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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
71

Husband's and Daughter's Role Strain During Breast Cancer Hospice Patient Caregiving and Bereavement Adjustment

Bernard, Lori Lynn 05 1900 (has links)
Current literature regarding caregiver bereavement adjustment has advanced two competing models explaining adjustment in relation to caregiver interrole conflict: the Relief Model and Complicated Grief Model. This research has primarily focused on the experience of those providing care to dementia patients. This study tests these competing models of bereavement adjustment for husband and daughter caregivers of breast cancer hospice patients. For husbands, greater psychological strain and health strain were predictive of greater difficulty with bereavement adjustment, supporting the Complicated Grief Model of bereavement adjustment. For daughters, strain was not a significant predictor of bereavement adjustment, and thus did not support either bereavement adjustment model. While daughter caregivers experienced more role strain than husband caregivers during patient care, the degree of role strain was predictive of bereavement adjustment for husbands but not for daughters, suggesting that relationship type (husbands versus daughters) between caregiver and patient impacts which factors influence bereavement adjustment.
72

Qualidade de vida de cuidadores de paciente com câncer terminal / Quality of life of caregivers of patients in the terminal stage of cancer

Teles, Antônio Gomes 30 May 2014 (has links)
Submitted by Luciana Ferreira (lucgeral@gmail.com) on 2016-03-03T15:11:00Z No. of bitstreams: 2 Dissertação - Antônio Gomes Teles - 2014.pdf: 1054844 bytes, checksum: 7e9b9d8d1f4b5b577f45cb27f110e4b5 (MD5) license_rdf: 23148 bytes, checksum: 9da0b6dfac957114c6a7714714b86306 (MD5) / Approved for entry into archive by Luciana Ferreira (lucgeral@gmail.com) on 2016-03-03T15:27:09Z (GMT) No. of bitstreams: 2 Dissertação - Antônio Gomes Teles - 2014.pdf: 1054844 bytes, checksum: 7e9b9d8d1f4b5b577f45cb27f110e4b5 (MD5) license_rdf: 23148 bytes, checksum: 9da0b6dfac957114c6a7714714b86306 (MD5) / Made available in DSpace on 2016-03-03T15:27:10Z (GMT). No. of bitstreams: 2 Dissertação - Antônio Gomes Teles - 2014.pdf: 1054844 bytes, checksum: 7e9b9d8d1f4b5b577f45cb27f110e4b5 (MD5) license_rdf: 23148 bytes, checksum: 9da0b6dfac957114c6a7714714b86306 (MD5) Previous issue date: 2014-05-30 / When concerning quality of life (QOL), several issues must be considered, due to the complexity of the way people face life, their behave and feelings, including health status.In this scenery the QOL of caregivers should be aimed, specialy of those who give domiciliary assistance to terminal cancer patients. The objective of the presente study was to evaluate the QOL of terminal cancer domiciliary caregivers entitled GAPPO (Support Paliative Oncological Group), in the metropolitan área of Goiania/Goias/Brazil.This was a correlational, descriptive, transversal stydy, developed with patients of the Hospital Araujo Jorge of the Association Agaisnt Cancer of Goias (ACCG). The WHOQOL– BREF (portuguese version) query was applied, individually, during patients domiciliar visits to access each caregiver.Microsoft ® Excel 2007 was used for data tabulation and statistical analysis was developed in SPSS® for Windows®, version 16.0. The social-demographics profile was considered in WHOQOL – BREF query and analised with t-Studenttest, using ANOVA (Tukey test) for normal distribution.Chi-square test was also used for univariate social-demographic analysis. Correlation analysis was performed with Pearson test, considering significance with a p value < 0.05 for all tests. Fourty three domiciliary caregivers were included, all indicated by the patients seen. 79.1 % ofthecaregiverswerewomen, 65.1% married. Around 51% of the sample were over 50’s, 39.5% caucasians, 55.8% completed college and 67.4% were catholics. The time of professional activity may increase psych emotional distress. Around 60% of the caregivers had less than one year of experience, 41.8% with 24h daily duty and almost 98% of all with non-profit activity. The amount of daily working hours has impacted fisical and psychologically the caregivers. The highest negative QOL impact was seen in the psych field, witha mean of 52.8 for those working up to 5 hours a day, although reaching 68.5 for caregivers working 6 to 11 hours a day. The results showed that the patient´s income variable results in worse QOL of the caregivers, once it is associated to a higher risk of severe pain, need of medical assistance, mobility problems, costs with energy and even ability to develop daily activities. The results of correlation of WHOQOL-BREF query variables showed mild to high significance. The work developed by the caregivers with this kind of patients lead to a poor QOL. The conclusions of the present work suggest that caregivers themselves need care in order to preserve their QOL. / Quando pensamos em qualidade de vida, emergem inúmeras concepções, pautadas na multidimensionalidade do constructo, que englobam uma série de acontecimentos que podem afetar o modo com que o indivíduo percebe o mundo, seus sentimentos e comportamentos, incluindo a sua situação de saúde. Nesse contexto, destaca-se a QV dos cuidadores, especialmente daqueles que prestam assistência a pacientes em fase terminal de câncer no domicílio. O objetivo do estudo foi avaliar a qualidade de vida de cuidadores de pacientes em fase terminal de câncer, no domicílio, atendidos pelo Grupo de Apoio Paliativo ao Paciente Oncológico na região metropolitana de Goiânia. Trata-se de uma pesquisa descritiva correlacional, transversal, realizada no domicílio de portadores de câncer em fase terminal, procedentes do Hospital Araújo Jorge da Associação de Combate ao Câncer em Goiás. Aplicou-se o instrumento WHOQOL – BREF, versão em português, aos participantes, de forma individual, no próprio domicílio. O programa Microsoft ® Excel 2007 foi usado para tabulação dos dados e a análise estatística pelo programa SPSS® for Windows®, versão 16.0. Para avaliar o perfil sócio-demográfico, em relação aos domínios do questionário WHOQOL – BREF utilizou-se o teste t-Student, teste Anova e teste Tukey para dados normais. Para a comparação das facetas do WHOQOL – BREF em relação ao perfil sócio-demográfico (somente para a variável significativa perfil vezes domínio) foi utilizado teste X2. Para correlação entre os domínios do WHOQOL – BREF foi utilizado o teste de Pearson. Considerou-se como nível de significância o valor 5% (p<0,05). Participaram 43 cuidadores de pacientes em fase terminal de câncer, com seguimento no domicílio, indicados pelos pacientes. Identificou-se que a maioria eram mulheres 79,1%, casadas 65,1%. Aproximadamente 51% dos cuidadores encontram-se acima de 50 anos, 39,5% referiram ser da raça branca, 55,8% com ensino fundamental e 67,4% eram católicos. O tempo de atuação como cuidador pode interferir no seu desgaste psicoemocional; identificou-se que 60,4% referiram ter tempo como cuidador de < 1 ano, 41,8% com carga horária diária de 24 horas e 97,7% não eram remunerados. A partir desses dados, comparou-se a variável carga horária diária com os domínios do WHOQOL - BREF. A carga horária foi significativa nos domínios físico e psicológico desses cuidadores. Com relação à QV, percebeu-se que a pontuação máxima foi no domínio psicológico com média de 52,8 até 5 horas, 68,59 de 6 - 11 horas, 61,25 de 12 a 17 horas e 52,8 de 18 - 24 horas. Após a análise das facetas, concluiu-se que o indicador renda comprometeu a QV dos cuidadores, evidenciada por tendência ao surgimento de dor intensa, necessidade de tratamento médico, capacidade de locomover-se, gasto de energia e na capacidade de desempenhar as atividades diárias, além de comprometer o nível de produção para o trabalho, dentre outras. A correlação das variáveis entre domínios do WHOQOL-BREF apresentou-se de forma moderada e altamente significativa. Evidenciou-se que as atividades desempenhadas pelos cuidadores informais dessa população comprometem a sua QV. Dessa forma, a equipe multiprofissional de CP do HAJ/ACCG precisa incluir o cuidador no plano de cuidados, buscando promover melhor QV desses cuidadores.
73

An exploratory study on anticipatory grieving : case studies of spouses of terminally ill patients /

Choy, Yin-san, Catherine. January 1987 (has links)
Thesis (M.S.W.)--University of Hong Kong, 1987.
74

An exploratory study on an interventive approach to work with the spouse of patients with terminal illness /

Ng, Lai-nga. January 1987 (has links)
Thesis (M.S.W.)--University of Hong Kong, 1987.
75

The education of the health care professional in terminal care in the light of the emotional impact of the nature of the work /

Munro, Susan, 1938- January 1986 (has links)
No description available.
76

Zum Helfen motiviert : eine qualitative Untersuchung zu Motivation und Ressourcen von Mitarbeiterinnen und Mitarbeitern eines Hospizes im Hinblick auf die Bedeutung ihrer Religiosität /

Stens, Oliver, January 2005 (has links)
Thesis (doctoral)--Universität, Freiburg/Schweiz, 2005.
77

The relationship between sleep-wake disturbance and pain in cancer patients admitted to hospice home care

Acierno, Marjorie. January 2007 (has links)
Thesis (M.S.)--University of South Florida, 2007. / Title from PDF of title page. Document formatted into pages; contains 40 pages. Includes bibliographical references.
78

Relação “alimento no final de vida” o significado para o familiar cuidador /

Komuro, Jéssica Emy January 2018 (has links)
Orientador: Maria Rita Marques de Oliveira / Resumo: Introdução Quando o paciente não tem a possibilidade de cura, o familiar enfrenta diversos desafios, inclusive o do cuidado da alimentação. Objetivo Compreender o significado da alimentação para o familiar de pacientes fora de possibilidade terapêutica de cura. Método Foi utilizada a abordagem fenomenológica social de Alfred Schütz. A pergunta norteadora utilizada foi: "Conte para mim como tem sido para o senhor(a) lidar com a alimentação que o (paciente) está recebendo?" Resultados e discussão Foram realizadas seis entrevistas que foram analisadas seguindo os passos metodológicos da Análise Ideográfica e Nomotética da fenomenologia. Emergiram duas categorias: "Associando o comprometimento da alimentação com a finitude" e "Desafios frente ao comprometimento alimentar". O familiar cuidador, frente a evolução da doença, vê no agravamento da dificuldade para alimentação o anuncio do fim. Relaciona a alimentação ao prazer e ao bem estar, tendo-a como uma forma de dar amor e conforto ao paciente. Para os familiares privar o paciente de um dos poucos prazeres que ele ainda tem - a alimentação - é muito difícil, e por isso transferem e confiam essa responsabilidade para os profissionais. Considerações finais O familiar cuidador relaciona o comer com o bem estar do paciente, e também como uma forma de transmitir o seu amor e zelo ao paciente. O comprometimento da alimentação torna visível e concreto a progressão e permanência da doença, o que sinaliza a aproximação da finitude e que ... (Resumo completo, clicar acesso eletrônico abaixo) / Abstract: Introduction When the patient doesn’t have the possibility of a cure, the family member faces several challenges, including food care. Objective To understand the meaning of feeding for the family of patients with no possible recovery. Method The social phenomenological approach of Alfred Schütz has been used. The guiding question was: "Tell me how it has been for you to deal with the food that (the patient) is receiving?" Results and discussion Six interviews were made and analyzed, following the methodological steps of phenomenology’s Ideographic and Nomothetic Analysis. Two categories emerged: "Associating the commitment of food with finitude" and "Challenges for food commitment". The caregiver, faced with the evolution of the disease, sees the worsening of the difficulty of feeding as the announcement of the end. It relates food to pleasure and well-being, having it as a way of giving love and comfort to the patient. For family members to deprive the patient of one of the few pleasures he still has - food - is very difficult, and so they transfer and entrust this responsibility to professionals. Final considerations The family caregiver relates eating with the patient's well-being, and also as a way of conveying his love and care to the patient. Feeding impairment makes the progression and permanence of the disease visible and concrete, which signals the approximation of finitude and which in the eyes of the familiar is very painful. / Mestre
79

Relação “alimento no final de vida”: o significado para o familiar cuidador / Relationship "food in the end-of-life": the meaning to the family caregiver

Komuro, Jéssica Emy 28 February 2018 (has links)
Submitted by Jéssica Emy Komuro (jessica.komuro@gmail.com) on 2018-04-27T00:06:39Z No. of bitstreams: 1 DISSERTACAO_JESSICA_EMY_KOMURO.pdf: 1099037 bytes, checksum: a38dac756e823f0c561d5747e3a5ac0f (MD5) / Approved for entry into archive by Sulamita Selma C Colnago null (sulamita@btu.unesp.br) on 2018-04-27T14:17:39Z (GMT) No. of bitstreams: 1 komuro_je_me_bot_int.pdf: 1099037 bytes, checksum: a38dac756e823f0c561d5747e3a5ac0f (MD5) / Made available in DSpace on 2018-04-27T14:17:39Z (GMT). No. of bitstreams: 1 komuro_je_me_bot_int.pdf: 1099037 bytes, checksum: a38dac756e823f0c561d5747e3a5ac0f (MD5) Previous issue date: 2018-02-28 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) / Introdução Quando o paciente não tem a possibilidade de cura, o familiar enfrenta diversos desafios, inclusive o do cuidado da alimentação. Objetivo Compreender o significado da alimentação para o familiar de pacientes fora de possibilidade terapêutica de cura. Método Foi utilizada a abordagem fenomenológica social de Alfred Schütz. A pergunta norteadora utilizada foi: "Conte para mim como tem sido para o senhor(a) lidar com a alimentação que o (paciente) está recebendo?" Resultados e discussão Foram realizadas seis entrevistas que foram analisadas seguindo os passos metodológicos da Análise Ideográfica e Nomotética da fenomenologia. Emergiram duas categorias: "Associando o comprometimento da alimentação com a finitude" e "Desafios frente ao comprometimento alimentar". O familiar cuidador, frente a evolução da doença, vê no agravamento da dificuldade para alimentação o anuncio do fim. Relaciona a alimentação ao prazer e ao bem estar, tendo-a como uma forma de dar amor e conforto ao paciente. Para os familiares privar o paciente de um dos poucos prazeres que ele ainda tem - a alimentação - é muito difícil, e por isso transferem e confiam essa responsabilidade para os profissionais. Considerações finais O familiar cuidador relaciona o comer com o bem estar do paciente, e também como uma forma de transmitir o seu amor e zelo ao paciente. O comprometimento da alimentação torna visível e concreto a progressão e permanência da doença, o que sinaliza a aproximação da finitude e que aos olhos do familiar é muito doloroso. / Introduction When the patient doesn’t have the possibility of a cure, the family member faces several challenges, including food care. Objective To understand the meaning of feeding for the family of patients with no possible recovery. Method The social phenomenological approach of Alfred Schütz has been used. The guiding question was: "Tell me how it has been for you to deal with the food that (the patient) is receiving?" Results and discussion Six interviews were made and analyzed, following the methodological steps of phenomenology’s Ideographic and Nomothetic Analysis. Two categories emerged: "Associating the commitment of food with finitude" and "Challenges for food commitment". The caregiver, faced with the evolution of the disease, sees the worsening of the difficulty of feeding as the announcement of the end. It relates food to pleasure and well-being, having it as a way of giving love and comfort to the patient. For family members to deprive the patient of one of the few pleasures he still has - food - is very difficult, and so they transfer and entrust this responsibility to professionals. Final considerations The family caregiver relates eating with the patient's well-being, and also as a way of conveying his love and care to the patient. Feeding impairment makes the progression and permanence of the disease visible and concrete, which signals the approximation of finitude and which in the eyes of the familiar is very painful. / CAPES/ Programa de Demanda Pessoal
80

Strach ze smrti, jeho interdisciplinární charakteristika a výzkum formou rozhovoru / Fear of Death, its Interdisciplinary Characteristic and Dialog Research Method

MUSILOVÁ, Magdalena January 2009 (has links)
Fear of death is related to the way we live, affects individuals and affects the attitude of a whole society. The thesis is divided into theoretical and practical parts. In the theoretical part, a definition of concept of ethics and bioethics can be found as well as a discussion of the differing perceptions of the value of human life, basic information about euthanasia and the possibilities for palliative and hospice care. Furthermore, different views on the fear of death are noted as are presented by representatives of several areas - anthropologists, psychologists, theologians and sociologists. In the next part an interdisciplinary overview of the fear of death is compiled, which forms the theoretical basis for the practical part of the work. In this part a qualitative research was carried out through half structured interviews on fear of death. Comparing the results with outcomes from the theoretical part, it was found that death is a taboo topic in a society and that the fear of death is natural. In line with the used literature, most respondents have a great fear of the process of dying itself than of the death itself. From this point of view it was uncovered, that there is a relatively low awareness of the possibilities of palliative care between respondents.

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