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Medical futility as an action guide in neonatal end-of-life decisionsSidler, Daniel 03 1900 (has links)
Thesis (MPhil)--University of Stellenbosch, 2004. / ENGLISH ABSTRACT: This thesis discusses the value of medical futility as an action guide for neonatal endof-
life decisions. The concept is contextualized within the narrative of medical
progress, the uncertainty of medical prognostication and the difficulty of just resource
allocation, within the unique African situation where children are worse off today
than they were at the beginning of the last century. parties actively engage in an interactive deliberation for a plan of action. Both parties
ought to accept moral responsibility. Such a model of deliberation has the added
advantage of transcending the limitations of the participants to arrive at a higher-level
solution, which is considered more than just a consensus.
It has been argued that medical progress has obscured the basic need for human
compassion for the dying and for their loved ones. The literature furthermore reports
that the quality of end-of-life care is unsatisfactory for both patients and their
families. It is within this context that the concept of medical futility is positioned as a
useful action guide.
As we do not have the luxury of withdrawing from the responsibility to engage in the
deliberation of end-of-life decisions, such responsibility demands an increasing
awareness of ethical dilemmas and a model of medical training where
communication, conflict-resolution, inclusive history taking, with assessment of
patient values and preferences, is focussed on. The capacity for empathetic care has to
be emphasized as an integral part of such approach. Finally, in this thesis, the concept
of medical futility is tested and applied to clinical case scenarios.
It is argued that the traditional medical paradigm, with its justification of an 'all out
war' against disease and death, in order to achieve utopia for all, is outdated. Death in
the neonatal intensive care unit is increasingly attributed to end-of-life decisions.
Futile treatment could be considered a waste of scarce resources, contradicting the
principle of nonmaleficence and justice, particularly in an African context.
The ongoing confidence in, and uncritical submission to the technological progress in
medicine is understood as a defence and coping mechanism against the backdrop of
the experience of life's fragility, suffering and the inevitability of death.
Such uncritical acceptance of the technological imperative could lead to a harmful
fallacy that cure is effected by prolonging life at all cost. What actually occurs,
instead, is the prolongation of the dying process, increasing suffering for all parties
involved.
The historical development of the concept of medical futility is discussed,
highlighting its applicability to the paradigmatic scenario of cardio-pulmonary
resuscitation. Particular attention is given to ways in which the concept could
endanger patient-autonomy by allowing physicians to make unilateral, paternalistic
decisions.
It is argued that the informative model of the patient-physician relationship, where the
physician's role is to disclose information in order for the patient to indicate her
preferences, ought to be replaced by a more adequate deliberative model, where both / AFRIKAANSE OPSOMMING: Hierdie tesis bespreek die waarde van mediese futiliteit as 'n maatstaf vir aksie in
gevalle van neonatale 'einde-van-lewe' besluite. Die konsep word gekontekstualiseer
binne die wêreldbeskouing van mediese vooruitgang, die onsekerheid van mediese
prognostikering en die probleme wat geassosieer IS met regverdige
hulpbrontoekenning; spesifiek binne die unieke Afrika-situasie.
Dit word aangevoer dat die tradisionele mediese paradigma, met regverdiging vir
voorkoming van siekte en dood ten alle koste, verouderd is. Sterftes in neonatale
intensiewe sorgeenhede word toenemend toegeskryf aan 'einde-van-lewe' besluite
Futiele behandeling sou dus beskou kon word as 'n vermorsing van skaars
hulpbronne, wat teenstrydig sou wees met die beginsels nie-skadelikheid ('nonmaleficence')
en regverdigheid.
Die volgehoue vertroue in en onkritiese aanvaarding van aansprake op tegnologiese
vooruitgang lil geneeskunde, kan beskou word as verdediging- en
hanteringsmeganisme in die belewenis van lewenskwesbaarheid, lyding en die
onafwendbaarheid van die dood.
Sodanige onkritiese aanvaarding van die tegnologiese imperatief kan tot 'n
onverantwoordbare denkfout, naamlik dat genesing plaasvind deur verlenging van
lewe ten alle koste, lei. Wat hierteenoor eerder mag plaasvind, is 'n verlenging die
sterwensproses en, gepaard daarmee, toenemende lyding van all betrokke partye.
Die historiese ontwikkeling van die konsep van mediese futiliteit word bespreek met
klem op die toepaslikheid daarvan op die paradigmatiese situasie van kardiopulmonêre
resussitasie. Spesifieke aandag word gegee aan maniere waarop die
konsep pasiënte se outonomie in gevaar stel, deur die betrokke medici die reg te gee
tot eensydige, paternalistiese besluitneming. Die argument is dan dat die informatiewe model, waar die verhouding tussen die
dokter en pasiënt gebasseer is op die beginsel dat die dokter inligting moet verskaf
aan die pasiënt sodat die pasiënt 'n ingeligte besluit kan neem, vervang moet word
met 'n meer toepaslike beraadslagende model, waar sowel die dokter as die pasiënt
aktief deelneem aan interaktiewe beraadslaging oor 'n aksieplan. Albei partye word
dan moreel verantwoordbaar. So 'n model van beraadslaging het die bykomende
voordeel dat dit die beperkings van die deelnemers kan transendeer. Sodoende word
'n hoër-vlak oplossing - iets meer as 'n blote consensus - te weeg gebring.
Die argument word ontwikkel dat mediese vooruitgang meelewing met die
sterwendes en hul geliefdes mag verberg. Verder dui die literatuur daarop dat die
kwaliteit van einde-van-lewe-sorg vir sowel die pasiënte as hul familie onaanvaarbaar
is. Dit is binne hierdie konteks dat die konsep van mediese futiliteit kan dien as 'n
maatstaf vir aksie.
Medici kan nie verantwoordelikheid vir deelname aan beraadslaging rondom eindevan-
lewe beluitneming vermy nie, en as sodanig vereis die situasie toenemende
bewustheid van sowel die etiese dilemmas as 'n mediese opleidingsmodel waann
kommunikasie, konflikhantering, omvattende geskiedenis-neming, met insluiting van
die pasient se waardes en voorkeure, beklemtoon word. Die kapasiteit vir empatiese
sorg moet weer eens beklemtoon word as 'n integrale deel van hierdie benadering.
Ten slotte, hierdie tesis poog om die konsep van mediese futiliteit te toets en toe te
pas op kliniese situasies.
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A dialectical interpretation of the history of Western medicine : perspectives, problems and possibilitiesRossouw, Theresa Marie 03 1900 (has links)
Thesis (MPhil)--University of Stellenbosch, 2003. / ENGLISH ABSTRACT: The health of the medical profession hangs in the balance. Scepticism, mistrust and legal
restraints have entered its hallowed corridors and are threatening its integrity and
independence. There are myriad seemingly intractable moral dilemmas that doctors,
ethicists and judges are trying to resolve with the aid of available principles and rules of
ethical discourse; yet, the answers remain elusive. Hegel, the eighteenth century
philosopher, postulated that perplexity only exists because we do not look at the world
correctly: because we tend to think in an oppositional way, we abstract from the complex
interrelation of things. He therefore suggested that one should step back and think
reflectively about the problem and seek the one-sided assumptions that led to the
impasse. My proposition is that at the heart of many of the current medical dilemmas lies
the opposition between paternalism and autonomy. These two fundamental concepts
arose out of two different traditions, and now, because they have been abstracted from the
contexts and histories that inform them, seem to be diametrically opposed.
Paternalism arose out of the ethics of competence that originated in ancient Greece. The
art of medicine was still in its infancy and physicians had to prove their ability and
benevolence to a mistrustful public. Demonstration of competence became a necessary
component of any successful practice. As the power of medicine grew with the scientific
and technological advances of the Enlightenment, professionals' authority and
competence were reinforced and systematically fostered a paternalistic attitude at the
expense of adequate protection of the individual. In response to the power differential
found in the political and social arena, individual human rights were promulgated in the
eighteenth century. In the medical sphere, the culture of rights was translated into, among
others, the fundamental right to autonomy. Patients now have the right to decide on
interventions and treatment in accordance with their own conception of a good life.
Paternalism thus developed out of a societal system that embraced the virtues and
communal responsibility within the bounds of the polis of antiquity; autonomy arose out
of the designs of the Enlightenment where the individual was hailed supreme. Remnants of both traditions are evident in contemporary medicine, but they have been abstracted
from their original purpose and meaning, leading to perplexity and antagonism.
Following the Hegelian method of dialectic, I postulate a thesis of paternalism, and in
response to this, an antithesis of autonomy. I attempt to show that an intransigent
insistence on one side or the other will only serve to strengthen the paradox and fail to
lead to an acceptable solution. I aim to develop a synthesis where both concepts are
embraced with the help ofa better understanding of human nature and the inevitable
limits of human knowledge. Influenced by the work of the psychoanalyst Carl Jung, I
firstly argue for the existence of a biological human need for compassion and thus the
importance of virtue ethics, which embraces this need. Secondly, focusing on the ethics
of futurity developed by Hans Jonas, I delineate the altered nature of human action and
the derivative need for an ethics of responsibility. I propose possibilities for the future
based on the ideas of compassion, virtue and responsibility and argue that they can only
be reconciled in a pluralistic ethic. / AFRIKAANSE OPSOMMING: Die mediese professie het'n dokter nodig. Een wat kan sin maak van die wantroue en
vyandigheid wat te bespeur is in die pasient-dokter verhouding en wat toepaslike terapie
kan voorskryf Al die pogings tot behandeling deur middel van reëls, regulasies en etiese
kodes het tot dusver misluk en het vele skynbaar-onoplosbare morele dilemmas agtergelaat.
Die Duitse filosoof, Hegel, het in die agtiende eeu aangevoer dat verwarring
onstaan bloot omdat ons die wêreld op die verkeerde wyse beskou: die mens is geneig tot
opposisionele denke en neem daarom nie die komplekse onderlinge verbintenisse van die
onderskeie elemente in ag nie. Hegel het dus voorgestel dat wanneer ons met sulke
hardnekkige situasies gekonfronteer word, ons 'n tree terug neem en die situasie
reflektiewelik ondersoek vir eensydige veronderstellings. My hipotese is dat baie van die
etiese dilemmas wat op die oomblik in medisyne voorkom, voortvloei uit die opposisie
tussen paternalisme en outonomitiet. Hierdie twee fundamentele beginsels het uit twee
verskillende tradisies ontstaan en nou, omdat hulle nie meer in hulle oorspronklike
konteks voorkom nie, vertoon hulle skynbaar teenstellend.
Paternalisme het onstaan vanuit die etiek van bevoegdheid wat teruggevoer kan word na
die tyd van Hippocrates. Medisyne was 'n nuwe professie wat nog sy eerbaarheid en
welwillendheid aan 'n wantrouige publiek moes bewys. Bevoegdheid was dus 'n
essensiële komponent van enige suksesvolle praktyk. Indrukwekkende vooruitgang in die
dissiplines van wetenskap en tegnologie sedert die agtiende eeu het dokters se gesag en
bevoegdheid bevorder en stelselmatig 'n paternalistiese houding gekweek ten koste van
toepaslike beskerming van die individu. In respons tot die magsverskil in die politieke en
sosiale sfeer het 'n beweging in hierdie tyd ontstaan om universêle mensseregte te
bewerkstellig. In medisyne het hierdie regsbeweging gekulmineer in, onder andere, die
fundamentele reg tot self-beskikking - in ander woorde, outonomiteit. Die pasient is dus
nou geregtig daarop om selfte besluit oor ingrepe en behandeling op grond van sylhaar
konsep van 'n goeie en sinvolle lewe. Paternalisme het dus ontstaan uit 'n samelewing
waar die deugte en gemeenskapsverantwoordelikhede integraal was tot die funksionering van die polis; outonomie aan die ander kant, het ontstaan uit die idees van Die Verligting
waar die individu as belangriker as die gemeenskap geag is.
Volgens die Hegeliaanse dialektiese metode, postuleer ek dus 'n tesis van paternalisme
en in respons daartoe, 'n antitese van outonomiteit. Ek voer aan dat 'n eiewillige
aandrang op een of die ander die dilemma net sal verdiep. Ek poog dus om 'n sintese te
ontwikkel wat albei konsepte inkorporeer met behulp van 'n analise van die aard van die
mens en die noodwendige beperkinge van sy kennis. Geskool op die werk van die psigoanalis
Carl Jung, bespreek ek die mens se biologiese behoefte aan medelye en stel dus die
saak vir die belang van 'n etiek van deugte wat hierdie behoefte onderskraag. Tweedens,
beinvloed deur die etiek van die toekoms, soos beskryf deur Hans Jonas, ontwikkel ek die
idee van die gewysigde skaal van menslike dade en gevolglik die noodsaklikheid van 'n
etiek van verantwoordelikheid. Ek postuleer dus 'n benadering wat wentel om die
konsepte van medelye, deug en verantwoordelikheid wat slegs in die vorm van 'n
pluralistiese etiek tot uiting kan kom.
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Complexité médicale et pratiques soignantes à l'ère de la biotechnologie : la prise en charge des maladies chroniques complexes en milieu hospitalier pédiatriqueDavis, Giselle January 2008 (has links)
Thèse numérisée par la Division de la gestion de documents et des archives de l'Université de Montréal.
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Complexité médicale et pratiques soignantes à l'ère de la biotechnologie : la prise en charge des maladies chroniques complexes en milieu hospitalier pédiatriqueDavis, Giselle January 2008 (has links)
Thèse numérisée par la Division de la gestion de documents et des archives de l'Université de Montréal
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Locus of control and mode of delivery vaginal birth versus cesarean section : a report submitted in partial fulfillment ... Master of Science Parent-Child Nursing, Nurse-Midwifery ... /McLellan, Priscilla Louise Green. January 1993 (has links)
Thesis (M.S.)--University of Michigan, 1993.
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Certified nurse-midwives and physicians a comparison of clients preferences vs experiences of epidurals and other pharmacological methods of pain control in labor : a research report submitted in partial fulfillment ... for the degree of Master of Science (Nurse-Midwifery) ... /Cole, Shirley D. January 1994 (has links)
Thesis (M.S.)--University of Michigan, 1994. / Spine title: CNM and MD outcomes for pain control in labor.
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Locus of control and mode of delivery vaginal birth versus cesarean section : a report submitted in partial fulfillment ... Master of Science Parent-Child Nursing, Nurse-Midwifery ... /McLellan, Priscilla Louise Green. January 1993 (has links)
Thesis (M.S.)--University of Michigan, 1993.
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Certified nurse-midwives and physicians a comparison of clients preferences vs experiences of epidurals and other pharmacological methods of pain control in labor : a research report submitted in partial fulfillment ... for the degree of Master of Science (Nurse-Midwifery) ... /Cole, Shirley D. January 1994 (has links)
Thesis (M.S.)--University of Michigan, 1994. / Spine title: CNM and MD outcomes for pain control in labor.
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The primary health care experiences of gay men in AustraliaSinclair, Andrew January 2006 (has links)
Thesis (doctoral)--Swinburne University of Technology, 2006. / Title from PDF title page (viewed on Nov. 30, 2006). Includes bibliographical references (p. 177-188).
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Cirurgia bariátrica: fragmentos da análise de uma esperaSobral, Ana Luiza Oliveira 25 January 2013 (has links)
This study aims to analyze the obesity and its more extreme classification, morbid obesity, and also its forms of treatment, with emphasis on bariatric surgery, procedure that appears to solve the obesity problem, assuming often a magical character. Nowadays, the body plays a central role in life of the subject and it is the stage for changes that aim a perfect and healthy body. The medical discourse underlies this context when points out that the ideal body is healthy, providing higher quality of life and longevity to the subject. In this scenario, the obese is a deviant because it doesn´t have control over your body to achieve the healthy, it is far from the threshold of normality that medicine postulates. Treatments are attempting to program such body, through diet, exercise and, in more severe cases, drugs. Bariatric surgery is indicated when conventional treatment was unsuccessful and promises to reduce the IMC range for normal, improve comorbidities and consequently the quality of life of the subject. The main question of this work is what causes the subject to look for bariatric surgery. We got
in the bariatric surgery program at the University Hospital of UFS to analyze the processes that occur in practice. Under the theoretical and methodological framework of psychoanalysis and focused on listening, we explored the field in the waiting room. The speeches of patients that were waiting consultation with the preparing team of the program, and others who already passed by, enriched this work. We concluded that the medical discourse can ignore the subject, their expectations and fears in this process, taking from him his involvement in the decision to perform surgery, and it ends up suggesting to the subject a form of treatment outwardly magical that cures obesity. / Esse trabalho se propõe a analisar o tema obesidade e sua classificação mais extrema, a obesidade mórbida, além de suas formas de tratamento, com ênfase na cirurgia bariátrica, intervenção cirúrgica que surge para solucionar o problema da obesidade, assumindo, muitas vezes, um caráter mágico. Na contemporaneidade, o corpo assume papel central na vida do sujeito e é palco para modificações que visam um corpo saudável e perfeito. O discurso médico embasa esse contexto ao pontuar que o corpo ideal é o saudável, por proporcionar maior qualidade de vida ao sujeito e maior longevidade. Nesse cenário, o indivíduo obeso é um desviante, pois por não ter domínio sobre seu corpo para o alcance do saudável, ele se situa longe do limiar de normalidade que a medicina postula. Os tratamentos são a tentativa de reprogramar tal corpo, através de dietas, de exercícios físicos e, em casos mais graves, de
medicamentos. A cirurgia bariátrica é indicada quando o tratamento convencional não teve sucesso e promete reduzir o IMC para uma faixa dentro da normalidade, melhorar as comorbidades e, consequentemente, a qualidade de vida do sujeito. A grande questão desse é o que leva o sujeito a procurar a cirurgia bariátrica. Inserimo-nos no programa de cirurgia bariátrica do Hospital Universitário da UFS para analisar na prática os processos ocorridos. Sob o referencial teórico-metodológico da Psicanálise e dispostos a escutar, exploramos o campo na sala de espera. As falas dos pacientes que aguardavam consultas com a equipe de preparação do programa, além de outros que por ali passavam, enriqueceram o trabalho. Chegamos à conclusão que o discurso médico pode desconsiderar o sujeito, suas expectativas e medos nesse processo, retirando dele sua implicação na decisão de realizar a cirurgia, à medida que acaba sugerindo ao sujeito uma forma de tratamento aparentemente mágica que
cura a obesidade.
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