Around 14,000 men in New Zealand are the primary caregiver for their children, yet little recent research has focused on this phenomenon. Seventy fathers were recruited from the community, consisting of 35 primary-caregiving fathers, and 35 secondary-caregiving fathers. Participants completed a variety of measures which gathered data about their developmental history, personal characteristics, marital relationship, work and economic factors, social network factors, and child characteristics. Results indicated that primary-caregiving fathers earned significantly less income than secondary-caregiving fathers; were significantly more likely to identify with non-Pakeha ethnicity, and were significantly more likely to have no educational qualifications than secondary-caregiving fathers. Primary-caregiving fathers also rated their relationship with their mother as having significantly more care. Primary-caregiving status was predicted by older age of fathers, and increased parenting self-efficacy. Implications of the results are discussed, as are strengths and limitations of the study, as well as future directions for research.

This study was an investigation of the phenomenon of dementia caregiving burden and breakdown in community caregiving situations. 109 carer subjects participated in the study, with 91 current carers - 17 via face-to-face interview and 74 via the internet, and 18 past carers - two via face-to-face interview and 16 via the internet, contributing their experiences of dementia caregiving. Two new carers' assessment tools were devised to meet more fully the requirements of the 'Carers (Recognition and Services) Act 1995' (DoH, 1995), namely the 'Dementia Caregiving Problems Questionnaire (DCPQ)' and 'Dementia Caregiving Burden Questionnaire (DCBQ)'. These new assessments were tested and demonstrated to be reliable, with Cronbach Alpha scores of 0.7029 and 0.8430 respectively, and are recommended for implementation in clinical practice. The key predictive risk factors for high caregiving burden in this study were perceived stress; omission of caregiving satisfactions; carer depression; perceived impact on quality of life; perceived helpfulness of community care services; behaviour problems - especially shouting, swearing and screaming, irritability and night disturbance; poor quality carer/dependant relationship; mood problems; perceived helpfulness of informal support; perceived impact of caregiving on dependant emotional well-being and, to a lesser extent, hours spent in caregiving. The key predictive risk factors for expected relinquishment of home caregiving were DCBQ score; perceived impact on quality of life; perceived stress; carer depression and, to a lesser extent, geographical distance in caregiving; perceived helpfulness of community care services and omission of positive feelings in the carer. Based on the above risk factors, a new 'Dementia Caregiving Breakdown Risk Assessment Tool (DCBRAT)' is proposed for use by community care managers to identify 'at risk' caregiving situations so that service interventions can be targetted more towards carers who are highly burdened in their role, who are at risk of developing psychological health problems or who may be nearing breakdown in their caregiving situation. Thus the effectiveness of service interventions may be maximised and optimal health gain for carers achieved, resulting in improved outcomes for people with dementia. The DCBRAT and the similarly proposed 'Conceptual Model of Dementia Caregiving, Burden and Breakdown' will need to be further tested in post-doctoral research.

abstract: ABSTRACT Caregiving studies generally do not focus on the post-caregiving phase of care, or African Americans post-caregivers (AAPCGs). This mixed-methods study guided by the Transitions Theory, explored the experiences of 40 AAPCGs residing in Los Angeles, California and Phoenix, Arizona, whose loved ones died within the last 10 years. Data collection tools included individual interviews, demographic questionnaire, CES-D, Brief Cope, and Social Support. Findings present the specific aims of the study. Aim 1 dealt with the types, patterns and properties of post-caregiving transitions (PCT). Many AAPCGs experienced multiple, simultaneous transitions that continued to impact their lives many years after caregiving ends. Aim 2 dealt with factors that facilitate or inhibit healthy PCT. Facilitators include: Being satisfied with care provided; fulfilling death-bed promises; living out the legacy of the deceased; deep spiritual beliefs in God and support of family, friends and church. Inhibitors include: Experiencing a deep sense of loss, confusion, depression, loneliness, and guilt; physical challenges such as fatigue and exhaustion, breathing problems, dizziness, fainting, cognitive difficulties, pain, headaches, hypertension and insomnia; family conflicts, job or home loss that linger long after PCT. Aim 3 involves process indicators including: connectedness with family, friends, co-workers, church and God; returning to work or school. Coping strategies that helped AAPCGs include: productive ventures, family mementoes, reminiscing, new baby, or visiting cemetery. Appropriate coping led to outcome indicators of mastery such as new environment; making decisions; taking actions; readying oneself for another caregiving role; preparing for one's own life and death; or caring for self. Fluid integrative identities include: Sense of balance, peacefulness and joy, fulfillment, compassion; remembering without pain; or new identity. Implications for practice, policy, education and research include: Care providers and policy makers must ensure that AA caregivers receive adequate EOL and hospice information and support for adequate preparation of loved one's death. Geriatric educators must design and implement curricular programming that includes the post-caregiving phase as a very important phase of caregiving. Researchers should design culturally-congruent assessment tools or improve the checklist developed in this study to appropriately measure PCT; and also develop culturally-relevant interventions to facilitate healthy PCT. / Dissertation/Thesis / Ph.D. Nursing and Healthcare Innovation 2013

abstract: Over 25% of children in the United States suffer from a chronic illness, and close to 70% of all childhood deaths are due to chronic illness. Prevalence of childhood chronic illness continues to increase, and as a result, the pervasiveness of parents faced with stress associated with caregiving for their child with a chronic illness is also rising. The Stress Process Model (SPM) conceptualizes the caregiving experience as a multidimensional process influenced by the caregiving context, primary and secondary stressors, resources, and caregiver outcomes. Utilizing the SPM, the goals of this study were to examine the relations between caregiving stress (role overload and role strain) and resources (instrumental support, social support, and positive attitudes) and psychological outcomes (depression and anxiety) to determine whether resources moderated the associations between caregiving stress and psychological outcomes. Participants included 200 parent caregivers of a child with a chronic illness. Participants responded to an online survey that measured demographics, role overload (Role Overload scale), role strain (The Revised Caregiver Burden Measure), instrumental support and social support (Medical Outcomes Survey), positive attitudes about caregiving (Brief Assessment Scale for Caregivers), depression (Patient Health Questionnaire-9), and anxiety (Generalized Anxiety Disorder scale-7). Pearson correlations and six hierarchical regression models were tested to examine caregiving stress, resources, and psychological outcomes. Consistent with the study hypotheses, positive correlations between caregiving stress (role overload and role strain) and depression and anxiety were found. Negative correlations were found between resources (instrumental support, social support, positive attitudes) and depression and anxiety. Both instrumental support and social support had negative moderating effects on the relations between role overload and psychological outcomes (depression and anxiety). Positive attitudes also negatively moderated the relations between role strain and psychological outcomes. Thus, when participants reported high instrumental and social support, they also reported low depression and anxiety, even when role overload was high. Participants also reported low anxiety and depression when they reported high positive attitudes, even when role strain was high. Implications of these findings are discussed. / Dissertation/Thesis / Doctoral Dissertation Counseling Psychology 2020

<p>  </p> <p>Latinx adolescents from immigrant families often face more challenges than their peers due to simultaneously navigating the demands of two cultures. Many Latinx children are expected to contribute to the household in multiple ways, such as engagement in tasks like filial responsibility, which can impact their development. Filial responsibility is composed of three dimensions 1) instrumental caregiving (e.g., cleaning, translating, and paying bills), 2) emotional caregiving (e.g., providing emotional support to the family), and 3) perceived unfairness (i.e., feelings about whether caregiving tasks are fair). The present study aimed to examine the dimensions of filial responsibility and their relations to internalizing and externalizing problems in Latinx youth and whether perceived unfairness acted as a mediator. Participants were 176 Latinx youth (<em>M</em>age = 15.51 years, 66% female). Our SEM model demonstrated that filial responsibility (instrumental and emotional caregiving) did not have a mediating effect on perceived unfairness in youth adjustment.  Evidence was found for filial responsibility (emotional and instrumental caregiving) being differentially related to youth adjustment directly over time. Instrumental caregiving at T1 negatively predicted internalizing behaviors at T2, while T1 emotional caregiving positively predicted both internalizing and externalizing behaviors at T2 (controlling for prior youth adjustment). Results demonstrate the importance of independently examining the impact of instrumental and emotional caregiving on youth adjustment. Future studies should assess the impact of caregiving tasks on other youth outcomes such as academic success. </p>

The intent of this qualitative, grounded theory study was to understand why the Nigerian (Igbo) adult immigrants in the United States provide long distance international caregiving to their elderly parents left behind in Nigeria, the challenges they encounter, and their views on long-term service care. This study was grounded in semi-structured interviews of 20 Igbo adult immigrants residing in the Dallas/Fort Worth Metropolis. Analysis of the literature demonstrates a lack of existent topic on long distance international caregiving to elderly parents left behind in Nigeria. Findings show that reasons for Igbo adult children immigrants providing care to their elderly parents left behind stem from filial obligation, immigrant’s position in the family, perceived vulnerability of parents, and lack of government support. Also because of cultural expectations, the participants felt obligated to reciprocate to the care their elderly parents gave to them when they were growing up. While providing long distance international care, the participants encountered some challenges like adjusting to their new country, distance, financial constraints, being available for family procreation, issues with means of communication, and legal papers and parental adjustment to life in the U.S. This study also revealed that the participants would support the Nigerian government and private sector to provide long-term service care for the aging population. The findings led to some policy recommendations.

No description available.

Yes / We explored (1) social, cultural, and economic capital in spousal carers of people with dementia; (2) profiles of carers with different levels of capital; (3) whether the identified profiles differ in levels of stress and positive experiences of caring, and likelihood of depression over time. Baseline (2014-2016), 12-month, and 24-month follow-up data were analyzed for 984 coresident spousal carers of people with dementia. We assessed social, cultural, and economic capital, stress, positive experiences of caring, depression. On average, carers reported infrequent social and cultural participation. Most carers were not socially isolated, trusted their neighbours, had education at least to age 16, and had an income aligned with the 2014 UK average. We identified four groups of carers with different levels of capital. Although on average stress was low, depression was infrequent, and positive experiences of caring were moderately frequent, the group of carers with lowest capital was the least stressed and reported the most positive experiences of caring over time. Compared to the two groups with better capital, those with poorer capital were more likely to be depressed over time. Social, cultural, and economic resources may decrease likelihood of depression, but not stress, in carers of people with dementia.

Šizofrenija yra liga, sukelianti daug sunkumų ne tik pacientui, bet ir jį slaugantiems asmenims. Lietuvoje nėra plačiai tyrinėta šizofrenijos pasekmės asmenims, kurie slaugo sergančius šia liga pacientus, be to labai trūksta valstybės finansuojamos pagalbos psichikos ligonių artimiesiems. Šio darbo tikslas yra nustatyti artimųjų, slaugančių sergančius šizofrenija, patiriamų slaugymo sunkumų sąsajas su šių sunkumų įveikimo strategijomis. Tyrime dalyvavo 98 Panevėžio ir Marijampolės apskričių gyventojai. Tirti sergančių šizofrenija artimieji. Šiame darbe buvo matuoti objektyvūs (asmenų, slaugančių sergančiuosius šizofrenija užduotys, susijusios su paciento būkle) ir subjektyvūs slaugymo sunkumai (savijauta, kurią sukelia šių užduočių atlikimas) bei slaugymo sunkumų įveikos strategijos. Slaugymo sunkumai matuoti dvejomis metodikomis: objektyvūs slaugymo sunkumai - Įsitraukimo įvertinimo klausimynu (angl. Involvement Evaluation Questionnaire; IEQ), kurio pirmoji versija buvo sukurta 1987 m.(autorius - Schene A.H.); subjektyvūs slaugymo sunkumai - Bendru sveikatos klausimynu -12 (angl. General Health Questionnaire – GHQ- 12); pradinis skalės variantas buvo sukurtas 1970 m; autorius - Goldberg D.P.). Slaugymo sunkumų įveikos strategijos matuotos lietuviška streso įveikos vertinimo metodika (Streso įveikos klausimynas: keturių faktorių modelis), sukurta 2006 metais, kurios autoriai yra Grakauskas Ž. ir Valickas G. Tyrimo rezultatai parodė, kad didžiausius... [toliau žr. visą tekstą] / Schizophrenia is an illness, causing lots of difficulties not only to the patient, but also to the persons nursing him. The consequences of schizophrenia to the persons, who are nursing the patients ailing with this illness are not researched in Lithuania generally, besides, the relatives of the mental diseases patients lack financing aid from the state. The goal of the present thesis is to establish the links of the caregiving burden with the caregiving burden overcoming strategies of the relatives caregiving the patients with schizophrenia and the aid received. 98 residents from Panevėžys and Marijampolė counties participated in the research. The relatives of the person ill with schizophrenia were surveyed. In the present thesis I substantiated the objective (tasks of the persons nursing the patients with schizophrenia related to the patient‘s state) and the subjective caregiving burden (the state of health causing performance of the tasks) and the strategies of the caregiving burden overcoming. The caregiving burden were substantiated using two methodologies: the objective caregiving burden -using Involvement Evaluation Questionnaire; IEQ, the first version of which was made-up in 1987 m.(the author - Schene AH); the subjective caregiving burden -12 using the General Health Questionnaire -GHQ 12; the initial variant of the scale was made-up in 1970 m; the author - Goldberg DP). The strategies of the caregiving burden overcoming were substantiated by the... [to full text]

Introduction: This research investigated the requirements of an HIT solution that is usable and useful to informal caregivers of cancer patients on home palliative care. Methodology: A needs assessment method was used with an exploratory and a confirmatory stage. Eight semi-structured interviews and two focus groups were used for data collection. Qualitative content analysis was used to analyse caregiver experiences with both inductive and deductive coding. Results/Discussion: Expressed and unexpressed caregiver needs were extracted into four categories, Implementation, Presentation, Information, and Practical Caregiving, and used to create the application requirements. Five user personas were created based on caregiving intensity and the functional level of the patients, a method of tailoring the application content to the different personas was created, and a low-fidelity prototype of the application was designed. Conclusion: The findings of this research can improve the preparedness and coping of informal caregivers of cancer patients on home palliative care.