Type 2 diabetes is a chronic metabolic disorder and the seventh leading cause of death in the United States. Type 2 diabetes is linked to many chronic diseases, including cardiovascular disease, stroke, and chronic kidney failure. African American adults have a high prevalence of Type 2 diabetes with early onset of diabetes complications. Poor dietary behavior is the primary cause of Type 2 diabetes and its complications, changing dietary behaviors can prevent the onset of diabetes complications or impede existing ones. The purpose of this phenomenological study was to explore patients' perceptions of diet-only therapy in the prevention of diabetes complications. Face-to-face interviews were conducted with six African American adults with Type 2 diabetes between 40 to 64 years using purposeful sampling method. Health belief model formed the conceptual framework of the study. I applied inductive coding process and manually analyze data for themes. Participants expressed fear of diabetes complications, acknowledged effectiveness of dietary therapy, physician communication and strong family support in Type 2 diabetes management. Findings can produce positive social change among African American adults with type 2 diabetes. Patients can be motivated to change their dietary behaviors to prevent disability and death from diabetes complications. Adherence to diet can reduce medical costs associated with Type 2 diabetes and its complications at the individual, family, community, and government levels. Health care providers can apply the findings in their interactions with patients to provide a more patient-centered education that integrates patients' cultural and dietary preferences to facilitate adoption of dietary interventions and long-term adherence.

Relationship between Adverse Childhood Experiences and Illness Perceptions among Individuals with Fibromyalgia by Susan D. Fay MS, Drexel University, 1994 BS, Metropolitan State University of Denver, 1983 Dissertation Submitted in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy Psychology Walden University February 2015 Adverse childhood experiences (ACEs), including abuse and neglect, are a significant social health problem. Exposure to ACEs can place a child at a high risk for developing different diseases or illnesses in adulthood, including fibromyalgia. The purpose of this study was to determine if exposure to ACEs, moderated by perceived social support and/or social undermining, would result in more negative illness perceptions of personal control and/or treatment control. A survey research design was used in this quantitative study. Purposive convenience sampling methods were used to solicit 231 participants to complete an online survey. Moderated multiple regression analysis was used to assess the moderating roles of perceived social support and social undermining on the relationship between ACEs with personal control and treatment control facets of illness perceptions among individuals with fibromyalgia. Developmental traumatology, allostatic load, social support, social undermining, and illness perceptions served as the theoretical and empirical foundation for this study. Social undermining was found to be a significant moderator of the relationship between sexual abuse, perceived social support, and personal control perceptions, F(7, 174) = 1.28, p <.001, but only when levels of social undermining were moderate to high. The relationship was not significant for treatment control perceptions as the criterion variable, or for physical or emotional abuse as predictor variables. Positive social change implications include an expanded knowledge of important social and psychological factors that influence the health of fibromyalgia patients, especially those exposed to sexual abuse. Such information can assist health care providers develop more effective therapies, treatments, and screening protocols.

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Thesis (MPhil)--Stellenbosch University, 2014. / ENGLISH ABSTRACT: The HIV/AIDS pandemic has led to millions of deaths; disability for the sufferers and multiple socioeconomic effects on HIV infected and affected individuals. Among the factors affecting people living with HIV/AIDS that may contribute to HIV related disability is mental illness such as HIV related manias and depression. ‘HIV counselors’ make up part of the team at the forefront of HIV treatment and management in Uganda but little is known about their perceptions of mental illness. This study therefore sought to explore the perceptions of mental illness among HIV counselors in Uganda. A qualitative study was conducted. Ten individual interviews and three focus group discussions were carried out among 31 HIV counselors. They were selected from five HIV treatment centers in Kampala district, Uganda. An interview guide based on Kleinman’s explanatory model of illness with case vignettes depicting depression, alcohol abuse, mania, and psychosis were used to facilitate discussion. Data was thematically analyzed. HIV counselors exhibited some knowledge concerning depression among HIV positive clients, with some viewing the symptoms of depression as “understandable sadness” arising from the HIV client’s psychosocial reality which is rife with poverty, stigma and lack of social support. Counselors also reported that some of their client’s physical symptoms were a result of their emotional problems. Mania and psychosis were attributed to religious beliefs and witchcraft; and in some cases disease progression or HIV drugs. Chronic alcohol abuse, despite continuous counseling was seen as a waste of the counselor’s time in face of overwhelming numbers of clients per day. Such clients, along with clients with suicidal ideations were often threatened or ignored. Counselors agreed that they needed training on assessment of mental illness, and how difficult cases could be referred. / AFRIKAANSE OPSOMMING: Die MIV/VIGS pandemie het al miljoene sterftes tot gevolg gehad; ook ongeskiktheid vir die lyers en veelvuldige sosio-ekonomiese gevolge vir individue met MIV sowel as ander individue wat daardeur geraak word. Van die faktore wat ‘n uitwerking op mense het wat leef met MIV/VIGS en wat kan bydra tot HIV ongeskiktheid, is geestesversteurings soos HIV verwante manies en depressie. “MIV-voorligters” is deel van ‘n span wat aan die voorpunt staan van die behandeling en bestuur van MIV in Uganda, maar min is bekend oor hulle persepsies van geestesversteuring. In die onderhawige studie is MIV-voorligters in Uganda se persepsies van geestesversteuring ondersoek. ‘n Kwalitatiewe studie is onderneem. Tien individuele onderhoude en drie fokusgroepbesprekings is gedoen onder 31 MIV-voorligters. Hulle is geselekteer uit vyf MIV-behandelingsentrums in die Kampala-distrik, Uganda. ‘n Onderhoudskedule gebaseer op Kleinman se verklarende siektemodel, bestaande uit karakterskets-gevallestudies wat depressie, alkoholmisbruik, manie en psigose uitbeeld, is gebruik om die besprekings te fasiliteer. Die data is tematies ontleed. MIV-voorligters het getoon dat hulle in ‘n mate oor kennis beskik ten opsigte van depressie by MIV-positiewe kliënte. Sommige voorligters het die simptome van depressie beskou as “verstaanbare droewigheid” wat voortspruit uit die MIV-kliënt se psigososiale werklikheid, bestaande uit armoede, stigma en ‘n gebrek aan sosiale ondersteuning. Voorligters het ook gerapporteer dat sommige kliënte se fisiese simptome die gevolg is van emosionele probleme. Manie en psigose is toegeskryf aan godsdienstige oortuigings and toordery; en in sommige gevalle aan progressie van die siekte of MIVmedisyne. As gevolg van die feit dat voorligters daagliks oorlaai word met kliëntgetalle, is kliënte wat kronies alkohol gebruik beskou as ‘n vermorsing van voorligters se tyd, ten spyte van voortdurende voorligting. Sulke kliënte, tesame met kliënte wat selfmoordneigings getoon het, is dikwels gedreig of geïgnoreer. Voorligters was dit eens dat hulle opleiding benodig in die assessering van geestessiekte asook leiding oor hoe om moeilike gevalle te verwys.

Rheumatoid arthritis (RA) is a chronic, progressive autoimmune disease causing inflammation of the synovium resulting in severe pain, joint disfigurement and disability as well as malaise, fatigue and a depressed immune system. Treatment consists of three broad phases; firstly, following diagnosis treatment is focussed on rapid reduction of pain and inflammation. Secondly, maintenance of quiescence is sought through medication. Finally, if disease activity remains high despite medication, escalation to anti-TNF α therapy is required to prevent permanent joint damage and disability. The primary course of treatment is prescription of disease modifying anti-rheumatic drugs (DMARDs) within 3 months of onset of symptoms. However, DMARDs can take 8-12 weeks to exhibit a noticeable benefit whereas unpleasant side effects can occur shortly after initiation. Also, DMARDs do not alleviate pain; therefore it is difficult for patients to attribute recovery to this medication. For these reasons, although it is imperative for future health and functioning to take DMARDs as prescribed, non-adherence is common at 30-50%. Non-adherence to treatment can be intentional, where a decision is made not to conform to the prescription, or unintentional which is often due to forgetting. To measure intentional non-adherence, a validated measure of adherence for rheumatoid arthritis was reduced through exploratory factor analysis from 19 items to 5 items by removing items that did not add to the explained variance of adherence. The CQR5 explained 53% of the variance in adherence and was shown to have a good fit to the data through confirmatory factor analysis. A discriminant function equation was generated that correctly identifies 88.5% of patients as high or low adherers and has high clinical utility due to the brevity for patients and unidimensionality for easy interpretation. The CQR5 was used throughout the programme of research to measure intentional non-adherence along with a separate measure of unintentional non-adherence. Four commonly used social cognition models of illness were measured in 227 RA patients to determine which had the best utility for predicting non-adherence to DMARDs. Patients were recruited to represent the three stages of illness including newly diagnosed, established on DMARD therapy and established with concurrent anti-TNF α therapy. Logistic regression analysis showed that the Self Regulatory Model best predicted intentional non-adherence as patients with perceptions of worse consequences of RA and longer disease duration were more likely to be highly adherent to DMARDs in cross-sectional analysis. In contrast, the Theory of Planned Behaviour better predicted patients who self-reported forgetting their DMARDs with patients with more confidence in being able to take their medications (Perceived Behavioural Control) being less likely to forget. 171 patients were successfully followed-up six months after baseline recruitment. The longitudinal results showed that the social cognition models differed for patients at different stages of the illness suggesting that their experience of living with rheumatoid arthritis influenced perceptions of their illness and medications. Newly diagnosed patients scored lower on factors measuring perceptions of disease chronicity and seriousness whereas patients that had escalated to anti-TNF α therapy scored higher on these factors. The newly diagnosed patients also showed more variability in the social cognition scores whereas the more established patients demonstrated stable models of illness. This supports Leventhal’s (1992) theory that illness representations will be regulated through integration of knowledge and experience of an illness. Structural equation modelling was used to establish the best predictors of intentional non-adherence at six month follow-up. In support of research in other chronic illnesses (Horne & Weinman, 2002; Niklas, Dunbar & Wild, 2010), the effect of perceptions of the consequences and chronicity of the illness on adherence are mediated by perceptions of the necessity of the medication. In addition, the impact of the emotional reaction to the illness on adherence to DMARDs is mediated by concerns about the medication. In addition, this study incorporated factors from the Theory of Planned Behaviour to explain medication adherence and found that the influence of friends and family impacts on the patient’s confidence to follow the prescription accurately which in turn as an effect on adherence to DMARDs. This large longitudinal study found that by combining factors from a number of social cognition models, it is possible to explain and predict intentional non-adherence and provides some evidence for best ways to intervene to improve adherence and prognosis. To provide a more comprehensive and clinically useful picture of non-adherence, a Cost of Illness study was carried which found that patients self-reporting low adherence to DMARDs also had significantly higher costs for this medication. This was caused by an increased incidence of Leflunamide prescribing for patients who often forget their medication and was maintained longitudinally. This association has not been previously reported in the literature and provides some evidence that non-adherence to DMARDs is having a concrete effect on the clinical management of patients. Finally, an SMS text message based reminder service designed to remind patients who self-report forgetting their medications was tested through a simulation study for the cost and likely benefit in health related quality of life using the health economic analysis of the longitudinal study and the results of a survey establishing the feasibility of implementing such a service in the rheumatology clinic. A sensitivity analysis testing the number of messages sent and the cost per message found that a reminder service for the sample of patients in this programme of research would cost between £1387.00 and £142.27 per year. This would equate to a cost per Quality Adjusted Life Year (QALY) gain of between £2889.58 and £296.40 by enabling patients to adhere more rigorously to their DMARD regimen. This programme of research is the first to test four commonly used social cognition models to predict adherence to DMARDs in a large, multi-centre longitudinal study of rheumatoid arthritis patients. Perceptions of the likely duration and consequences of the illness, as measured by the Illness Perceptions Questionnaire and the necessity of medications (measured by the Beliefs about Medications Questionnaire) along with self-efficacy (measured by the Theory of Planned Behaviour) explained 24% of the variance in intentional adherence over six months. The results show the importance of considering intentional and unintentional non-adherence separately as they appear to have different underlying mechanisms as well as patients in different phases of the illness as their experience influences their social cognition models of illness. A simple SMS based reminder service could act as a cue to action to reduce unintentional non-adherence whereas addressing issues surrounding maladaptive perceptions about the illness and the treatment could improve intentional non-adherence which has the potential to improve the prognosis and quality of life for patients as well as safe costs for the NHS.

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Yes / Objectives. Coeliac disease (CD) is an autoimmune condition managed by a lifelong therapeutic gluten-free diet. Previous research suggests that the chronicity of CD, the limitations imposed by the gluten-free diet, and the risk of other associated diseases can have a negative impact on health-related quality of life (HRQoL) and psychological well-being. The aim of this study was to explore the illness perceptions and self-efficacy beliefs of adults with CD in the United Kingdom and to report their subjective levels of HRQoL and psychological well-being. Design. The study employed a cross-sectional postal questionnaire design. Method. Participants (n= 288) were adults with CD recruited via Coeliac UK. Measures of well-being, HRQoL, self-efficacy, illness perceptions, and dietary self-management were analysed. Preliminary descriptive and univariate procedures were employed before bivariate tests of association or difference were carried out. Backward stepwise multiple regression analysis was used to investigate the predictive strength of variables on well-being, quality of life, and self-efficacy. Logistic regression was used to look at the influence of variables on adherence. Results. Results indicate that HRQoL and psychological well-being were comparable to those found in previous related studies. Participants with weak beliefs in the serious consequences of CD and poorer emotional reactions to the condition had a greater likelihood of having enhanced HRQoL, improved psychological well-being, and higher self-efficacy. Strong beliefs in personal control and a greater perceived understanding of CD were associated with greater self-efficacy. Conclusions. Perceived self-efficacy and illness perceptions could play a role in informing psychological interventions for individuals with CD.

Objective: Recent evidence suggests that illness perceptions in paediatric patients and their parents may differ, with parents holding more negative views compared to their children. Little is known about illness perceptions of very young patients and their parents. This study investigates illness perceptions in paediatric cancer patients aged 4–18 years and their parents in acute treatment or follow‐up care, distinguishing patients by age (4–11, 12–18) and stage of medical treatment. - Methods: N = 45 patient–parent dyads in acute treatment and n = 95 dyads in follow‐up care were examined. Parents and older children aged 12–18 years completed the Illness Perception Questionnaire—Revised (IPQ‐R) and younger children aged 4–11 years were examined using an age‐adapted hand puppet interview containing the IPQ‐R questions. Difference scores of illness perceptions (symptoms, timeline‐acute/chronic, timeline‐cyclical, personal control, illness coherence, consequences, emotional representations) between children and parents were tested for significance using Wilcoxon signed‐rank tests. - Results: Overall, parents perceived more symptoms associated with their child's illness/treatment than the children themselves. In acute treatment, younger children indicated more negative and older children more positive views regarding chronicity than parents. Younger children held less negative views on consequences, and all children reported less negative emotional representations than parents. In follow‐up care, all children held less negative views on consequences and emotional representations. Older children reported less negative views on chronicity, cyclicity and illness coherence. - Conclusion: Differences in illness perceptions of paediatric patients and their parents should be considered during and after treatment/medication and psychosocial care to support illness coping in person‐ and family‐centred interventions.