As a result, there is an increasing number of children in hospital who are medically stable, however dependent upon long-term respiratory support. Due to the increasing change from healthcare delivery to home care, some ventilator-dependent children are discharged to their primary caregivers who undertake the medical and technical care of the children in their home. A review of the literature indicates limited research examining and addressing issues of pediatric home ventilation. Information concerning the experience and needs of the primary caregivers of an in-home ventilator-dependent child is thus unavailable for effective and appropriate clinical interventions and policy implementation. To address the gap in the literature, a phenomenographic research approach was used to identify and describe a limited number of qualitatively different ways in which the primary caregivers understood their experience of caring for a ventilator-dependent child at home. An in-depth interview was undertaken with each of those seventeen participants and recorded on audiotape for transcribing verbatim. Data was sorted using a qualitative software program--ATLAS.ti.--and analysed using a series of seven analytical steps recommended for a phenomenographic research (Dahlgren and Fallsberg, 1991). The outcomes of the research are seven categories of description with each representing a conception of the experience, and all categories combined constituting an outcome space that presents the structural relations between conceptions. The seven categories of description representing the care-giving experiences of the primary caregivers are: (1) 'Hospital is another world to me'; (2) 'It's a new world'; (3) An ambiguous social identity;(4) The medical technology associated with my child is frightening but necessary;(5) 'The difficulty is having the carers at home'; (6) Social isolation; and (7) The experience of changing as a person. Discussions on the outcomes of the research indicate a need for increased understanding of the 'new world' of the primary caregivers and a recognition and acknowledgement of the distinctive nature of the experience in caring for a ventilator-dependent child at home. Hence, increased financial, respite, psychological and social support are of central importance, in addition to ongoing healthcare research, education, and practice for appropriate policy development, implementation and evaluation.

197f. / Submitted by Suelen Reis (suziy.ellen@gmail.com) on 2013-04-03T17:21:02Z No. of bitstreams: 1 Isleide%20Santos.pdf: 18785907 bytes, checksum: e3d6e94309c3734c7b9268260e53fd18 (MD5) / Approved for entry into archive by Rodrigo Meirelles(rodrigomei@ufba.br) on 2013-04-09T17:39:34Z (GMT) No. of bitstreams: 1 Isleide%20Santos.pdf: 18785907 bytes, checksum: e3d6e94309c3734c7b9268260e53fd18 (MD5) / Made available in DSpace on 2013-04-09T17:39:34Z (GMT). No. of bitstreams: 1 Isleide%20Santos.pdf: 18785907 bytes, checksum: e3d6e94309c3734c7b9268260e53fd18 (MD5) Previous issue date: 2009 / Esta dissertação apresenta, através da história oral temática, os relatos de pessoas idosas com doença de Parkinson (DP). Estabeleceu-se como objetivo geral analisar as concepções de pessoas idosas com DP sobre a doença e o cuidado familiar, a partir das experiências vivenciadas e narradas pelos mesmos. Como objetivos específicos, foram delimitados: descrever as concepções que as pessoas idosas com DP têm da doença e do cuidado familiar; identificar o impacto da DP em suas vidas e em suas relações intrafamiliares. A metodologia envolveu investigação com abordagem qualitativa, descritiva, em que foram entrevistadas 13 pessoas idosas com doença de Parkinson, no período de março a junho de 2008, as quais participam do Grupo de Ajuda Mútua de Parkinson da Universidade Estadual do Sudoeste da Bahia, Jequié-BA. Utilizou-se como instrumento de coleta de dados, a entrevista semiestruturada, que foi gravada e submetida à Análise de Conteúdo de Bardin. As categorias de análise foram agrupadas em três temas: as concepções das pessoas idosas sobre a doença; mudanças ocorridas em suas vidas após o adoecimento e, as concepções das pessoas idosas com DP sobre o cuidado familiar. Os resultados mostraram que a doença foi percebida como: degeneração da saúde; produção de dependência; limitação do viver cotidiano; tratamento; constrangimento e instabilidade emocional. As mudanças significativas aconteceram no contexto do trabalho; da família e sociocultural. Os significados do cuidado familiar foram relatados como: satisfação e gratidão; obrigação/ reciprocidade; segurança no ambiente doméstico; impaciência; e, suporte físico, emocional e financeiro. Portanto, concluímos que a doença tem significados negativos, para os idosos e o impacto maior, em suas vidas, foi na perda da capacidade para o trabalho, entretanto a família desempenha papel fundamental no cuidado dos idosos. Desse modo o idoso e família precisam da implementação das Políticas Públicas de Assistência à saúde, com enfoque preventivo e de promoção da qualidade de vida para um envelhecimento bem sucedido. Neste sentido, esta investigação pode subsidiar o planejamento do cuidado à pessoa idosa com DP, na perspectiva da integralidade, interdisciplinaridade e humanização considerando a produção de vida, mesmo na presença de limitações impostas pela progressão da doença. / Salvador

With growing number of old and sick people, the demands on the economically active part of population are increasing from moral, financial and social points of view. Family care for old and sick people is not so self-evident as in former times any more; professionals speak about diversion from family. Family plays unsubstitutable role in every human's life. Since time out of mind, institutional care has been existing in the society, but it turns out that it is not the best solution for one{\crq}s declining years. The goal of the work was to ascertain the attitude to family care in 4 population groups; students of the Faculty of Health and Social Studies as future professionals on social issue, students of the Faculty of Economics as their counterparts, employees of a seniors{\crq} home who are in daily contact with the infirm, and a group of lay public in the age in which they will have to deal with the relevant issue participated in the questionnaire investigation. The work used the method of analysis of documents using the technique of secondary data analysis and the quantitative method of questioning using the questionnaire technique. The results of the investigation showed that the study of different fields at different faculties leads to different students{\crq} attitude to family care. They showed further that the employees of the seniors{\crq} home are not unambiguously convinced that institutional care is the best solution of care for seniors. The hypothesis of the research was the statement that the public inclines to family care from the point of view of life reality. This statement was confirmed. The attitude to family care was ascertained in all the groups questioned, so the goals of the work were met. Although the present society progresses very quickly and lays higher and higher demands on individuals, there are still a lot of such persons among us who do not shrink away from the demandingness of care in family circle, because it is normal in life to give care twice and to accept it twice.

This research project focuses on age as a predictor in the emotional adjustment of a spouse following his/her partner's stroke. The medical records of 80 stroke cases were reviewed at Kaiser Permanente Medical Center, Fontana, California. Patients and spouses were examined in two age groupings, age 55 and below, and ages 56 and above. Study of these two age groups afforded the most meaningful division to study spouse adjustment.