No description available.

No description available.

No description available.

Thesis (M.S.P.H.)--University of South Florida, 2009. / Title from PDF of title page. Document formatted into pages; contains 68 pages. Includes bibliographical references.

No description available.

<p>Purpose: The purpose of the present study was to illuminate how individuals living with SHR, experience its impact on accessibility, financial security and social relationships.</p><p>Method: A qualitative approach was used. The participants were recruited by advertising on the website for “The network for people with odor intolerance”. The data was collected by written descritive texts from the participants and analysed with qualitative content analysis.</p><p>Results: The results showed that the informants experienced an extensive lack of accessibility in society. It was difficult to move around in society, to visit public buildings and facilities and it was almost impossible to find a suitable place to live. Regarding financial security they had a reduced income due to difficulties to earn their living in combination with increased expenses because of the disease and they had difficulties to get the support they needed from authorities. This created an insecure financial situation. Further, the findings showed that their social relationships had been affected. Socializing with others had become hard and troublesome, they had become limited in doing social activities and they got support from some but these persons became limited. Six themes permeated the categories in all three content areas: “Being limited”, “Being forced to behave incompatible with your true personality”, “Experiencing a lack of understanding and respect from others”, “Experiencing insecurity”, “Being dependent on others” and “Being forced to choose between the plague and cholera”. <strong></strong></p> / <p>Syfte: Syftet med denna studie var att belysa hur individer som lever med sensorisk hyperreaktivitet (SHR) upplever dess påverkan på tillgänglighet, ekonomisk trygghet och sociala relationer.</p><p>Metod: Kvalitativ metod användes och deltagarna rekryterades via Internet genom annonsering på nätverket för doftöverkänsligas hemsida. Datainsamlingen skedde genom skrivna berättelser från deltagarna och data analyserades sedan med kvalitativ innehållsanalys.</p><p>Resultat: Resultatet visade att informanterna upplevde en omfattande brist på tillgänglighet i samhället. Det var svårt att röra sig i samhället, att besöka offentliga lokaler och inrättningar samt att det var nästan omöjligt att hitta en lämplig bostad. Deras ekonomiska trygghet var påverkad genom att de hade minskad inkomst på grund av svårigheter att försörja sig i kombination med ökade utgifter orsakade av sjukdomen samt att de hade svårigheter att få det stöd de behövde från myndigheter. Detta skapade en otrygg ekonomisk situation. Deras sociala relationer hade blivit påverkade av sjukdomen. Att umgås med andra hade blivit jobbigt och besvärligt, deras sociala aktiviteter hade blivit begränsade och de fick stöd av vissa men dessa personer blev då begränsade. Sex teman genomsyrade kategorierna i alla tre innehållsområdena: "Vara begränsad", "Vara tvungen att bete sig oförenligt med sin rätta personlighet", "Uppleva brist på förståelse och respekt från andra", "Uppleva otrygghet", "Vara beroende av andra" och "Vara tvungen att välja mellan pest eller kolera"</p>

Purpose: The purpose of the present study was to illuminate how individuals living with SHR, experience its impact on accessibility, financial security and social relationships. Method: A qualitative approach was used. The participants were recruited by advertising on the website for “The network for people with odor intolerance”. The data was collected by written descritive texts from the participants and analysed with qualitative content analysis. Results: The results showed that the informants experienced an extensive lack of accessibility in society. It was difficult to move around in society, to visit public buildings and facilities and it was almost impossible to find a suitable place to live. Regarding financial security they had a reduced income due to difficulties to earn their living in combination with increased expenses because of the disease and they had difficulties to get the support they needed from authorities. This created an insecure financial situation. Further, the findings showed that their social relationships had been affected. Socializing with others had become hard and troublesome, they had become limited in doing social activities and they got support from some but these persons became limited. Six themes permeated the categories in all three content areas: “Being limited”, “Being forced to behave incompatible with your true personality”, “Experiencing a lack of understanding and respect from others”, “Experiencing insecurity”, “Being dependent on others” and “Being forced to choose between the plague and cholera”. / Syfte: Syftet med denna studie var att belysa hur individer som lever med sensorisk hyperreaktivitet (SHR) upplever dess påverkan på tillgänglighet, ekonomisk trygghet och sociala relationer. Metod: Kvalitativ metod användes och deltagarna rekryterades via Internet genom annonsering på nätverket för doftöverkänsligas hemsida. Datainsamlingen skedde genom skrivna berättelser från deltagarna och data analyserades sedan med kvalitativ innehållsanalys. Resultat: Resultatet visade att informanterna upplevde en omfattande brist på tillgänglighet i samhället. Det var svårt att röra sig i samhället, att besöka offentliga lokaler och inrättningar samt att det var nästan omöjligt att hitta en lämplig bostad. Deras ekonomiska trygghet var påverkad genom att de hade minskad inkomst på grund av svårigheter att försörja sig i kombination med ökade utgifter orsakade av sjukdomen samt att de hade svårigheter att få det stöd de behövde från myndigheter. Detta skapade en otrygg ekonomisk situation. Deras sociala relationer hade blivit påverkade av sjukdomen. Att umgås med andra hade blivit jobbigt och besvärligt, deras sociala aktiviteter hade blivit begränsade och de fick stöd av vissa men dessa personer blev då begränsade. Sex teman genomsyrade kategorierna i alla tre innehållsområdena: "Vara begränsad", "Vara tvungen att bete sig oförenligt med sin rätta personlighet", "Uppleva brist på förståelse och respekt från andra", "Uppleva otrygghet", "Vara beroende av andra" och "Vara tvungen att välja mellan pest eller kolera"

For people who live with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity syndrome illness is a hidden construct. The body does not display the chronicity of the internal experience. This thesis removes the barrier between what is experienced and what is visible by creating visual means of communicating the body’s hidden experience. The place of the viewer is part of this discussion. Through visual methods digital photographic techniques and the current interest in sensory anthropology the embodied sensory chronic illness experience is explored. The hidden experiences were made visual creating “MeBoxes” and masks which showed both the external and embodied internal experiences of chronic illness. As the process of working with and walking beside the participants developed, I found that the discourse on imaging within the literature was inadequate to show the real lived experiences of those with chronic illness. My interactions with the people of this thesis and the process of honouring their experiences required a model that would encourage the viewer to new and perhaps unrealised depths of participation to understand the participant’s multi-faceted and multi-layered experiences. Part of the discussion is the ability of images to communicate sensory experience as is the case with Munch’s The Scream and Picasso’s Guernica. Through the use of a hypertextual self-scape I show how participants created access to their experiences through their visual representations and through a collaborative approach became composite hypertextual self-scape metaphors.

For people who live with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity syndrome illness is a hidden construct. The body does not display the chronicity of the internal experience. This thesis removes the barrier between what is experienced and what is visible by creating visual means of communicating the body’s hidden experience. The place of the viewer is part of this discussion. Through visual methods digital photographic techniques and the current interest in sensory anthropology the embodied sensory chronic illness experience is explored. The hidden experiences were made visual creating “MeBoxes” and masks which showed both the external and embodied internal experiences of chronic illness. As the process of working with and walking beside the participants developed, I found that the discourse on imaging within the literature was inadequate to show the real lived experiences of those with chronic illness. My interactions with the people of this thesis and the process of honouring their experiences required a model that would encourage the viewer to new and perhaps unrealised depths of participation to understand the participant’s multi-faceted and multi-layered experiences. Part of the discussion is the ability of images to communicate sensory experience as is the case with Munch’s The Scream and Picasso’s Guernica. Through the use of a hypertextual self-scape I show how participants created access to their experiences through their visual representations and through a collaborative approach became composite hypertextual self-scape metaphors.

For people who live with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity syndrome illness is a hidden construct. The body does not display the chronicity of the internal experience. This thesis removes the barrier between what is experienced and what is visible by creating visual means of communicating the body’s hidden experience. The place of the viewer is part of this discussion. Through visual methods digital photographic techniques and the current interest in sensory anthropology the embodied sensory chronic illness experience is explored. The hidden experiences were made visual creating “MeBoxes” and masks which showed both the external and embodied internal experiences of chronic illness. As the process of working with and walking beside the participants developed, I found that the discourse on imaging within the literature was inadequate to show the real lived experiences of those with chronic illness. My interactions with the people of this thesis and the process of honouring their experiences required a model that would encourage the viewer to new and perhaps unrealised depths of participation to understand the participant’s multi-faceted and multi-layered experiences. Part of the discussion is the ability of images to communicate sensory experience as is the case with Munch’s The Scream and Picasso’s Guernica. Through the use of a hypertextual self-scape I show how participants created access to their experiences through their visual representations and through a collaborative approach became composite hypertextual self-scape metaphors.