Children with chronic conditions are expressive in the health services, having as one of the reference services Primary Health Care. In this sense, the objective is to describe the child's access in chronic condition to primary health care from the perspective of health professionals And to identify the presence of the essential attributes of the primary care to the child with chronic condition in the perception of the health professionals. This is an exploratory and descriptive study, with a qualitative approach. To collect data, we conducted semi-structured interviews with twenty-eight health professionals who are part of the Basic Health Units and the Family Health Strategy teams of the municipality of Santa Maria - Rio Grande do Sul. Data collection took place in the months of April to August 2016, the recommendations were followed and the regulatory norms of research involving human beings were respected. The data were organized with the aid of QDA Miner 3.2 software, and treated through the thematic analysis of the inductive type. The analysis of the participants' statements emerged three units of meaning: "Knowing the chronic condition", which addressed the meaning of chronic condition in childhood for professionals, and also identified the main conditions that affect the children of these health services, predominating problems Respiratory. The suggestive unit of meaning refers to "Health professionals' experiences and perceptions about access" points to the meaning of access, as it occurs, and the aspects favor and limit the effectiveness of this attribute. The third unit of meaning "(Re) knowing the attributes of Primary Health Care" reveals weaknesses in the attributes Integrality of care to children with chronic condition, Longitudinality during health care and Coordination of care. It is believed that the study can contribute with subsidies for the planning of care for the child with chronic condition, making it possible to access and strengthen the attributes of the other attributes of Primary Health Care in child care. / As crianças com condições crônicas são expressivas nos serviços de saúde, tendo como um dos serviços de referência a Atenção Primária à Saúde. Nesse sentido, objetiva-se descrever o acesso da criança com condição crônica à atenção primária à saúde na perspectiva dos profissionais de saúde e identificar a presença dos atributos essenciais da atenção primária à criança com condição crônica na percepção dos profissionais de saúde. Trata-se de um estudo exploratório e descritivo, de abordagem qualitativa. Para a coleta de dados foram realizadas entrevistas semiestruturadas com vinte e oito profissionais de saúde que integram as equipes de Unidades Básicas de Saúde e da Estratégia Saúde da Família do município de Santa Maria – Rio Grande do Sul. A coleta de dados ocorreu nos meses de abril a agosto de 2016, foram seguidas as recomendações e respeitado as normas regulamentadoras de pesquisa envolvendo seres humanos. Os dados foram organizados com auxilio do software QDA Miner 3.2, e tratados por meio da análise temática do tipo indutiva. Emergiram três unidades de sentido: “Conhecendo a condição crônica”, que abordou a significação de condição crônica na infância para os profissionais, e também foram identificadas as principais condições que acometem as crianças destes serviços de saúde predominando os problemas respiratórios. A segunda unidade de sentido refere-se a “Experiências e percepções dos profissionais de saúde acerca do acesso” aponta o significado de acesso, como ele ocorre, e os aspectos que favorecem e limitam a efetivação desse atributo. A terceira unidade de sentido“ (Re)conhecendo os atributos da Atenção Primária à Saúde” revela fragilidades nos atributos Integralidade do cuidado à criança com condição crônica, a Longitudinalidade durante a atenção à saúde e a Coordenação do cuidado. Acredita-se que o estudo pode contribuir com subsídios para o planejamento da atenção à criança com condição crônica, possibilitando o acesso e fortacelendo os atributos os demais atributos da Atenção Primária à Saúde no cuidado a criança.

According to the regulations contained in the Social Services Act (SFS 2001:453), Swedish social services have a legal responsibility to provide support, care, and treatment for individuals with substance use problems.  This law mandate those who are responsible to provide treatment to motivate drug users to actively seek treatment on a voluntary basis, ensuring an end to their dependence on drugs. Studies have shown that although the treatment system largely focuses on promoting abstinence, about two-thirds of client’s relapse into substance use within one year after completing treatment. This dissertation focuses broadly on clients who repeatedly enter and use treatment for substance use disorders in the Swedish addiction treatment system. The aim of this thesis is to examine and identify the population groups who are repeated treatment users of the Swedish treatment system for substance use disorder, including both the voluntary treatment and compulsory care. This thesis was based on three national level databases. The results showed that clients with a higher degree of problems and problems in different areas of life also had an increased risk of having treatment for substance use disorder repeatedly. Clients who were older, men, reported more years of polydrug and alcohol use to intoxication, reported more compulsory care episodes for substance use, had ever been charged with crime, had ever been in inpatient mental health treatment, and had a higher ASI mental health symptom composite score, were significantly more likely to report more voluntary addiction treatment episodes. The strongest significant association with the number of treatment episodes was the number of compulsory treatment episodes for alcohol and drugs. Individuals who experienced prior compulsory care including mandatory treatment through LVU (law (1990:52)), been in prison, and had children mandated to out-of-home care, were more likely to have two or more entries in the compulsory care system for substance use disorder. In addition, this analysis showed that 59% of clients mandated to compulsory care dropped-out during their compulsory care episode, and that younger clients were significantly more likely to drop-out. Those who drop-out were significantly more likely to experience negative outcomes, i.e. additional sentence to compulsory care and higher risk of mortality.  A hierarchal logistic regression model also identified that individuals with riskier childhood conditions were more likely to have had repeated entries to compulsory care for substance use disorder. The indirect effects showed that a family history of substance use disorder and psychiatric problems are both associated with higher probability of institutional care as a child i.e. LVU, and that in turn, mandated childhood institutional care is related to repeated compulsory care intakes as an adult. Individuals who use treatment for substance use disorder repeatedly have a higher degree of problems i.e. an exposed and problematic group of individuals characterized by problem in several different areas of life. Growing up in a home environment with unfavorable conditions, mandated care before the age of 18 (LVU), compulsory care for substance use disorder as an adult, children taken into out-of-home care, and crime are the factors that are primarily associated with repeated treatment for substance use. A change in the view of treatment for clients in need of repeated use of treatment seems important, and access to adapted continuous care efforts are crucial to counteract the risk of relapse after a treatment episode of voluntary or compulsory care. Further, it seems important to motivate the client to complete the compulsory care without any deviation, since this seems to have positive effects on their substance use disorder.

Population ageing has been taking place all over the world, being estimated that 2.1 billion people will be aged 60 or over in 2050. Healthcare Supportive Home (HSH) Systems have been proposed to overcome the high demand of remote home care for assisting an increasing number of elderly people living alone. Since a heterogeneous team of healthcare professionals need to collaborate to continually monitor health status of chronic patients, a cooperation of pre-existing e-Health systems, both outside and inside home, is required. However, current HSH solutions are proprietary, monolithic, high coupled, and expensive, and most of them do not consider their interoperation neither with distributed and external e-Health systems, nor with systems running inside the home (e.g., companion robots or activity monitors). These systems are sometimes designed based on local legislations, specific health system configurations (e.g., public, private or mixed), care plan protocols, and technological settings available; therefore, their reusability in other contexts is sometimes limited. As a consequence, these systems provide a limited view of patient health status, are difficult to evolve regarding the evolution of patients health profile, do not allow continuous patients monitoring, and present limitations to support the self-management of multiple chronic conditions. To contribute to solve the aforementioned challenges, this thesis establishes HomecARe, a reference architecture for supporting the development of quality HSH systems. HomecARe considers HSH systems as Systems-of-Systems (SoS) (i.e., large, complex systems composed of heterogeneous, distributed, and operational and managerial independent systems), which achieve their missions (e.g., improvement of patients quality of life) through the behavior that emerges as result of collaborations among their constituents. To establish HomecARe, a systematic process to engineer reference architectures was adopted. As a result, HomecARe presents domain knowledge and architectural solutions (i.e., architectural patterns and tactics) described using conceptual, mission, and quality architectural viewpoints. To assess HomecARe, a case study was performed by instantiating HomecARe to design the software architecture of DiaManT@Home, a HSH system to assist at home patients suffering of diabetes mellitus. Results evidenced HomecARe is a viable reference architecture to guide the development of reusable, interoperable, reliable, secure, and adaptive HSH systems, bringing important contributions for the areas of e-Health, software architecture, and reference architecture for SoS. / O envelhecimento da população é um fenômeno mundial e estima-se que no ano 2050, 2,1 bilhões de pessoas terão 60 anos ou mais. Sistemas de casas inteligentes para o cuidado da saúde (em inglês Healthcare Supportive Home - HSH systems) têm sido propostos para atender a alta demanda de serviços de monitoramento contínuo do número cada vez maior de pacientes que vivem sozinhos em suas residências. Considerando que o monitoramento do estado de saúde de pacientes crônicos requer a colaboração de equipes formadas por profissionais de várias especialidades, é fundamental que haja cooperação entre sistemas eletrônicos de saúde (por exemplo, sistemas de prontuário eletrônico ou sistemas de atenção de emergência), sendo eles externos ou internos à residência. Entretanto, as soluções de HSH existentes são comerciais, monolíticas, altamente acopladas e de alto custo. A maioria delas não considera a interoperabilidade entre sistemas distribuídos e exteriores ou internos à residência dos pacientes, como é o caso de robôs de companhia e monitores de atividade. Além disso, os sistemas de HSH muitas vezes são projetados com base em legislações locais, na estrutura do sistema de saúde (por exemplo, público, privado ou misto), nos planos de cuidados nacionais e nos recursos tecnológicos disponíveis; portanto, a reusabilidade desses sistemas em outros contextos é não é uma tarefa trivial. Em consequência, os sistemas de HSH existentes oferecem uma visão restrita do estado de saúde do paciente, são difíceis de evoluir acompanhando as mudanças no perfil de saúde do paciente, impossibilitando assim seu monitoramento contínuo e limitando o suporte para o paciente na autogestão de suas múltiplas condições crônicas. Visando contribuir na resolução dos desafios apresentados, esta tese estabelece a HomecARe, uma arquitetura de referência para apoiar o desenvolvimento de sistemas de HSH de qualidade. A HomecARe considera os sistemas de HSH como Sistemas-de-Sistemas (do inglês Systems-of-Systems - SoS) (ou seja, sistemas grandes e complexos formados por outros sistemas heterogêneos, distribuídos e que apresentam independência em seu gerenciamento e operação), que cumprem suas missões (por exemplo, melhoria da qualidade de vida do paciente) mediante o comportamento que emerge resultante da colaborações entre seus sistemas constituintes. Para estabelecer a HomecARe, foi adotado um processo sistemático que apoia a engenharia de arquiteturas de referência. Como resultado, a HomecARe contém o conhecimento do domínio, bem como soluções arquiteturais (por exemplo, padrões arquiteturais e táticas) que são descritas usando os pontos de vista conceitual, de missão e de qualidade. A HomecARe foi avaliada por meio da condução de um estudo de caso em que a arquitetura de referência foi instanciada para projetar o DiaManT@Home, um sistema de HSH que visa apoiar pacientes diagnosticados com diabetes mellitus na autogestão de sua doença. Os resultados obtidos evidenciaram que a HomecARe é uma arquitetura de referência viável para guiar o desenvolvimento de sistemas de HSH reusáveis, interoperáveis, confiáveis, seguros e adaptativos, trazendo importantes contribuições nas áreas de saúde eletrônica, arquitetura de software e arquiteturas de referência para SoS.

Utilizing the longitudinal component of the National Population Health Survey (NPHS) (1994/1995-2000/2001), designed to collect comprehensive information on the health status of the Canadian population and related socio-demographic information, differences in health status between immigrants and non-immigrants (i.e., native-born individuals) were explored. Specifically, the analysis investigated how chronic conditions influence the health of immigrants, the role of stress and mental health upon immigrant health status, and the influence and role of previously underrepresented variables such as age and arrival cohorts on foreign-born health status. The conceptual approach of this project draws upon a 'population health' perspective, which suggests that the most influential determinants of human health status are non-medical in nature, but rather can be identified as the social and economic characteristics of individuals. Analysis was completed through the use of ordinary least squares stepwise regression and logistic stepwise regression in association with descriptive stochastic methodologies. Analysis of the mental health and stress variables suggests that, contrary to what has been expressed in literature in the past, both immigrants and the native-born do not perceive stress, distress, or depression to be major problems or health concerns in their lives. Furthermore, the analysis indicated, as was expected, that older immigrants are at greater risk of developing more chronic conditions relative to younger groups, and that arrival cohorts, the period in which an immigrant entered the nation, do exert a considerable influence on the health status of the foreign-born. Surprisingly, this analysis indicates that the Healthy Immigrant Effect (HIE), which proposes that recent immigrants, regardless of country of birth, tend to be in better health than the Canadian-born population upon entering the nation, may be more apparent than real, especially when investigating mental health and stress conditions amongst the foreign-born. / Thesis / Master of Arts (MA)