Made available in DSpace on 2016-08-10T10:55:59Z (GMT). No. of bitstreams: 1 THALITA AUGUSTA BORGES FERNANDES GOMES.pdf: 2983367 bytes, checksum: 5af6cf1f2345e46cdbde3289ac885e69 (MD5) Previous issue date: 2010-03-19 / Laryngeal cancer is responsible for approximately 75,300 deaths per year worldwide, an incidence of approximately 136,000 new cases per year, occurring predominantly in males. Several risk factors have been associated with the development of cancer of the larynx, especially tobacco, alcohol, radiation and occupational exposure. Surgical procedures for removal of the laryngeal tumor, represented by either or Partial laryngectomy generate temporary or permanent mutilation for the patient according to the tracheostomy associated with determining a complete change in the biological functions of the larynx, altering their quality of life. This study was a quantitative research to verify the quality of life of laryngectomized patients with tracheostomy, using as instrument the UWQOL, version 4, was obtained as a result of the speech as the greatest impact among patients below 60 years, including the distinction between men and women, being considered statistically smaller in women. For patients over 60 years, the greatest impact was in swallowing and overall quality of life was considered good. / O câncer laríngeo é responsável por aproximadamente 75.300 mortes por ano em todo mundo, numa incidência de aproximadamente 136.000 novos casos/ano, ocorrendo predominantemente no sexo masculino. Vários fatores de risco têm sido associados ao desenvolvimento de câncer de laringe, especialmente, tabaco, álcool, radiação e exposição ocupacional. Os procedimentos cirúrgicos realizados para a remoção do tumor laríngeo, representados tanto por Laringectomias Totais ou Parciais, geram mutilações definitivas ou temporárias para o paciente em função da traqueostomia associada, determinando uma modificação completa nas funções biológicas da laringe, alterando sua qualidade de vida. O presente estudo realizou uma pesquisa quantitativa de verificação da qualidade de vida do laringectomizado traqueostomizado, utilizando-se como instrumento o UW-QOL versão 4, obtendo-se como resultado a fala como o maior impacto entre os pacientes abaixo dos 60 anos, inclusive na distinção entre homens e mulheres, sendo considerado estatisticamente menor nas mulheres. Para os pacientes acima dos 60 anos, o maior impacto foi no domínio deglutição e a qualidade de vida global foi considerada como boa.

Aproximadamente 24% dos pacientes graves na unidade de terapia intensiva (UTI) são submetidos à traqueostomia (TQT), e a diminuição do trabalho respiratório, o desmame ventilatório precoce e facilidade na higiene brônquica são os benefícios mais comuns neste procedimento, porém são descritos em pacientes heterogêneos. O período da TQT precoce permanece controverso, mesmo que este procedimento seja descrito há séculos, e entre os pacientes que frequentemente requerem ventilação mecânica prolongada (VMP) estão os neurocirúrgicos e são susceptíveis ao desenvolvimento de complicações sistêmicas e pulmonares. Além disso, há poucos estudos sobre os benefícios da TQT precoce em pacientes neurocirúrgicos com características homogêneas e esses são retrospectivos. Não há relatos sobre o custo indireto e o desfecho hospitalar desse pacientes, portanto, o objetivo desse estudo foi analisar o tempo de ventilação mecânica invasiva (VMI), tempo de estadia na UTI em dias, tempo de estadia hospitalar em dias, custo indireto, ocorrência de complicações e o desfecho hospitalar em pacientes neurocirúrgicos submetidos à TQT precoce e tardia. Estudo prospectivo observacional, realizado no Instituto Central do hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo, entre o período de Dezembro de 2009 a Junho de 2011. Foram incluídos os pacientes neurocirúrgicos admitidos na UTI, e submetidos à TQT após a intubação traqueal. Eles foram divididos em Grupo TQT Precoce (GTP): <= 7 dias de VMI e Grupo TQT Tardio (GTT): > 7 dias. Nível significativo adotado foi p<= 0,05. Foram incluídos 72 pacientes, 21 pacientes no GTP e 51 no GTT. A idade (GTP= 48, GTT= 51, p=0,101), gênero masculino (GTP= 16, GTT= 35, p=0,521), Apache II (GTP= 15, GTT= 15, p=0,700), Escala de Coma de Glasgow (GTP= 7, GTT= 7, p= 0,716) não apresentaram diferença entre os grupos. O GTP apresentou menor tempo de VMI (p < 0,001), tempo de estadia na UTI (p=0,001), tempo estadia no hospital (p=0,001) e custo indireto (p =< 0,001). A infecção nosocomial (IN) foi a complicação identificada, a IN sistêmica (p=0,088), IN pulmonar (pneumonia associada à ventilação mecânica (p=0,314), sobrevida (p=0,244) e o desfecho hospitalar mais comum (transferência para hospital de longa permanência) (p=0,320), não apresentaram diferença significativa entre os grupos. Em pacientes neurocirúrgicos, a TQT precoce reduziu o tempo de VMI, tempo de estadia na UTI, tempo de hospitalização e custo indireto. Porém não houve diferença na ocorrência de complicações e no desfecho hospitalar entre os grupos / Nearly 24% of the critically ill patients in intensive care unit (ICU) are submitted to tracheostomy (TQT), and the decrease the work of breathing, early weaning and pulmonary toilet are the most common benefits in this procedure, however these benefits are described in heterogeneous patients. The period of early TQT remains controversial, even if this procedure is described for centuries, and between the patients often require prolonged mechanical ventilation (PMV) are the neurosurgical and are susceptible to the development of systemic and pulmonary complications. In addition, there are few studies about the benefits of early TQT in neurosurgical patients with homogeneous characteristics and these are retrospective. There are no reports on the overhead and the hospital outcome of patients, therefore, the aim of this study was to analyze the duration of mechanical ventilation (MV), ICU length of stay (LOS) days, hospital LOS days, indirects costs, occurrence of the complications and patients discharge in neurosurgical submitted to early and late tracheostomy. Prospective, observational study, at the Central Institute of the Clinics Hospital, Medical School, University of São Paulo, from December 2009 until June 2011. Neurosurgical patients admitted at the ICU were included, and submitted to TQT after tracheal intubation were included. They were categorized in Early Tracheostomy Group (ETG) <= 7 days MV and Late Tracheostomy Group (LTG) > 7 days. Statistical analysis significance p < 0.05. 72 patients were included, 21 patients in ETG and 51 in LTG. Age (ETG= 48, LTG= 51, p=0.101), male (ETG 48, GTT= 51, p=0.521), Apache II (ETG= 15, LTG= 15, p=0.700), Glasgow coma scale (ETG= 7, LTG= 7, p= 0.716) no significant different between the groups. The ETG had shorter length of VM (p < 0.001), ICU LOS (p=0.001), hospital LOS (p=0.001) and indirects costs (p < 0.001). Nosocomial Infection (NI) was identificated complication, systemic NI (p=0.088), pulmonary NI (ventilator associated pneumonia- PAV) (p= 0.314), survival (p=0.244) and the most common hospital outcome (transfer to long-term care hospital) (p= 0.320), there were no significant difference between the groups. In neurosurgical patients, the early tracheostomy reduced length of MV, ICU LOS, hospital LOS and the indirects costs. However, there were no difference in the occurrence of complications and patient discharge between the groups

Restoring speech in persons who are tracheostomy and ventilator dependent, through the use of a Passy-Muir Speaking Valve (PMSV), requires specific training. Methods of training interprofessional team members to assess in-line PMSVs are unclear. This study used a pretest/ post-test design to compare effects of online training and online training plus simulation training on knowledge acquisition, skills performance, and comfort levels when working with persons who are tracheostomy and ventilator dependent. Twenty-six students studying either respiratory therapy (N=13) or speech-language pathology (N=13) were assigned to the control group or experimental group. Results revealed that online training proved beneficial for increasing tracheostomy and ventilator knowledge. Participants who underwent simulation training reported greater levels of comfort and demonstrated more efficient skills performance during simulation post-testing. Simulation training is efficacious to train interprofessional teams how to properly assess this population for use of in-line PMSVs.

The purpose of this research was to determine if significant differences exist between the APACHE II scores of intubated mechanically ventilated patients who ultimately received a tracheostomy and those who did not. In addition to this inquiry, the study also investigated the possibility of a range of APACHE II scores, a particular age group, and the presence of chronic organ insufficiencies and their relationship to the tracheostomy result. Methodology was non-experimental, quantitative, and retrospective. It was observational in that the goal was to simply record and quantify the potential association between these variables. Data was obtained from patients at Bristol Regional Medical Center from January 1- August 31, 2011. Information was calculated using descriptive statistics and the t-test for independent samples. Participants included all intubated mechanically ventilated patients who were at least eighteen years of age with a documented APACHE II score in the allotted time frame. There were 468 total patients, 79 (16.9%) of which received a tracheostomy. The mean APACHE II score for patients who received a tracheostomy was 21.8354 as compared to the mean APACHE II score of 21.6735 for those who were extubated. There was no significant difference between the APACHE II scores of these groups. The tracheostomy group had the highest frequency of patients with APACHE II scores of less than 25 and a range of 20-29. 84.8% of tracheostomy patients had some form of chronic organ dysfunction. Respiratory failure was the most frequent admitting diagnosis for all 468 patients and respiratory insufficiency was the most prevalent co-morbidity for the tracheostomy patients. The age range that included more tracheostomy patients was 65-74. 40% of re-intubated patients eventually received a tracheostomy and 69.6% of tracheostomy patients had the procedure performed early (within the first seven days of intubation). The managerial team of this respiratory therapy department decided to stop calculating the APACHE II score on all intubated patients in an attempt to save time and staff resources.

In der neurologischen Rehabilitation werden in zunehmendem Maße tracheotomierte Patienten mit schweren Dysphagien behandelt. Daher sollte den hierzu bisher entwickelten Interventionsverfahren eine evidenzbasierte Grundlage gegeben werden. In der vorliegenden Arbeit wird ein multidisziplinärer Behandlungsansatz zur Trachealkanülenentwöhung und Dekanülierung vorgestellt, der auf der Grundlage der relevanten Forschungsliteratur und klinischen Beobachtungen entwickelt wurde. Des Weiteren wird erstmals eine systematische Evaluation eines multidisziplinären Trachealkanülenmangements vorgenommen und es werden explorative Daten zum Rehabilitationsverlauf dargestellt. In einem retrospektiven Vergleich wurden hierzu die Dekanülierungs- und Komplikationsraten sowie die Dauer der Trachealkanülenentwöhnung zweier Patientengruppen gegenübergestellt, die vor bzw. nach Einführung des beschriebenen multidisziplinären Trachealkanülenmanagements im REHAB Basel, Schweiz, behandelt wurden. Der rehabilitative Verlauf der multidisziplinär behandelten Gruppe wurde mittels der Messinstrumente FIM (Functional Independence Measure) und EFA (Early Functional Abilities) untersucht. Der Vergleich der Dekanülierungs- und Komplikationsraten ergab eine vergleichbare Effektivität der beiden Behandlungsansätze. Darüber hinaus zeigte sich eine signifikante Verkürzung der Kanülenentwöhnungsphase bei Anwendung des multidisziplinären Vorgehens, so dass dieses als effizenter zu beurteilen ist. Die Verlaufsanalyse der multidisziplinär behandelten Patienten ergab erst nach der Dekanülierung einen signifikanten Zuwachs der funktionellen Selbständigkeit in Alltagsaktivitäten. Bei der Mehrzahl der Patienten konnte ein vollständiger oraler Kostaufbau nach der Dekanülierung erreicht werden. / In neurological rehabilitation there is a growing need for information about treatment of tracheotomized dysphagic individuals and treatment methods have to be evaluated objectively. This dissertation presents a multidisciplinary approach for the treatment of tracheotomized dysphagic patients that was developed based on research findings and clinical experiences. Furthermore it presents a first approach to a systematic evaluation of a multidisciplinary treatment protocol and explorative data about the rehabilitative progress in this patient group. In a retrospective analysis mean cannulation times and the success rate of decannulation from patients were compared before and after introduction of the multidisciplinary procedure in a rehabilitation centre, REHAB Basel, Switzerland. Furthermore, the rehabilitation progress was analyzed by means of the assessment tools ‘Functional Independence Measure (FIM)’ and ‘Early Functional Abilities (EFA)’. Decannulation rates and success of decannulation were comparable in both groups of patients. With regard to mean cannulation times, however, a significant reduction was found in the group who underwent multidisciplinary treatment. This indicates a higher efficiency of the multidisciplinary approach, whereas, with regard to effectiveness, the two approaches seem to be comparable. After decannulation the patients of the multidisciplinary group showed clear functional improvements in performing activities of daily living. Most of these patients were able to return to full oral nutrition after decannulation. The multidisciplinary approach was found to be more efficient than the former intradisciplinary protocol as it led to a safe but faster decannulation of tracheotomized dysphagic patients. The explorative data concerning rehabilitation progress in these patients supports the importance of the development of evidence-based treatment protocols that lead to a fast and safe decannulation. This can be considered the basis for further significant improvement of the functional independence of the tracheotomized dysphagic patient.

Amyotrophic lateral sclerosis (ALS) is a progressive neurological disease that leads to respiratory compromise and eventually death within two to five years. Even though people with ALS must make many treatment decisions, none has such a significant impact on quality of life and survival as the one pertaining to assisted ventilation. A qualitative research study was undertaken to elicit factors that are pertinent to this decision-making process. Ten individual, semi-structured interviews were conducted with individuals with ALS. Six main themes emerged from the interviews. These are: meaning of the intervention, the importance of context, values, and fears in decision-making, the need for information, and adaptation/acceptance of the intervention. Based on these findings, it is argued that a pluralistic conception of autonomy as well as a shared decision-making model is better suited to give high priority to patient autonomy in this context. Some recommendations to improve clinical practice are proposed.

The thesis is aimed at the problems of communication barriers in patients with tracheotomy at intensive care units. Communication is the basis of nursing care and nursing process is based on partnership relation between a nurse and a patient. Everybody who wants to communicate sometimes faces problems, obstacles complicating his/her interpersonal communication. Recognition of these obstacles is the first step leading to their overcoming. Tracheostomy disqualifies the glottal function and patients are not able to communicate by means of speech. Such a situation is new for the patients and is also very stressing, which is why these patients have to be paid extra attention and these problems have to be dealt with. The aims of the work and the hypotheses were focused on the area of communication barriers, but also on adherence to the effective communication principles and alternative ways of communication. The goal was to find mutual dependence between the individual variables. Quantitative research extended by qualitative research was used for reaching the goals. An important relation was proven in hypothesis number two upon the results of statistic examination. The fact that the communication barriers perceived by a nurse depend on the character of the department where the nurse works was found. Some relation was also proven in hypothesis number eight, which examined dependence of alternative ways of communication on the character of the hospital department. No dependence relation was found in the other hypotheses. An analysis of results obtained from nurses and from patients showed us that nurses realize many more communication barriers in patients than patients themselves. A hypothesis expressing a relation between selection of an alternative communication method and the overall patient condition arose from the qualitative research.

Orientador: Yvens Barbosa Fernandes, Sebastião Araujo / Dissertação (mestrado) - Universidade Estadual de Campinas, Faculdade de Ciencias Medicas / Made available in DSpace on 2018-08-08T19:37:05Z (GMT). No. of bitstreams: 1 Pasini_RenataLenize_M.pdf: 1921410 bytes, checksum: 17bcb0d3a217f0284da26d92e3b8a5da (MD5) Previous issue date: 2007 / Resumo: A traqueostomia é um procedimento comumente realizado em pacientes dependentes da ventilação mecânica (VM), internados em Unidade de Terapia Intensiva (UTI). Alguns autores acreditam que a realização precoce desse procedimento em tais pacientes diminui o tempo de dependência do aparelho ventilatório, bem como apresenta outros benefícios associados. Entretanto, o período mais adequado para a realização do procedimento ainda não se encontra bem estabelecido para pacientes com traumatismo craniencefálico (TCE), o que justificou a realização do presente estudo, cujo objetivo foi avaliar a influência da traqueostomia no tempo de ventilação mecânica e tempo de internação hospitalar de pacientes com TCE. Foi realizado um estudo prospectivo e não intervencionista, em que foram avaliados 33 pacientes com TCE de moderado a grave, cuja pontuação na escala de coma de Glasgow (ECG) foi = 10, com idade entre 14 e 80 anos e necessidade de traqueostomia. Os pacientes foram distribuídos em três grupos determinados a partir do momento da realização da traqueostomia: traqueostomia precoce (TP), realizada até o 6º dia de VM; traqueostomia intermediária (TI), realizada entre o 7° e 11° dias de VM; e a traqueostomia tardia (TT), realizada após o 12° dia de VM. Dos 33 pacientes avaliados, 28 eram do sexo masculino, com idade média de 30,7 ± 14,0 anos para a TP; 39,0 ± 18,4 anos para a TI e 37,7 ± 18,4 anos para a TT. No grupo submetido à traqueostomia precoce houve redução do tempo de ventilação mecânica e tendência a uma diminuição do tempo de internação hospitalar. O momento de realização da traqueostomia não influenciou na incidência de infecção pulmonar e mortalidade / Abstract: Tracheostomy has been performed frequently in ventilator-dependent patients in intensive care unit (ICU). Some authors believe that early tracheostomy can reduce mechanical ventilation (MV) time and can provide other associated benefits. However, its influence on weaning from MV is not clear in pacients with traumatic brain injury (TBI). The aim of this study was to evaluate the influence of tracheostomy on MV weaning in TBI patients. It was a prospective and non interventional study; including 33 patients with TBI (GCS < 10), aging between 14 and 80 years and that were submitted to a tracheostomy. The patients had been distributed into three groups: early tracheostomy (ET) (performed until 6th day of MV); intermediate tracheostomy (IT) (performed from the 7th to 11th day of MV) and late tracheostomy (LT) (performed after the 12th day of MV). Of the 33 evaluated patients, 28 were male and 5 female, aging 30.7 ± 14.0 years in ET group; 39.0 ± 18.4 years in IT group; and 37.7 ± 18.4 years in LT group. In the ET group, those patients with lower GCS and higher APACHE II at admission have shown a lesser hospital length of stay (HLOS); the IT group has shown a lesser HLOS in younger individuals and with lower APACHE II values. Regarding total MV time (orotracheal tube + tracheostomy), ET group has shown a lesser average time in relation to the other groups. However weaning times with tracheostomy alone were not different between groups. Also, pulmonary infection incidences have not been different between groups. Early tracheostomy can reduce total MV time and HLOS in patients with severe TBI, but it appears to have no influence on weaning time, incidence of pulmonary infection and mortality / Mestrado / Ciencias Biomedicas / Mestre em Ciências Médicas

Aproximadamente 24% dos pacientes graves na unidade de terapia intensiva (UTI) são submetidos à traqueostomia (TQT), e a diminuição do trabalho respiratório, o desmame ventilatório precoce e facilidade na higiene brônquica são os benefícios mais comuns neste procedimento, porém são descritos em pacientes heterogêneos. O período da TQT precoce permanece controverso, mesmo que este procedimento seja descrito há séculos, e entre os pacientes que frequentemente requerem ventilação mecânica prolongada (VMP) estão os neurocirúrgicos e são susceptíveis ao desenvolvimento de complicações sistêmicas e pulmonares. Além disso, há poucos estudos sobre os benefícios da TQT precoce em pacientes neurocirúrgicos com características homogêneas e esses são retrospectivos. Não há relatos sobre o custo indireto e o desfecho hospitalar desse pacientes, portanto, o objetivo desse estudo foi analisar o tempo de ventilação mecânica invasiva (VMI), tempo de estadia na UTI em dias, tempo de estadia hospitalar em dias, custo indireto, ocorrência de complicações e o desfecho hospitalar em pacientes neurocirúrgicos submetidos à TQT precoce e tardia. Estudo prospectivo observacional, realizado no Instituto Central do hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo, entre o período de Dezembro de 2009 a Junho de 2011. Foram incluídos os pacientes neurocirúrgicos admitidos na UTI, e submetidos à TQT após a intubação traqueal. Eles foram divididos em Grupo TQT Precoce (GTP): <= 7 dias de VMI e Grupo TQT Tardio (GTT): > 7 dias. Nível significativo adotado foi p<= 0,05. Foram incluídos 72 pacientes, 21 pacientes no GTP e 51 no GTT. A idade (GTP= 48, GTT= 51, p=0,101), gênero masculino (GTP= 16, GTT= 35, p=0,521), Apache II (GTP= 15, GTT= 15, p=0,700), Escala de Coma de Glasgow (GTP= 7, GTT= 7, p= 0,716) não apresentaram diferença entre os grupos. O GTP apresentou menor tempo de VMI (p < 0,001), tempo de estadia na UTI (p=0,001), tempo estadia no hospital (p=0,001) e custo indireto (p =< 0,001). A infecção nosocomial (IN) foi a complicação identificada, a IN sistêmica (p=0,088), IN pulmonar (pneumonia associada à ventilação mecânica (p=0,314), sobrevida (p=0,244) e o desfecho hospitalar mais comum (transferência para hospital de longa permanência) (p=0,320), não apresentaram diferença significativa entre os grupos. Em pacientes neurocirúrgicos, a TQT precoce reduziu o tempo de VMI, tempo de estadia na UTI, tempo de hospitalização e custo indireto. Porém não houve diferença na ocorrência de complicações e no desfecho hospitalar entre os grupos / Nearly 24% of the critically ill patients in intensive care unit (ICU) are submitted to tracheostomy (TQT), and the decrease the work of breathing, early weaning and pulmonary toilet are the most common benefits in this procedure, however these benefits are described in heterogeneous patients. The period of early TQT remains controversial, even if this procedure is described for centuries, and between the patients often require prolonged mechanical ventilation (PMV) are the neurosurgical and are susceptible to the development of systemic and pulmonary complications. In addition, there are few studies about the benefits of early TQT in neurosurgical patients with homogeneous characteristics and these are retrospective. There are no reports on the overhead and the hospital outcome of patients, therefore, the aim of this study was to analyze the duration of mechanical ventilation (MV), ICU length of stay (LOS) days, hospital LOS days, indirects costs, occurrence of the complications and patients discharge in neurosurgical submitted to early and late tracheostomy. Prospective, observational study, at the Central Institute of the Clinics Hospital, Medical School, University of São Paulo, from December 2009 until June 2011. Neurosurgical patients admitted at the ICU were included, and submitted to TQT after tracheal intubation were included. They were categorized in Early Tracheostomy Group (ETG) <= 7 days MV and Late Tracheostomy Group (LTG) > 7 days. Statistical analysis significance p < 0.05. 72 patients were included, 21 patients in ETG and 51 in LTG. Age (ETG= 48, LTG= 51, p=0.101), male (ETG 48, GTT= 51, p=0.521), Apache II (ETG= 15, LTG= 15, p=0.700), Glasgow coma scale (ETG= 7, LTG= 7, p= 0.716) no significant different between the groups. The ETG had shorter length of VM (p < 0.001), ICU LOS (p=0.001), hospital LOS (p=0.001) and indirects costs (p < 0.001). Nosocomial Infection (NI) was identificated complication, systemic NI (p=0.088), pulmonary NI (ventilator associated pneumonia- PAV) (p= 0.314), survival (p=0.244) and the most common hospital outcome (transfer to long-term care hospital) (p= 0.320), there were no significant difference between the groups. In neurosurgical patients, the early tracheostomy reduced length of MV, ICU LOS, hospital LOS and the indirects costs. However, there were no difference in the occurrence of complications and patient discharge between the groups

För att transition från sjukhusvård till vård i hemmet hos ett barn med nyanlagd trakeostomi ska bli effektiv och smidigast möjlig bör vården av dessa barn och familjer individanpassas. Varje familj bör i ett tidigt skede erbjudas ”förväntningssamtal” där parterna delger sina förväntningar på varandra. Familjerna bör även stöttas med andra samtal för att mötas i deras krisarbete samt erbjudas dialog och uppföljning under hela sjukhusvistelsen. Familjerna bör ges möjlighet att i ett tidigt skede ta del av den tänkta behandlingsplanen för barnet och därmed skapa en delaktighet och engagemang hos föräldrarna för att sjukhusvistelsen ska bli kortast möjlig. Detta i sin tur kan bidra till att skapa en naturlig förståelse för den vård i hemmet som i ett senare skede ska bedrivas av föräldrar och assistenter, därmed får föräldrarna dessutom möjlighet att i ett tidigt skede läras upp. Vidare bör kommunerna, som ansvarar för att tillhandahålla familjerna och barnet assistans i hemmet, i ett tidigt skede involvera familjen och sjuksköterskorna vid urval av tilltänkta assistenter till uppdraget. Genom att involvera föräldrarna i ett tidigt skede kan föräldrarna komma att känna ett större engagemang. Detta kan även bidra till att föräldrarna kan få ett större förtroende för assistenterna vilket kan ge goda förutsättningar för att korta ned upplärningsfasen och därmed sjukhusvistelsen. Relevant kompetens och erfarenhet hos sjuksköterskor är en förutsättning för att undvika utdragen sjukhusvistelse samt att kunna betrygga familjer och assistenter som barnets primära omsorgspersoner för att de i ett senare led ska kunna möta situationer och ta livsavgörande beslut i hemmet. Att vårda barn med nyanlagd trakeostomi inför transition till hemmet innebär ett stort ansvar. Riktig och likvärdig information ska ges vid upplärning till föräldrar och assistenter samtidigt som det ska möjliggöras för en bemästring inför ägarskap till att vara föräldrar och assistenter till ett barn med speciella behov.