The purpose of this thesis is to find out the reasons and perhaps some answers to the problem as we see it, the sickness benefit expiration of those who experience this. By this said we have also taken into account the different laws and adjustments in the long-term sickness benefit, but also major reformation of the security net in the Swedish society. The efficiency of the law on passive long-term sickness absence was added in July 2008, but was later in January 2010 supplemented. The purpose of this law wasn’t only to reduce the long-term sickness absence but also to reduce exclusion. These changes had also been highlighted by the media that people were actually being excluded from the society. It creates marginalization. The aim of this study is to highlight individuals' feelings about the whole performing hedge process. The survey was conducted through semi-structured interviews where we wanted a deeper knowledge of the interviewee’s experiences. In order to give the interviewee the opportunity and possibility to form their own mind and own reflections and express their own thoughts, the questions were open for answers. This allowed us to ask supplementary questions. After collecting the empirical data we did a breakdown in the following three themes: the experiences of the sickness absence, the experiences by the response of the concerned authorities. The theories chosen in this study are stigma, social exclusion, sense of coherence (SOC) and sick role. The economic exclusion creates social exclusion where as the sense of shame among the interviewee’s increase. By this said, the interviewee’s are not able to participate actively in the social activities to the same extent, but also they cannot provide for themselves. This can obviously lead to increased risk for mental illness. In our analysis we aim to discuss our issues based on the experiences for the interviewees’.

Syfte: Syftet med denna studie var att kartlägga långtidssjukskrivnas hälsa före och efter avslutad intervention samt studera vilka faktorer som hindrat alternativt främjat återgång i arbete hos individer med tidsbegränsad sjukersättning. Metod: Studien baseras på data från EU-projektet ”SAMKLANG” som är en longitudinell interventionsstudie. Data har samlats in på 59 långtidssjukskrivna deltagare via enkäter både före projektstart och ett år efter och dels har data samlats in kvalitativt genom semistrukturerade intervjuer med 13 deltagare efter det att projektet avslutats. Intervjudeltagarna var indelade i två grupper (de som hade återgått i arbete/studier och de som fortfarande var sjukskrivna). Interventionen bygger på både behandling och samverkan mellan organisationer som är involverade i rehabilitering av personer som har ett år kvar av sin tid i sjukersättning. Resultatet från enkäterna analyserades fram via ANOVA upprepad mätning och data från intervjuerna analyserades via innehållsanalys. Resultat: Huvudresultaten från den kvantitativa delstudien visade att det inte fanns någon skillnad mellan de som efter ett år återgått i arbete/studier, arbetsträning alternativt de som fortfarande var sjukskrivna gällande kön, ålder eller utbildningsnivå. Den självskattade depressions- och ångestnivån minskade och självskattad hälsa och inre kontroll ökade signifikant över tid för den grupp som kommit ut i arbete efter projektet jämfört med de två andra grupperna. Den kvalitativa analysen av intervjuerna identifierade följande tema som stödjande faktorer för arbetsåtergång: att besitta egen drivkraft, ha en insikt om arbetets mervärde och att hitta en balans mellan krav- kontroll-stöd. Det tema som beskriver hur myndigheter kan hjälpa och stödja långtidssjukskrivna tillbaks i arbete är: trygghet med mer vårdkompetens och att synliggöra individuella behov. Slutsats: Att återgå i arbete för en tidigare långtidssjukskriven person kopplas till bättre självrapporterad hälsa med mindre depression och ångestbesvär, en starkare känsla av inre kontroll och en högre tilltro till egen förmåga jämfört med om personer fortfarande är sjukskrivna. Framgångsfaktorer för arbetsåtergång är balans mellan krav, kontroll och stöd för individen och en egen motivation att återgå i arbete. För att underlätta arbetsåtergång hos långtidssjukskrivna bör myndigheter och inblandade parter samverka med vård, erbjuda trygghet och synliggöra varje enskild individs behov av rehabilitering. / Aim: The aim of this study was to investigate long term sickness absentees’ health status before and after an intervention. Furthermore, to gain deeper understanding of factors related to promoting and preventing return to work for people with limited sick leave compensation. Method: The study is based on data from the EU-funded project ”SAMKLANG” which is a longitudinal intervention study. Data has been collected from 59 long term absentees though questionnaires conducted before and one year after the start of the project. Data has also been collected through semi structured interviews from 13 participants after the end of the project. They were divided into two groups (those who had returned to work/studies or had an internship and those who still were sickness absent). The intervention is based on treatment as well as cooperation between organizations involved in a rehabilitation process for people with one year of sick leave compensation remaining. The results from the surveys were analyzed with ANOVA for repeated measures and data from the interviews were analyzed using content analysis. Result: The main result from the quantitative part of this study showed no significant difference in return to work between those who had returned to work or studies, been on internships and those who still were sickness absent based on sex, age and education. The amount of self-rated depression and anxiety levels were reduced and the self-rated health and internal control were significant induced over time for the group who returned to work after the project compared to the other two groups. From the qualitative analyze of the interviews following theme was identified as supporting factors for returning to work: having own motivation, realized the positive in having a job and to have balance between demand-control-support. The theme that describes how the authority can help and support people with long term sickness absence back to work is: security with more competence in healthcare and make individual needs visible. Conclusion: Return to work for a former long term sickness absence is associated with better self-rated health with less depression and anxiety, a stronger feeling of internal control and a higher self-efficacy compared to if persons still were sickness absent. Factors for success in return to work is balance between demand-control-support for the individual and an own motivation to return to work. The authority can facilitate return to work among people with long term sickness absence by interact more with health-care services, offer security and make every individuals need for rehabilitation visible.

The background to this thesis is the dramatic increase of the long-term sickness absence that took place in Sweden from the late 1990s. There was also a shift in the diagnostic pattern with rising mental diagnoses. The overall purpose was to describe and try to understand the process leading to long-term sickness absence from the perspective of the sickness absentees, in order to get a better knowledge base for preventive and rehabilitative actions. The thesis comprises four studies (I-IV). Research methods have been both qualitative and quantitative. In study I data from individual interviews with 32 persons on long-term sick leave due to burnout was analyzed using a grounded theory approach. In study II the study population comprised of 2064 employed sick-listed persons, a sub sample derived from the 2002 national Swedish survey on health, working conditions, life situation and sick-listing. It was analyzed if persons with burnout had higher probability of having experienced the steps in the burnout staircase compared to other diagnostic groups in accordance with the previously suggested hypothesis of "the burnout staircase". Study III comprised of 2521 employed persons, a sub sample derived from the same national survey as in study II. It was analyzed if psychosocial work environment and conflicts and losses in private life independently or in combination were more strongly associated to sickness absence with mental diagnoses as compared to a healthy population. In study IV individual interviews with 25 professional rehabilitation actors and 14 unemployed sick-listed persons were conducted. Data were analyzed according to grounded theory method. The process that led to sicknes absence can be described as an emotional deprivation process, illustrated as a flight of stairs (the burnout staircase) describing a sequence of steps toward sickness absence (I). In accordance with the tested hypothesis persons with burnout to a noticeable higher extent reported expereince of being in the different steps in the burnout staircase compared to sickness absentees with other diagnoses. The model seemed to be valid also for persons with other mental diagnoses (II). Reorganization and conflicts at work as well as adding adverse private life events were associated with increased risk for sickness absence with mental diagnosis (III). Three significant factors behind the weak co-operation between local social insurance and employment agencies were identified: indistinct regulation of co-operation, shifting political goals over time and conflicting goals between agencies (IV). In this thesis it has been suggested that the course of events preceding sickness absence might be understood as a process of emotional deprivation, where the individual is gradually emptied of the life-giving emotional energy revealed in joy, commitment, and empathy. This life-giving force finds its nourishment in safe and secure social relations with others and in a social structure that promotes this type of social relations. The profound changes in the Swedish labour market during the 1990s influenced not just the psychosocial work climate but also the rehabilitation efforts for unemployed sick-listed persons. When the political goal of reducing the unemployment level came to the forefront the indistinct regulation and the conflicting goals in addition were factors that impaired co-ordinated rehabilitation. In this process also the physicians were involved. A labour market problem was turned into a medical problem.