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"It’s not a secret but-- " : predictive testing and patterns of communication about genetic information in families at risk for Huntington DiseaseCox, Susan M. 11 1900 (has links)
The increasing transparence of the human genome has profound implications for how we
understand health and illness and perceive our biological and social relatedness to others.
Presymptomatic testing for adult onset conditions, in particular, creates the novel situation in
which some individuals know in advance of impending illness while others learn that they have
escaped such a fate. How families at risk for one adult onset condition — Huntington Disease
(HD) — communicate about such information is the topic of this dissertation.
HD is often described as a 'genetic time bomb'. It is an autosomal dominant
neuropsychiatric disorder characterized by mid-life onset, involuntary movements, cognitive
impairment, and depression. There is no effective prevention or cure but with the advent of
predictive testing in 1987 it became possible for at risk individuals to learn if they had inherited
the mutation associated with HL\ Empirical studies on predictive testing for HD focus primarily
on the individual psychological impacts of the test; few studies consider how families
understand and attempt to manage genetic information in their everyday lives.
This dissertation begins to address these lacunae by examining the stories that test
candidates and their families tell about hereditary risk and predictive testing. These stories
derive from a prospectively designed study which includes 102 in-depth, at-home interviews
conducted in the pre and post-results period with 16 test candidates and 33 family members.
Focusing on three narrative 'moments', the dissertation explores how study participants storied
their experiences of: 1) learning about the family history of HD, 2) deciding to request the
predictive test and, 3) making sense of an informative result. Drawing upon a social
constructionist approach, the analysis emphasizes the processual nature of predictive testing as
well as the significance of interpersonal communication in producing and reproducing the social
realities in which genetic information acquires a particular salience. Given the recent
proliferation of genetic tests as well as the absence of an adequate popular discourse on
embodied risk, the research underscores lay actors' abilities to reframe existing clinical schema
in order to interpret and manage hereditary risk in an intersubjectively meaningful way. / Arts, Faculty of / Anthropology, Department of / Graduate
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The relevance of the speech act theory to Buzani KubawoScheckle, Linda Ann 10 1900 (has links)
Austin's Speech Act Theory is a valuable tool for the
analysis of a literary text. In interaction, the intentionand
purpose-success of linguistic communication can be gauged
by establishing whether participants have met felicity
conditions and have respected maxims. When the Co-operative
Principle is ignored, special effects are achieved and
receivers can only make sense of utterances through
implicature and inferences based on background knowledge and
mutual contextual beliefs.
In the drama, Buzani kubawo, characters interact on four
levels of time in space and place. They reveal themselves
and convey theme through their speech and actions. Conflict
is entrenched by lines of force drawn between opposing
characters and between sub-worlds contrasted. Cohesion,
determined by plot structure, and form, expressed on the
endophoric and exophoric levels, give meaning to the drama.
The micro-analysis of the wedding scene illustrates how
communication can misfire should the playwright allow it! / African Languages / M.A. (African languages)
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The relevance of the speech act theory to Buzani KubawoScheckle, Linda Ann 10 1900 (has links)
Austin's Speech Act Theory is a valuable tool for the
analysis of a literary text. In interaction, the intentionand
purpose-success of linguistic communication can be gauged
by establishing whether participants have met felicity
conditions and have respected maxims. When the Co-operative
Principle is ignored, special effects are achieved and
receivers can only make sense of utterances through
implicature and inferences based on background knowledge and
mutual contextual beliefs.
In the drama, Buzani kubawo, characters interact on four
levels of time in space and place. They reveal themselves
and convey theme through their speech and actions. Conflict
is entrenched by lines of force drawn between opposing
characters and between sub-worlds contrasted. Cohesion,
determined by plot structure, and form, expressed on the
endophoric and exophoric levels, give meaning to the drama.
The micro-analysis of the wedding scene illustrates how
communication can misfire should the playwright allow it! / African Languages / M.A. (African languages)
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Exploring the involvement of children in the decisionmaking process about their futureMoeketsi, Ramathabathe Rossy 09 1900 (has links)
The researcher wanted to explore the experiences of children who removal by a social worker either to an institution or to foster homes. The researcher wanted to find out if the behaviour of absconding could be explained by using systems theory, contructivism, cybernetics and person- centered theory.
The researcher hypothesized that children abscond from alternative care as a means of communicating with the social worker involved as well as any other person significant in their lives.
The study wanted to explore how these children perceived their involvement in the decision making process of their removal. The researcher only interviewed children who had absconded from the alternative care placements.
The study found that all the children interviewed perceived that they were not involved in any way in the process of removal. They all saw their removal as a form of punishment for something they did wrong, but they did not get an opportunity to discuss with their parents or significant others. They also perceived their absconding as an effort to rectify the situation. A lot of anger and suspicion towards social workers was encountered during the study.
In terms of the theories mentioned above, these perceptions are the children’s own reality, which might differ from the realities as created or perceived by social workers.
It is hypothesized that social workers who use the Child Care Act 74/83 and its regulations in the removal of children, do it to protect the children from risky situations as their job responsibility requires.
This study indicates that the children did not experience removal as protection. Instead of children feeling protected in the alternative care, they felt blamed, judged and unhappy about their removal and excluded from the process.
The researcher made a few suggestions that could be considered when social workers removing children to alternative care.
It is recommended that social workers involve the children and their parents or significant others in the entire process of deciding the future of any children in their (parents’) care.
However, if removal is deemed necessary, just telling or informing children that they will be removed for their own safety is not enough. Children might not perceive the situation as dangerous. Instead, they might see the social worker as posing a danger to them and their families and thus try to shut the social worker and what s/he says out of their minds.
Findings safe ways to involve children and families in the decisions about their future may require of social workers to revive their academically acquired knowledge in this respect. / Social Work / M.A. (Social Sciences (Mental Health))
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Communication between parents and adolescents in restructured familiesSibiya, Tembisa Bellinda 11 1900 (has links)
The purpose of this study was to determine whether there is a difference in communication between
parents and adolescents in restructured and structured families.
To supplement the literature, two groups of adolescents were given questionnaires on
parent child communication. The experimental group was from restructured families while the
control group was from structured families. An in depth study through interviews and Thematic
Apperception Tests was done. Furthermore, the researcher supported her study by exploring case
studies, group therapy sessions and some sessions during her years of internship.
Besides the fact that there was no significant difference in communication between these groups,
language as a factor in communication seemed to have a significant impact. In the eight moments
(criteria) under which the questions of the questionnaire were categorized, it came out that good
communication is not dependent on the structure of the family but on the interaction of individuals
within any family. / Psychology of Education / M. Ed. (Guidance and Counselling)
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Exploring the involvement of children in the decisionmaking process about their futureMoeketsi, Ramathabathe Rossy 09 1900 (has links)
The researcher wanted to explore the experiences of children who removal by a social worker either to an institution or to foster homes. The researcher wanted to find out if the behaviour of absconding could be explained by using systems theory, contructivism, cybernetics and person- centered theory.
The researcher hypothesized that children abscond from alternative care as a means of communicating with the social worker involved as well as any other person significant in their lives.
The study wanted to explore how these children perceived their involvement in the decision making process of their removal. The researcher only interviewed children who had absconded from the alternative care placements.
The study found that all the children interviewed perceived that they were not involved in any way in the process of removal. They all saw their removal as a form of punishment for something they did wrong, but they did not get an opportunity to discuss with their parents or significant others. They also perceived their absconding as an effort to rectify the situation. A lot of anger and suspicion towards social workers was encountered during the study.
In terms of the theories mentioned above, these perceptions are the children’s own reality, which might differ from the realities as created or perceived by social workers.
It is hypothesized that social workers who use the Child Care Act 74/83 and its regulations in the removal of children, do it to protect the children from risky situations as their job responsibility requires.
This study indicates that the children did not experience removal as protection. Instead of children feeling protected in the alternative care, they felt blamed, judged and unhappy about their removal and excluded from the process.
The researcher made a few suggestions that could be considered when social workers removing children to alternative care.
It is recommended that social workers involve the children and their parents or significant others in the entire process of deciding the future of any children in their (parents’) care.
However, if removal is deemed necessary, just telling or informing children that they will be removed for their own safety is not enough. Children might not perceive the situation as dangerous. Instead, they might see the social worker as posing a danger to them and their families and thus try to shut the social worker and what s/he says out of their minds.
Findings safe ways to involve children and families in the decisions about their future may require of social workers to revive their academically acquired knowledge in this respect. / Social Work / M.A. (Social Sciences (Mental Health))
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Communication between parents and adolescents in restructured familiesSibiya, Tembisa Bellinda 11 1900 (has links)
The purpose of this study was to determine whether there is a difference in communication between
parents and adolescents in restructured and structured families.
To supplement the literature, two groups of adolescents were given questionnaires on
parent child communication. The experimental group was from restructured families while the
control group was from structured families. An in depth study through interviews and Thematic
Apperception Tests was done. Furthermore, the researcher supported her study by exploring case
studies, group therapy sessions and some sessions during her years of internship.
Besides the fact that there was no significant difference in communication between these groups,
language as a factor in communication seemed to have a significant impact. In the eight moments
(criteria) under which the questions of the questionnaire were categorized, it came out that good
communication is not dependent on the structure of the family but on the interaction of individuals
within any family. / Psychology of Education / M. Ed. (Guidance and Counselling)
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The psycho-social challenges facing HIV/AIDS lay counsellors at a community-based voluntary counselling and testing site in TshwaneKabamba, Tshibangu Taiddyslas 11 1900 (has links)
This study focuses on the psycho-social challenges faced by HIV/AIDS lay counsellors at a Voluntary Counselling and Testing (VCT) site in Tshwane, South Africa. A qualitative approach was employed by using semi-structured interviews with open-ended questions to obtain information from four lay counsellors, who provide pre- and post-test counselling at a VCT site. The results indicate that the management of clients’ emotions and needs pose enormous challenges to HIV/AIDS lay counsellors who do not receive any formal psycho-social support at VCT sites. The research participants in this study resort to their own coping mechanisms to deal with the challenges – with varying degrees of success. The recommendation is made that a formal support programme should be put in place at VCT sites, which will allow HIV/AIDS lay counsellors to respond to the many demands placed on them. Such a programme can help prevent burnout and a high turnover in lay counsellors. / Social Work / M. A. (Social Behaviour Studies in HIV/AIDS)
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The psycho-social challenges facing HIV/AIDS lay counsellors at a community-based voluntary counselling and testing site in TshwaneKabamba, Tshibangu Taiddyslas 11 1900 (has links)
This study focuses on the psycho-social challenges faced by HIV/AIDS lay counsellors at a Voluntary Counselling and Testing (VCT) site in Tshwane, South Africa. A qualitative approach was employed by using semi-structured interviews with open-ended questions to obtain information from four lay counsellors, who provide pre- and post-test counselling at a VCT site. The results indicate that the management of clients’ emotions and needs pose enormous challenges to HIV/AIDS lay counsellors who do not receive any formal psycho-social support at VCT sites. The research participants in this study resort to their own coping mechanisms to deal with the challenges – with varying degrees of success. The recommendation is made that a formal support programme should be put in place at VCT sites, which will allow HIV/AIDS lay counsellors to respond to the many demands placed on them. Such a programme can help prevent burnout and a high turnover in lay counsellors. / Social Work / M. A. (Social Behaviour Studies in HIV/AIDS)
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