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Submitted by Renata Lopes (renatasil82@gmail.com) on 2017-01-06T16:18:59Z No. of bitstreams: 1 julianabernardonazareth.pdf: 579524 bytes, checksum: 434bd270de91c7daad809e503673f672 (MD5) / Approved for entry into archive by Adriana Oliveira (adriana.oliveira@ufjf.edu.br) on 2017-02-02T11:48:41Z (GMT) No. of bitstreams: 1 julianabernardonazareth.pdf: 579524 bytes, checksum: 434bd270de91c7daad809e503673f672 (MD5) / Approved for entry into archive by Adriana Oliveira (adriana.oliveira@ufjf.edu.br) on 2017-02-02T11:48:58Z (GMT) No. of bitstreams: 1 julianabernardonazareth.pdf: 579524 bytes, checksum: 434bd270de91c7daad809e503673f672 (MD5) / Made available in DSpace on 2017-02-02T11:48:58Z (GMT). No. of bitstreams: 1 julianabernardonazareth.pdf: 579524 bytes, checksum: 434bd270de91c7daad809e503673f672 (MD5) Previous issue date: 2016-08-31 / Objetivou-se desvelar sentidos do cuidador familiar na vivência da internação domiciliar. Método de investigação qualitativa, fundado na fenomenologia de Martin Heidegger. Constituíram-se cenário as residências das famílias cadastradas no Departamento de Internação Domiciliar localizado na zona da mata, no interior de Minas Gerais e que atende exclusivamente pela rede pública de saúde do Sistema Único de Saúde,sendo participantes 13 cuidadores familiares. A entrevista fenomenológica teve como questões orientadoras: como é para você cuidar de seu familiar em casa? Você recebeu alguma orientação para vivenciar este momento? Como é sua relação com os profissionais que prestam a Assistência Domiciliar? Dos depoimentos, emergiram então as estruturas essenciais de modo a construírem as Unidades de Significados. A compreensão vaga e mediana desses significados permitiu a elaboração do fio condutor que conduziu ao segundo momento metódico, a compreensão interpretativa ou hermenêutica. O modo de ser-aí-cuidador-efamiliar-de-paciente-em-internação-domiciliar é desvelado pelo cuidador familiar lançado na facticidadequando se mostram como ser-no-mundo-de-cuidados ao familiar. O ser-aí-cuidador-familiar permanece no modo da ocupação ao desempenhar suas atividades. Mostrou que namanualidadeesta junto-a e é ser-paracuidar. A relação do cuidador-familiar com oDepartamento de Internação Domiciliar deixa-se dominar pela cotidianidade mostrando-se como ser da impropriedade ao desconsiderar-se como ser de possibilidades. Revela o falatório na reprodução da linguagem técnica que não é do cuidador. Desvela o ser-no-mundo presente nas relações interpessoais harmoniosas com os profissionais de saúdeao exercer um cuidado inautêntico. Conhecer os sentidos que os cuidadores familiares atribui ao seu fazer possibilitará que gestores de saúde e membros da equipe multiprofissional de saúde de internação domiciliar possam repensar as intervenções mais direcionadas de acordo com necessidades singulares de cada paciente e cuidador familiar. / This study aimed to reveal the meanings of family caregivers in the experience of home care.Method of qualitative research, based on the phenomenology of Martin Heidegger. Was established as setting the residences of families enrolled in the Department of Home Care located in Minas Gerais and caters exclusively by the public health by the Unified Health System, with participants 13 family caregivers. The phenomenological interview was to guiding questions: how to you take care of your family at home? You received some guidance to experience this moment? How is your relationship with the professionals who provide Homecare? Then emerged the essential structures in order to build Units Meanings.The vague understanding ofthe meanings and median led to the elaboration of a wire leading to the second moment methodical,interpretive or hermeneutics understanding. The mode of being-therecaregiver-family-of-patient in-hospital-home is unveiled by the family caregiver launched in factuality when they are being in the world-of-care to family. The beingcaregiver-family remains in occupation mode to perform their activities. The beingthere-family and being-there-caregiver showed that in manualidade this together and it is being-for-care. The relationship of the caregiver-familiar with the Department of Home Care allowed to dominate the everydayness showing up as being of impropriety to be disregarded as being possibilities. Reveals the talk in the reproduction of technical language that is not the caregiver. Unveils the being in the world in this harmonious interpersonal relationships with healthcare professionals to exercise care inauthentic. We believe that knowing the way that family caregivers attribute to their doing enables health managers and members of the multidisciplinary team of home care health can rethink the most targeted interventions according to individual needs of each patient and family caregiver.

Abstract The purpose of this study was to produce a hypothetical model for the organization of services in accordance with a shared-responsibility mode of living. The model was constructed step by step. At the first stage, the current possibilities of home care clients aged over 75 to live at home and the modes of organizing home help services were analyzed. The key factors affecting the elderly clients' ability to manage at home were the mode of living (alone or with a family member), their ability to move, the adequacy of home care services, the family caregiver's resources and the elderly person's own preferences. At the next stage, the research data were searched for alternative ways of organizing the support services supplied by family members, municipalities (home help services and home nursing), the third sector and private service providers, i.e. different service structure models were outlined. Finally, the costs and functional contents of the service structure models were evaluated. The empirical date were collected by arranging questionnaire survey among the home care clients aged over 75 (N=150) and the caregivers who knew them best (N=145) in Hämeenkyrö, Lohja, Oulu and Tampere. In addition to this, the functions during the working hours of one week were recorded (N=146) with the aim of finding out, by functions, the time spent to help each client and the number of actors needed. The data were analyzed using the SPSS for Windows 10.0 statistical software by calculating absolute and percentage distributions and cross-tabulating the results. The statistical differences between the localities, for example, were compared using box plots and correlation diagrams. The results were illustrated with tables and graphs. The responses to the open-ended questions were analyzed with methods of content analysis. The possibilities of home care clients to choose between different modes of living were still small. No adequate intermediate modes of living have been developed. For a person unable to manage the daily activities at home, the main alternative is a group home or an assisted-living unit, both of which can be considered institutional care in view of their contents and organization. Home care clients are mostly helped by municipal home helpers. Hardly any private services are used, and additional help, when necessary, is provided by the municipal staff. The services provided by the third sector mainly consist of discussion and listening. In the participating municipalities, social services available in the private sector were scant or not utilized. Compared to the other service structure models, the shared-responsibility model of living is cost-effective and competitive, and it will be needed as an alternative to the other models. Further development of the shared-responsibility model will provide more alternatives to the family members or caregivers who want to assume responsibility for the care of their elderly relative. / Tiivistelmä Tämän tutkimuksen tarkoituksena on tuottaa hypoteettinen palvelujen organisointimalli vastuunjaolla toimivassa asumismuodossa. Mallin rakentaminen etenee vaiheittain. Ensimmäisessä vaiheessa analysoidaan yli 75-vuotiaiden kotihoidon asiakkaiden nykyisiä kotona asumisen mahdollisuuksia ja kotipalvelujen järjestämistapoja. Kotona suoriutumisen kannalta avaintekijöitä ovat vanhuksen asumismuoto (yksin tai läheisen kanssa), liikuntakyky, kotihoidon palvelujen riittävyys, läheishoitajan jaksaminen ja iäkkään oma tahto. Seuraavassa vaiheessa määritellään ja muotoillaan tutkimusaineistosta nousseita erityyppisiä tukipalvelujen toimintavaihtoehtoja eli palvelurakennemalleja, joiden tuottajina ovat omaiset, kunnat (kotipalvelut ja kotisairaanhoito), kolmas sektori sekä yksityiset palvelujen tuottajat. Lopuksi arvioidaan palvelurakennemallien kustannuksia ja toiminnallista sisältöä. Empiirinen aineisto kerättiin Hämeenkyrössä, Lohjalla, Oulussa ja Tampereella survey-kyselyllä yli 75-vuotiailta kotihoidon asiakkailta (N=150) ja heidät parhaiten tuntevilta hoitajilta (N=145). Lisäksi tehtiin viikon ajalta työajan seuranta (N=146), jonka tarkoituksena oli saada selville toiminnoittain asiakkaan auttamiseen käytetty aika ja toimijoiden määrä. Tutkimusaineistot analysoitiin SPSS for Windows 10.0 -tilasto-ohjelmalla laskemalla suorat ja prosenttijakaumat sekä ristiintaulukoimalla tuloksia. Tilastollisia eroja mm. paikkakunnittain vertailtiin boxplot-kuvioilla ja korrelaatiodiagrammeilla. Tulokset on havainnollistettu taulukoilla ja graafisilla kuvioilla. Avoimet kysymykset analysoitiin sisällön analyysillä. Kotihoidon asiakkaiden valinnan mahdollisuudet erilaisten asumismuotojen välillä ovat edelleen vähäiset. Välimuotoisia asumismuotoja ei ole riittävästi kehitetty. Mikäli kotona ei enää suoriuduta päivittäisissä toiminnoissa, vaihtoehtona on lähinnä ryhmä-/ pienkoti ja palveluasunto, jotka toiminnalliselta sisällöltään ja järjestelyiltään voidaan rinnastaa laitoshoitoon. Kotihoidon asiakkaiden pääasiallisina auttajina toimivat kodinhoitajat. Yksityisiä palveluja ei juuri käytetä, ja lisäapua tarvittaessa palveluja halutaan kunnan työntekijöiltä. Kolmannen sektorin tarjoamat palvelut ovat lähinnä keskustelua ja kuunteluapua. Yksityissektorin sosiaalista palvelutarjontaa on tutkituissa kunnissa joko vähän tai niitä ei käytetä. Palvelurakennemallien kustannuksia arvioitaessa vastuunjaolla toimiva asumismuoto on kilpailukykyinen ja sitä tarvitaan yhtenä vaihtoehtona nykyisten rinnalla. Vastuunjaon mallin kehittäminen lisää valinnan mahdollisuuksia niille omaisille tai omaishoitajille, jotka haluavat ottaa hoitovastuuta läheisistään.