Background. While the provision of respite care is a well-known strategy for supporting caregivers of persons with dementia (PWD), it is still unclear what influences its use by caregivers. Objective. To explore respite care use through the lens of a hopes and expectations framework. Methods. Six caregivers of PWD took part in one semi-structured interview. A phenomenological approach to data collection and analysis was employed. Results. The data showed that caregivers still felt burdened despite utilizing respite care. Hopes and expectations for the PWD tended to converge for all caregivers, yet diverged depending whether they were considering impact on themselves or the PWD, and whether they had used respite care or not. Conclusion. Preliminary data suggests that respite care services may need to focus more on helping caregivers. The framework of hopes and expectations is useful for exploring the use or non-use of respite.

<p>Syftet var att undersöka livsmål hos yngre män och kvinnor (20-30 år) utifrån ett autobiografiskt minnesperspektiv. Mätinstrumentet bestod av en enkät med tio frågor baserade på tidigare forskning. Resultatet visade på få skillnader mellan män och kvinnor gällande mål utifrån ett autobiografiskt perspektiv. Skillnaderna var att kvinnor generade fler mål än män i målkategorierna ekonomi och nära relationer inom tidsperspektivet 1 år framåt i tiden samt i målkategorierna nära relationer och hälsa inom tidsramen 5-10 år framåt i tiden. Inom tidsramen 1 år bakåt genererade kvinnor fler mål än män, i målkategorin socialt liv. Kvinnorna angav återigen fler mål än männen, men i målkategorin hälsa, inom tidsramen 5-10 år bakåt i tiden. Ingen signifikant skillnad fanns mellan könen gällande grad av målinriktning. Respondenternas åsikter (oberoende av kön) angående hur stor kontroll de har över sina mål (1 år framåt respektive 5-10 år framåt) samt hur sannolikt de tror att det är att dessa mål kommer att inträffa, visade på signifikanta skillnader mellan de olika tidsperspektiven samt måltyperna (minst vs. mest sannolikt att de inträffar).</p> / <p>The aim was to investigate the life goals of young men and women (20-30 years) from an autobiographical memory approach. The measuring instrument consisted of a survey of ten questions based on previous research. The results indicated few differences between men’s and women’s goals from an autobiographical perspective. However, women compared to men generated more economy and close relationships related goal in a 1 year forward time perspective, and close relationships and health related goals in a time frame of 5-10 years ahead. In the time frame of 1 year back in time, women generated more social life goals than did men, and in the time frame of 5-10 years back in time women generated more health goals than did men. No significant difference between the sexes was found concerning level of goal-orientation. The views of the respondents (gender-independent) concerning level of goal control (1 year ahead, 5-10 years ahead), and their views of the probability of goal-fulfillment indicated significant differences between the time perspectives and types of goals.</p>

Syftet var att undersöka livsmål hos yngre män och kvinnor (20-30 år) utifrån ett autobiografiskt minnesperspektiv. Mätinstrumentet bestod av en enkät med tio frågor baserade på tidigare forskning. Resultatet visade på få skillnader mellan män och kvinnor gällande mål utifrån ett autobiografiskt perspektiv. Skillnaderna var att kvinnor generade fler mål än män i målkategorierna ekonomi och nära relationer inom tidsperspektivet 1 år framåt i tiden samt i målkategorierna nära relationer och hälsa inom tidsramen 5-10 år framåt i tiden. Inom tidsramen 1 år bakåt genererade kvinnor fler mål än män, i målkategorin socialt liv. Kvinnorna angav återigen fler mål än männen, men i målkategorin hälsa, inom tidsramen 5-10 år bakåt i tiden. Ingen signifikant skillnad fanns mellan könen gällande grad av målinriktning. Respondenternas åsikter (oberoende av kön) angående hur stor kontroll de har över sina mål (1 år framåt respektive 5-10 år framåt) samt hur sannolikt de tror att det är att dessa mål kommer att inträffa, visade på signifikanta skillnader mellan de olika tidsperspektiven samt måltyperna (minst vs. mest sannolikt att de inträffar). / The aim was to investigate the life goals of young men and women (20-30 years) from an autobiographical memory approach. The measuring instrument consisted of a survey of ten questions based on previous research. The results indicated few differences between men’s and women’s goals from an autobiographical perspective. However, women compared to men generated more economy and close relationships related goal in a 1 year forward time perspective, and close relationships and health related goals in a time frame of 5-10 years ahead. In the time frame of 1 year back in time, women generated more social life goals than did men, and in the time frame of 5-10 years back in time women generated more health goals than did men. No significant difference between the sexes was found concerning level of goal-orientation. The views of the respondents (gender-independent) concerning level of goal control (1 year ahead, 5-10 years ahead), and their views of the probability of goal-fulfillment indicated significant differences between the time perspectives and types of goals.

Made available in DSpace on 2016-04-29T13:31:15Z (GMT). No. of bitstreams: 1 Thiago Ribeiro de Freitas.pdf: 1278257 bytes, checksum: ecda955fb1630a845acf64bfa86a15b4 (MD5) Previous issue date: 2015-03-12 / Fundação de Amparo a Pesquisa do Estado de São Paulo / The central objective of this research is to investigate why people decide to participate in experimental therapeutic procedures that involve risks and a considerable degree of uncertainty. The main argument rests on the fact that in the case of the decision to participate or not these treatments, people negotiate possible ambivalence between hope of a cure or a significant improvement and a wariness of uncertainties and risks within this context . The study was conducted in the unidade de Transplante de Medula Óssea do Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto . The site was chosen to be a reference for autologous stem cell transplantation for the treatment of autoimmune diseases in Brazil. To achieve the objectives proposed in the thesis the researcher based in part on different sources of information: observations, interviews, conversations and documents that allowed a discussion on the nodes present in the decision, that is, on the aspects involved in the decision of participation in the clinical trial with bone marrow transplantation / O objetivo central desta pesquisa consiste em investigar por que as pessoas decidem participar de procedimentos terapêuticos experimentais que envolvem riscos e um considerável grau de incerteza. O argumento principal assenta-se no fato de que, no processo da decisão de participar ou não destes tratamentos, as pessoas negociam possíveis ambivalências entre a esperança de uma cura ou de uma melhora significativa e a cautela diante das incertezas e dos riscos presentes neste contexto. O estudo foi realizado na unidade de Transplante de Medula Óssea do Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto. O local foi escolhido por ser uma referência em transplantes autólogos de células-tronco para o tratamento de doenças autoimunes no Brasil. Para alcançar os objetivos propostos na Tese o pesquisador se embasou em distintas fontes de informação: observações, entrevistas, conversas e documentos, que permitiram discutir sobre os nós presentes na decisão, isto é, sobre os aspectos envolvidos na deliberação da participação no ensaio clínico com transplante de medula óssea

The following research investigates the use of computation during the academic life of students enrolled in the undegraduate courses of education and special education at the School of Education, Federal University of Santa Maria. Its main goal was to analyse the wishes and hopes expressed by those students about the use of computation. In order to attain the above mentioned target we tried to understand the reasons which were driving students to use the resources of the School of Education Computation Laboratory (LINCE). By so doing we would know which applications and Internet tools students most utilize during their academic course. In the sequence we tried to identify the possible influences computation may exert in the future student's professional life in order to verify how they are searching for knowledge through the Internet. In this way the investigation can be labeled as a descriptive study with qualitative approach, of phenomenologic nature, and being typified as a case study. This methodologic proposal turned it possible for us to participate, undestand and interpret the attitudes and the activities developed by students at the Computation Lab. Took part of the present research six pupils of the sixth, seventh and eighth semesters of the undergaduate courses located at the School of Education. It was verified that all of them have very poor experiences respecting computing resources but even though these are enough to supply their academic needs, such as processing texts and do searchs through the Internet. Thus it was possible to ascertain, throughout the research, that students have a significant interest in exploring the technical resources of computation at their disposal in the Computation Lab but ignore the literature about this subject. At the same time they show a striking hope to insert these instruments in classroom work, even if they are conscious of not being ready to develop activities together with their future pupils at the schools computation laboratories. Given this reality, it is necessary to change curricula of teachers' educating courses in their own structure: a change that gives a new definition to the role of a teacher facing computing resources and helps in driving the teaching-learning process to emphasize the use of computers within the school environment. We believe that this lack lived by students of licensing courses during their academic life does not have its sources in the pure utilization of a technical resource but in actions not preceded by the necessary discussion of all the community of the School of Education about limits and possibilities for education of information technology / A presente investigação versa sobre a utilização da informática durante a trajetória acadêmica dos alunos dos Cursos de Licenciatura em Educação Especial e Pedagogia do Centro de Educação da Universidade Federal de Santa Maria. Esta pesquisa teve o intuito de analisar os anseios e as expectativas que os alunos apresentam em relação à utilização da informática. Para alcançar este objetivo, buscamos compreender as razões que levaram os alunos a utilizar o Laboratório de Informática do Centro de Educação/LINCE, de modo a conhecer quais os programas, aplicativos e recursos da Internet que estão utilizando durante sua caminhada acadêmica. Tentamos, a partir disso, identificar as possíveis influências que a Informática pode exercer na vida profissional desses alunos, a fim de verificar como eles estão buscando o conhecimento a partir da Internet. Neste sentido, esta investigação caracterizou-se como um estudo descritivo de abordagem qualitativa, de natureza fenomenológica e do tipo estudo de caso. Esta proposta metodológica nos possibilitou participar, compreender e interpretar as atitudes e as atividades realizadas pelos alunos nas dependências do Laboratório. Os sujeitos que fizeram parte deste estudo foram seis alunos do sexto, sétimo e oitavo semestres dos cursos de licenciatura do Centro de Educação. Verificamos que esses sujeitos possuem uma trajetória acadêmica bastante carente em termos de vivências e experiências com os recursos tecnológicos informáticos, mas que vêm desempenhando suas necessidades acadêmicas básicas, como a digitação de trabalhos e pesquisas na Internet. Assim, foi possível constatar, ao longo desta investigação, que os alunos têm um interesse muito grande em explorar os recursos tecnológicos informáticos no Laboratório de Informática, mas desconhecem as literaturas a respeito desta temática. Ao mesmo tempo, revelam uma expectativa bastante acentuada em trabalhar com esses recursos em sala de aula, ao passo que grande parte dos sujeitos consideram-se despreparados para desenvolver atividades com seus futuros alunos no Laboratório de Informática da escola. Frente a essa realidade, faz-se necessário uma modificação estrutural nos currículos dos cursos de formação de professores, necessitando-se redefinir o papel do professor frente aos recursos informáticos, de forma que passe a auxiliar e conduzir o processo de ensino e aprendizagem dos alunos em formação no que tange à utilização do computador no ambiente escolar. Acreditamos que esta carência vivenciada pelos alunos de licenciatura durante sua trajetória acadêmica não seja proveniente da utilização dos recursos tecnológicos informáticos, mas sim, fruto de ações não precedidas de uma discussão com a comunidade do Centro de Educação sobre seus limites e possibilidades, para a área educacional, dos recursos acima mencionados

The main goal of this research has been to investigate elderly people's needs, perceptions, fears, hopes, and expectation regarding elderly care, including ethical issues linked to assistive technologies. As faith seems to take an important place in how some elders face the aging process, the spiritual dimension was also included. Therefore, the research was conducted among 15 church congregants. Results show that most respondents fear the physical and mental decay due to aging, often resulting in becoming a burden to someone else, along with abandonment and lack of financial resources. Most ethnic groups perceive that other cultures take better care of their elders than their own. Faith seems to offer a great support, as it gives the confidence that divine power will always be there for them even beyond death. The respondents in this research suggest that guidance should be provided in a more structured way, more focus should go on the youth and the elderly, more activities should be organized and practical information should be shared. Regarding the ethical issues of assistive technologies, they are not well informed about their possibilities but acknowledge their potential usefulness, combined with human care. They don't want technology to be too intrusive in their daily life, but they are willing to sacrifice (part of) their privacy for more (medical) safety. There is a general concern that the access to qualitative care would be depending on financial resources.