Thesis (MEdPsych (Educational Psychology)--University of Stellenbosch, 2010. / ENGLISH ABSTRACT: In this research voyage of discovery, we story the voices of me (the research inquirer), my family and a teacher about our experience with a young woman with Autism Spectrum Disorder – my youngest sister Leyna.1 This is our attempt to give Leyna and (dis)ability a voice. Their voices have been silenced from research for too long. I try to explain a narrative research lens as a foundation for this document – one that views autism not as a disorder, but as a difference that needs to be embraced. People often live their lives according to the problem stories they tell themselves, and do not see the alternative stories that surround them every day. On this voyage I therefore tell our story to document the inspirational experiences that people with autism bring about in the lives of those supporting them. Little research that focuses on alternative stories about autism has been done on a global scale. Moreover, little research has been done on autism specifically in the South African context. This thesis relates the stories of the people involved in caring for my sister with autism. It brings a message of hope and suggests possibilities for future research voyages about autism. 1 Pseudonym / AFRIKAANSE OPSOMMING: In hierdie navorsingsontdekkingsreis vertel ons 'n storie deur verskeie stemme te laat hoor: ek, die navorsingsondersoeker, my gesin en 'n onderwyseres vertel 'n storie oor ons ervaringe met 'n jong vrou met Outisme Spektrum Versteuring – my jongste suster Leyna.2 Hierdie is ons onderneming om vir Leyna en gestremdheid 'n stem te gee. Te veel stemme is al te lank deur navorsing stilgemaak. Ek probeer die narratiewe navorsingslens te verduidelik as 'n grondslag vir hierdie dokument – een wat outisme nie as 'n versteuring sien nie, maar eerder as 'n verskil wat aangegryp en gerespekteer moet word. Mense leef dikwels hul lewens uit op grond van die probleemgesentreerde stories wat hulle aan hulself vertel, en sien nie die alternatiewe stories raak wat hulle daagliks omsluit nie. In hierdie reis vertel ek dus ons storie om die inspirerende ervarings wat mense met outisme in die mense wat hulle ondersteun teweeg bring, te dokumenteer. Min navorsing wat op die alternatiewe stories oor outisme fokus is tot op hede op 'n globale skaal gedoen. Verder is daar nog min navorsing oor outisme spesifiek in die Suid-Afrikaanse konteks gedoen. Hierdie studie vertel die stories van die mense wat betrokke is in die versorging van my suster met outisme. Hiermee word 'n boodskap van hoop gebring en moontlikhede voorgestel vir toekomstige navorsingsreise oor outisme. 2 Skuilnaam is gebruik

Contributions of home environment and family socioeconomic status (SES) on the intelligence test performance of 24 exceptional children aged five through seven years were investigated. It was hypothesized that higher SES would enrich the children's environment providing a more stimulating learning experience, and would reflect a positive correlation with measures of the home environment. Additional hypotheses were that both HOME scores and SES scales would show a positive correlation with intelligence test performance. The positive association found between SES and HOME Inventory scores suggests that families with a higher SES have the ability to direct more resources toward their children. However, according to the present study, this does not affect the intelligence test performance of exceptional children.

The problem of this study was to identify variables in the family environment that may describe depressed adolescents' families. This study was based on Adlerian theory. The Family Environment Scale (FES) was used to measure the family atmosphere. The Lifestyle Scale (LS) was used to examine the adolescent's unique system of beliefs, values, and attitudes. The Internal-External Locus of Control Scale (IE) was used to measure the extent of external control exhibited by the adolescents and their parents. The subjects of this study were 31 depressed adolescents from 2 suburban psychiatric hospitals and one of each of the adolescent's parents. The subjects were from a homogeneous socioeconomic population showing no significant variation in the demographic categories of sex, race, chronological birth order, or marital status of the parents. Scores were compared with normative data. Product moment correlations were calculated between the results of the subscales on the 3 instruments. A principal components factor analysis was performed to determine if any patterns existed.

This investigation represents an initial attempt toward the construction of a general life cycle theory of parent-child relations. Emphasis was placed on the parent-adult child relationship with the onset of a filial crisis, e.g., due to illness. After the theory was described, two of the five propositions comprising this orientation (i.e., propositions four and five) were analyzed through a series of twenty-five hypotheses. The objectives of these hypotheses were (a) to analyze the relationship between the length of time involved in various patterns of filial responsibility and the likelihood that these patterns will become institutionalized as obligatory roles and (b) to determine how factors associated with these emergnt role obligations contribute to the cost of caregiving. A probability sample of 180 caregivers was obtained from within the Dallas/Ft. Worth area. Multiple and partial correlation analyses and the use of Student's t revealed that the length of time involved as a caregiver was significantly related to the number of informal caregiving roles performed by adult children. In addition, results indicated that the length of involvement in each caregiving role examined (i.e., household care, transportation service, personal care, medical attention, meal preparation, financial management and mobility assistance) was significantly related to (a) the frequency of providing these services to an aged parent and (b) the level of responsibility in each service area except financial management (which tended to remain constant over time)• An adult child s level of obligation to ensure that caregiving services were provided was also significantly associated with the length of caregiving involvement. Furthermore, this study found tentative support for the contention that the social-psychological cost of providing care for a dependent parent was associated with (a) the frequency of providing transportation services and medical attention, (b) the number of informal caregiving activities performed and (c) the length of caregiver involvement. A set of three control variables (i.e., the household living arrangements and both the aged parent s and adult child's physical health status) were identified as significant contributors to the cost of caregiving. Based on the empirical results of this investigation, propositions four and five of the theoretical perspective presented in this dissertation were supported.

When children have a moderate to severe traumatic brain injury (TBI), they are treated in a continuum of care that includes triage and emergency care, hospitalization, rehabilitation and outpatient therapy. Physical and cognitive recovery from brain injury may take several years. Children’s recovery varies, depending on numerous factors including pre-injury conditions and injury severity. While children and families are eager to return home to familiar activities, there are often significant physical, cognitive, behavioral and emotional changes that challenge families. Successful community reintegration depends on the ability of the family to understand and support the child, dealing with and responding effectively to those challenges. The purpose of this study is to understand how parents manage the care and community reintegration of their child who has experienced a TBI over time. This study utilized a mixed methods approach exploring the dimensions of the health challenge faced by parents caring for a child after a TBI, critical turning points as they face health challenges, and approaches for movement toward resolving health challenges. Story theory and story inquiry method were used to gather stories from 10 parents of children who experienced moderate to severe traumatic brain injury between the ages of 12 and 18, and between 2 and 5 years ago. Parents’ perceptions of their child’s quality of life and their ability to manage their child’s health challenge were explored using the Pediatric Quality of Life Inventory and Family Management Measure. Health challenges identified were: living with overwhelming personal upheaval, navigating the unknown, and struggling with how to support independence/dependence. Turning points were chronological or epiphanies. Approaches for movement toward resolving were continuously re-creating a new normal, being fully engaged in meeting the needs of one’s child, and embracing caring relationships to construct the new normal. Qualitative and quantitative data were analyzed to synthesize the findings. Results include a sense of ease in managing the health condition of the child associated with continuously creating a new normal. Healthcare providers can support and strengthen family management of children after TBI by understanding the health challenge, critical turning points and how parents move toward resolving. / Includes bibliography. / Dissertation (Ph.D.)--Florida Atlantic University, 2014. / FAU Electronic Theses and Dissertations Collection

published_or_final_version / Education / Master / Master of Education

The motivation of the study was to explore the problems of families in South Africa who struggle to manage their children with autism and to find out whether they were receiving appropriate assistance. This was done by assessing the needs of the parents of children with autism by means of semi-structured interviews. Through these interviews, the parents were given the opportunity to express what information or recommendations they would like to have available to them. How the parents view their experience, their feelings about these experiences, and the strategies and actions that they take in order to cope with raising their child with autism, is important information. The aim of the study was to explore the problems South African families have so that this may form the base of information supplied to professionals such as psychologists, social workers, and educators thereby assisting in improving service delivery to parents of children with autism. / Social Work / M.Diac. (Play Therapy)

The focus of this qualitative study is the way siblings of children with autism experience their nuclear family. Five participants in their middle childhood (6 to 12 years), with a younger sibling with autism, participated in the study. Individual unstructured interviews were conducted with all participants to describe their experience of their family. The interviews were, with the consent of the parents and children, video-recorded and transcribed. Eight recurring themes were identified in the transcriptions and studied relative to the existing literature. True to the qualitative nature of this study, the aim was not to generalize the findings, but to give each of the participants the opportunity to tell his/her story. The result of this study is the detailed description of how siblings of children with autism experience their nuclear family. / Social Work / M.Diac.(Play Therapy)

Doctorat en sciences psychologiques / info:eu-repo/semantics/nonPublished

The South African White Paper for Social Welfare (1997:58) acknowledges the importance to children of living in a secure and nurturing family. Nevertheless, many families are unable to fulfil their parenting roles as a result of the increasing pressures in society. One of these pressures concerns the employment of parents. There is an increasing tendency for people to relocate to bigger cities where there are more job opportunities. This then results in many children being left in the care of grandparents or other relatives while the biological parents pursue job opportunities in other cities. The aim of this study was to enhance an understanding of children’s experiences of these voluntary parental absences and the factors that contribute to their resilience during this process. A qualitative, explorative, descriptive and contextual design was employed and seven primary school children (10-12 years) from Port Elizabeth participated in semi-structured interviews including drawings. Trustworthiness was ensured and data analysis was conducted by using Tesch’s model (in Creswell, 1998). Four themes were derived from the study: Children’s perception of a family, where the participants defined family according to characteristics of (amongst others) care and love; Children’s experiences of living with a substitute family, where there was a process of detachment from biological parents, attachment to the substitute family and present experiences in the new family; Resilience in children, where the participants revealed their ways of coping; and, lastly, Suggestions from the participants on how other children in the same situation could cope.