abstract: Medical policies, practices, and definitions do not exist solely in the clinical realm; they show up in the lived experiences of patients. This research examines how people with the chronic illness called myalgic encephalomyelitis (ME) define their own illness experiences. They have situated knowledge about their illness onset, search for care, and clinical encounters. Their knowledge complicates and challenges the existing norms in clinical practice and medical discourse, as the experience of searching for care with ME reveals weaknesses in a system that is focused on acute care. Patient narratives reveal institutional patterns that obstruct access to medical care, such as disbelief from clinicians and lack of training in chronic illness protocols. They also reveal patterns in physician behavior that indicate the likelihood of receiving effective care. These patient narratives serve as a basis for continued examination of ME as well as further reconstruction of medical practice and procedure. / Dissertation/Thesis / Masters Thesis Social Justice and Human Rights 2019

Depictions of college professors in American films are common, and while a number of studies have investigated various aspects of college life in motion pictures, few have focused exclusively on the cinematic professoriate. In addition to being an indelible part of history, cinematic depictions of college professors are part of the national discourse on the role and function of the faculty and university. An investigation of how college professors have been represented in American films, and how these representations are read and created by real-life college professors and filmmakers may provide a deeper understanding of the relationship between popular culture images and academia. This project consists of three sections. The first focuses on the trajectories of negative representations of college professors in popular American films from 1970-2016. The second examines interview responses of film professors to on-screen depictions of college faculty. The third presents a case study of professorial depictions by a group of filmmakers who created a feature length film about a college professor. As various public stakeholders are increasingly questioning the role of the college professor and the institution of higher education, this project seeks to examine the influence of popular professor images and cultural influences on the conceptions of two interpretive communities – one that embodies the professoriate and one that creates images surrounding it. Moreover, this project considers these depictions within film marketplace and popular culture contexts.

This thesis presents a grounded theory of the flow experiences of Web users engaged in information-seeking activities. The term flow refers to a state of consciousness that is sometimes experienced by individuals who are deeply involved in an enjoyable activity. The experience is characterised by some common elements: a balance between the challenges of an activity and the skills required to meet those challenges; clear goals and feedback; concentration on the task at hand; a sense of control; a merging of action and awareness; a loss of self-consciousness; a distorted sense of time; and the autotelic experience.¶ Researchers have recently proposed Csikszentmihalyi's flow theory as a useful framework for understanding the enjoyment experienced by Web users, but they have struggled to operationalise key constructs such as flow and challenge in their quantitative models. This study aimed to address that problem by providing a better understanding of the nature of flow as experienced by Web users engaged in information-seeking activities. The theory that was developed during this study encompasses the following topics:¶ - the role that curiosity and time urgency play in the formation of a Web user's information-seeking goals and subsequent navigation behaviour;¶ - the challenges that Web users face when seeking information, the skills they use in meeting those challenges, and the relationship that exists between challenges and skills;¶ - the important role that focused attention plays in the flow experiences of Web users, elements that help to focus a user's attention, and elements that are distracting; and¶ - various dimensions of the flow experiences of Web users, which include a joy of discovery, a reduced awareness of factors that are irrelevant to the task at hand, a distorted sense of time, a merging of action and awareness, a sense of control, mental alertness, and telepresence.¶ The grounded theory research method that was employed in this study is a primarily inductive investigative process in which the researcher formulates a theory about a phenomenon by systematically gathering and analysing relevant data. The purpose of this research method is building theory, not testing theory. The data that was gathered for this study primarily consisted of semi-structured in-depth interviews with informants of varying gender, age, educational attainments, occupations and Web experience who could recall experiencing flow while using the Web.¶ An important distinction between this study and other investigations into the flow experiences of Web users is the way it goes beyond sheer associations to propose explanations for how and why certain events occur - explanations that are grounded in the data rather than deduced from the literature. This study is the first of its type on this subject, and as such, it provides a useful counterpoint to previous quantitative studies.

There is a current wave of interest in pornography as a vehicle for queer, feminist and lesbian activism. Examples include Dirty Diaries: Twelve Shorts of Feminist Porn (Engberg, Sweden, 2009), the Pornfilmfestival Berlin (2006-) and the members-only Club LASH in Stockholm (1995-). Based on ethnographic fieldwork designed around these cases, the purpose of the thesis is to account for, historicize and understand this transnational film culture and its politics and ethics. The fieldwork consists of interviews, questionnaires and participant observation, including participation as one of the filmmakers in Dirty Diaries. The thesis studies queer, feminist and lesbian pornography as an interpretive community. Meanings produced in this interpretive community are discussed as involving embodied spectatorial processes, different practices of participation in the film culture and their location in specific situations and contexts of production, distribution and reception. The thesis highlights a collective political fantasy about a safe space for sexual empowerment as the defining feature of this interpretive community. The figure of safe space is central in the fieldwork material, as well as throughout the film culture’s political and aesthetic legacies, which include second wave feminist insistence on sexual consciousness-raising, as well as the heated debates referred to as the Sex Wars. The political and aesthetic heterogeneity of the film culture is discussed in terms of a tension between affirmation and critique (de Lauretis, 1985). It is argued that the film culture functions both as an intimate public (Berlant, 2008) and as a counter public (Warner, 2002). Analyzing research subjects’ accounts in terms of embodied spectatorship (Sobchack, 2004, Williams, 2008), the thesis examines how queer, feminist and lesbian pornography shapes the embodied subjectivities of participants in this interpretive community and potentially forms part of processes of sexual empowerment.

This thesis explores the possibilities of embodied writing for social inquiry. Using an examination of the social production of bodily pain to exemplify my approach, and drawing upon autobiographical writing, I develop an embodied writing practice and theorize its implications for decolonizing knowledge production. Following a phenomenologically informed interpretive sociology, I attend closely to language and the construction of meaning through reflexive engagement with pain as a social phenomenon. I also utilize mindfulness meditative practice methodologically to centre the body within social research and intervene in the mind/body split which underwrites much Western knowledge production and reproduces normative, medicalized relations to bodily knowledge. I suggest that by undoing those traditional boundaries demarcating the possibilities of knowledge production, and attending to our epistemological locations which are themselves deeply political, we might generate differently imagined relations to embodiment.

This thesis explores the possibilities of embodied writing for social inquiry. Using an examination of the social production of bodily pain to exemplify my approach, and drawing upon autobiographical writing, I develop an embodied writing practice and theorize its implications for decolonizing knowledge production. Following a phenomenologically informed interpretive sociology, I attend closely to language and the construction of meaning through reflexive engagement with pain as a social phenomenon. I also utilize mindfulness meditative practice methodologically to centre the body within social research and intervene in the mind/body split which underwrites much Western knowledge production and reproduces normative, medicalized relations to bodily knowledge. I suggest that by undoing those traditional boundaries demarcating the possibilities of knowledge production, and attending to our epistemological locations which are themselves deeply political, we might generate differently imagined relations to embodiment.

Noting how organizations today are increasingly dependent on IT for a broad range of organizational activities, the thesis starts from the observation that many IT-related endeavors nevertheless fail. In tracing part of the problem to the inability of many organizations to cope with changes in the surrounding material and social context, the emphasis is put on the processes by which IT-artifacts are adapted and re-adapted, after they have been put into daily use. Assuming human sensemaking as a good basis for coping with the changes, qualitative data from two organizations — a Swedish social services department and a software firm — provides an empirical context for assessing how sensemaking processes affect IT-adaptation. Conceptually, the thesis draws on Karl Weick's thinking, introducing the "double interact" and the "response repertoire" as sensitizing concepts with which to understand the mechanisms generating adaptation of IT-artifacts. Methodologically, the interpretive case study is employed, using the "hermeneutic circle" as the guiding principle for the research process. The thesis draws some specific implications concerning how IT-adaptation can be understood in organizations. The generic IT-adaptation process can be divided into two elementar}- phases, exploration and exploitation. During the exploration phase, several individual interpretations of a particular IT-artifact co-exist, occasioning ambiguity about its meaning in organizational daily activity. During the exploitation phase, the IT-artifact itself is in the background of matters of attention, providing organizational actors, who pursue individual goals and desires, the opportunity to exploit the shared and taken-for-granted meaning they see in the artifact. While the exploitation phase is important for organizational efficacy, there is nevertheless a risk that the meaning exploited becomes outdated by surrounding socio-material changes over time. Among other proposals, the thesis therefore suggests that triggering sensemaking processes can be important for meaningful IT-adaptation. In addition, it suggests the activity of searching for the interlacing areas of professional identity of actor groups, as a means to make IT-artifacts meaningful in organizing endeavors. / <p>[8] s., s. 1-64: sammanfattning, s. 65-168: 6 uppsatser</p> / digitalisering@umu

Prairie of Mine(s) explores the incorporation of cultural and historical elements within the reclamation of a post-industrial mining landscape in the South Saskatchewan prairie. Reclamation solely by ecological methods often fails to recognize the industrial processes and people that altered the landscape. This project utilizes experiential, cultural, and historical elements within the reclamation of mining lands to shed light on a part of our history that is frequently overlooked and draw attention to actions made on the earth everyday in order for us to live comfortably. / October 2008

Information systems (IS) are widely acknowledged to be central for contemporary organizations. Along with the increasing importance of new IS in organizations, a school of thought has developed over the last few years that claims that IS and organizations mutually shape each other. While new IS shape organizational structure and behavior, the actual role and importance of IS in organizations is largely dependent on the organizational setting. However, questions of how IS and organizations mutually shape each other have remained largely unexplored.    The purpose of this thesis is to create better understanding of the design and use of IS in an organizational context. Actor-network theory (ANT) is used as a theoretical perspective to gain an understanding of how IS and organization influence each other. An interpretive case study approach was used for data collection. The case study was conducted in the municipal organization of Umeå, Sweden, over a period 36 months that covered the design process and use of a new IS. Semi-structured interviews, participant observations and document analysis were used as data collection techniques.    The findings indicate that the municipal organization became intertwined with technology by mobilizing a significant amount of allies in the IS adaption process. It was also found that the character of the IS in the organization was multi-faceted, and there were different versions of the application available for different actors. A new organizational behavior was established as a result of the design and use of the IS. While the new IS contributed to making more available the complicated financial aspects of the municipality, it also contributed in reinforcing a certain view on decision-making that was focused on organizational resources rather than on organizational objectives. The organizational changes that took place were of a constant nature, and there was no closure of the change processes as new issues continuously surfaced that needed attention.    The concept of evolving multi-purpose networks is coined to describe and analyze the character of the technology dependent organization. The concept of negotiation loop is coined to describe and analyze the processes of IS adaption, where the role and meaning of the IS changes as new actors are enrolled to the network. An evolving multipurpose network is changeful as negotiation loops continue after the IS is established in the organization. The notation of evolving multipurpose networks is meant to stimulate reflection both for researchers and practitioners, underscoring the negotiated character of IS in organizations. It is meant to allow a better understanding for how the design and use of IS in an organizational context is a process of mutual influence between the IS and organization. / digitalisering@umu

Prairie of Mine(s) explores the incorporation of cultural and historical elements within the reclamation of a post-industrial mining landscape in the South Saskatchewan prairie. Reclamation solely by ecological methods often fails to recognize the industrial processes and people that altered the landscape. This project utilizes experiential, cultural, and historical elements within the reclamation of mining lands to shed light on a part of our history that is frequently overlooked and draw attention to actions made on the earth everyday in order for us to live comfortably.