Thesis (MPhil(Rehabilitation))--Stellenbosch University, 2013. / ENGLISH ABSTRACT: Having a child with neurodevelopmental disabilities has a significant impact on the well-being of parents, including experiencing distress and enduring emotional, financial and physical pressure, due to caring for their. They require formal and informal support systems. Formal support includes counselling services. The purpose of the study was to determine what role psychosocial counselling at Tygerberg Academic Hospital (TAH) plays in the lives of parents of children with neurodevelopmental disabilities. A descriptive, qualitative approach was followed using semi-structured interviews that focused on the participants’ experiences and perceptions regarding their psychosocial needs and counselling. Eleven parents participated in the study. They were sampled purposively. Emerging themes were identified through content analysis of interviews. The themes identified were: - Emotions; - Parents’ life and relationships; - Lack of support systems to deal with the pressure of care giving; - Social workers; - Challenges with regard to compliance with healthcare provision; and - Gaps identified. The interviews found that parents received no psychosocial counselling at TAH. This was a disappointment to participants. They indicated feeling very isolated and emotional, and experiencing psychological burnout, while such social work services provided focussed on applications for social grants and patient healthcare treatment. Parents identified a great need for counselling services at the hospital as they believed counselling would assist them to work through emotions, address psychosocial needs, find coping strategies and identify available resources within their communities, which would be beneficial to the psychosocial functioning of the whole family. The parents also identified a need for parent support group services at the hospital. The initiation of this service and support groups for parents is recommended. / AFRIKAANSE OPSOMMING: Om 'n kind met neuro-ontwikkelingsgestremdhede te hê, het 'n beduidende impak op die welstand van ouers, insluitend spanning en verduur van emosionele, finansiele en fisieke druk, as gevolg van die versorging van die kind. Hulle benodig formele en informele ondersteuningsnetwerke. Formele ondersteuning sluit beradingsdienste in. Die doel van hierdie studie was om te bepaal wat die rol is van psigososiale berading by die Tygerberg Akademiese Hospitaal in die lewens van ouers van kinders met neuro-ontwikkelingsgestremdhede. 'n Beskrywende, kwalitatiewe benadering is gevolg deur gebruik te maak van semi-gestruktureerde onderhoude wat fokus op die deelnemers se ervarings en persepsies ten opsigte van psigososiale behoeftes en berading. Elf ouers het aan die studie deelgeneem. Die deelnemers was doelgerig geselekteer. Temas is geïndentifiseer deur die inhoud van die onderhoude te analiseer. Die temas was as volg: Emosies; - Ouers se lewens en verhoudings; - Tekort aan ondersteuningstrukture om die druk van versorging te hanteer; - Maatskaplike werkers; - Uitdagings met betrekking tot nakoming met gesondheidsorgvoorsiening en - Identifisering van gapings. Die onderhoude het bevestig dat ouers geen psigososiale berading by Tygerberg Akademiese Hospitaal ontvang nie. Dit was teleurstellend aan die deelnemers. Hulle is geneig om geïsoleerd en emosioneel te voel en beleef ook psigiese uitbranding, terwyl maatskaplikewerk dienste hoofsaaklik fokus op toelaagaansoeke en die pasiëntgesondheidsorgbehandeling. Ouers het 'n groot behoefte aan beradingsdienste by die Tygerberg Akademiese Hospitaal geïdentifiseer, omdat hulle glo dat berading hulle sal help om deur emosies en psigososiale behoeftes te aan te spreek, baasraakstrategieë te vind en beskikbare hulpbronne binne hul gemeenskappe wat voordelig sal wees vir die psigososiale funksionering van die gesin te identifiseer. Die ouers het ook 'n behoefte vir ouerondersteuningsgroepdienste by die hospitaal geïdentifiseer. Die inisiasie van beradingsdienste en ouerondersteuningsgroepdienste word aanbeveel.

Parents of children with Attention Deficit Hyperactivity Disorder (ADHD) are often reported as experiencing more stress than parents of normal children. The bulk of this research has been conducted primarily on a Caucasian population, however, providing little information regarding multicultural aspects of parenting stress. Research has also been lacking in attention given to the stress related to parenting a child with internalizing disorders. The purpose of this study was 1) to compare parenting stress reported by mothers of children with ADHD to parenting stress reported by mothers of children with depressive disorders, and 2) to compare parenting stress as reported by Caucasian, African American, and Hispanic mothers. Results indicated that mothers of ADHD children experienced more parenting stress related only to their children's hyperactive and distracting behaviors. Contrary to previous research, Caucasian mothers reported significantly more overall and parent-related parenting stress than African American mothers.

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No description available.

Thesis (MSocialWork)--Stellenbosch University, 2002. / ENGLISH ABSTRACT: In this study an explorative and a descriptive design has been implemented with the aim of obtaining knowledge, insight, and understanding of the psycho-social implications of a cleft lip and/or cleft palate for the individual child as well as the family. The motivation for this study was a result of the lack of knowledge on the psycho-social adjustments of an individual/child with a cleft lip and/or cleft palate and his/her family. The researcher became conscious of this lack during a full preliminary inquiry and this lack has been confirmed by the Department of Social Work as well as the Department of Maxillo-Facial-and Oral Surgery at Tygerberg Hospital. The aim of this study is therefore to create guidelines concerning social welfare interference in families after the birth of a baby with a cleft lip and/or cleft palate, in order to improve psycho-social functioning. The literature study included occurrence and incidence, embryological development, etiology of cleft lip and/or cleft palate as well as the psycho-social implications for the individual/child and the family. The medical aspects, namely the etiological and embryological development of cleft lip and/or cleft palate only serves as a background for the medical social worker that forms part of the interdisciplinary team of a cleft palate/lip clinic. This research focuses primarily on the psycho-social implications of a cleft lip and/or cleft palate on the individual/child as well on the family. The literature study also included the theoretical perspectives which determine the social worker's task and the system and strength perspective has been focused on. These perspectives have been implemented according to the development-aimed approach. The researcher decided to involve ten pre-school children with congenital deformity, between the ages of one month to six years as well as their mothers, who are from the service area of the Tygerberg Hospital in the research. The study was determined by a combination of qualitative as well as quantitative research methods, namely structured interviews as well as structured questionnaires. The results of this research confirmed the results of the literature study to a great extent, namely that individuals/children with a congenital deformity, as well as their families, are a highrisk group for psycho-social problems. These psycho-social problems indicate relationship problems in the family, cognitive problems for the individual/child as well as social adjustment problems for the individual/child and the family. Therefore the results gave an indication of what the content of intervention programmes for this target group should be. The recommendations focused on three areas, namely general recommendations concerning prenatal clinics where the cleft lip and/or cleft palate should be identified, general recommendations concerning guidelines for the social worker before intervention in the target group starts and recommendations with the aim of creating guidelines for social welfare intervention, in order to limit the psycho-social implications on the individual/child. The recommendations include further research in order to address society's ignorance concerning cleft lip and/or cleft palate. This research should focus on the development of social welfare programmes which, by primary prevention, aim at improved informing the society of this deformity. / AFRIKAANSE OPSOMMING: 'n Verkennende sowel as 'n beskrywende ontwerp is in hierdie studie geïmplementeer ten einde kennis, insig en begrip oor die psigo-sosiale implikasies van 'n gesplete lip en/of verhemelte vir individu/kind sowel as die gesin te verkry. Die motivering vir hierdie studie het na vore gekom weens die leemte rakende kennis oor die psigo-sosiale aanpassings van 'n individu/kind met 'n gesplete lip en/of verhemelte en sy/haar gesin. Die navorser het van hierdie leemte bewus geword tydens 'n volledige voorondersoek en hierdie leemte is deur die Departement Maatskaplike Werk sowel as die Departement Kaak- en Mondchirurgie te Tygerberg Hospitaal bevestig. Die doel van hierdie studie is dus om riglyne daar te stel ten opsigte van maatskaplike intervensie met gesinne ná die geboorte van 'n baba met 'n gesplete lip en/of verhemelte, ten einde psigo-sosiale funksionering te verbeter. Die literatuurstudie het die voorkoms en insidensie, embriologiese ontwikkeling, etiologie van gesplete lip en/of verhemelte sowel as die psigo-sosiale implikasies vir die individu/kind en die gesin ingesluit. Die mediese aspekte, naamlik die etiologiese en embriologiese ontwikkeling van gesplete lip en/of verhemelte dien slegs as agtergrond vir die geneeskundige maatskaplike werker wat deel vorm van die interdissiplinêre span van 'n gesplete verhemelte/lip kliniek. Hierdie navorsing fokus primêr op die psigo-sosiale implikasies van gesplete lip en/of verhemelte op die individu/kind sowel as op die gesin. Die literatuurstudie het ook die teoretiese perspektiewe wat die maatskaplike werker se taak rig, ingesluit en daar is op die sisteem- en sterkteperspektief gefokus. Hierdie perspektiewe is aan die hand van die ontwikkelingsgerigte benadering geïmplementeer. Daar is besluit om tien voorskoolse kinders met kongenitale deformiteit, dus tussen die ouderdomme van een maand tot ses jaar sowel as hul moeders, wat vanuit die Tygerberg Hospitaal se diensarea afkomstig is, by die ondersoek te betrek. Die ondersoek is deur 'n kombinasie van kwalitatiewe sowel as kwantitatiewe navorsingsmetodes, naamlik gestruktureerde onderhoude sowel as gestruktureerde vraelyste, gerig. Die resultate van hierdie ondersoek het tot 'n groot mate die bevindinge van die literatuurstudie bevestig naamlik dat individue/kinders met 'n kongenitale deformiteit, sowel as hul gesinne, 'n hoë risikogroep vir psigo-sosiale probleme is. Hierdie psigo-sosiale probleme dui byvoorbeeld op verhoudings-probleme in die gesin, kognitiewe probleme vir die individu/kind sowel as sosiale aanpassingsprobleme vir die individu/kind en die gesin aan. Die resultate het dus 'n aanduiding gegee van wat die inhoud van intervensieprogramme vir hierdie teikengroep behoort te wees. Die aanbevelings het op drie areas gefokus naamlik algemene aanbevelings ten opsigte van voorgeboorteklinieke waar gesplete lip en/of verhemelte geïdentifiseer moet word, algemene aanbevelings ten opsigte van riglyne vir die maatskaplike werker voordat intervensie met die teikengroep begin en algemene aanbevelings ten einde riglyne daar te stel vir maatskaplike intervensie, sodat die psigo-sosiale implikasies op die individu/kind beperk word. Die aanbevelings sluit in verdere navorsing ten einde die onkunde van die samelewing ten opsigte van gesplete lip en/of verhemelte aan te spreek. Hierdie navorsing moet fokus op die ontwikkeling van maatskaplikewerk-programme wat deur primêre voorkoming die samelewing beter aangaande die deformiteit inlig.

Research about employed fathers of children with special health care needs (SHCN) is still limited, leaving fathers without the necessary workplace and community supports to better integrate work and life. Caregivers with exceptional caregiving responsibilities report greater levels of work-family conflict and considerable caregiver strain, as well as negative employment and financial consequences related to their caregiving responsibilities. These caregivers often struggle to access community supports such as childcare, after-school care, and support from friends and neighbors. This study provides insights into the types of job, home, and community resources that are relevant for fathers of children with SHCN in order to better integrate work and family. The exploratory cross-sectional design employed an online survey to collect the data, with 122 fathers meeting the study criteria of living at least part-time with a child with SHCN under the age of 18 and being employed at least part-time. The fathers had a mean age of 42 and most of them identified as Non-Hispanic White. The majority stated holding a college degree and over 90% reported being married or partnered. Fathers indicated having on average two children and Autism Spectrum Disorder was the most cited diagnosis for the child with SHCN. Regression analyses were conducted to analyze the study's research questions. Access and use of workplace flexibility were significant job resource measures predicting difficulty combining work and family, and spillover. Family flexibility to handle work issues was a significant predictor across all dimensions of positive and negative spillover. The availability of community services was found significantly related to negative family to work spillover and support from friends/neighbors was a significant predictor for both difficulty combining work and family, and spillover. Regression analyses with interaction terms of job and home resources showed buffering effects of resource ecologies on spillover. The study's findings illustrate that, fathers of children with SHCN struggle to integrate work and family even if they are not considered primary caregivers. Community, home, and job resources were salient for these fathers to mitigate a lack of resources across ecologies. This lack of resources tended to reinforce traditional gender norms for both mother and father. Resources within and across the three different ecologies were found to have direct and compensatory effects. Community resources were identified as the most important resources for both positive and negative spillover. The study also highlights the positive spillover effects related to employment and family care for fathers of children with SHCN. Organizations are called to reduce flexibility stigma and decrease barriers to using workplace flexibility to improve work-life fit for fathers caring for children with SHCN. Social services like childcare, or after school care, and social support are of critical relevance and need to better support these fathers and families. Considerations for future research are presented.

A comparison of the legal regulation of relationship between parents and children in the Czech Republic and Italy The purpose of this thesis is to provide an overview of the basic differences between legal regulation of the relationship between parents and children in the Czech Republic and Italy. This theme was chosen because of the different historical development and social conditions in both countries, which results in a different concept of parenthood and other relations derived from it. The study is divided into three main parts, that in particular reflect the formation and area of application of relations between parents and children and eventually means of protection of a child as long as he is not provided with proper care in his family environment. These parts are: a) parenthood, b) the content of relationship between parents and children, c) substitute parenthood and substitute education. Each part contains two chapters for a better comparison. The first always briefly outlines the Czech legal regulation and the second chapter is devoted to a deeper explanation of the Italian regulation. Basic differences of both legal systems are explicitly highlighted. Subchapters focus on individual legal institutions of family law relating to the relationship between parents and children or other...

Made available in DSpace on 2016-04-28T20:38:05Z (GMT). No. of bitstreams: 1 Ana Leticia Guedes Pereira.pdf: 957994 bytes, checksum: 308771ecb4b54b80cc03044e1c734607 (MD5) Previous issue date: 2012-04-23 / Conselho Nacional de Desenvolvimento Científico e Tecnológico / In recent years, complaints about Attention Deficit Disorder and Hyperactivity became frequent services to destinations child and adolescent population. This disorder is also presented by adults and impairs the academic, professional and staff who present it. Although they have many strengths, people with ADHD can be put in place a number of problems in the environments they frequent. And it is noteworthy that there are studies that demonstrate the existence of comorbidities related to the disorder in question. Based on the facts presented above, research on the subject are essential to enhance understanding about it. This research aimed to verify the existence of similarities and differences in the design of the parents in relation to ADHD, specifically to verify the existence of factors related to the dynamics between parents and children that could be contributing to the maintenance of the difficulties experienced and the existence of alternative used by the family to minimize these difficulties. To this end, this research adopted a qualitative design and is based on the systemic approach, participants were two sets of parents with children who have complaints of ADHD. To collect data we used a semi-structured interview, dealing with the issue. The results showed that parents differ little about ADHD. And that among the alternative coping adopted the recurrence of professionals working on the subject and finding information, using instruments such as the Internet, strategies are chosen by parents. Through analysis of the collected material was observed that at times during the trajectory family responsibility dimension of each of the difficulties faced, remained forgotten and because some member of this family was placed in a position crystallized within the family. On the other hand the existence of family myths and communication difficulties disrupted the relationship between parents and children / Nos últimos anos, queixas sobre Transtorno do Déficit de Atenção e Hiperatividade se tornaram frequentes nos serviços destinados à população infantil e adolescente. Vale ressaltar que este transtorno é apresentado ainda por adultos e prejudica a vida acadêmica, profissional e pessoal de quem o apresenta. Apesar de possuírem muitas potencialidades, pessoas com TDAH podem ser colocadas no lugar de problemáticas nos diversos ambientes que frequentam. Por outro lado há ainda estudos que demonstram a existência de comorbidades relacionadas ao transtorno em questão. Com base nos fatos expostos, pesquisas sobre o tema são essenciais para ampliar a compreensão acerca deste. Esta pesquisa teve por objetivo verificar a existência de semelhanças e diferenças na concepção dos pais em relação ao TDAH, mais especificamente de verificar a existência de fatores relacionados à dinâmica entre pais e filhos que pudessem estar colaborando para a manutenção das dificuldades vivenciadas e a existência de alternativas utilizadas pela família para minimizar estas dificuldades. Para tanto, esta pesquisa adotou um delineamento qualitativo e fundamenta-se na abordagem sistêmica. Foram participantes dois casais de pais com filhas que têm queixa de TDAH. Para a coleta de dados, foi utilizado um roteiro semiestruturado de entrevista, versando sobre o tema. Os resultados evidenciaram que os pais divergem pouco acerca do TDAH. E que dentre as alternativas de enfrentamento adotadas a recorrência a profissionais atuantes sobre o tema e a busca de informações, por meio de instrumentos como a internet, foram estratégias escolhidas pelos mesmos. Por meio da análise do material coletado, foi possível observar que, em alguns momentos durante a trajetória familiar, a dimensão da responsabilidade de cada um sobre as dificuldades enfrentadas permaneceu esquecida e que, em decorrência disso, algum membro familiar foi colocado em uma posição cristalizada dentro da família em tais momentos. Por outro lado, a existência de mitos familiares e dificuldades de comunicação tumultuaram as relações entre pais e filhos

Feeding disorders are common in disabled children, and family reactions are critical factors influencing the severity and course of this problem. This study hypothesized that feeding disorders in disabled children would be significantly more stressful to parents than other childhood disabilities; that pediatric feeding disorders would be more stressful in single parent families than two parent families; and that childhood feeding disorders would be less stressful to fathers than to mothers.Two copies each of the Friedrich Questionnaire on Resources and Stress (QRS-F) and a demographic data survey were sent to 79 families of disabled children. Responses were received from 47 subjects representing 31 households. Analysis of Variance of the QRS-F scores indicated significantly greater stress levels in families of disabled children who received tube feedings, but not in families whose disabled children required special assistance with oral feeding. There was an inadequate number of responses from single parent families to statistically compare their stress levels to two parent families with feeding disordered children. The comparison of fathers and mothers of disabled children with feeding disorders did not yield a statistically significant difference in stress levels.The greater stress levels found in parents of disabled children who received tube feedings shows a need to provide improved education and training programs, as well as support after hospital discharge, to families with tube fed children. / Department of Family and Consumer Sciences

Thesis (Ph. D. (Educational Psychology) -- University of Pretoria, 2008. / Includes bibliographical references.