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441	THE SOCIAL EXPERIENCES OF SPOUSES OF PERSONS WITH YOUNG-ONSET DEMENTIA Hawkins, Stacey A. 10 1900 (has links) <p>Spousal caregivers of persons with young-onset dementia (YOD) are known to experience significant social impacts, including family conflict, social avoidance, and marginalization. However, no qualitative study has examined the social experiences of YOD spousal caregivers within the Canadian context. This thesis examined the described social experiences of these caregivers. A descriptive, qualitative approach was used to study the nature of these social experiences using in-depth, semi-structured interviews. Ten YOD spousal caregivers living in Ontario completed the study. Four themes emerged from the analysis: sources of social support, giving up activities in favour of new activities, adapting and maintaining in social and recreational activities, and social spaces as safe spaces. Concepts of caregiver social adaptation, and choosing to give up social and recreational activities in favour of new ones builds upon existing research on theories of social support, activity restriction, caregiver adaptation, and avoidance previously described in the existing dementia literature. Themes of giving up activities in favour of new activities, and social spaces as safe spaces also represent new themes not previously discussed in the dementia caregiving literature. Previous, socially-relevant research on YOD spousal caregiving has focused primarily on examining social impacts, with little attention paid to caregiver perceptions of their social experiences in the Canadian context. These findings indicate that caregiving for a spouse with YOD entails complex social experiences, which extend beyond value-laden depictions of social outcomes recorded in the existing literature. These rich experiences challenge and expand our theoretical understanding of spousal caregiving for persons with YOD.</p> / Master of Arts (MA) young-onset dementia caregiver spouse social experience Clinical and Medical Social Work Cognitive Neuroscience Community Engagement Community Health Diseases Family, Life Course, and Society Geriatric Nursing Geriatrics Health Services Research Inequality and Stratification Leisure Studies Medicine and Health Mental and Social Health Neurology Neuroscience and Neurobiology Neurosciences Nursing Other Kinesiology Other Social and Behavioral Sciences Other Sociology Primary Care Psychiatric and Mental Health Psychiatric and Mental Health Nursing Psychiatry Recreational Therapy Regional Sociology Rehabilitation and Therapy Social and Behavioral Sciences Social Psychology and Interaction Social Work Sociology Sports Sciences Sports Studies Clinical and Medical Social Work
442	Ontario’s Home First Approach, Care Transitions, and the Provision of Care: The Perspectives of Home First Clients and Their Family Caregivers English, Christine 23 May 2013 (has links) Home First is an Ontario transition management approach that attempts to reduce the pressure on hospital and Long Term Care (LTC) beds through early discharge planning, the provision of timely and appropriate home care, and the delay of LTC placement. The purpose of this qualitative descriptive study was to obtain descriptions from South Eastern Ontario Home First clients and their family caregivers of their experiences with and thoughts about care transitions, the provision of care, and the Home First approach. The goal was to enable insight into the Home First approach, care transitions, and the provision of care through access to the perspectives of study participants. Nine semi structured interviews (and one or more follow-up calls for each interview) with Home First clients discharged from hospitals in South East Ontario and their family caregivers were conducted and their content analyzed. All participating Home First clients were pleased to be home from hospital and did not consider LTC placement a positive option. All had family involved with their care and used a mix of formal and informal services to meet their care needs. Four general themes were identified: (a) maintaining independence while responding (or not) to risks, (b) constraints on care provision, (c) communication is key, and (d) relationship matters. Although all Home First clients participating in the study were discharged home successfully, a sense of partnership between health care providers, families, and clients was often lacking. The Home First approach may be successfully addressing hospital alternative level of care issues and getting people home where they want to be, but it is also putting increasing demands on formal and informal community caregivers. There is room for improvement in how well their needs and those of care recipients are being met. Health professionals and policy makers must ask caregivers and recipients about their concerns and provide them with appropriate resources and information if they want them to become true partners on the care team. / Thesis (Master, Rehabilitation Science) -- Queen's University, 2013-05-23 16:10:53.323 home support workers home health care community care older home support clients elder care discharge planning relationships family relationships nursing home Ontario health care Canadian health care placement Home First transition management care transitions aging in place maintaining independence caregiving community health and support services community long-term care family carers frail seniors client satisfaction hospital discharge health care older people aged frail elderly aging elderly supportive home care client perspectives long-term care quality of care evaluation of services care planning risk decisions case management communication independence home care constraints on care provision maintaining independence qualitative research family caregivers nursing home placement qualitative description program evaluation alternative level of care patient discharge self-care formal care aged care informal care post-discharge care home support community support services health services research

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THE SOCIAL EXPERIENCES OF SPOUSES OF PERSONS WITH YOUNG-ONSET DEMENTIA

Ontario’s Home First Approach, Care Transitions, and the Provision of Care: The Perspectives of Home First Clients and Their Family Caregivers