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Postoj ke smrti a psychická zátěž sester na odděleních se zvýšeným rizikem úmrtí. / Attitude toward death and psychical stress of nurses at work stations with an increased risk of death.VONEŠOVÁ, Petra January 2013 (has links)
The diploma thesis deals with the issue of dying and death within the job of a nurse. Nurses very often see dying and death. Death rate also depends on type of the ward. A healthy person usually does not think about death, but being ill one is uncertain and starts to ask many questions, which may also include questions about dying and death. Meeting a dying person is psychically demanding for the medical staff as well as for the family, friends and the dearest. The medical workers are expected to be professional and empathic. It is a question if the nurses are prepared to face the death and if they can cope with the physical and psychical stress. Long-term excessive psychical stress may result in numerous diseases. A nurse must know how to avoid such negative impacts. The theoretic part of the thesis describes the present status, explains specificities of palliative treatment within intensive care, within care for chronically ill patients and in paediatrics, it specifies attitudes and their functions in connection with difficult life situations. Furthermore, the theoretical part deals with psychical stress imposed on nurses in connection with dying and rules of communication in a multi-disciplinary team within palliative care. There are four objectives of the thesis. The first objective is to find out whether nurses feel ready to meet death after finishing qualification studies. Another objective is to find out whether death rate in the workplace affects psychical stress imposed on the nurses and their attitude to death. The third objective is to find out whether the nurses think that the information and experience gained during studies affected their attitude to death and professional skills of care for dying patients. The research part made use of quantitative research. Data collection was made through anonymous questionnaires. Respondents answered 35 questions. Out of that, 17 questions were closed and 18 questions were semi-closed. The research survey was completed with statistical survey. Nurses, who work in wards with higher risk of death, were contacted. We have made up four hypotheses. H1: Nurses? attitude to death depends on the level of education was not confirmed. The results of research and statistic survey showed that there is no difference in attitude in connection with the level of education reached. H2: Nurses? attitude to death depends on experience with death in personal life was not confirmed either. The respondents? answer showed that their attitude to death is mostly influences by experienced acquired in practice. H3: Death rate reduces psychical stress of nurses, was confimed. The respondents said they had still the same feelings and at most they answered that they did not feel anything, or they did not think about their feelings and they consider the death to be a part of their occupation. H4: Subjective readiness of nurses to meet death does not depend on finishing of qualification studies, but it depends on exeprience acquired in practice. The last hypothesis was confirmed by research and statistic survey, as well. The research and tests of hypothesis have revealed that sufficient attention has not been paid to the issue of care for dying patients within studies. Nurses acquire their experience mostly in practice. Furthermore, the survey showed that it is an important thing to teach the nurses to communicate effectively and to feel empathy. The conclusion, that nurses are more stressed with conflicts at the workplace, bad inter-personnel relationships, low wages than with care for dying patients, is alarming . Thus the labour force is wasted unnecessarily and it is obvious that the occupation of a nurse has not been appreciated properly, yet. Such factors influence quality of the work done and may cause the burn-out syndrome.
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A Qualitative Analysis of End-of-Life Healthcare in Tennessee: Politics, Principles, and PerceptionsMauck, Erin 01 December 2020 (has links)
The unprecedented growth of the aging population in Tennessee is a significant demographic trend that highlights the necessity for healthcare policy that tackles end-of-life issues. This study examined the perceived quality of end-of-life healthcare in Tennessee, areas that are in need of improvement, policies that have the potential to influence improvements, and the role of politics in end-of-life healthcare policy. It also assessed the support for end-of-life healthcare policy that would advance quality of care and expand end-of-life choices for Tennesseans, while evaluating the policy-making process that legislators employ.
For this study, data were collected using semi-structured, in-depth interviews with an open interview guide. These interviews were conducted in a two-tiered format. Tier 1 included ten leading experts in various areas of end-of-life healthcare and aging in Tennessee. Tier 2 included nine legislators who were members of the health committees of either the Tennessee House of Representatives or the Tennessee Senate. Qualitative data were organized into numerous categories, and an initial phase of open coding was completed. From this phase of coding, emergent themes and focuses were discovered. This was followed by focused coding on all nineteen interviews using coding software to organize subtleties.
Findings of the Tier 1 interviews indicated that there are many areas of end-of-life healthcare that need improvement including increased funding, expanded caregiver support, improved doctor-patient communication, and increased use of advance directives. Emergent themes included the influence of money, having difficult conversations, the stigma of death and dying, and supporting the caregiver. Tier 2 findings highlighted the motivations behind voting decisions and the level of awareness legislators have in areas of end-of-life healthcare policy. Both tiers also explored the support and opposition of physician-assisted death.
The findings of this dissertation are intended to inform health professionals and state legislators. The data gathered through this exploratory research and the knowledge gained will lead to a greater understanding of end-of-life healthcare in Tennessee, and what needs to be done to improve its quality. This will allow individuals and families faced with end-of-life decisions to navigate the process with expanded options, access, and support.
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Grief Lives Online: An Empirical Study of Kübler-Ross' Categories of Bereavement on MySpace ProfilesMalenkovich, Ilona Yurivna 04 October 2013 (has links)
With the widespread use of the Internet, grief has been extended in its representation. Specifically, social networking sites, like MySpace, have turned grief presentation from private expressions into public displays of mourning. This study utilizes the theoretical foundations of the grief presentation process of Kübler-Ross' (1969) five categories of bereavement (denial, anger, bargaining, depression and acceptance) to determine whether the grief presentation process is present in an online setting. In this study, the researcher conducted an empirical investigation of 4,931 comments, resulting in 22,263 bereavement themes outlined by Kübler-Ross, which were condensed into 2,288 time-point comparisons posted to 140 MySpace profiles of users who have passed-on. Results revealed noteworthy practices surrounding grief presentation on the MySpace profiles of the deceased. Specifically, bereaved commenters post a significantly greater number of bereavement narratives in the first three months post-mortem as opposed to months four through six. Additionally, race and sex of the deceased, as well as sex of the bereaved, did not prove to be mitigating factors in online grief presentation. Moreover, across observed races and sexes, the bereavement category of acceptance was found most often, followed by depression, denial, anger, and bargaining. Findings suggest that post-mortem commenting behavior blends current memorializing practices while also extending the space for communication and grief presentation. Additional implications for understanding grief communication on MySpace and future directions for research conclude this study.
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Sterben erzählenNeufeld, Anna Katharina 11 February 2022 (has links)
Seit einigen Jahre fällt eine Fülle an verschiedenen multimedialen Veröffentlichungen zum Thema Sterben auf, die einen Zusammenhang von Sterben und Erzählen offensichtlich machen, den ich in dieser Arbeit näher erforscht habe. Das Erzählen als eine kulturelle Praktik übernimmt in den von mir untersuchten Veröffentlichungen die Funktion einer ästhetisch-ethischen Sorge und kann als Form zeitgenössischer Sterbekunst betrachtet werden. Es eröffnet einen Raum für ethisches Handeln, um die eigene Haltung zum Sterbeprozess zu eruieren, um diesen selbstbestimmt zu gestalten und abschließend ästhetisch als ein ‚gutes Sterben‘ zu formulieren.
Die Fülle der verschiedenen Veröffentlichungen zum Thema Sterben – von diaristischen Selbstreflexionen über fiktionale Sterbenarrative hin zu populärwissenschaftlichen Publikationen von Palliativmediziner*innen – drückt sich sowohl in der Wahl verschiedener Medien als auch in den unterschiedlichen Perspektiven auf den Sterbeprozess aus. Ich spreche demzufolge von einer Polyphonie, die sowohl Sterbende als auch diejenigen zu Wort kommen lässt, die Sterbende begleiten. Die Polyphonie hebt im Bachtin’schen Sinne nicht nur die Bedeutung der ‚Anderen‘ hervor, sondern bringt auch ‚fremde Stimmen‘ zu Gehör. So werden Uneindeutigkeiten, Asymmetrien oder auch Sehnsüchte formulierbar, die Sterbeprozesse heute maßgeblich bestimmen und nicht zuletzt in den ethischen Debatten zu Sterbebegleitung/-hilfe evident werden. Die Polyphonie öffnet dabei im besonderen Maße den Blick auf die Pflege, die so eine neue Sichtbarkeit erfährt. Die Veröffentlichungen artikulieren nämlich verschiedene Formen der Sorge, die nicht nur die konkreten Maßnahmen von Sterbebegleitung und/oder Sterbehilfe meinen. Vielmehr wird auch eine im Foucault‘schen Sinne Idee der Selbstsorge formuliert. Das polyphone Erzählen artikuliert demnach einen Raum der Sorge selbst, in dem Sterben als Form der Gemeinschaftung und Solidarität zwischen Sterblichen erscheint. / Recent years have seen an abundance of varied publications about dying, manifesting the relationship between dying and narration. In my work I argue that in these publications, narrating as a cultural practice articulates an aesthetic-ethical concern to communicate the process of dying not only from a dying person’s perspective but also from that of those accompanying death. Thus, these narratives of dying can be seen as a contemporary form of an “art of dying.” The act of narrating opens up a space for ethical transactions in which one’s own position toward the process of dying can be plumbed; in turn, one is able to determine one’s own process of dying and, finally, aesthetically formulate the process as a “good death.”
Today’s plethora of publications on dying – from diaristic self-reflections to fictional narratives to popular scientific publications by doctors in the field of palliative medicine – not only manifest the many types of media in which the narratives are formulated but also convey the many perspectives on the process of dying itself. I therefore speak of a polyphony, which raises the voices of those dying and of those accompanying a dying person. This polyphony accentuates the importance of the “other” and elevates “outsider voices.” The narratives articulate the ambiguities and asymmetries, but also desires, that largely shape dying today and that become evident in the ethical debates about euthanasia and assisted suicide.
Contemporary narratives of dying show that the idea of care is of great importance today. Care, however, is articulated not only in questions of how the dying can be cared for — in the sense of palliative care or assisted suicide — but also in the Foucauldian sense of “care for the self,” meaning self-awareness and concern about oneself. To this extent, these polyphonic narratives articulate a space of concern and care, in which the process of dying requires and builds community and becomes a form of solidarity between mortals.
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Ritualized Futility via Clinical Momentum at the End of Life in the Intensive Care Unit:An Ethical Inquiry into Moral Distress in Nurses as a Response to a Culturally MediatedHealthcare System FailureMcClure, Anne Carey 02 October 2020 (has links)
No description available.
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A study of the integration of health promotion principles and practice in palliative care organisationsRosenberg, John Patrick January 2007 (has links)
The modern hospice movement emerged in the 1960s as a grassroots social movement that attempted to restore an holistic and contextualised approach to the care of people at the end of life. This approach embraced the lived experience of the dying person at the centre of care across physical, emotional, social and spiritual domains of life. To achieve this, the care of dying people was largely removed from mainstream health care systems to promote more holistic and socially contextualised dying. In recent decades, the evolution of palliative care demonstrates the gradual return of palliative care services to the mainstream. It has been asserted that, in this process, palliative care services have progressively abandoned the social context of dying people, increasing instead an emphasis on "physical care [while] simultaneously de-emphasizing psychological, social and spiritual care" (Kellehear, 1999a, p.76). Kellehear and others have proposed that the repositioning of palliative care within mainstream health care systems has increased a focus upon illness and disease at the expense of health and wellbeing. Subsequently, conventional palliative care services have been criticised for not adequately locating end of life care within the social contexts in which death and dying take place. In an attempt to address this problem, Australian sociologist Allan Kellehear proposed an approach to end of life care that brought together the core concerns of palliative care with the principles and practices of health promotion (Kellehear, 1999b). Whilst their congruence is not immediately apparent, these two fields have been increasingly examined for their potential benefits in the provision of end of life care. In the current policy climate in Australia, there is an imperative to consider how end of life support services might be improved through adopting a health promoting palliative care approach. The aim of this study has been to investigate the integration of health promotion principles and practice by a selected palliative care service by examining the qualitative impact of this change on the organisation. Specifically, it endeavoured to identify the factors that advanced or impeded this integration by examining how the structures and processes of, and outcomes for, the organisation reflected a health promoting approach. To meet these aims, this study undertook an in-depth examination of the implementation of a health promoting palliative care model by a community based palliative care organisation. Based in a constructionist-interpretivist paradigm, a mixed-method (QUAL+quant), instrumental case study research design was utilised to capture multiple perspectives of the implementation process. Data collection comprised examination of 127 organisational documents, 32 in-depth interviews with staff, volunteers and consumers, 5 focus groups with staff and volunteers, and 25 carer questionnaires. Qualitative data were subject to thematic analysis, with supplementary quantitative data analysed to generate descriptive statistics. The findings demonstrated a large number of complex and interrelated enabling and impeding factors to the implementation in the case study site. These factors have been grouped into four key themes which have been examined in light of the aims of this study and the issues identified in a comprehensive review of the literature. This study found that: ◦ Conceptual congruence between health promotion and palliative care was a fundamental starting point in the implementation of a health promoting palliative care model. ◦ Where conceptual congruence was clear, activities associated with the model that were regarded as beyond conventional approaches to palliative care core business were viewed favourably by stakeholders and were less likely to encounter resistance within the organisation. ◦ When systematic approaches to organisational change, such as quality improvement systems, were rigorously applied, the impact of the transition upon stakeholders was qualitatively less. ◦ Where this transition had been effectively made, consumers, staff, volunteers and members of the wider community were seen to benefit. This study adds to the current discourse regarding the intersection between end of life support and health promotion, and provides insight into how palliative care organisations might undertake the transition from conventional models to a health promoting palliative care approach.
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Umírání jako příběh (několik řešení) / Dying as a story (several solutions)Kloudová, Daniela January 2017 (has links)
The dissertation aims at showing the differences in dealing with the death issue in characteristic works of art of both Czech and world literature. Above all, it pursues the comparison of two novels Život střídá smrt ("Life Becomes Death") by Petr Prouza and Nebe nemá dno ("Heaven is Bottomless") by Hana Andronikova. Both unique books belong to key Czech novels with the topic of death. Moreover, both of them deal with death from the point of personal experience, which means they are strongly autobiographical. The dissertation concentrates on creative processes and topical aspects, grasps autobiographical elements of both novels and all the identities and differences in the approach to the same topic. Therefore, the dissertation is devoted to listing the works of art dealing with death, further on to the analyses, interpretation and comparison of the novels Život střídá smrt ("Life Becomes Death") and Nebe nemá dno ("Heaven is Bottomless") together with the reflexion of reader's experience.
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Posmrtný život dat: analýza vývoje přístupu sociálních sítí k posmrtným datům uživatelů / Afterlife of digital user data: analysis of evolution of posthumous data policies on social mediaFléglová, Radka January 2021 (has links)
This diploma thesis focuses on the topic of posthumous user data management concerning social media platforms. This topic is rarely discussed from the viewpoint of new media studies in academic literature. My thesis endeavours to unveil, contextualize, and critically assess the development of the posthumous data policies in order to uncover the level of control users and survivors have over the deceased users' data. Thus, three case studies of chronological posthumous policy development of major social media (Facebook, Twitter, and LinkedIn) were conducted and results were compared. The analysis has shown that platforms are rather reluctant to change their posthumous policies. One of the primary triggers for change comes from the users' feedback. Across all three cases every platform provided limited or no information about these policies in their terms of use or privacy policies. The case studies demonstrated that users have very limited choices regarding their data after death directly on the examined social media platforms. Individuals who were close to the deceased account users have the ability to request account deletion or have limited access to the account granted by the platform. The level of data preservation demanded by platforms seems dependent on a given social media's communication specificity...
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Posmrtný život dat: analýza vývoje přístupu sociálních sítí k posmrtným datům uživatelů / Afterlife of digital user data: analysis of evolution of posthumous data policies on social mediaFléglová, Radka January 2021 (has links)
This diploma thesis focuses on the topic of posthumous user data management concerning social media platforms. This topic is rarely discussed from the viewpoint of new media studies in academic literature. My thesis endeavours to unveil, contextualize, and critically assess the development of the posthumous data policies in order to uncover the level of control users and survivors have over the deceased users' data. Thus, three case studies of chronological posthumous policy development of major social media (Facebook, Twitter, and LinkedIn) were conducted and results were compared. The analysis has shown that platforms are rather reluctant to change their posthumous policies. One of the primary triggers for change comes from the users' feedback. Across all three cases every platform provided limited or no information about these policies in their terms of use or privacy policies. The case studies demonstrated that users have very limited choices regarding their data after death directly on the examined social media platforms. Individuals who were close to the deceased account users have the ability to request account deletion or have limited access to the account granted by the platform. The level of data preservation demanded by platforms seems dependent on a given social media's communication specificity...
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A grave affair : on the possibilities of loneliness among the dead and the dying : capitalism, hegemony, and the experience of death in western societiesCôté, Camille 04 1900 (has links)
The dead have a lot to say, but in the fast-paced context of ultra-capitalist societies, who has the time to listen? If social sciences and societies have depicted death in the West as denied, the dying as abandoned and the dead as forgotten, then how do we reconcile this dark portrait with the importance of The End in the stories of our lives? One cannot help but wonder: what kind of relationships do westerners truly foster with death? This study proposes a new reading of the practices and beliefs surrounding death in contemporary western societies by questioning the pessimistic death theories of the 20th century. The investigation raises two concerns, namely the possibility of an increased sense of loneliness among the dead and the dying, and the effects of technology and consumer lifestyles on alienating the aging and dying from the living. Drawing on Gramscian and Foucauldian theory on the concept of hegemony, the study combines historical and ethnographic data related to the domination of institutions and industries over death in the urbanized societies of Canada, France, the United States and England. To uncover the deeper hegemonic processes that shape the experience of death in the 21st century, the study goes back in time and retraces the changes that have occurred around death under different regimes. From the Early Middle Ages to the late capitalist era, the reader is brought on a journey across the changing landscape of death by means of 70 annotated illustrations which invite us to reflect on a central question, namely, what makes death a grave affair? Beginning with a sociohistorical analysis of the rise of individualism as linked to the disenchantment of death in the West, followed by an experiential ethnography of silence in one of North America’s largest sepulchral space—Montreal’s Mount Royal and Notre-Dame-des-Neiges cemeteries, the journey ends with an investigation of the affairs related to the commodification of death and aging in North America. The results of the study show that the possibilities of loneliness among the dead and the dying are not more significant today than they were in the past. The current landscape of death rather attests to an abundance of intentions which seek to highlight the importance of caring for and commemorating loved ones. What this finding reveals, is that western societies harbour misconceptions that undermine the complexity, richness and continuity of the bonds which keep the living and the dead engaged in a meaningful relationship that, we shall see, affords more possibilities than ends. / Les morts ont sans doute beaucoup à dire, mais dans le contexte effréné des sociétés ultracapitalistes, qui donc a le temps de les écouter ? Si, de prime abord, sciences sociales et sociétés dépeignent la mort en Occident contemporain comme étant niée, les défunts oubliés et les mourants délaissés, ce piètre portrait ne reflète pourtant pas l’importance que l’on attribue généralement à toute fin. À cet égard, nous serions en droit de nous demander ce qu’il en est vraiment de la relation des Occidentaux à ce destin inéluctable. Cette étude propose une nouvelle lecture des pratiques et perspectives entourant la mort dans les sociétés occidentales contemporaines en remettant en cause les théories pessimistes de la mort issues du 20e siècle. Deux enjeux sont soulevés, le premier concerne la possibilité d’une solitude accrue chez les morts et les mourants ; et le deuxième vise à comprendre si et comment diverses forces individualisantes du capitalisme — telles que la technologie ou la surconsommation — auraient contribuées à les isoler du vivant. Avec l’éclairage qu’apportent Gramsci et Foucault sur la notion d’hégémonie, la recherche met en dialogue diverses données ethnographiques et historiques relatives à la domination des industries et des institutions de la mort dans les sociétés urbanisées du Canada, de la France, des États-Unis et de l’Angleterre. Afin de comprendre les dynamiques qui sous-tendent l’expérience de la mort au 21e siècle, l’étude remonte dans le temps et retrace les changements qui se sont produits autour de la Grande faucheuse sous différents régimes. Du christianisme médiéval jusqu’à l’ère capitaliste, le lecteur est invité à parcourir 70 illustrations annotées — voyage qui l’incite à se pencher sur une question principale, à savoir, qu’est-ce qui fait de la mort une grave affaire ? Débutant par une analyse sociohistorique sur la montée de l’individualisme en Occident comme étant liée à un désenchantement envers la mort, suivie d’une ethnographie expérientielle du silence dans l’un des plus grands sites funéraires d’Amérique du Nord — les cimetières Mont-Royal et Notre-Dame-des-Neiges de Montréal, le parcours se termine par une enquête sur la marchandisation du vieillissement et de la mort en Amérique du Nord. Les résultats de l’étude révèlent que la solitude des morts et des mourants n’est pas plus grande aujourd’hui que dans le passé. Qui plus est, le paysage actuel de la fin de vie atteste d’un foisonnement d’intentionnalités qui visent à souligner l’importance de prendre soin des êtres chers et de les commémorer. L’approche anthropologique de ce mémoire démontre que les sociétés occidentales entretiennent des préjugés qui masquent la complexité, la richesse et la continuité des liens que tisse l’imaginaire entre morts et vivants — une co-construction qui, on le verra, ouvre plus de possibilités qu’elle ne scelle de fins.
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