O consumo de bebidas alcoólicas durante o período gestacional está relacionado a diversos prejuízos para a saúde materna e do bebê. O uso desta substância por gestantes pode aumentar o risco de trabalho de parto prematuro, aborto espontâneo, descolamento de placenta e aumento de pressão arterial. Em relação ao filho, o álcool pode causar deficiência no crescimento intrauterino, malformações físicas, a Síndrome Fetal do Álcool (SFA), danos cognitivos e problemas comportamentais que podem perdurar por toda a vida da criança. Embora exista uma tendência a diminuição do consumo de álcool durante o período gestacional, observa-se que uma parcela de mulheres persiste no consumo abusivo. Dessa forma, a identificação dos aspectos psicossociais relacionados com o uso de álcool torna-se importante para compreender melhor quais os fatores relacionados com este comportamento. O estudo teve como objetivo avaliar comparativamente os aspectos psicossociais associados com o uso de álcool em amostra de gestantes com diferentes padrões de consumo: abstinentes, consumidoras de risco, consumidoras nocivas e com provável dependência de álcool. Os fatores predisponentes para a SFA (conforme modelo adaptado de Abel & Hannigan) e o modelo psicossocial para compreensão do problema foram utilizados para seleção dos aspectos psicossociais considerados relevantes nesta pesquisa. Durante o desenvolvimento do estudo, a pesquisadora realizou estágio de doutorado no exterior na University of North Carolina at Chapel Hill (EUA) para treinamento clínico e científico. Trata-se de um estudo com delineamento transversal, observacional e comparativo. A coleta de dados foi realizada através de entrevistas semiestruturadas com gestantes atendidas em unidades básicas de saúde, maternidade e em serviço especializado em atendimento a mulheres farmacodependentes. Os resultados apontaram que gestantes com maior gravidade de consumo tiveram maior propensão à morbidade psiquiátrica (F=15,1; p<0,001), maior número de eventos estressores (F=21,9; p<0,001), menor suporte social (F=9,2; p<0,001), menor habilidade de coping (F=6,5; p<0,001), menor conhecimento sobre os danos associados ao uso de álcool na gestação (F=7,2; p<0,001) e tinham companheiro com uso de álcool (?²=5,8; p<0,01) e/ou drogas ilícitas (?²=24,3; p<0,001). A análise de regressão logística multivariada identificou quatro principais variáveis associadas à maior gravidade de uso de álcool: Estresse, Sintomas psiquiátricos, Uso de álcool e drogas do companheiro, Crenças e conhecimentos sobre o uso de álcool na gestação. Sendo assim, as gestantes com maior consumo de bebidas alcoólicas apresentaram aspectos psicossociais que as diferiram das gestantes abstinentes ou com consumo de risco de álcool. O estudo contribui ao evidenciar fatores que podem aumentar, ou ainda, moderar o consumo de álcool de gestantes. A gestação é um momento propício para auxiliar a mulher no abandono do uso de substâncias como bebidas alcoólicas. Os profissionais que atendem essa população podem avaliar tais aspectos psicossociais e detectar gestantes com maior vulnerabilidade para o uso de álcool. Portanto, o conhecimento sobre esta relação é importante para intervenções profissionais efetivas, formulação de estratégias de prevenção, diagnóstico precoce e tratamento, assim como uma melhor fundamentação de políticas públicas na área de saúde materno-infantil. / Alcohol consumption during pregnancy is related to several damage for maternal and newborn health. Pregnant women that use this substance can increases the risk for preterm labor, miscarriage, placental abruption and high blood pressure. For the child, alcohol can result in intrauterine growth restriction, physical malformations, the Fetal Alcohol Syndrome (FAS), cognitive impairment and behavioral problems that can last for a child\'s whole life. Although there is a tendency to decreased alcohol consumption during pregnancy, it is observed that a portion of women persists in the abuse. Thus, the identification of psychosocial aspects of alcohol use becomes important to better understand what factors are related to this behavior. The goal of the study was comparatively evaluate the psychosocial aspects associated with the alcohol use in a sample of pregnant women with different patterns of consumption: abstinence, hazardous use, harmful use and alcohol dependence. Permissive factors for FAS (as adapted model of Abel & Hannigan) and the psychosocial model for understanding the issue were used for selecting the psychosocial aspects considered relevant for this search. During the development of the study, the researcher conducted internship abroad at the University of North Carolina at Chapel Hill (USA) for clinical and scientific training. A cross-sectional, observational and comparative study. Data collection was conducted through semi-structured interviews with pregnant women attending the Basic Health Units, a maternity clinic and specialized service in addiction treatment for women. Results indicated that pregnant women with greater severity consumption were more chance to psychiatric morbidity (F=15.1, p<0.001), stressful events numbers (F=21.9, p<0.001), lower social support (F=9.2; p<0.001), lower levels of coping (F=6.5; p<0.001), lower Beliefs and Knowledge about the harms associated with alcohol use during pregnancy (F=7.2; p <0.001) and had a partner with alcohol use (X²=5.8; p<0.01) and/or illicit drug use (X²=24.3, p<0.001). Multivariate logistic regression analysis identified four main variables associated with greater severity of alcohol use: Stress, Psychiatric symptoms, Partner who use alcohol or drugs, Beliefs and Knowledge about alcohol use during pregnancy. Thus, pregnant women with greater severity of alcohol consumption had psychosocial aspects that differ from abstinent women or with hazardous alcohol consumption. This research identified factors that may increase or, even moderate alcohol consumption for pregnant women. Pregnancy seems to be appropriate moment to aid the woman in the abandonment of the use of substances such as alcohol. Professionals serving this population could evaluate this psychosocial aspects and detecting pregnant women with greater vulnerability to alcohol use. Therefore, knowledge of this association is important for effective professionals interventions, formulation of strategies for prevention, early diagnosis and treatment, as well as a better foundation for public policy about maternal and child health.

O consumo de bebidas alcoólicas durante o período gestacional está relacionado a diversos prejuízos para a saúde materna e do bebê. O uso desta substância por gestantes pode aumentar o risco de trabalho de parto prematuro, aborto espontâneo, descolamento de placenta e aumento de pressão arterial. Em relação ao filho, o álcool pode causar deficiência no crescimento intrauterino, malformações físicas, a Síndrome Fetal do Álcool (SFA), danos cognitivos e problemas comportamentais que podem perdurar por toda a vida da criança. Embora exista uma tendência a diminuição do consumo de álcool durante o período gestacional, observa-se que uma parcela de mulheres persiste no consumo abusivo. Dessa forma, a identificação dos aspectos psicossociais relacionados com o uso de álcool torna-se importante para compreender melhor quais os fatores relacionados com este comportamento. O estudo teve como objetivo avaliar comparativamente os aspectos psicossociais associados com o uso de álcool em amostra de gestantes com diferentes padrões de consumo: abstinentes, consumidoras de risco, consumidoras nocivas e com provável dependência de álcool. Os fatores predisponentes para a SFA (conforme modelo adaptado de Abel & Hannigan) e o modelo psicossocial para compreensão do problema foram utilizados para seleção dos aspectos psicossociais considerados relevantes nesta pesquisa. Durante o desenvolvimento do estudo, a pesquisadora realizou estágio de doutorado no exterior na University of North Carolina at Chapel Hill (EUA) para treinamento clínico e científico. Trata-se de um estudo com delineamento transversal, observacional e comparativo. A coleta de dados foi realizada através de entrevistas semiestruturadas com gestantes atendidas em unidades básicas de saúde, maternidade e em serviço especializado em atendimento a mulheres farmacodependentes. Os resultados apontaram que gestantes com maior gravidade de consumo tiveram maior propensão à morbidade psiquiátrica (F=15,1; p<0,001), maior número de eventos estressores (F=21,9; p<0,001), menor suporte social (F=9,2; p<0,001), menor habilidade de coping (F=6,5; p<0,001), menor conhecimento sobre os danos associados ao uso de álcool na gestação (F=7,2; p<0,001) e tinham companheiro com uso de álcool (?²=5,8; p<0,01) e/ou drogas ilícitas (?²=24,3; p<0,001). A análise de regressão logística multivariada identificou quatro principais variáveis associadas à maior gravidade de uso de álcool: Estresse, Sintomas psiquiátricos, Uso de álcool e drogas do companheiro, Crenças e conhecimentos sobre o uso de álcool na gestação. Sendo assim, as gestantes com maior consumo de bebidas alcoólicas apresentaram aspectos psicossociais que as diferiram das gestantes abstinentes ou com consumo de risco de álcool. O estudo contribui ao evidenciar fatores que podem aumentar, ou ainda, moderar o consumo de álcool de gestantes. A gestação é um momento propício para auxiliar a mulher no abandono do uso de substâncias como bebidas alcoólicas. Os profissionais que atendem essa população podem avaliar tais aspectos psicossociais e detectar gestantes com maior vulnerabilidade para o uso de álcool. Portanto, o conhecimento sobre esta relação é importante para intervenções profissionais efetivas, formulação de estratégias de prevenção, diagnóstico precoce e tratamento, assim como uma melhor fundamentação de políticas públicas na área de saúde materno-infantil. / Alcohol consumption during pregnancy is related to several damage for maternal and newborn health. Pregnant women that use this substance can increases the risk for preterm labor, miscarriage, placental abruption and high blood pressure. For the child, alcohol can result in intrauterine growth restriction, physical malformations, the Fetal Alcohol Syndrome (FAS), cognitive impairment and behavioral problems that can last for a child\'s whole life. Although there is a tendency to decreased alcohol consumption during pregnancy, it is observed that a portion of women persists in the abuse. Thus, the identification of psychosocial aspects of alcohol use becomes important to better understand what factors are related to this behavior. The goal of the study was comparatively evaluate the psychosocial aspects associated with the alcohol use in a sample of pregnant women with different patterns of consumption: abstinence, hazardous use, harmful use and alcohol dependence. Permissive factors for FAS (as adapted model of Abel & Hannigan) and the psychosocial model for understanding the issue were used for selecting the psychosocial aspects considered relevant for this search. During the development of the study, the researcher conducted internship abroad at the University of North Carolina at Chapel Hill (USA) for clinical and scientific training. A cross-sectional, observational and comparative study. Data collection was conducted through semi-structured interviews with pregnant women attending the Basic Health Units, a maternity clinic and specialized service in addiction treatment for women. Results indicated that pregnant women with greater severity consumption were more chance to psychiatric morbidity (F=15.1, p<0.001), stressful events numbers (F=21.9, p<0.001), lower social support (F=9.2; p<0.001), lower levels of coping (F=6.5; p<0.001), lower Beliefs and Knowledge about the harms associated with alcohol use during pregnancy (F=7.2; p <0.001) and had a partner with alcohol use (X²=5.8; p<0.01) and/or illicit drug use (X²=24.3, p<0.001). Multivariate logistic regression analysis identified four main variables associated with greater severity of alcohol use: Stress, Psychiatric symptoms, Partner who use alcohol or drugs, Beliefs and Knowledge about alcohol use during pregnancy. Thus, pregnant women with greater severity of alcohol consumption had psychosocial aspects that differ from abstinent women or with hazardous alcohol consumption. This research identified factors that may increase or, even moderate alcohol consumption for pregnant women. Pregnancy seems to be appropriate moment to aid the woman in the abandonment of the use of substances such as alcohol. Professionals serving this population could evaluate this psychosocial aspects and detecting pregnant women with greater vulnerability to alcohol use. Therefore, knowledge of this association is important for effective professionals interventions, formulation of strategies for prevention, early diagnosis and treatment, as well as a better foundation for public policy about maternal and child health.

Made available in DSpace on 2014-06-11T19:29:00Z (GMT). No. of bitstreams: 0 Previous issue date: 2010-03-20Bitstream added on 2014-06-13T20:18:45Z : No. of bitstreams: 1 bonfante_eg_me_bauru.pdf: 914879 bytes, checksum: e54faed333404ce4c3f692c0d0aae759 (MD5) / Compreender as reações que as doenças apresentam em virtude de emoções, sensações e sentimentos, faz-se hoje um dos maiores desafios da medicina. Uma dessas enfermidades que desperta o interesse de pesquisadores diversos é a hanseníase. No entanto, o tema da sexualidade ainda é escasso nas pesquisas com pessoas atingidas pela hanseníase. Diante disso, este estudo teve por objetivo investigar como pessoas atingidas pela hanseníase relatam sobre sua sexualidade, descrevendo os aspectos da vida social, sexual e afetiva. As questões que permeiam a percepção relacionada à própria sexualidade, bem como as relações afetivas dessas pessoas, além de todas as implicações emocionais desses aspectos na qualidade de vida desses indivíduos foram objeto de nosso estudo. Utilizou-se de um questionário de duas partes: Sexualidade e hanseníase - para verificação da autopercepção da possível influência na sexualidade dos indivíduos e Escala de Satisfação Sexual para avaliar o grau de satisfação pessoal em relação aos aspectos da vida sexual do indivíduo. Os resultados mostram a dificuldade existente na autoaceitação de si enquanto pessoa com hanseníase e que a mesma acaba por repercutir na forma do indivíduo se relacionar não só consigo mesmo, mas inclusive com os outros. Observou-se, ainda, que as relações afetivas se tornam fragilizadas e inconstantes e que há dificuldades na expressão da sexualidade. Novos estudos podem ampliar a compreensão dessa temática, ampliando o número de pessoas atingidas pela hanseníase ou o uso de entrevistas mais aprofundadas / Understand the reactions that have diseases because of emotions, sensations and feelings, it is now of the greatest challenges of medicine. One such disease that arouses the interest of many researchers is leprosy. However, the issue of sexuality is still scarce in research with people affected by leprosy. Thus, this study aimed to investigate how people affected by leprosy report about his sexuality, describing aspects of social life, sexual and emotional. The questions related to perceptions related to their sexuality and affective relations of these people, besides all the emotional implications of these aspects of quality of life of these individuals were the object of our study. A questionnaire of two parts was used: Sexuality and leprosy - to verify the perception of possible influence on the sexuality of individuals and Sexual Satisfaction Scale for assessing the degree of personal satisfaction in relation to aspects of sexual life. The results show the difficulty in autoaceitação of himself as a person with leprosy and that it ends up impacting the way the individual relates not only himself but also with others. It was noted also that the affective relations become fragile and unstable and that there are psychological problems in the expression of sexuality. Further studies may enhance understanding of the subject, increasing the number of people affected by leprosy or the use of more in-depth interviews

Background: When women from families with a known BRCA1 or BRCA2 mutation test negative for the family mutation, it is assumed that they will transition their personal cancer risk perception from high to average risk. However, there are scant data regarding the experience of mutation-negative women after genetic testing disclosure, particularly related to the shift of risk perception from assumed mutation-positive to actual mutation-negative. This study was designed to explore cancer risk perception and the experience of being a mutation-negative woman within a known BRCA1/2 mutation-positive family. Methods: We employed a qualitative descriptive design and convened a sample of 13 women who contributed in-depth, semi-structured telephone interviews (audio-recorded and transcribed verbatim) and performed qualitative content analysis with NVivo 2.0 software. Results: Six major content areas emerged from interview data: (i) rationale for initial involvement in the breast imaging study, (ii) rationale for continued participation, (iii) experience of living in a multiple-case family, (iv) risk perception: the personal meaning of mutation-negative status, (v) opinions regarding cancer aetiology and (vi) communication patterns between mutation-negative and mutation-positive family members. Conclusions: Living in a hereditary breast and ovarian cancer family is a complex experience that affects cognitive, emotional and social functioning. Our findings indicate that mutation-negative women may have unmet psychosocial needs that must be addressed by health-care professionals, particularly in the primary-care setting following genetic disclosure of a potentially reassuring result regarding their lack of the very high cancer risks associated with BRCA1/2 mutations.

Background. Clinical management of families with autosomal recessive genetic disorders focuses almost exclusively on the affected family members. However, clinically unaffected members of such families may also be severely troubled by the serious illness in a family member. The purpose of this study was to explore the experiences of healthy siblings of patients with a chronic genetic disease, Fanconi Anemia (FA). Procedure. We used a qualitative, descriptive design, which consisted of in-depth, semi-structured interviews. A convenience sample of nine siblings of patients with FA was recruited from a National Cancer Institute clinical research protocol, which targets families with inherited bone marrow failure syndromes. NVivo 2.0 software facilitated qualitative content analysis of the data. Results. Siblings' rich descriptions provided novel insights into the intricate hardships of living within a family in which a rare, life-threatening, chronic genetic illness in one member is the focus of daily life. Four major themes of the sibling experience emerged from the interview data: (1) containment, (2) invisibility, (3) worry, and (4) despair. Conclusions. Our data suggest that unrecognized psychosocial issues exist for the apparently healthy siblings of patients with FA. This study explores the psychosocial consequences of living in a family with FA and one of only a few studies to explore the sibling experience of chronic illness using a contemporaneous approach. These findings support the need for an increased awareness among health care providers; future hypothesis driven investigation, and improved assessment of problems with potential psychological morbidity.

Ser cuidador informal de pacientes com doenças crônicas pode implicar em sobrecarga e sofrimento psicológico significativo, potencialmente prejudiciais para a própria saúde física e mental e para a recuperação do paciente. Pouco se sabe sobre as experiências e características psicossociais dos cuidadores de pacientes portadores de Cardioversor Desfibrilador Implantável (CDI), principalmente na população brasileira, de forma que o presente estudo (quantitativo descritivo transversal) teve por objetivos caracterizar demográfica e psicossocialmente uma amostra não probabilística de cuidadores informais de pacientes portadores de CDI que se encontravam em tratamento médico em um hospital-escola do interior do Estado de São Paulo. As variáveis estudadas incluíram: características sóciodemográficas, qualidade de vida, ansiedade, depressão e percepção de sobrecarga. Participaram da pesquisa 60 cuidadores, entrevistados entre setembro de 2010 a maio de 2011. Para a coleta dos dados foram usados: Roteiro de Entrevista Semiestruturada, elaborado para esta pesquisa, Questionário de Avaliação de Saúde SF-36, Escala Hospitalar de Ansiedade e Depressão e a Zarit Burden Interview. Os dados foram analisados quantitativamente de forma descritiva. Posteriormente verificou-se associação estatisticamente significativa (p<=0,05) entre algumas variáveis de interesse, por meio do Teste Exato de Fisher. Os resultados mostraram que a média de idade dos cuidadores foi de 52,5 anos (DP=14,76), eram em sua maior parte do sexo feminino (n=45, 75%), o cônjuge do(a) paciente (n=39, 65%), com escolaridade predominante de até quatro anos (n=28, 46,67%), sendo a maioria (45, 75%) portadora de problemas de saúde. Vinte e cinco cuidadores (41,67%) apresentaram sintomas indicativos de ansiedade e 13 (21,67%) de depressão. Na avaliação da qualidade de vida, a média de escore mais elevado foi no domínio Aspectos Sociais (Média=78,12, DP=27,48) e o mais baixo em Vitalidade (Média=60,25, DP=26,03). O escore médio relacionado à percepção de sobrecarga foi de 19,93 (DP=12,51, Mediana= 18,5). Os participantes relataram alterações significativas em suas vidas após o implante do CDI, preocupações com a saúde do paciente e funcionamento do dispositivo, dificuldades relacionadas ao papel de cuidador, além de dúvidas sobre o desfibrilador implantável. Os resultados confirmaram que o implante do CDI no paciente impactou significativamente na vida de seus cuidadores informais, sendo necessário o oferecimento de apoio emocional e orientações específicas por parte dos profissionais da saúde para auxiliá-los na adaptação e enfrentamento adequado dessas situações. Dada a escassez de estudos brasileiros nesta população e alguns fatores metodológicos limitantes, é necessário que mais investigações sejam realizadas para comparar estes resultados. / Being an informal caregiver of patients with chronic diseases may imply significant psychological burden and suffering, potentially harmful to caregiver\'s own physical and mental health and patient\'s recovery. Little is known about the psychosocial experiences and characteristics of caregivers of patients with Implantable Cardioverter Defibrillator (ICD), mainly in the Brazilian population, so that the purpose of the present study (transversal descriptive quantitative) was to characterize, both demographically and psychosocially, a nonprobabilistic sample of informal caregivers of patients with ICD undergoing treatment in a university hospital in the interior of the State of São Paulo. The studied variables comprised: sociodemographic characteristics, life quality, anxiety, depression and perception of burden. Sixty caregivers took part in the survey, and they were interviewed between September, 2010 and May, 2011. Data collection used the following instruments: Semi-structured Interview Script prepared for this survey, SF-36 Health Evaluation Questionnaire, Hospital Anxiety and Depression Scale and the Zarit Burden Interview. Data was analyzed quantitatively in a descriptive way. Subsequently, statistically significant association (p<=0,05) was verified between some variables of interest through Fisher\'s Exact Test. Results describe that the average age of caregivers was 52.5 years (DP=14.76), they were mostly female (n=45, 75%), and patient\'s spouses (n=39, 65%), predominantly with up to four years of education (n=28, 46.67%), and most (45, 75%) with health problems. Twenty-five caregivers (41.67%) presented symptoms related to anxiety and 13 (21.67%) to depression. In life quality evaluation, the highest average score was in the Social Aspects dominion (Average=78.12, DP=27.48) and the lowest in Vitality (Average=60.25, DP=26.03). The average score regarding burden perception was of 19.93 (DP=12.51, Median= 18.5). Participants reported significant changes in their lives after ICD implant, concerns about patient\'s health and device operation, difficulties concerning their role as caregivers, in addition to doubts about the implantable defibrillator. Results confirm that the ICD implant had a significant impact in the life of their informal caregivers, requiring provision of emotional support by healthcare professionals in order to help them adapt and properly cope with these situations. Due to the scarcity of Brazilian studies in this population and some limiting methodological factors, further investigation is required to compare these results.

The master's thesis Women after breast cancer describes the influence of breast cancer on some aspects of the psychosocial life of affected women. In the theoretical part, the author describes the breast cancer, its causes, incidence, presents classification of tumors and risk factors, introduces strategies for prevention and makes the reader aware of symptoms and the quality of life of sufferers. Furthermore, the author analyzes contemporary therapies for the treatment of breast cancer. The empirical part of the master's thesis includes four interviews that serve as the basis for analysis and interpretation of the research. The goal of this thesis is to understand what influence breast cancer has on some of the psychosocial aspects of life of women that suffered from it. The author also investigates what obstacles the breast cancer causes within family life, its influence on work, the psychological state of the victims and what factors created the most difficulties during patients' treatment. The author chose the method of qualitative research, and the techniques of semi-structured interview, analysis of medical documentation and self-observation. KEYWORDS Breast cancer, quality of life, psychosocial aspects of tumor

Bakalauro darbe analizuojami šeimos, auginančios neįgalų vaiką, psichosocialiniai ir edukaciniai ypatumai. Šiems ypatumams atskleisti buvo išskirti tokie tyrimo uždaviniai: išanalizuoti mokslinę literatūrą, pasirinkta tema; atskleisti šeimos psichosocialinę ir edukacinę situaciją, auginant neįgalų vaiką; išsiaiškinti, su kokiais sunkumais susiduria neįgalų vaiką auginantys tėvai; atskleisti kokią paramą/pagalbą neįgalaus vaiko šeimai teikia specialistai; remiantis tyrimo rezultatais, parengti rekomendacijas specialistams, dirbantiems su šeimomis, auginančiomis neįgalius vaikus. Siekiant išsamiau atskleisti tokių šeimų esamą situaciją, buvo remtasi kokybinio ir kiekybinio tyrimo metodais. Tyrime iš viso dalyvavo 111 respondentų. 106 tiriamieji dalyvavo anketinėje apklausoje, 5 interviu. Didžiąją dalį tiriamųjų sudarė moterys. Pusiau struktūruoto interviu bei anketinės apklausos metodu tirta, kokia tėvų, auginančių neįgalų vaiką, psichologinė būsena; nagrinėjamos gyvenimo šeimoje permainos; santykių su aplinkiniais pokyčiai; darbo bei laisvalaikio organizavimo galimybės; sąveikos su socialine aplinka ypatumai, šeimos dalyvavimo visuomeniname gyvenime bruožai; analizuojamos santykių su specialistais patirtys; specialistų teikiamos pagalbos/paramos turinys. Tyrimo metu nustatyta, kad dauguma respondentų patiria specifinių, tik tokioms šeimoms būdingų emocinių, socialinių – edukacinių problemų. Vaiko negalė paveikia visą šeimą kaip sistemą, iškelia naujus reikalavimus, sutrikdo... [toliau žr. visą tekstą] / Psychosocial and educational peculiarities of the family growing up a disabled child are analysed in the work of Bachelor. To reveal these peculiarities there were set certain goals: to analyse nonfiction literature on the given topic; to reveal psychosocial and educational situation of the family growing up a disabled child; to find out the difficulties that meet the parents who grow up a disabled child; to discover what support or help the family who grow up a disabled child gets from the specialists; with reference to the results of research to give recommendations to the specialists who work with the families growing up disabled children. Qualitative and quantitative research methods were used in purpose to reveal properly the situation in such families. 111 respondents from Siauliai, Kaunas and Jonava participated in the research. 106 respondents answered the questionnaire and 5 respondents gave interview. Women made the majority of all respondents. Using the methods of half structured interview and questionnaire it was analysed the psychological state of the families growing up disabled children; the changes in the family life were examined; the alterations of relations with the people round about; the possibilities of organizing work and free time; the peculiarities of interaction with social surrounding, the elements of family participation in social life; experiences and relations with the specialists are analyzed; the content of given support or help from... [to full text]

The occurrence of work related musculoskeletal disorders (WRMD) has been a focus of much research and the prevalence of upper extremity disorders (UED) has also been explored. Most of the studies addressing WRMD among hairstylists considered the biomechanical demands of the industry, with a few studies acknowledging the psychosocial risk factors as precipitators of the upper extremity pain. This qualitative study contributes to an understanding of the biopsychosocial factors linked to the experience of pain, and how the process of adjustment to pain impacted the performance of roles at work and home of female hairstylists. The PEO model (Law et al., 1996) was used to describe the impact of pain on roles and the adjustment process in the management of roles, and facilitated an understanding of the occupational performance issues face by the stylists experiencing upper extremity pain.

The occurrence of work related musculoskeletal disorders (WRMD) has been a focus of much research and the prevalence of upper extremity disorders (UED) has also been explored. Most of the studies addressing WRMD among hairstylists considered the biomechanical demands of the industry, with a few studies acknowledging the psychosocial risk factors as precipitators of the upper extremity pain. This qualitative study contributes to an understanding of the biopsychosocial factors linked to the experience of pain, and how the process of adjustment to pain impacted the performance of roles at work and home of female hairstylists. The PEO model (Law et al., 1996) was used to describe the impact of pain on roles and the adjustment process in the management of roles, and facilitated an understanding of the occupational performance issues face by the stylists experiencing upper extremity pain.