Thesis (M Social work)--Stellenbosch University, 2012. / ENGLISH ABSTRACT: The aim of this study was to develop an understanding of the experiences of mothers caring for their school-going children with mental or physical disabilities in low-income communities using the ecological perspective. The rationale for this research was a gap in the existing literature re-garding the experiences of mothers caring for their school-going children with mental or physical disabilities in low-income communities in South Africa, which was identified in the preliminary and main literature review. The literature review further indicated that these mothers have to struggle with several challenges, particularly in low-income communities. In order to achieve the aim of this study, four research objectives were formulated for this study. To reach the objectives of the study the researcher employed both qualitative and quantitative research methods to col-lect the data for the research. The research methodology comprised two main parts: firstly, a lit-erature study of all relevant literature on the subject matter, in order to gain the necessary in-depth understanding of the field; and secondly, qualitative and quantitative data-collection, using a semi-structured questionnaire. The first part of this study, the extensive literature review, helped firstly to provide the necessary background information on the mental and physical disabilities of school-going children, sec-ondly, it helped to establish a number of challenges that mothers caring for their disabled chil-dren face and the needs that result from them, from an ecological perspective. These were cate-gorized into four groups of needs: (1) access needs; (2) economic needs; (3) social and cultural needs; and (4) mental/psychological needs. Consequently, ways of meeting these needs were discussed, from formal support, such as government grants, to informal support, for example, the support of family and friends. Assessing the South African environment it was found that while the country has provided a very positive policy environment, through its constitution, policies and grant system, the practical implementation of this is, in many instances, inadequate. Using the findings of the first part of this thesis to create a questionnaire, its second part, the em-pirical study, presented and analysed the answers of nineteen mothers caring for their disabled children who attend the special school selected for the research study in Cloetesville, Stellenbosch; a low-income community. The questionnaire explored, among other aspects, the physical, social, emotional, psychological and economic needs of the mothers; the role of the school, fami-ly, friends, non-governmental organisations and other coping options in meeting them, as well as the mothers´ awareness of available resources. The findings in the South African low-income community corresponded to a large extent with what was indicated in the literature study. The mothers were found to live under precarious economic and employment situations, having to rely on child support and disability dependence grants. Furthermore, the mothers reported that they experienced stress, emotional and physical, as a result of having to care for disabled children. It was shown that while receiving grants and sending their children to the special school did alle-viate some of the challenges, this aid was not perceived as sufficient. On the other hand, the study confirmed and emphasized the importance of understanding and support by family and friends in helping mothers meet their needs. Moreover, it was found that most of the mothers interviewed for this thesis had a positive perception of their role as caregiver for their disabled child: for example, seeing themselves as good mothers, being proud to be self-sufficient, as well as a positive influence on the mothers‟ relationship with their family. As a consequence of the results this study, several recommendations were made for government (social development) and service providers (social workers, teachers, doctors): firstly, govern-ment should aim to achieve a better congruence between the positive policy environment in South Africa and the implementation of these policies; secondly, among other recommendations for service providers, awareness needs to be raised in communities to decrease the stigma of dis-ability and increase understanding and support. Finally, while this study was a success, it was only a first step in filling the gap in the literature on the experiences of mothers caring for their mentally and physically disabled children in South African low-income communities, and therefore needs to be complemented and tested by further research on the subject. / AFRIKAANSE OPSOMMING: Die doel van hierdie studie was om „n begrip te ontwikkel van die ervarings van moeders wat sorg vir hul skoolgaande kinders met verstandelike- of fisiese gestremdhede, in lae-inkomste gemeenskappe, deur gebruik te maak van die ekologiese perspektief. Die rasionaal vir die navorsing was, die gaping in bestaande literatuur ten opsigte van die ervarings van moeders wat sorg vir hul skoolgaande kinders met verstandelike- of fisiese gestremdhede in lae-inkomste gemeenskappe in Suid-Afrika, soos geïdentifiseer is in die voorlopige- en hoof literatuur oorsig. Die literatuur oorsig het verder aangedui dat hierdie moeders, veral in lae-inkomste gemeenskappe, verskeie uitdagings in die gesig staar. Ten einde die doel van hierdie studie te bereik, is vier navorsingsdoelwitte vir die studie geformuleer. Die navorser het beide kwalitatiewe- en kwantitatiewe navorsingsmetodes vir data-insameling gebruik, ten einde die doelwitte van die studie te bereik. Die navorsingsmetodologie het uit twee primêre dele bestaan: eerstens, „n literatuurstudie van al die relevante literatuur oor die spesifieke onderwerp, ten einde die nodige in-diepte begrip in verband met die onderwerp te ontwikkel; en tweedens, kwalitatiewe- en kwantitatiewe data-insameling, deur gebruik te maak van „n semi-gestruktureerde vraelys. Die eerste deel van die studie, naamlik die uitgebreide literatuuroorsig, het eerstens gehelp om die nodige agtergrondinligting oor verstandelike- en fisiese gestremdhede van skoolgaande kinders te voorsien en tweedens, het dit gehelp om „n aantal uitdagings te identifiseer wat moeders ervaar wat vir hul kinders met gestremdhede sorg, asook om te identifiseer watter behoeftes hierdie uitdagings tot gevolg het, vanuit „n ekologiese perspektief. Die behoeftes is gekategoriseer in vier kategorieë van behoeftes: (1) behoeftes van toeganklikheid; (2) ekonomiese behoeftes; (3) sosiale- en kulturele behoeftes; en (4) verstandelike/sielkundige behoeftes. Vervolgens, is maniere bespreek waarop hierdie behoeftes bevredig kan word, van formele ondersteuning, soos staatstoelae, tot informele ondersteuning, byvoorbeeld ondersteuning deur familie en vriende. Deur middel van die assessering van die Suid-Afrikaanse konteks, is daar bevind dat, terwyl die land „n baie positiewe beleidsomgewing voorsien, deur sy konstitusie, beleide en toelae-sisteem, is daar in baie gevalle agterstande met betrekking tot die praktiese implementering daarvan. Nadat die bevindinge van die eerste deel van hierdie tesis gebruik is om „n vraelys saam te stel, het die tweede deel van die studie, naamlik die empiriese studie, bestaan uit die voorstelling en die analisering van die antwoorde van 19 moeders wat sorg vir hul kinders met gestremdhede wat ʼn laerskool in Cloetesville, „n lae-inkomste gemeenskap in Stellenbosch, bywoon. Die vraelys het, onder andere, die fisiese-, sosiale-, emosionele-, sielkundige- en ekonomiese behoeftes van die moeders, die rol van die skool, familie, vriende, nie-regeringsorganisasies en ander hanteringsopsies om die voorafgenoemde behoeftes te bereik, asook die moeders se bewustheid van beskikbare hulpbronne, ondersoek. Die bevindinge in die Suid-Afrikaanse lae-inkomste gemeenskap het grootliks ooreengestem met die bevindinge aangedui in die literatuurstudie. Daar is bevind dat die moeders hulself in baie moeilike ekonomiese- en werksituasies bevind het, wat beteken het dat hul moes staatmaak op kinderondersteunings- en ongeskiktheidstoelae. Verder, het die moeders gerapporteer dat hul emosionele- en fisiese stres ervaar het, as „n gevolg van hul verantwoordelikheid om vir hul kinders met gestremdhede te sorg. Daar is ook bevind dat, alhoewel die ontvangs van toelae en die feit dat hul kinders spesiale skole bygewoon het, sommige van hul uitdagings verlig het, was dit nie as voldoende beskou nie. Aan die ander kant, het die studie die belangrikheid van die begrip en ondersteuning van familie en vriende om moeders te help om hul behoeftes te bevredig, bevestig en beklemtoon. Daar is ook bevind dat die meeste van die moeders wat aan die studie deelgeneem het, positiewe persepsies van hul rol as versorgers van hul gestremde kinders gehad het: byvoorbeeld, deur hulself as goeie moeders te sien, deur trots te wees daarop om self-onderhoudend te wees, asook deurdat hul rol as versorgers, „n positiewe invloed op hul verhoudings met hul familie gehad het. As „n gevolg van die resultate van die studie, is verskeie aanbevelings aan die regering (Maatskaplike Ontwikkeling) en diensverskaffers (maatskaplike werkers, onderwysers, dokters) gemaak: eerstens, behoort die regering te poog om „n beter kongruensie tussen die positiewe beleidsomgewing in Suid-Afrika en die implementering van hierdie beleide te bereik; tweedens, onder ander aanbevelings aan diensverskaffers, moet bewustheid in gemeenskappe geskep word, ten einde die stigma gekoppel aan gestremdheid te verminder en om begrip en ondersteuning te verhoog. Laastens, alhoewel die studie „n sukses was, is dit slegs „n eerste stap met betrekking tot die vervulling van die gaping in literatuur in verband met die ervarings van moeders wat sorg vir hul verstandelike- en fisies gestremde kinders in Suid-Afrikaanse lae-inkomste gemeenskappe. Hierdie onderwerp moet egter gekomplimenteer en getoets word deur verdere navorsing.

The special needs domain has long been recognised as problematic and adversarial. Much research has focused on areas of contention, such as the relationships between parents and practitioners, especially in educational settings, or on problems within the structure and operation of the domain. This study adopts a whole system approach in combining discussion of the structural basis of tension within the domain with an investigation of how both parents and practitioners describe, experience and respond to tensions within the special needs domain; such tensions being viewed as facets of the 'struggle' and 'fight' metaphor. Whole systems approaches are derived from the systems discipline, which developed initially out of the nineteenth century interest in organic and engineering systems, but more recently has focused on organisational and inter-organisational arrangements, including the part people play in enabling or disabling such arrangements. It is a strongly interdisciplinary approach more commonly found in organisational studies than in the social sciences more generally. Fifteen practitioners, from health and education settings, and twelve parents of children and young people with diagnoses of high functioning autism spectrum conditions participated in the study. The participants' stories of their experiences of the special needs domain were collected using a narrative inquiry approach. The data was analysed using concepts and theoretical frameworks derived from the work of Pierre Bourdieu, Uri Bronfenbrenner and Charles Wright Mills. An exploration of the influences shaping the special needs domain revealed a number of areas of unresolved tension, some of which result in tensions for those involved in the domain such as can be described as 'fight', and some of which might be addressed by structural changes to the systems comprising the special needs domain such as those envisaged in forthcoming legislation. However importantly the empirical study found that many tensions and struggles experienced by both parents and practitioners did not emanate from the structures of the domain and therefore were unlikely to be amenable to structural changes. Parents 'struggle' to maintain their identity as 'good' parents, to acquire information and to navigate the system in order to access services and resources. Practitioners experience conflict as they seek to access information and training, engage in the complex choreography of cooperating and collaborating in interagency and interprofessional working and endeavour to harmonise their professional practice with agency and public policy priorities. The thesis concludes with a brief discussion of the relationship between whole system approaches and other interdisciplinary approaches to investigating complex problems in the human sciences. It is suggested that systems diagramming techniques such as systems mapping and rich pictures are useful additions to the sociologist's toolkit.

Thesis (Psy. D.)--Wheaton College (Ill.), 2006. / Includes bibliographical references (leaves 69-72).

Thesis (Psy. D.)--Wheaton College (Ill.), 2006. / Abstract. Includes bibliographical references (leaves 69-72).

Les besoins psychosociaux des parents d’enfants atteints de cancer est un concept qui a été étudié dans les années antérieures. Toutefois, malgré la pertinence des résultats de ces écrits scientifiques, il subsiste un manque de consensus en ce qui a trait aux besoins de ces parents. Notons que les conséquences négatives de la parentalité d'un enfant diagnostiqué avec un cancer sont généralement plus prononcées chez les mères, ce qui fait en sorte que le but de cette revue intégrative vise à établir l’état des connaissances entourant leurs besoins psychosociaux. Le Modèle humaniste des soins infirmiers – UdeM (Cara et al., 2016) a été choisi comme cadre conceptuel, afin de permettre une vision holistique centrée sur la personne. La méthode proposée par Whittemore et Knafl (2005) pour la conduite des revues intégratives a été utilisée en respectant les cinq étape suivantes: 1) l’identification du problème; 2) la recension des écrits; 3) l’évaluation des données; 4) l’analyse des données; et 5) la présentation des résultats. Vingt-et-un articles ont été retenus, la majorité (14/21) étant de bonne/très bonne qualité. Les résultats des écrits scientifiques retenus proposent deux grandes catégories de besoins psychosociaux chez les mères d’enfants diagnostiqués avec un cancer : les besoins liés au soi en tant que mère (qui sont d’ordre émotionnel, social, spirituel, ainsi que des besoins de sécurité) et les besoins liés à l’état de santé de l’enfant (qui englobent le besoin d’être présente au chevet de son enfant et le besoin d’être rassurées quant à son état de santé). Les résultats dressent un portrait pertinent et approfondi du phénomène. Ils mettent en lumière la plus-value de l’infirmière dans l’accompagnement des mères d’enfants atteints de cancer, et ce, durant toute la trajectoire de la maladie. Cet accompagnement implique pour l’infirmière de prendre en compte la culture de la mère (y compris la dimension sociale et spirituelle), quel que soit la phase de la maladie de son enfant. Ainsi, il est suggéré que l’infirmière, selon ses valeurs humanistes, soit vigilante à la liberté de choix des mères et de maintenir une posture holistique, adaptée à la situation. / The psychosocial needs of parents of children with cancer is a concept that has been studied in previous years. However, despite the relevance of the results of this scientific literature, there remains a lack of consensus regarding the needs of these parents. Noting that the negative consequences of parenting a child diagnosed with cancer are generally more pronounced for mothers, this integrative review aims to establish the state of knowledge surrounding their psychosocial needs. The Humanistic Model of Nursing – UdeM (Cara et al., 2016) was chosen as the conceptual framework to allow for a holistic person-centered view. The method proposed by Whittemore et Knafl (2005) for conducting integrative reviews was used, following its five steps: 1) problem identification; 2) literature review; 3) data assessment; 4) data analysis; and 5) presentation of results. Twenty-one articles were selected, the majority (13/21) being of good/very good quality. The results of the selected scientific literature suggest two broad categories of psychosocial needs in mothers of children diagnosed with cancer: the needs related to the maternal self (which correspond emotional, social, spiritual, and safety needs); and the needs related to the child's health status (which include the need to be present at the bedside and the need for reassurance about the child's health status). The results provide a relevant and in-depth portrait of the phenomenon. They highlight the added value of nurses in accompanying mothers of children with cancer, throughout the pathway of the disease. This support implies that the nurse must consider the mother's culture (including the social and spiritual dimension), whatever the phase of her child's illness. Thus, it is suggested that the nurse, according to her humanistic values, be vigilant to the mother's freedom of choice and maintain a holistic posture, adapted to the situation.

No description available.

The overarching goal of this thesis was to compare the mother-child relationship and child behaviour across cultures. The three articles in this thesis were part of a multi-method investigation comparing England (an individualistic culture) and Turkey (a collectivistic culture). Accounts from two children and their mothers were obtained from 218 two-parent families in total. Mothers completed questionnaires, children were interviewed using the Berkeley Puppet Interview, and observations recorded during various play tasks. The study was unique as it recorded the perspectives of mothers and young children aged from 4 to 8 in each family across cultures. Results showed that English mothers used more positive methods of discipline with their older children, and reported less conflict with both of their children compared to Turkish mothers. In contrast, English children reported more anger and hostility from their mothers than did their Turkish peers (Paper 1). Cultural differences in maternal values partially explained these differences in positive discipline and anger and hostility (Paper 1). Using structural equation modelling, partial cross-cultural measurement invariance for parenting and child adjustment was revealed (Paper 2), and a stronger association between parenting and child adjustment was found for the English versus Turkish families (Paper 2). Finally, multi-level modelling yielded significant prediction of children's adjustment from both family-wide and child-specific aspects of parenting (Paper 3). The implications of the findings include appreciating different perspectives of parenting when conducting cross-cultural research (Paper 1); the culturally distinct meanings of both parent and child adjustment should be considered when interpreting their association (Paper 2); and that differential parenting within families can also have distinct cultural meaning (Paper 3). Future research would benefit from exploring within-and between-cultural differences in parent-child relationships further, across multiple countries, over time and in larger samples.

The diploma thesis deals with development and education in families with a child with dual sensory impairment, namely, from mother's point of view. The objective is to analyse stories of selected mothers of children with this particular disability, to explore the course of development and education involving deafblind children from different points of view (pedagogical, psychological etc.). The author of this thesis tries to find out about mothers' experiences and models of behaviour during pregnancy and afterwards. It focuses on acceptance of the disabled child within (and possibly outside) the family. In addition, the thesis explores reactions of mothers and others to a child with disability, it outlines the subsequent course of development and education in various periods of life. The particular emphasis is put on specific ways, by which these mothers developed their children during different activites (plays, conpensatory senses development, communication system development, independence of deafblind children etc.). It also describes developmental delays (emotional, social and cognitive functioning). Education options for deafblind are also mentioned. The stories are then compared to each other, as well as to selected literature from different countries. At the end of this thesis, practical...