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Showing 51 to 59 of 59 (0.047 seconds)Spelling suggestions: "subject:"informal are"" "subject:"informal care""
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L'aide informelle apportée aux personnes jeunes atteintes de handicap neurologique : analyse économique de quatre modèles neuro-pathologiques / Informal care in neurodisability : an economic analysis in four neuropathological modelsBayen, Eléonore 26 June 2015 (has links)
L’objet de cette thèse est de réaliser une analyse économique du champ de l’aide informelle des personnes adultes jeunes vivant à domicile et atteintes de maladie neurologique grave. La question de recherche posée concerne l’articulation entre l’organisation de l’aide informelle et la cinétique de la pathologie neurologique. La méthodologie repose sur la construction de quatre modèles neuro-pathologiques et économiques d’une part, et sur la constitution de quatre cohortes représentatives, comportant chacune une centaine de binômes « aidant-aidés » d’autre part. Ainsi, les modèles de la pathologie brutale avec handicap résiduel stabilisé, de la pathologie progressive avec handicap croissant, de la pathologie à cinétique déficitaire rapide, de la pathologie dégénérative héréditaire sont-ils respectivement illustrés par le traumatisme crânien, la sclérose en plaques, la tumeur cérébrale et la maladie de Huntington. Nos travaux (1) mettent en évidence les caractéristiques sur le plan économique des aidants informels (conjoints jeunes) qui sont fortement impliqués dans la production du soin, experts d’un accompagnement complexe et déstabilisés dans leur trajectoire professionnelle (2) font la démonstration de la prédétermination forte de la cinétique de la pathologie neurologique sur les comportements d’aide informelle à travers différents indicateurs temporels dont la prise en compte s’avère incontournable pour l’analyse économique (3) montrent la nécessité d’avoir recours à une mesure bidimensionnelle (subjective et objective) dans l’analyse du fardeau des aidants informels. Une telle mesure souligne d’une part l’insuffisance du recours à l’aide professionnelle publique et d’autre part l’impact sur les aidants des troubles cognitivo-comportementaux (handicap invisible) et de la phase neuro-palliative à domicile d’une pathologie neurologique grave. Ces résultats ouvrent des perspectives pour la mise en place de mesures d’action publiques en France dans le champ complexe du handicap neurologique. / The purpose of this thesis is to achieve an economic analysis of informal caregiving of young adults living at home and suffering from a severe neurological disease. The research questions the relationship between the organization of informal care and kinetics of neurological pathology. The methodology is based on the construction of four neuro-pathological and economic models on the one hand, and on the constitution of four representative cohorts, each with a hundred pairs of "patients-caregivers" on the other. Thus, models of brutal disease stabilized with residual disability, progressive disease with increasing disability, fast kinetics disease and neuro-degenerative hereditary disease are respectively illustrated by traumatic brain injury, multiple sclerosis, malignant brain tumor and Huntington's Disease. Our work (1) highlights the economic characteristics of informal caregivers (young spouses) who are highly involved in the production of care, expert of complex care and therapeutic pathways and destabilized in their professional careers (2) demonstrates that the kinetics of neurological disease predicts the economic behavior of informal caregivers : taking account of different time indicators is crucial for economic analysis in neurodisability (3) shows that a two-dimensional subjective and objective outcome measure is necessary in the analysis of the burden of informal caregivers. Such a double indicator first stresses the inadequate use of publicly funded professional care ; it also points out the impact of cognitive-behavioral disorders (so-called “invisible disability”) and of the home neuro-palliative phase on caregivers in case of a severe neurological disease. These results open perspectives for the development of public action measures in France in the complex field of neurological disability.
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The characteristics, attitudes and perceptions of informal caregivers caring for a mentally ill family member : a study in DenniltonMnisi, Daphney Martha Abigail 11 1900 (has links)
This study was undertaken to identify the biographical characteristics, attitudes and perceptions of informal family care-givers caring for patients with mental illness in Dennilton. Data were gathered from 48 care-givers by using a cross-sectional survey approach in which structured questionnaires were completed. The results revealed that a sizeable proportion of the care-givers were 60 years and older. Only 10% were employed and a quarter married, suggesting that the care burden influenced their life choices. Many care-givers were mothers or female family members. Half of the patients cared for suffered from depression. Violent, aggressive behaviour was reported as a symptom that care-givers found difficult to deal with. Less than half of the care-givers reported that the patients accepted their health situation. / Sociology / M.A. Soc.
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Developing approaches to measure dependency across different domains of need in later life : an exploration of the relationship between need and care receipt using the English Longitudinal Study of AgeingSanders, Robert John January 2016 (has links)
This thesis explores the relationship between the needs people experience in later life and the types of care they receive. The thesis provides evidence on the role of different types of care in supporting the needs of people aged 60+ in England using the English Longitudinal Study of Ageing (ELSA). The research presented adopts a number of new approaches to capturing the multi-dimensional nature of dependency by utilising a range of binary indicators of difficulty performing 10 actions related to upper and lower body mobility, 6 activities of daily living (ADL) and 7 instrumental activities of daily living (IADL). The thesis provides a detailed analysis of the prevalence of these items when considered independently and collectively in combination. A central aim of the research is to develop a more nuanced understanding of dependency to allow for the dimensionality of the needs experienced by older people living in their own homes to be considered. The thesis utilizes a number of different approaches, including simple binary and count-based indicators of need and more complex measures reflecting dependency across different domains of need. These approaches allow a more dynamic picture of dependency in later life to be considered. Using these measures, the research explores the role of different types of care in meeting different types of need. Of these, a unique application of an existing assessment tool is presented, the Indicator of Relative Need (IoRN), which is used as a framework to derive an equivalent measure – the Array of Need (AoN). Given the aim of the study is to investigate the multi-dimensional nature of dependency, various data reduction approaches are used including principal components analysis. Finally, research from similar studies is acknowledged and work from the Survey of Health, Ageing and Retirement in Europe (SHARE) study is reproduced using ELSA. The thesis suggests that when considering the dependency needs experienced by older people living in the community, it is important to be aware that this group includes both less and more dependent older people. As such, developing a better understanding of the dynamic relationship between dependency and the receipt of informal and formal care may require more suitable measurements of dependency.
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Vliv péče o nesoběstačného seniora na vztahy mezi rodinnými příslušníky / The influence of elderly care for dependent senior to the relationsships among family membersKonrádová, Kateřina January 2012 (has links)
This paper deals with the relationships between family members in a later stage of the family life-cycle, parents have lost their full self-sufficiency. Adult children support their parents, interaction is frequent and this situation often leads to relocation. The basic question of this study is how these circumstances affects a relations between family members and especially intergenerational relationships between adult children and their parents. The paper is mainly based on the concept of ambivalence and the model of intergenerational solidarity. The research conducted in Czech Republic is a further important background. Data from the research titled "Family Cohesion in the Elderly Care" are analyzed. This research is implemented under the guidance of Prof. PhDr.Hynek Jerabek, CSc. and has a qualitative and quantitative part. Author uses the concepts such as conflict, ambivalence and affectual solidarity to describe intergenerational relationships. The conclusion is that intergenerational relationships in families are characterized by a very strong emotional bond, although high degree of conflict and negative emotion also appeared.
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Neformální péče o osoby se zdravotním postižením v České republice. / The Informal Care for People with Disabilities in the Czech RepublicHošťálková, Jitka January 2014 (has links)
This diploma thesis deals with the system of the informal long-term care for people with disabilities in the Czech Republic. The first aim of the diploma thesis is to describe this non-conceptually solved issue and confirm the European prevalent tendencies to refamilization and deinstitutionalization in the Czech Republic. Author tries to identify the main problems within the system of informal long-term care through interviews conducted with informal carers and workers from selected social services. The diploma thesis emphasizes the target population of informal carers, who face many obstacles, whether it is the cooperation between the systems of formal and informal care, lack of finances, deterioration of quality of life or insufficient recognition of the status of informal carers from the society and the state. Informal carers are presented on the basis of theoretical perspectives as well as the results of conducted research as the invisible stakeholders of the Czech public policy.
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Information behaviour in health-care of home-based elderly people in Nakuru District, KenyaKhayesi, Marie K. (Marie Khanyanji) 07 1900 (has links)
This study investigated access and use of information in the health-care of home-based elderly people
(EPs) in Nakuru District, Kenya. The literature review revealed a gap with respect to information
behaviour in health-care of EPs in a development context. The researcher used qualitative methods;
with exploratory and descriptive research design because the focus of the study was on the littleknown
and socially disadvantaged community of EPs in Nakuru District. Respondents were sampled
by using the snowball technique. At the end of an interview session, each respondent was encouraged
to nominate someone who either shared the same or had different experiences, views, socio-economic
levels and gender. The researcher collected data through face-to-face interviews with EPs, informal
care providers (ICPs) and formal health-care providers (FHCPs), in order to gain insight of
information behaviour in health-care of EPs, by focusing on aspects of information needs; sources;
use of information and factors that influence the respective groups of respondents to access and use
health-care information health-care of EPs. The findings showed that the respective groups of
respondents had similar as well as diversified needs for information for health-care. The groups used
both formal and informal sources of information and channels of communication to access
information for health-care, with FHCPs using authoritative sources more than the EPs and ICPs.
Factors such as being a professional or a lay person, cost, ease of accessibility, availability of sources
and channels of communication, time and trustworthiness of a source or channel of communication
determined preference for use of information. The major contribution of the study is to the theory
about information behaviour: some EPs and ICPs used CAM services without informing FHCPs,
thereby revealing a form of concealed information use behaviour (CIUB). / Information Science / D. Litt. et Phil. (Information Science)
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Health, informal care and labour market outcomes in EuropeGarcía Gómez, Pilar 02 July 2008 (has links)
Esta tesis contribuye a la literatura analizando los efectos causales que el estado de salud tiene sobre la participación laboral en la población en edad de trabajar. De este modo, analiza los efectos que un deterioro en el estado de salud tiene sobre la participación laboral del individuo, así como los efectos de proveer cuidados informales sobre la participación laboral femenina. El primer capítulo utiliza una aproximación empírica homogénea en nueve países europeos, lo que hace posible relacionar las diferencias encontradas con diferencias en el contexto institucional. El segundo capítulo analiza el papel que juega el estado de salud en las transiciones hacia y fuera del empleo. Los resultados muestran que el estado de salud general afecta simétricamente las entradas y salidas del empleo, mientras que cambios en el estado de salud mental sólo influyen el riesgo de abandonar el empleo. El tercer capítulo examina los efectos de varios tipos de cuidados informales en el comportamiento laboral femenino. Los resultados sugieren que los costes de oportunidad laborales aparecen en aquellas mujeres que conviven con la persona dependiente, al mismo tiempo que los efectos negativos surgen cuando se proveen cuidados informales por un período superior al año. / This thesis aims to contribute to the literature with an attempt to identify the causal effects of health on labour market outcomes in the working-age population. I analyse the effects of the onset of a health shock on the individuals' labour market outcomes, and also the effects of caregiving on female labour participation. The first chapter uses a homogeneous empirical framework to estimate the first set of effects on nine European countries, which allows me to relate the empirical estimates to differences in social security arrangements across these countries. The second chapter analyses the role of health in exits out of and entries into employment and the results show that general health affects symmetrically entries into and exits out of employment, but changes in mental health status influence only the hazard of non-employment for the stock sample of workers. The third chapter examines the effects of various types of informal care on female labour behaviour and the results suggest the existence of labour opportunity costs for those women who live with the dependent person they care for, and the negative effects appear when caregiving for more than a year.
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Information behaviour in health-care of home-based elderly people in Nakuru District, KenyaKhayesi, Marie K. (Marie Khanyanji) 07 1900 (has links)
This study investigated access and use of information in the health-care of home-based elderly people
(EPs) in Nakuru District, Kenya. The literature review revealed a gap with respect to information
behaviour in health-care of EPs in a development context. The researcher used qualitative methods;
with exploratory and descriptive research design because the focus of the study was on the littleknown
and socially disadvantaged community of EPs in Nakuru District. Respondents were sampled
by using the snowball technique. At the end of an interview session, each respondent was encouraged
to nominate someone who either shared the same or had different experiences, views, socio-economic
levels and gender. The researcher collected data through face-to-face interviews with EPs, informal
care providers (ICPs) and formal health-care providers (FHCPs), in order to gain insight of
information behaviour in health-care of EPs, by focusing on aspects of information needs; sources;
use of information and factors that influence the respective groups of respondents to access and use
health-care information health-care of EPs. The findings showed that the respective groups of
respondents had similar as well as diversified needs for information for health-care. The groups used
both formal and informal sources of information and channels of communication to access
information for health-care, with FHCPs using authoritative sources more than the EPs and ICPs.
Factors such as being a professional or a lay person, cost, ease of accessibility, availability of sources
and channels of communication, time and trustworthiness of a source or channel of communication
determined preference for use of information. The major contribution of the study is to the theory
about information behaviour: some EPs and ICPs used CAM services without informing FHCPs,
thereby revealing a form of concealed information use behaviour (CIUB). / Information Science / D. Litt. et Phil. (Information Science)
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Ontario’s Home First Approach, Care Transitions, and the Provision of Care: The Perspectives of Home First Clients and Their Family CaregiversEnglish, Christine 23 May 2013 (has links)
Home First is an Ontario transition management approach that attempts to reduce the pressure on hospital and Long Term Care (LTC) beds through early discharge planning, the provision of timely and appropriate home care, and the delay of LTC placement. The purpose of this qualitative descriptive study was to obtain descriptions from South Eastern Ontario Home First clients and their family caregivers of their experiences with and thoughts about care transitions, the provision of care, and the Home First approach. The goal was to enable insight into the Home First approach, care transitions, and the provision of care through access to the perspectives of study participants. Nine semi structured interviews (and one or more follow-up calls for each interview) with Home First clients discharged from hospitals in South East Ontario and their family caregivers were conducted and their content analyzed.
All participating Home First clients were pleased to be home from hospital and did not consider LTC placement a positive option. All had family involved with their care and used a mix of formal and informal services to meet their care needs. Four general themes were identified: (a) maintaining independence while responding (or not) to risks, (b) constraints on care provision, (c) communication is key, and (d) relationship matters.
Although all Home First clients participating in the study were discharged home successfully, a sense of partnership between health care providers, families, and clients was often lacking. The Home First approach may be successfully addressing hospital alternative level of care issues and getting people home where they want to be, but it is also putting increasing demands on formal and informal community caregivers. There is room for improvement in how well their needs and those of care recipients are being met. Health professionals and policy makers must ask caregivers and recipients about their concerns and provide them with appropriate resources and information if they want them to become true partners on the care team. / Thesis (Master, Rehabilitation Science) -- Queen's University, 2013-05-23 16:10:53.323
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