Patienter som genomgått kirurgi på grund av övre gastrointestinal (GI) cancer drabbas oftast av olika postoperativa besvär som starkt påverkar patientens livssituation. Syftet: Att undersöka hur patienter som opererats för en misstänkt eller diagnostiserad övre GI-cancer upplever den tidiga postoperativa tiden i hemmet innan första återbesöket. Metod: Kvalitativ metod med tolkande fenomenologisk ansats. Tio patienter intervjuades och den transkriberade texten analyserades enligt Interpretative Phenomenological Analysis (IPA). Resultat: Fem överordnade teman framträdde: mat och ätande, kroppsfunktioner, återhämtning, stöd och oro inför framtiden. Informanterna upplevde att de hade en helt ny livssituation att anpassa sig till. Maten och ätandet var ett stort problem som de hade svårt att hantera, likaså var tröttheten dominerande. De flesta upplevde ett gott stöd från sina anhöriga men de saknade stöd från professionen. Informanterna uttalade önskemål om kontinuerlig kontakt med sjukvården som initieras av densamma. Konklusion: Patienter som opererats på grund av övre GI-cancer befinner sig i en mycket sårbar tid i livet och behovet av stöd är av största betydelse. Riktad information till både patient och anhöriga preoperativt, samt kontinuerlig och strukturerad uppföljning av kontaktsjuksköterska och dietist postoperativt behövs för att kunna förbättra livskvaliteten, öka välbefinnandet och samtidigt höja kvaliteten på vården för dessa patienter.

Socialstyrelsen rekommenderar interpersonell psykoterapi för ungdomar (IPT-A) vid behandling för egentlig depression bland ungdomar. Samtidigt finns det begränsad forskning kring denna metod i en svensk kontext. Denna studie är en del av ett större forskningsprojekt om IPT-A och ämnar utforska ungdomars erfarenhet av att ha genomgått en IPT-A- behandling och hur de ser på sin framtid efter avslutandet av psykoterapin. Data har insamlats från fyra deltagare i åldern femton till sexton år via semistrukturerade intervjuer och har analyserats genom interpretative phenomenological analysis (IPA). Analysen ledde fram till tre huvudteman: det terapeutiska samtalet, ökad agens och externa faktorer. Ungdomarna värdesatte erfarenheten att få tala ut med någon som de upplevde som professionell. Vidare upplevde ungdomarna att det de har fått ut mest av psykoterapin är en mer förståelse för sig själva och en ökad förmåga att förändra sina omständigheter. Ungdomarna tillskrev psykofarmaka olika roller för deras förbättrade psykiska mående samt beskrev skolan och familjen som faktorer som färgade deras upplevelse av psykoterapin. / Socialstyrelsen recommends interpersonal psychotherapy for adolescents (IPT-A) as treatment for major depression among adolescents. At the same time, there is limited research on this method in a swedish context. This study is part of a larger research project on IPT-A and aims to explore the adolescents’ experience of having undergone IPT-A treatment and how they see their future post treatment. Data has been collected from four participants aged fifteen to sixteen years via semi-structured interviews and has been analyzed through interpretive phenomenological analysis (IPA). The analysis led to three main themes: the therapeutic conversation, increased agency and external factors. The adolescents valued the experience of being able to talk to someone they perceived as a professional. Furthermore, the adolescents felt that what they had gained most out of the psychotherapy was a greater understanding of themselves and an increased ability to change their circumstances. The adolescents attributed different roles to psychotropic drugs for their improved psychological well-being and described school and family as factors that affected their experience of psychotherapy.

This study was inspired by my experiences with a Williams syndrome child, which drew my attention to the meaningful experiences that children with Williams syndrome might have with music. The problem of the study can be defined in terms of five aspects. Firstly, individuals diagnosed with Williams syndrome suffer medically, socially and cognitively (Levitin & Bellugi, 1998:358-359) and music seems to be an aspect of their lives that could make things easier for them. Secondly, those suffering from Williams syndrome seemingly struggle to adapt to their social surroundings (Bellugi et al., 1994:5). The third aspect that defines the problem is that families of individuals with Williams syndrome in South Africa do not have sufficient access to educational facilities that are equipped to work with their children. This forces them to home school their children without the ability to educate them optimally. Fourthly, the research problem also stems from the lack of awareness about the lived musical experiences of individuals living Williams syndrome. It becomes clear that heightening awareness of the lived musical experiences of Williams syndrome individuals has not been addressed in research. Lastly, researchers have yet to undertake in-depth qualitative studies on the meaning of musical experience for the learning experiences of those suffering from Williams syndrome. The purpose of this interpretative phenomenological analysis (IPA) is to understand the lived musical experiences of individuals living with Williams syndrome in Southern Africa1. Williams syndrome is defined as a rare genetic disorder which presents when around 20 genes are deleted on chromosome 7 at conception (Bellugi et al., 2007:98). This study follows an IPA approach and aims to gain insight into how participants understand their lived musical experiences. The theoretical foundations for IPA are based on “three key areas of philosophical knowledge, namely phenomenology, hermeneutics and idiography” (Smith et al., 2009: 11). For this study data were collected by conducting in-depth semi-structured interviews with three purposefully selected participants. The interview transcriptions were then analysed separately using ATLAS.ti 7 computer software. After each interview transcript was analysed individually, superordinate themes emerged from a cross-case analysis. The results of the study revealed four superordinate themes regarding the musical experiences of the three Williams syndrome participants: a passion for performing, fostering friendships, lightens the load and dependent on music. The study found that music contributes to the overall well-being of the three participants in a way that allows them to feel accepted by others and to escape the label of being diagnosed Williams syndrome. / MMus (Musicology), North-West University, Potchefstroom Campus, 2015

This study was inspired by my experiences with a Williams syndrome child, which drew my attention to the meaningful experiences that children with Williams syndrome might have with music. The problem of the study can be defined in terms of five aspects. Firstly, individuals diagnosed with Williams syndrome suffer medically, socially and cognitively (Levitin & Bellugi, 1998:358-359) and music seems to be an aspect of their lives that could make things easier for them. Secondly, those suffering from Williams syndrome seemingly struggle to adapt to their social surroundings (Bellugi et al., 1994:5). The third aspect that defines the problem is that families of individuals with Williams syndrome in South Africa do not have sufficient access to educational facilities that are equipped to work with their children. This forces them to home school their children without the ability to educate them optimally. Fourthly, the research problem also stems from the lack of awareness about the lived musical experiences of individuals living Williams syndrome. It becomes clear that heightening awareness of the lived musical experiences of Williams syndrome individuals has not been addressed in research. Lastly, researchers have yet to undertake in-depth qualitative studies on the meaning of musical experience for the learning experiences of those suffering from Williams syndrome. The purpose of this interpretative phenomenological analysis (IPA) is to understand the lived musical experiences of individuals living with Williams syndrome in Southern Africa1. Williams syndrome is defined as a rare genetic disorder which presents when around 20 genes are deleted on chromosome 7 at conception (Bellugi et al., 2007:98). This study follows an IPA approach and aims to gain insight into how participants understand their lived musical experiences. The theoretical foundations for IPA are based on “three key areas of philosophical knowledge, namely phenomenology, hermeneutics and idiography” (Smith et al., 2009: 11). For this study data were collected by conducting in-depth semi-structured interviews with three purposefully selected participants. The interview transcriptions were then analysed separately using ATLAS.ti 7 computer software. After each interview transcript was analysed individually, superordinate themes emerged from a cross-case analysis. The results of the study revealed four superordinate themes regarding the musical experiences of the three Williams syndrome participants: a passion for performing, fostering friendships, lightens the load and dependent on music. The study found that music contributes to the overall well-being of the three participants in a way that allows them to feel accepted by others and to escape the label of being diagnosed Williams syndrome. / MMus (Musicology), North-West University, Potchefstroom Campus, 2015

We live in a multicultural, globalised world, in which counsellors and psychotherapists are increasingly required to work across languages and cultures. Existing literature, however, focuses largely on the needs and experiences of foreign clients, often overlooking the other half of the therapeutic dyad. This thesis tackles the under-researched area of foreign practitioners who work in a host environment. Given the ongoing cultural enrichment of counsellor education in Britain and the demanding character of counselling training in general, this work focuses on one sub-group of this population, namely counsellors in training. To that end, this thesis explores foreign counselling trainees’ experiences of practising in a second language and culture. Underpinned by hermeneutic phenomenology, methodologically this project draws upon the principles of Smith, Flowers and Larkin’s (2009) Interpretative Phenomenological Analysis (IPA). The investigation consists of two empirical studies based on semi-structured interviews with A) non-native speaking and B) native speaking, foreign trainees in their counselling placement. This research design aims to investigate the phenomenon of beginning intercultural counselling from a holistic perspective rather than compare the two groups’ experiences. Overall, findings reveal the numerous ways in which linguistic and cultural difference influence trainees’ experiences of beginning intercultural/interlinguistic practice. The experience of difference appears to mainly impact on trainees’ practitioner identity rather than their perception of practice. Despite the complexities participants encounter, their accounts expose self-efficacy, revealing a position of viewing ‘deficit’ as advantageous. Moreover, findings indicate that the more ‘tangible’ difference is, the more readily trainees acknowledge and discuss its presence in counselling practice. This is largely related to intersubjectivity and encounters with others during training and practice. At the same time, participants’ accounts demonstrate that ‘nativeness/non-nativeness’ is not purely a matter of linguistic mastery, but largely intertwined with familiarity with the host culture. To that end, this thesis proposes that counsellor education ought to address difference, and non-nativeness in particular, from a broader perspective, advance the support provided to foreign trainees and provide opportunities for discussion that will promote all trainees’ cultural awareness.

This phenomenological study explored how physical activity is experienced as a means for resilience as well as the defining characteristics and meaning of that experience. Four participants were interviewed, aged 18 to 21 years; all of which were receiving a university education at the time of the interviews. Physical activity has been connected to various physical, intellectual, psychological, and social benefits during adolescence. The participants in this study described their journeys to achieving wellness despite growing up with adversities collectively deemed as adverse. Interpretative phenomenological analysis (IPA) was the methodology utilized to investigate the data generated through several semi-structured in depth interviews with the participants. The analyzed data formed the overarching theme of self development in the face of adversity, which was evident throughout the three superordinate themes: channeling energy, nurturing relationships, and challenging the self. The participants explained their passages through adolescence amidst adversities to be ones full of ups and downs, but ultimately progress towards their current accomplishments, goals, dreams, and personal growth. The themes are discussed within the context of the current literature and then followed by recommendations for future research, considerations for professionals, and a conclusion including words of wisdom from the participants.

This project presents an in-depth idiographic study of how a developing Transwoman identity impacts upon parental relationships in childhood and how these relationships impact sense of self and later relationships. Semi-structured interviews were conducted with six Transwomen and Interpretative Phenomenological Analysis applied to the transcripts. Two major themes emerged: the struggle to belong and the complex journey to becoming me. The theme the struggle to belong consists of six super ordinate themes: the disappointing feminine me, trying to belong, the unacceptable me, disconnection from others and self, the struggle in new relationships, and the influence of context. The second major theme, the complex journey to becoming me, comprises two super ordinate themes: the complexity of realising me and reconnection while still being me. The results are mainly discussed using theories of Parent Child Connectedness (PCC) and psychological autonomy. Areas for future research are highlighted. This study provides a valuable insight into the complex experience of negotiating a transsexual childhood which will be useful for professionals working with people with gender identity issues.

Background: This thesis contains two elements: the first is a systematic review examining some of the determinants of quality of life for people with intellectual disability. Understanding these determinants can drive improvement at both individual and societal level. Yet there are a number of quality of life measures which might confound findings between studies. This systematic review sought to identify factors that influence quality of life using self-report on one measure developed for use with people with intellectual disability, the ‘Quality of Life Questionnaire’ (Schalock & Keith 1993). The second element is an empirical study that aims to explore the lived experience of aging for older adults with intellectual disability. There are noted differences between people with and without disability as they grow older, for example in terms of health and social opportunity. Previous studies have not consistently sought the experience of the people with intellectual disability themselves, or have used participants not traditionally considered older adults. This study aims to address gaps and further our knowledge in the lived experience of getting older for older adults with intellectual disability. Method: Within the systematic review a systematic search of relevant studies to 20th January 2015 was completed using a specified inclusion criteria, yielding 13 peerreviewed journal articles. These were scored on 11-point purpose-designed quality criteria. For the empirical study semi-structured interviews were completed with ten participants with intellectual disability (age range 60 – 74 years, five female) regarding their understanding of getting older and their experience of ageing. Nine transcribed interviews were analysed using interpretative phenomenological analysis. Results: The systematic review found that living in a semi-independent environment or an urban setting, being employed, being involved in domestic and community activities, receiving social support and possessing social skills and self-determination were factors that improved quality of life for people with intellectual disability. Three major themes emerged from the empirical study data when participants discussed getting older: ‘Not changed by ageing’, ‘Thinking about the ageing process’ and ‘What happens when getting older’. Participants tended to feel that they were still the same due to continuation of the same activities and social support. They demonstrated confusion in the ageing process, considering the process ‘inevitable’ but insignificant, although also recognising some changes associated with the process. They discussed their views about what they considered happens when people get older, which tended to be stereotypical and often negative. However they also reflected on their own experiences and how they had changed. Discussion: The methodological quality of the studies reviewed was found to be generally low due to a range of factors including study design, measurement of intellectual disability and reporting of sample demographics and results and therefore conclusions should be treated with caution. This highlights a need for further research with people with intellectual disability of a higher methodological quality. The empirical study is discussed in reference to previous research and gerontological theories of ageing. The study highlighted that staff or family did not broadly discuss ageing with participants and their views often changed over the course of the interviews from more physical and negative aspects to how ageing impacted them. This research demonstrated older adults with intellectual disability do have opinions on ageing. Further exploration with people with intellectual disability on this topic is to be encouraged in the future to develop a more balanced view.

An expanse of research literature has confirmed that a significant percentage of women are concerned about their body size and appearance. Western cultures have emphasized that women must look good to be worthy. Media attention that alludes to the benefits of a thin, fit body exacerbates women's beliefs that they need to look a certain way to be acceptable and to fit in. How though, can the majority of women fit into a world of contrary ideals? Being strong and healthy does not absolutely mean a woman has to be model thin with conspicuous abdominal muscles and extreme body definition. In the field of art therapy, there has been no specific research to demonstrate the advantages of clay for the exploration of body-image, male or female. The research undertaken focuses on and evaluates the manner and methods in which clay can be employed as an enabling material for body-image issues with women within art therapy practice. With the help of small groups of female participants who were invited to attend sessions in my pottery to make their body-images from clay and join in discussion, I was able to explore within a safe and contained environment the ways in which clay can be utilised within an art therapy setting. None of the women who took part in the research had a diagnosis relating to body-image issues. By pursuing the methods of Participatory Action Research (PAR) for Study One I employed the fundamental features of Cycles of Reflection. The results of Study One assisted me in choosing Interpretative Phenomenological Analysis (IPA) to further the research. In this way, I would be able to identify the most robust of themes within the dialogues of the three women who attended the individual sessions that comprised Study Two. The final results of the research point to a positive and contained means of working with clients and patients in order to provide a significant resource to help women explore and be more accepting of their bodies.

Due to the improved availability of highly active antiretroviral therapy (HAART) life expectancy amongst people living with HIV has drastically increased. Older people, aged 50 and over now make up the fastest growing group of individuals living with HIV in the UK. Despite this little is known about their experiences of ageing with HIV. In addition, further still is known about older Black African women living with HIV in the UK, despite the complexity of their social and political context. This was, therefore, the first study to explore the lived experiences of this underrepresented group of women. The thesis adopted a phenomenological approach to examining how the intersections of older black African women's identities shaped their experiences of living with HIV in the UK. In addition, it explored the ways in which they coped with the devastating impact HIV appeared to have on their lives. Using interviews with seven women and interpretative phenomenological analysis, the results revealed three master themes. These were 'Spoilt Identities', 'A present without light and a future without hope' and 'Escaping the labyrinth of distress and uncertainty'. A detailed account of these master themes is provided. The findings are discussed in relation to existing literature, implications for clinical practice, methodological limitations and suggestions for future research.