abstract: Cystic Fibrosis, one of the most severe childhood life-shortening illnesses, places demands on a child's life conceivably interfering with his or her academic success. It is possible that the medically related activities in which individuals with CF partake interfere with academic activities and the motivation, specifically beliefs, expectancies, and values held, toward those activities. These issues encouraged the investigation of academic achievement and achievement motivation in children with CF through exploration of three research questions. Question one concerns differences in academic achievement between children with CF and a healthy comparison group for 1) reading and 2) math. Question two explored differences in aspects of motivation including ability beliefs, outcome expectancies, and task values between the groups for the two academic subjects. Finally, question three examined the relationship between motivational components and academic achievement. Evidence is provided for differences in math achievement between the two groups. Differences in motivation between children with CF and healthy children remain unsubstantiated. / Dissertation/Thesis / M.A. Educational Psychology 2010

BACKGROUND: Rapid advances in the treatment of the hepatitis C virus (HCV) have been witnessed in clinical practice over the last five years. Pharmacological developments have ended the reliance on the drug interferon-α as a component of successful therapy, heralding the dawn of a new era in the fight against the disease. How this new era is being understood and experienced by those individuals living with the virus is currently unknown. METHODS: A purposive sample of 20 individuals participated in face-to-face semi-structured interviews exploring their experience of living with HCV. Eight of these participants were interviewed again following a period of interferon-free treatment. All interviews were conducted between June 2015 and March 2016. The interviews were transcribed verbatim and explored using thematic analysis, underpinned by social phenomenological theory. RESULTS: Analysis of the corpus of data resulted in three overarching themes entitled ‘positioning HCV', ‘beyond a physical burden' and ‘reconstructing uncertainty'. These themes offer original insight into how this new era of therapy is being realised by those living with the virus. The experience of interferon-free treatment was also explored through the narratives of those individuals who participated in a further post-treatment interview. Three further themes entitled ‘expectations and realisations', ‘an honour and a pleasure' and ‘treatment needs' encapsulate their experience. DISCUSSION: The findings from this study recontextualise the lived experience of HCV within a new era of treatment. In doing so, they expose social and emotional spheres of illness, and a perception of illness chronicity, which remain untouched by the treatment revolution. Further, this work emphasises how treatment inequalities fundamentally underpin multiple aspects of the daily lived experience, and are integral to how those living with HCV articulate the disease. The implications of this work challenge current HCV policy and clinical practice.

This study identifies coping styles and strategies used by 40 end-stage renal disease patients over 20 years old who receive treatment in a general hospital in Peru. The instruments applied were a personal sociodemographic questionnaire and the Coping Inventory (Carver, Scheier & Weintraub, 1989). Results showed that emotion focused coping were most frequently used followed by problem focused coping. Planning, acceptance and positive reinterpretation-growth coping strategies were more frequently used by these patients, whereas mental disengagement, suppression of competing activities and behavioral disengagement were the less frequently used coping strategies. Other differences between coping styles and strategies and sociodemographic and medical variables were analyzed. / Esta investigación identifica y describe los principales estilos y estrategias de afrontamiento utilizados por un grupo de pacientes diagnosticados con insuficiencia renal crónica terminal. Participaron 40 pacientes mayores de 20 años, aceptados al programa de transplante de riñón del hospital de seguro social. Se utilizaron una encuesta personal y el Inventario sobre Estilos y Estrategias de Afrontamiento (Carver, Scheier & Weintraub, 1989). Los hallazgos indicaron que los estilos enfocados en la emoción fueron utilizados en mayor frecuencia por los participantes, seguidos por los estilos enfocados en el problema. Entre las estrategias de mayor uso se encontraron la planificación, la aceptación y la reinterpretación positiva-crecimiento, mientras que las estrategias de menor uso fueron desentendimiento conductual, supresión de actividades competentes y desentendimiento cognitivo. Se analizaron las posibles diferencias entre los estilos y estrategias de afrontamiento de acuerdo a las condiciones sociodemográficas y médicas de los participantes.

161f. / Submitted by Oliveira Santos Dilzaná (dilznana@yahoo.com.br) on 2013-08-16T13:43:34Z No. of bitstreams: 1 UFBA FINAL.pdf: 4243364 bytes, checksum: 45d2bf1e93a617062188a6130e29661f (MD5) / Approved for entry into archive by Ana Portela(anapoli@ufba.br) on 2013-08-16T18:06:29Z (GMT) No. of bitstreams: 1 UFBA FINAL.pdf: 4243364 bytes, checksum: 45d2bf1e93a617062188a6130e29661f (MD5) / Made available in DSpace on 2013-08-16T18:06:30Z (GMT). No. of bitstreams: 1 UFBA FINAL.pdf: 4243364 bytes, checksum: 45d2bf1e93a617062188a6130e29661f (MD5) Previous issue date: 2010 / Diferentemente do cenário de forte letalidade que marcou o início da epidemia de aids, a sorologia positiva em relação ao HIV tem se caracterizado como uma doença de longa duração, podendo significar para a pessoa portadora a convivência com uma doença de caráter crônico. Tendo como referencial a literatura sócio-antropológica, o presente estudo aborda a experiência de casais com sorologias distintas em relação ao HIV a partir das narrativas de ambos os cônjuges, em uniões formadas anterior ou posteriormente ao conhecimento da sorologia positiva de um deles. Foram entrevistados nove casais usuários de um serviço de Saúde Pública Especializada em DST/HIV/aids, localizado na cidade de Salvador, Ba. A vida cotidiana relatada pelos casais mostra uma diversidade de situações em que o momento de ruptura inicial do diagnóstico e o impacto na vida sócio-afetiva de ambos podem adquirir outros contornos com o passar do tempo, numa busca de acomodação e normalização da relação conjugal. Mesmo vivenciando a rotina de convívio com uma doença crônica e suas implicações, as narrativas aqui explicitadas mostram a especificidade de (con) viver com uma doença como a aids, ainda marcada pelas reações de discriminação e estigma na sociedade. A manutenção do sigilo adquire importância fundamental para o casal, cujos vínculos são mantidos, reforçados ou alterados. O vínculo religioso e a conversão a denominações de cunho pentecostal passaram a ser um suporte fundamental para alguns casais, tanto no que se refere às interpretações acerca do diagnóstico quanto à lida com a doença e ao fortalecimento dos laços conjugais. A complexidade do mundo prático dos atores chama a atenção para um contexto de imprecisão e indeterminação distanciando-nos de perspectivas deterministas acerca da aids e da convivência com o HIV. In comparison to the high death rate linked to the beginning of the AIDS epidemic, HIV seropositivity is today considered a long-term illness, and, as such, carriers can be characterized as living with a chronic illness. Taking socio-anthropological literature as a theoretical base, this work studies the experiences of HIV sero-different couples – based on both partners’ stories – in relationships started before or after they found out that one of them was seropositive. Nine couples were interviewed, all of them clients of a public health service specialized in STD/HIV/AIDS in the city of Salvador, Bahia. Diverse situations within the daily lives of these couples are analyzed, in which the initial rupture caused by the positive diagnosis and the impact this had on the socioaffective live of both spouses are capable of acquiring other meanings with the passage of time, in the search for adaptation and a ‘normal’ conjugal relationship. Despite the ability to construct routines that permit these couples to live with a chronic illness and its impacts, the narratives studied here demonstrate the specificity of living with an illness such as AIDS, still marked by societal discrimination and stigma. Secrecy is of fundamental importance for these couples, as they keep, strengthen or change the bonds between them. Religious ties or conversion to Pentecostal religious denominations became fundamental support systems for some couples, while for others, different interpretations of the diagnosis, the way they deal with the illness and the strengthening of conjugal ties is as important. The complex nature of everyday life of these couples and of society in general draws our attention the imprecision and uncertainty prevalent in this context, thus demonstrating the inadequacy of deterministic theories in relation to AIDS and living with HIV. / Salvador

Radical changes in the senior citizen population have been triggered by the addition of the baby-boomer generation, which drastically increased the growth of this cohort group. A determination of needs for this diverse group of people is necessary for clinical professionals to employ evidence-based practices in the daily provision of services. Purpose: The focus of this study was to measure quality-of-life indicators by concentrating on the association of chronic illness and mental well-being in predicting long-term relationship satisfaction. A sample of older adults were studied in relationship with health and wellness concerns guided by previous research conducted by the Centers for Disease Control and Prevention (CDC, 2011a), and the World Health Organization (1991). Methods: The population selected for this study was older adults participating in outpatient mental health services. A representative sample of 111 participants was used in the statistical analysis of this project. The utilization of the Revised Dyadic Adjustment Scale (Busby, Crane, Larson, & Christensen, 1995) established relationship satisfaction scores among this varied population. Correlation analysis was used to determine the association between seven variables. The factors of interest were: chronic health, chronic pain, mental health acute or chronic, and scores on mental health screenings routinely used in the outpatient mental health clinics included in this study. These variables were broken down in a hierarchical multiple regression model to find out if any factors predicted overall relationship satisfaction. Results: Hierarchical multiple regression analysis delineated an inverse relationship between mental health status (acute or chronic) and degree of overall relationship satisfaction. Chronic health conditions and pain ratings were positively related, however, did not associate negatively with overall relationship satisfaction as hypothesized. Positive relationships were found among the following variables: anxiety ratings and pain-related impairment, increased reports of anxiety with chronic mental health status, and pain ratings with higher risk for suicide. Low correlation coefficient values found throughout the statistical analysis make these findings tentative. Conclusions: The indications of this study confirmed a negative association between chronic mental illness and overall relationship satisfaction scores. This highlights the importance of addressing long-term psychiatric issues as an integral part of working with older adults. Age-related decline creates a functional need for reliance on others complicating satisfaction in intimate partnerships. Mental health practitioners need to be aware of the struggles found among the growing population of older adults to address their treatment and case management needs. Additional research is necessary to determine the indicators of relationship satisfaction impacting quality-of-life among older adults. Key words: quality-of-life, older adults, generational status, chronic illness, chronic pain, mental health, revised dyadic adjustment scale.

Atualmente os profissionais de saúde se confrontam com o cuidar de pacientes com talassemia maior que chegaram à fase adulta, devido ao avanço do conhecimento sobre a doença e dos efeitos das terapêuticas, principalmente da transfusão sangüínea e dos quelantes. A literatura médica destaca a problemática da irregularidade da adesão ao tratamento, pelo paciente, principalmente o da quelação, fundamental para a sua sobrevivência. No presente estudo, a análise dos sentidos dados pelos talassêmicos adultos à sua experiência com o regime terapêutico é o objetivo, desenvolvido pela antropologia médica e método qualitativo. Foi realizado com usuários do Hemocentro de Ribeirão Preto do Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto - USP. Para a coleta de dados foi empregado o relato oral, por entrevistas semi-estruturadas, obtendo-se narrativas sobre a experiência. Participaram do estudo onze adultos jovens, seis do sexo masculino, com idades entre 22 a 32 anos, com níveis educacionais e profissões distintas. As entrevistas foram transcritas e organizadas em textos individuais. Seguimos as etapas da análise temática indutiva para a análise dos dados. Os resultados são discutidos em dois núcleos temáticos: \"O início da doença e do tratamento\" e \"A vida do portador de talassemia com o tratamento\". No primeiro, são descritas as lembranças do início do tratamento. As narrativas demonstram que eles estão bem informados sobre a doença e tratamentos, e que tiveram contato com a morte de familiares com a talassemia. Subjetivamente eles destacam a sua identidade de diferença por terem o traço da doença. No segundo tema, descrevemos o longo itinerário terapêutico vivenciado; o reconhecimento da importância da adesão ao tratamento; as mudanças e adequações dos quelantes usados; a convivência com o estigma social pelas alterações corporais, reações da transfusão e do quelante; as dificuldades em manterem suas funções sociais; os episódios de irregularidade do seguimento terapêutico e suas justificativas. Pelos temas apreendemos que os adultos jovens com talassemia maior sob o regime terapêutico estão resignados com a sua condição, que a doença e tratamentos não os excluem da vida cotidiana, mas estão no centro das suas relações sociais. Para reduzirem o peso do sofrimento e do estigma, eles empregam a estratégia de normalização, elaborada no grupo social. Esta possibilita terem a sensação de ordem da vida, de controle da doença e do tratamento. Assim, as interrupções no tratamento ocorrem pela necessidade de normalização do corpo e da vida, mas que traz conseqüências graves para a sobrevivência. Ao final da discussão, fazemos uma reflexão sobre o conceito médico de adesão confrontado com o de concordância, e suas implicações para o contexto de cuidado com o talassêmico adulto. / Currently health professionals are faced with assisting patients with thalassemia major who reached adulthood, due to the advance of knowledge about the disease and the effects of therapies, especially the blood transfusion and chelation. The literature highlights the problem of irregular treatment adhesion by patients, especially the chelation, essential to their survival. In this study, the analysis of the sense given by thalassemic adults to their experience with the drug regimen is the goal, developed by medical anthropology and qualitative method. It was conducted with patients at the Blood Center of Ribeirão Preto, Hospital das Clínicas da Faculdade de Medicina de Ribeirao Preto - USP. To collect the data it was used oral report, by semi-structured interviews, obtaining narratives about the experience. Eleven young adults, six males, aged 22-32 years, with different educational levels and occupations attended the study. The interviews were transcribed and organized in individual texts. We followed the steps of inductive thematic analysis to analyze the data. The results are discussed in two themes: \"The onset of disease and treatment\" and \"The life of thalassemic patients with treatment.\" In the first one we describe the memories of the beginning of treatment. The narratives show that they are well informed about the disease and treatments, and had contact with the death of a family member with thalassemia. Subjectively they highlight the difference of their identity by having the disease trait. In the second theme, we describe the long-lived therapeutic itinerary; the recognition of the importance of adhering to the treatment; changes and adaptations of the chelating agents used; the social stigma of living with the body changes; adverse effects of transfusion and chelation; the difficulties in maintaining their social functions; episodes of irregularity in following therapeutic treatment and its justifications. Through the themes we could observe that young adults with thalassemia major under the therapeutic regimen are resigned to their condition, that the disease and treatment do not exclude them from everyday life, but are in the center of their social relations. To reduce the suffering and stigma, they employ the normalization strategy, elaborated in the social group. This enables them to have a sense of order in life, of disease and treatment control. Thus, disruptions in treatment occur by the need for normalization of body and life, but that brings severe consequences for survival. At the end of the discussion, we reflect on the medical concept of adhesion confronting with the agreement and its implications for the care context with the thalassemic adult.

Made available in DSpace on 2016-12-23T14:38:01Z (GMT). No. of bitstreams: 1 Bruno Eduardo Silva Ferreira.pdf: 588395 bytes, checksum: bb13be526e96ae76f8890bdf5103c4e8 (MD5) Previous issue date: 2006-05-26 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior / Este trabalho teve por objetivo descrever e analisar certos aspectos das amizades de adolescentes acometidos por diabetes mellitus e câncer. Os aspectos da amizade trabalhados foram: a) histórico da relação, b) companheirismo e reciprocidade, c) comunicação, auto-revelação e intimidade, d) apoio social, e) conflito e f) expectativas e conceito de amigo. Doze participantes foram entrevistados e divididos em dois grupos, sendo três pessoas com diabetes e seus três melhores amigos, e três pessoas que tiveram câncer e seus três melhores amigos. Os resultados apontam para uma relação específica, similar às amizades de adolescentes que não sofrem de uma doença crônica em alguns aspectos, mas que difere destes relacionamentos em outros. A comunicação entre as díades é afetada, de modo que a auto-revelação de conteúdos íntimos é diminuída, e as conversações acerca de conteúdos ligados à enfermidade também são evitadas pelos participantes. O apoio social dado a este adolescente, por outro lado, é consideravelmente aumentado, fato que altera a reciprocidade, base das relações de amizade. Tais fatos chamam a atenção para o fato de que as amizades vão muito além do apoio social (largamente investigado no Brasil e no mundo), e dimensões como intimidade e companheirismo, entre outras, também estão presentes e desempenham papéis de destacada importância para a vida do adolescente. / This research aimed at describing and analyzing some features of the friendships of adolescents with diabetes mellitus and cancer. The features investigated were: a) relationship history, b) companionship and reciprocity, c) communication, self-disclosure and intimacy, d) social support, e) conflict, and f) expectations and concept of friend. Twelve participants were interviewed and divided into two groups: three participants with diabetes and their three best friends, and three participants who had cancer and their three best friends. The results point to a specific relationship, similar to friendships of people who have not a chronic disease in some features, but different in others. The communication between the dyads is affected, leading to a decrease in the self-disclosure, and talking about subjects linked to the disease is avoided by the participants too. The social support given to the adolescent, on the other hand, clearly increases, and it changes the reciprocity, base of friendship relations. Such facts call attention to the fact that friendships are much more than social support (broadly investigated in Brazil and around the world), and dimensions as intimacy and companionship, among others, are also present, and play an important role in adolescents life.

Este estudo teve como objetivo identificar as representações sociais de profissionais de saúde da área de diabetes mellitus sobre aspectos emocionais de pacientes adultos com diabetes mellitus. Trata-se de uma pesquisa descritiva, exploratória, de abordagem qualitativa, cujo referencial teórico adotado foi a teoria das representações sociais. Participaram do estudo 11 profissionais de saúde, de nível superior, sendo cinco enfermeiras, três psicólogos, uma médica, um educador físico e uma nutricionista, oriundos de instituições públicas e consultórios particulares. A coleta de dados ocorreu no período de março de 2012 a maio de 2012. Para tanto, utilizaram-se um formulário: contendo os dados sociodemográficos dos profissionais de saúde e um roteiro de entrevista semiestruturada, com a seguinte questão norteadora: Quais os significados que você, como profissional de saúde, atribui aos aspectos emocionais relacionados ao diabetes mellitus? Os dados foram submetidos à técnica de análise de conteúdo, utilizando-se o software ATLAS.ti - versão 6.2.27, que possibilitou identificar seis categorias: O paciente deve ser considerado em seus aspectos emocionais e comportamentais; Os aspectos emocionais do paciente suscitam uma atitude refratária ao tratamento; A contenção dos impulsos emocionais por parte do paciente favorece o controle da doença; O profissional não dá conta de lidar com os aspectos emocionais do paciente mobilizados pelo tratamento; O profissional reconhece a importância de compreender os aspectos emocionais do paciente em relação ao tratamento, vislumbrando potencialidades do paciente para incorporar as mudanças; Os aspectos emocionais do paciente, relacionados ao tratamento, têm altos e baixos, avanços e recuos. Os resultados mostraram que, nas representações que os profissionais elaboram sobre os aspectos emocionais, os pacientes com diabetes são representados como revoltados, rebeldes e relutantes, aqueles que \"dão rasteira\" nos profissionais e cumprem apenas parte do tratamento. Os depoimentos sugerem que os profissionais de saúde ainda estão pouco capacitados para o cuidado com o paciente com diabetes quanto aos aspectos emocionais mobilizados pelo tratamento. Apesar de o \"caminho do medo\" ser visto como complicado, também é considerado como aquele que leva à obtenção da mudança de hábitos que podem favorecer o bom controle metabólico. As representações dos profissionais também levam em consideração a possibilidade de desenvolver o potencial do paciente para incorporar possíveis mudanças de comportamento em seus aspectos emocionais, o que pode gerar benefícios para o controle da doença. Por fim, os depoimentos configuram uma representação social dos pacientes com diabetes como apresentando altos e baixos, recuos e avanços, no decorrer do tratamento. Conclui-se que as representações sociais dos profissionais de saúde não se limitam a apontar os aspectos emocionais intrínsecos ao paciente que constituem barreiras ao seguimento do plano terapêutico, mas também remetem à importância da relação estabelecida entre profissional de saúde e paciente. Salientam a dificuldade do profissional em entrar em contato com os aspectos emocionais do paciente, em decorrência das repercussões afetivas que estes mobilizam no próprio profissional. Isso mostra a necessidade de investir na qualificação dos profissionais na atenção em diabetes. / This study was aimed at identifying the social representations of health professionals working with diabetes mellitus about emotional aspects of adult diabetes mellitus patients. A descriptive and exploratory study was undertaken with a qualitative approach. Social Representations theory was adopted as the theoretical framework. The study participants were 11 health professionals with a higher education degree, including five nurses, three psychologists, one physician, one physical educator and one nutritionist, working at public institutions and private clinics. Data were collected between March and May 2012. Therefore, a form was used with the health professionals\' sociodemographic data, as well as a semistructured interview script, based on the following guiding questions: What meanings do you, as a health professional, attribute to the emotional aspects related to diabetes mellitus? The data were processed with the help of the content analysis technique, using the software ATLAS.ti - version 6.2.27, which permitted the identification of six categories: Patients should be considered in their emotional and behavioral aspects; Patients\' emotional aspects arouse a refractory attitude towards treatment; Patients\' containment of emotional impulses favors disease control: Professionals are unable to cope with the patients\' emotional aspects mobilized by the treatment; Professionals acknowledge the importance of understanding patients\' emotional aspects with regard to the treatment, envisaging their potential to incorporate changes; Patients\' emotional aspects related to the treatment come with ups and downs, advances and relapses. The results showed that, in the representations the professionals elaborate about the emotional aspects, diabetes patients are represented as revolted, rebellious and reluctant, patients who attempt to deceive the professionals and only comply with part of the treatment. The testimonies suggest that the health professionals still lack training for care delivery to diabetes patients regarding the emotional aspects the treatment mobilizes. Although the \"route of fear\" is considered complicated, it is also considered as the course that leads to the achievement of changed habits that can favor good metabolic control. The professionals\' representations also take into account the possibility of developing the patients\' potential to incorporate possible behavioral changes in their emotional aspects, which can entail benefits to control the disease. Finally, the testimonies reveal a social representation of diabetes patients as experiencing ups and downs, relapses and advances during the treatment. It is concluded that the health professionals\' social representations are not limited to the indication of intrinsic emotional aspects that represent barriers for compliance with the therapeutic plan, but also relate to the importance of the relation established between health professionals and patients. They highlight the professionals\' difficulty to get in touch with the patients\' emotional aspects, due to the affective repercussions these cause in the former. This reveals the need to invest in health professionals\' qualification for diabetes care.

This thesis aims to understand the connexions between the ethical practices associated with suffering a chronic illness and possibilities of truth, subjectivity, governmentality and freedom. This is attempted via an analysis of the specific case of HIV/AIDS. In the 1980s there emerged a variety of competing ways to construct the truth of HIV/AIDS. By the early 1990s, however, one particular way of thinking about and problematizing the syndrome - an account which reflected less the repressive intentions and perspectives of recently ascendant neo-liberal governments than the efforts and world-views of grass-roots community activism - had achieved ascendancy. This approach to HIV/AIDS remains today the authoritative one, and that from which expertise on the subject is derived. The emergence to pre-eminence of this way of thinking about HIV/AIDS is mapped, and three of its principal manifestations are examined in detail, using techniques of textual analysis. It is argued that within these texts, through the use of various forms of textual management, ethical subject relations of the sort discussed by Foucault are constructed, which delimit the possibilities of being for those who are touched by the disease, and which comprise elements of an ethico-panoptic regulatory technology. The parallels and differences between the technologies of government articulated via these 'community' based discourses and those of recent neo-liberal discourses are explored, with consideration being given to their implications for the practising of resistance and of freedom by people infected or affected by HIV or AIDS. Engagement with the field in this fashion is uncommon within sociology of HIV/AIDS, and to do so raises a variety of conceptual and methodological issues. Hence, within this thesis the task of interrogating HIV/AIDS discourse is radically linked to the construction of a distinct form of sociology, derived from the Foucauldian project of the 'history of the present'.

Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.