This practical theological study draws on the theological method of Don S. Browning to implement a mutually critical correlation between the everyday experiences of people with disabilities depicted in six case study narratives and selected texts of two mystical authors, Julian of Norwich and Teresa of Avila. The study brings to light the harsh everyday reality of living with a physical disability, articulates disability as a practice, and outlines the operative effective history of the United States associated with physical disability. This operative history has long kept the harsh reality of embodied vulnerability hidden from view and thus has contributed to the marginalization of people with disabilities. The critical dialogue between the narratives of persons with disabilities and the selected mystical texts provides a new hermeneutical lens through which to read mystical theology and reveals insights into embodiment and marginalization that bear implications for spirituality studies, disability studies, and practical theology. This dissertation argues that scholars in disability studies neglect embodied vulnerability when they define disability only as a social construction. Chapter One proposes that disability is both a social construction and a biological reality. The next chapter illustrates that people with disabilities still experience existential absurdity and that predominant norms in the United States (however unconscious) continue to try to conceal or avoid the negative effects of embodied difference. The study then analyzes the themes of embodiment and marginalization in the mystical theologies of Julian of Norwich and Teresa of Avila. Chapter Three reveals that Julian’s relational conception of the Trinity and God’s immanence in the humblest of needs offer ways to establish dignity for people with disabilities. Chapter Four shows that mystical prayer provides impetus for Teresa’s work as a social reformer, which challenges sixteenth century Spain to welcome conversos and value women. The final chapter shows that the mutually critical conversation offers a starting point for building theological constructs of embodied spirituality to respond to the avoidance of embodied vulnerability and the challenges of living with physical disability.

Thesis (M.A.)--Boston University / BACKGROUNDS: Adults with intellectual disabilities (ID) face important health disparities, and are underrepresented in research. There is a particular lack of research from the perspective of members of this population. However, adults with ID are living longer than ever before, and, after a long history of institutionalization, are aging in the community. Aging adults with ID face important support gaps and challenges as pioneers in aging in the community. Aging women with ID are further marginalized by gender and age. This qualitative, participatory study explores lived experiences of aging and elderly women with intellectual disabilities. METHODS: In order to maximize voice for participants with ID, this study used qualitative, participatory methods including individual interviewing and Photo Voice, a participatory technique where participants are given cameras and become co-researchers on the project as they document their worlds. RESULTS: Important themes emerged including: The experience of aging with ID is a gendered phenomenon, anticipation of increased independence and community participation as a result of aging, community inclusion and the importance of relationships and belonging. Discussion: While further research is needed to quantify the experiences described by participants, the importance of community inclusion and relationships suggests that policy level supports for aging in place and individualized planning with be important for this generation of adults with ID. This thesis concludes with recommendations as to how adults with ID can best be supported in achieving healthy aging from a systems perspective.

This project emerges from engaging and studying the lives, including mine, of the many who go—and stay—crazy. Here, I explore the kinds of existences that those impaired by severe and persistent mental illness(es), what I refer to henceforth as “chronic mental illness”— have had (or been able) to forge and leverage, as well as some of the resources and structures they have developed/manipulated in order to do so. This thesis explores one way in which chronically mentally ill people exact agency over their own embattled personhood. The term “personhood” draws from existential traditions in philosophy and theology (Strawson 1959; Taylor 1989, 127-142; Rosfort 2018), though I understand and use it here as it is relevant to phenomenological psychopathology. By “personhood”, I mean the normative traits of a society wherein individuals are recognized by seemingly “common” traits of humanity. While there is not, as philosopher Robert Spaemann contends, “a [single] characteristic that can be called ‘being a person’” (Spaemann 1996, 14), to understand human beings (being) is to also grapple with the ethical demands of intentionality, autonomy, experience, and subjectivity. By “subjectivity”, I refer to the innumerable and descriptive components that comprise individual, relational, and intersubjective experience(s). These components, and how they are known and described, emerges from a self-awareness in maneuvering the world and, consequently, developing a particular lifeworld. My interests in personhood and subjectivity emerge from the assumption that “the fragility of human identity is rooted in the various ways in which our biology challenges our experience of being an autonomous self” (Ricoeur 1966; Ricoeur 1970, 472; Rosfort 2018, 5). Part of what complicates personal identity is the impossibility of grounding personhood in either biological otherness or an intrinsic, pre-reflective selfhood. Being a person is “the task of becoming […] concrete […] through the constant encounter with the otherness that is an inescapable part of one’s identity” (Rosfort 2018, 6). Seeing a person, Ricoeur believes, requires the perpetual examination of experiential tensions among identity traits that go beyond biological reductionism and constancy. Illness narratives are useful tools for understanding the extent to which disability incites a fundamental interrogation of the self, as well as a reckoning of practices of self-recognition and phenomenological metamorphosis. This multi-field site investigation engages self-identifying psychiatrically disabled people via participant-observation at three peer support networks within the greater Boston area. Data, by way of stories recounted and collected, is framed by my own lived experience participating in similar structures, both in-person and online. Stories from both occasions, including interview data and media analysis, are relayed as means of triangulation. This project relies on sociologist Noman Denzin’s concept of “cumulative epiphanies” (Denzin 1989), or, moments wherein ill authors/speakers recognize the extent to which their personhood was honed through the medium of the illness itself (Frank 1993, 46). In large part, this project explores ways that people experiencing disabling effects of mental illness learn to take care of themselves. It pays particular attention to how the personal views of people with such illnesses shape the construction and layout of varied peer support networks. Although it considers general psychiatric practice involving prescribing clinicians (e.g., physician or nurse practitioner) and non-prescribing clinicians (e.g., talk therapists), the central objective is to consider the emergence of mutual support, or “self-help” models, as a mode of constructing a new sense of self/advocating for unmet needs within traditional medical practice. More broadly, this project maps the reflexive transformation(s) of person into patient and the varied methods of healing and treatment that the chronically mentally ill utilize in such contexts. It considers the emergence of PSNs as a counter/cultural borderland (Kleinman 1980; Garcia 2016) between the social “psy”ences (Matza 2013; Raikhel & Bemme 2016) and psychiatry. As a theoretical fusion of history of psychiatry, sociology of mental health, and phenomenology, I trouble the parameters within which PSNs and their participants help craft, shape, and directing a particular kind of experience of mental illness, suffering, and/or convalescence.

The purpose of this study is to examine how high school students labeled with autism make meaning of their label and how, for them, the label functions in their day-to-day lives. Being diagnosed with autism can have many implications for an individual and his or her family and how a label is understood is very much connected to the impact that it has. A label can be instrumental in accessing resources and supports that enable a person to thrive, but it can also conjure stereotypes which may categorize a person or limit them in particular ways. Using critical theory and phenomenological analysis, short semi-structured interviews were conducted with high school aged participants prior to their attending a full day workshop. The workshop included half-day art creation and a half-day focus group which sought to understand participants’ experiences through their descriptions of their art and through collaborative discussion about their experience living labeled. The findings suggest that while their experiences are as diverse as the individuals who have them, there are similarities in how the label functions which may be more universal. Participants in this study discussed how the label of autism assigns positive or (more often) negative value to a person; how their label linked them with certain resources (and not others), and how they experienced and understood these resources; and the way labels can both protect and confine a person. Consideration of how high school students understand of their label of autism can prompt us all to think more critically about how labels, and the meanings we assign to them, affect and shape experience for those who live labeled. / Thesis / Master of Social Work (MSW)

Using autoethnography, combined with qualitative data collected through innovative online methods, this dissertation explores the experience of navigating the emotional geographic space of graduate school for non-visibly disabled students such as learning disabilities, and mental health disabilities at two southern Ontario universities. Autoethnography merges tenets of ethnography and autobiography to allow researchers to prioritize their own experiences as valuable data and “making it possible to construct the ethnographic scenes that happened and the fictional scenes that didn’t—but could have” (Ellis, 2004, p. xx). As such, the work produced by autoethnography is “expressive rather than representational” (Kiesinger, 1998, p. 74) This dissertation is a narrative based on real and fictionalized events told through dialogue between the author, a composite character, and six co-participant graduate students who provide their stories through e-mails and a collaborative blog. Academic literature, observations, areas for future research, and recommendations are woven into the dialogue and layered throughout the dissertation in non-dialogic sections. Davidson and Milligan (2004) posits, “Our emotional relations and interactions weave through and help form the fabric of our unique personal geographies” (p. 523). By focusing on unacknowledged and misunderstood “emotional labor” (managing emotions in paid work environments) and emotion work (managing emotions in unpaid work environments) (Hochschild, 1983), this dissertation demonstrates how non-visibly disabled students must perform “extra work” that distinguishes their experiences and the effort required to navigate the spaces and places of academia. With a specific focus on the process of acquiring and implementing academic and workplace accommodations, it draws on the literatures and theoretical insights of emotional geography and critical disability studies to demonstrate how these disabilities are misunderstood and stigmatized, which results in an accommodation process that is both humiliating and inadequate to support non-visibly disabled graduate students. Thus, understanding the emotional geography of the accommodation process is vital to creating effective academic and workplace accommodations for non-visibly disabled graduate students. / Dissertation / Doctor of Philosophy (PhD)

An autism spectrum disorder (ASD) diagnosis in childhood comes with inherent vulnerability to adverse experiences. For some, the developmental process of adolescence overwhelms their altered neural system, exacerbating this vulnerability. Adolescence presents an opportunity to mitigate the negative effects of adverse childhood experiences (ACEs) on the developing brain. However, little is known about children who have both ASD and a history of ACEs. This study, first sought to understand the prevalence of ACEs among adolescents with ASD and whether those who have experienced ACEs are placed at further risk for other social and emotional challenges, impacting their transition into adulthood. With adolescents being highly sensitized to their environment, opportunities for intervention in their environments may mitigate the long-term consequences of ACEs. Due to adolescents spending a great deal of their time in school, developing interventions to support those with ASD that can be implemented within the school would be beneficial. Thus, the second aim of this study was to understand how schools can serve as a place for trauma-informed intervention. The Whole School, Whole Community, Whole Child (WSCC) model served as the conceptual framework for this mixed-methods study. Data from the 2020 National Survey of Children’s Health (NSCH) were examined to determine the prevalence of ACEs and further risk for social-emotional issues in adolescents with ASD. Focus groups and semi-structured interviews were conducted with school personnel in public schools to understand how they respond to typically developing and ASD students who have experienced ACEs. The findings showed that 60% of adolescents with ASD had experienced ACEs. Additionally, significant associations were found between the experience of ACEs and a diagnosis of anxiety, depression and ADHD. Furthermore, the experience of ACEs was associated with being bullied, however, no significant association was found with their ability to make friends. Great variability exists in the way schools respond to ACEs, if at all, and lack consistency and clarity in their SEL practices. Therefore, there is a need to identify the school climate components that are needed to provide trauma-informed interventions and determine how to scale these interventions. Further, with the heterogeneity of the ASD profile, identifying which factors are associated with this risk will be helpful in providing tailored interventions, specifically in the school environment.

This narrative inquiry explored the schooling and professional experiences of seven teachers who were labeled with learning disabilities, and how those experiences affected their career decisions, teaching strategies, as well as relationships with their students, families, and friends. Their stories also challenged the associated stigmas and societal beliefs about who can be a teacher. The methodology incorporated semi-structured interviews, classroom observations, field notes, and member checks to explore the teachers’ constructed meanings of their experiences and beliefs. This research was undergirded by Disability Studies in Education (DSE), along with the theory of complex embodiment. The purpose of incorporating these theoretical perspectives was to challenge normalizing dominant narratives and to advance the problematization and redefinition of disability as simply a matter of human variation. The findings highlighted three themes. They included: embracing the “Theory of Complex Embodiment”; residual emotions and feelings of (in)competence; and their decisions to disclose their learning disability labels, masquerade as a subjugated identity, or conceal their labels and pass. The participants also described the teaching strategies they utilized with their students and themselves. Following analysis, recommendations were made for both teachers labeled with learning disabilities and students enrolled in special education programs.

In recent years, a number of efforts have been made to promote diversity, equity, and inclusion in academic institutions, the workplace, and to examine and analyze representations of marginalized populations in a variety of literary and cultural contexts. These efforts usually acknowledge past mistakes, emphasizing the idea that history shall not and should not repeat itself. While analyzing the representations of disability is important in its own right, it's also important to understand why these perceptions exist. This thesis suggests that when the representations of disabilities from different mediums and from different time periods are examined in relationship, readers may gain a better understanding of society's perceptions not only of disability, but of people with disabilities. Among other issues, this thesis will note recurrent patterns in these treatments of disability, including whether there is any form of resistance to the predominant narrative about disability. Put in its simplest terms, the intent of this thesis is to consider the effect time and contemporary politics have had on people and on their beliefs about disabilities.

As more composers consciously incorporate the body into their musical works, so too should musical analyses probe these works through the lens of the body. Drawing upon Mauricio Kagel’s Repertoire from his opera Staatstheater (1970) and Marina Rosenfeld’s My Body (2019) for Rosenfeld herself and Yarn | Wire, this dissertation looks at the ways in which the body can be inextricably tied to music. In Chapter 1, I pursue a corporeal analysis of Repertoire from the perspective of disability studies. Oppressive aesthetic decrees, disability studies concepts, operas involving disabled characters, and freak shows are discussed and related to Kagel’s Repertoire. In the analysis of Rosenfeld’s My Body in Chapter 2, I examine the ways bodies sensually interact with other living and nonliving bodies through touch. By taxonomizing touch between human and dubplate as well as human and human, I show how My Body uses connection to collapse the boundaries between subject and object identifiers. In neither example can music exist in a vacuum; I demonstrate that the sound must either be seen or felt in order to be fully appreciated. Both works summon the use of the sixth sense, proprioception, in their total body approach to music-making and musical appreciation.

The foundational philosophy of Catholic schools impels them toward inclusive practice. Scholars have repeatedly established that a moral mandate exists in Catholic Social Teaching for Catholic schools to include all students. However, students with disabilities have traditionally been excluded from Catholic school settings due perceived resource constraints, lack of practitioner skill, and the disposition that students with disabilities are better served in public schools. Many Catholic schools have made tremendous progress in inclusive practice, and stand at the forefront of this work, but these efforts have not been replicated at scale. The purpose of this study was to explore how communities of practice support inclusion in the Archdiocese of Los Angeles. A convergent mixed methods approach to social network analysis was used to describe the state of inclusive practice in Catholic schools and the relationships that facilitate diffusion of information and resources across these organizations. The findings of this study indicated that Catholic educators strongly support inclusion and associate it with the mission of Catholic education but lack capacity in their knowledge and resources to create inclusive environments, despite the presence of skilled teachers and other internal resources. The study found that Catholic schools are resourceful and build effective partnerships with parents, students, and outside organizations to support students with disabilities, but that networks across school sites are fragmented.