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SOCIAL DETERMINANTS OF HEALTH AND HEALTH BELIEFS AMONG AFRICAN AMERICAN WOMEN WITH CHRONIC HEALTH CONDITIONS AND THEIR DECISIONS TO PARTICIPATE IN GENETIC RESEARCHHarmon, Carolyn Wilma 06 July 2010 (has links)
No description available.
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Research Participation Decision-Making Among Youth and Parents of Youth with Chronic Health Conditions: A DissertationPagano-Therrien, Jesica 11 April 2016 (has links)
The purpose and aims of this qualitative descriptive study were to describe how past experiences with research (including communication, information, values and support) may contribute to research fatigue among youth and parents of youth with HIV, CF, and T1D. Eighteen parents and youth were purposively recruited from outpatient subspecialty clinics at a major academic medical center. They took part in qualitative interviews, completed a demographics form, and the Decisional Conflict Scale. Youth participants also completed the Erikson Psychosocial Stage Inventory. Two major themes emerged: blurred lines and hope for the future. Research fatigue was not found in this sample. Results point to challenges with informed consent in settings where research and clinical care are integrated, and suggest that protective factors allow for continued participation without excess burden on youth and parents. Strategies to minimize research fatigue and support engagement in research are offered.
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Relationships Among Trait Mindfulness, Self-Compassion, and Compassion Fatigue in Mental Health Professionals Working with Clients with a Terminal IllnessAiguier, Christen 11 May 2023 (has links)
No description available.
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