Law, Wai Yan. / Thesis (M.Phil.)--Chinese University of Hong Kong, 2010. / Includes bibliographical references (leaves 83-92). / Abstracts in English and Chinese. / ABSTRACT --- p.I / 論文摘要 --- p.II / TABLE OF CONTENTS --- p.III / Chapter CHAPTER 1 --- INTRODUCTION --- p.1 / Chapter CHAPTER 2 --- LISA SOWLE CAHILL´ةS THEOLOGICAL BACKGROUND --- p.5 / Chapter 2.1 --- Introduction --- p.5 / Chapter 2.2 --- Cahill´ةs theological approach to Christian Ethics --- p.5 / Chapter 2.2.1 --- Catholicism --- p.6 / Chapter 2.2.2 --- Feminism --- p.9 / Chapter 2.2.3 --- Theological Anthropology --- p.16 / Chapter 2.3 --- Moral Methodology --- p.21 / Chapter 2.3.1 --- The Bible --- p.21 / Chapter 2.3.2 --- Tradition --- p.22 / Chapter 2.3.3 --- Normative Accounts of the Human --- p.24 / Chapter 2.3.4 --- Descriptive Accounts of the Human --- p.25 / Chapter 2.4 --- Conclusion --- p.26 / Chapter CHAPTER 3 --- LISA SOWLE CAHILL´ةS PARTICIPATORY THEOLOGICAL BIOETHICS --- p.28 / Chapter 3.1 --- Introduction --- p.28 / Chapter 3.2 --- Cahill´ةs Participatory Theological Bioethics --- p.28 / Chapter 3.2.1 --- Principle of Analysis --- p.29 / Chapter 3.2.1.1 --- Ordinary and Extraordinary means of life support --- p.30 / Chapter 3.2.1.2 --- Principle of double effect --- p.31 / Chapter 3.2.2 --- The common good and bioethics --- p.34 / Chapter 3.2.3 --- Theological bioethics and Social Transformation --- p.38 / Chapter 3.2.4 --- Summary --- p.40 / Chapter 3.3 --- Evaluation and Dialogue with Cahill´ةs Participatory Theological Bioethics --- p.41 / Chapter 3.3.1 --- Catholicism --- p.41 / Chapter 3.3.2 --- Feminism --- p.42 / Chapter 3.3.3 --- Common Good --- p.44 / Chapter 3.4 --- Conclusion --- p.46 / Chapter CHAPTER 4 --- END-OF-LIFE CARE IN HONG KONG --- p.47 / Chapter 4.1 --- Introduction --- p.47 / Chapter 4.2 --- End-of-life care in Hong Kong --- p.48 / Chapter 4.2.1 --- Decline and dying in Hong Kong --- p.48 / Chapter 4.2.2 --- Ethical judgments by the health care professions --- p.50 / Chapter 4.2.3 --- Advance directive --- p.54 / Chapter 4.2.4 --- Patients or family´ةs participation --- p.54 / Chapter 4.2.5 --- Chinese culture and Bioethics --- p.56 / Chapter 4.3 --- Christianity engagement in the end-of-life care in Hong Kong --- p.59 / Chapter 4.3.1 --- Christian communities --- p.59 / Chapter 4.3.2 --- Theology bioethics --- p.60 / Chapter 4.4 --- Conclusion --- p.61 / Chapter CHAPTER 5 --- PARTICIPATORY THEOLOGICAL BIOETHICS IN HONG KONG --- p.63 / Chapter 5.1 --- Introduction --- p.63 / Chapter 5.2 --- The significance and relevance of Participatory Theological Bioethics --- p.63 / Chapter 5.2.1 --- Both individual and social ethics --- p.64 / Chapter 5.2.1.1 --- Who is/are the poor? --- p.64 / Chapter 5.2.1.2 --- Inequalities in access to end-of-life care --- p.66 / Chapter 5.2.1.3 --- Medical paternalism --- p.71 / Chapter 5.2.2 --- Transcendent meanings of life --- p.73 / Chapter 5.3 --- INTERCULTURAL DIALOGUE OF PARTICIPATORY THEOLOGICAL BIOETHICS --- p.74 / Chapter 5.3.1 --- Familial relationship as a starting point --- p.75 / Chapter 5.3.2 --- Interpretation of ´بParticipatory´ة --- p.76 / Chapter 5.4 --- Conclusion --- p.80 / Chapter CHAPTER 6 --- CONCLUSION --- p.81 / BIBLIOGRAPHY --- p.83

Assent, currently defined as “a child’s affirmative agreement”, is a way in which some children are included in the decision-making process regarding their participation in clinical research. Current guidelines for paediatric research do not provide clear directions for how assent should be handled, resulting in confusion among researchers. The goal of this research project was two-fold: to examine the ethical arguments for assent with a view to developing concrete moral justification for its being required, and to develop a framework of significant issues for an investigator to consider when deciding whether to gain assent from an individual child. After an in-depth analysis, it was determined that the ethical justification for assent arises from the researcher’s dual obligations to the child and his parents. A child’s parents are responsible for determining when and how he will develop his decision-making ability. The researcher has an obligation to engage with the child in a manner that complements their pedagogical style, while also treating the child as a being of moral worth. As a child’s family context has an influence on his participation in medical decision-making, further research on children’s daily decision-making within their families is needed. To this end, a three-phase research agenda was designed: a qualitative focus group study, a quantitative questionnaire study, and a discussion panel with paediatric experts. The children in these studies clearly desired to make decisions but did not express an interest in having complete control. They expected their parents to provide them with decision-making guidance in most aspects of their lives. Data collected from parents illustrated that they often tried to involve their children in decisions by providing them with limited options from which to choose and encouraging family discussion. Participants in the discussion panel stated that they did not expect children to make an independent decision regarding medical care, but they might attempt to give children smaller decisions, such as the arm used to provide a blood sample. These results indicate that the definition of assent should be revised, emphasising the child’s involvement in the overall decision making process, without an expectation of an “affirmative agreement”, likely mimicking a familiar decision-making setting from his family context. This could then be documented in the child’s clinical notes through a brief description of all relevant interactions and/or discussions with the child, resulting in an accurate portrayal of the entire assent process.

L’objectif principal de cette thèse était de caractériser et d’analyser la présence sociale dans la / les transition(s) de femmes brésiliennes de classes aisées à la maternité, au Brésil, en France, au Portugal et en Suèdedans des années récentes. L'objectif final était de contribuer à la déconstruction du modèle hégémonique de la «bonne maternité» au Brésil, établi à partir des expériences de femmes brésiliennes blanches de la classe moyenne.en. En tant que stratégie méthodologique, elle a mis l’accent sur les expériences de présence des mères brésiliennes, en utilisant la communication par ordinateur et trois méthodes en parallèle: une recherche documentaire de rapports de travail de recherches sur la santé périnatale et les politiques familiales des institutions nationales et internationales, des entretiens biographiques et enregistrement des journaux quotidiens; les trois méthodes sont articulés dans une perspective phénoménologique. Ainsi, à partir de mon travail de terrain, j’ai cherché, comme une dérive en spirale, comment certaines rhétoriques morales associées aux normes de genre, de classe et de race sont reproduites par des mères privilégiées en transition maternelle. Au-delà de ce processus de reproduction de la représentation hégémonique de la maternité, j’ai également constaté des hésitations et des mises en oeuvre éthique de ces femmes vis-à-vis des mères marginalisées telles que les femmes racialisées, célibataires et pauvres. Enfin, cette thèse développe la manière dont l’éthique du care découle des relations parentales quotidiennes et aussi comment l'intensification de la présence sociale est importante pour la promotion de cette éthique au-delà du travail genré. / The main objective of this thesis was characterizing and analysing social presence in the transition(s) of Brazilian women from privileged classes to motherhood, in Brazil, France, Portugal and Sweden, inrecent years. As a final goal, it intended to contribute to de-construct the hegemonic model of ―good motherhood in Brazil, which is established from the experiences of middle-class white Brazilian wom-en. As methodological strategy, it focused on Brazilian mothers‘ experiences of presences, using Computer-Mediated Communication and three methods in parallel: a documentary research on official re-ports of perinatal health and family policies, biographical interviews and recording of daily diaries, articulated through a phenomenological perspective. Therefore, in my fieldwork I searched, in a spiral drift-ing, how certain moral rhetorics associated to gender, class and racial norms are reproduced by privileged mothers in maternal transitions. Beyond of this process of reproducing hegemonic representation of motherhood, I also found generating hesitations and ethical enactment among these women towards marginalized mothers such as racialized, single and poor ones. Finally, this thesis discusses how care ethics raise from daily parental relationships and how improving responsive social presence is quite significant for the promotion of such ethics beyond of feminine care work.

Thesis (Ph.D. in Nursing) -- University of Colorado Denver, 2008. / Typescript. Includes bibliographical references (leaves 151-159). Free to UCD Anschutz Medical Campus. Online version available via ProQuest Digital Dissertations;

This thesis explores the roles that medicine, human rights discourse, and the arts play in the project to improve the lives of patients suffering from severe forms of mental illness in the context of the post-socialist transformation of the Czech Republic. It is a study of the ways in which social solidarity and social exclusion intersect in the spaces of mental illness in a particular historical setting, and how the responsibility for care is negotiated between families, communities, the medical profession, and the state. The first part of the thesis focuses on the proposed reform of care for patients with severe mental illness that was put forward in the two decades after 1989. I examine the origins and aims of the attempted institutional change – the ‘humanization of psychiatry’ – in the context of the influential Charter 77 movement which demanded respect for the rights of those who are unable to claim them for themselves. I also trace how the re-establishment of a civil society that owed much to the concept of ‘apolitical politics’ and the process of the reintegration of Czech Republic into the European community impacted the attempted reforms. More than twenty years after the revolution, Czech Psychiatry still does not comply with international standards of care and, as I show, despite the explicit disclaimer with the totalitarian past and great hopes for change, there is in fact a clear continuation of many of the practices, ideas, interactions, as well as forms of governance of the preceding decades. These historical legacies, in combination with other factors, such as ideological disagreements within the psychiatric profession, a lack of political interest in this area, and a strong focus on other economic priorities have all contributed to the failure to improve mental health care. The second part of the thesis offers a complementary perspective on these processes – a view from ‘inside’ of the institutions that provide psychiatric care. The origins of institutional care in Central Europe date back to late nineteenth century, when large hospitals were built within parks as self-sufficient complexes surrounded by walls, outside of large cities. My research took place in two contrasting institutions: one a highly specialised clinical and research center for treatment of acute conditions, and the other a hospital for treatment of chronic conditions originally devoted to those with ‘incurable’ conditions. I show how the notion of ‘curability’ is a crucial factor in both the experience of the patients and the social responses to their conditions. In this part I also explore some epistemological issues in psychiatry, including knowledge, practices, and ideology, in the context of a strong scientific materialism where – unlike in many parts of the world – the tradition of psychoanalysis has been absent. Specifically, I examine the role of neurobiological paradigm in various interpretations of psychotic experience, its affect on patient’s self-understanding, and its role in the externalization of agency and responsibility. Finally I address the phenomenon of using ‘unclaimed bodies’ of psychiatric patients for anatomical teaching and research, and interpret this practice through notions of liminality, impurity, and sacrifice. I conclude the thesis by examining the ethical dimension of psychiatric care in the light of the writings by Emmanuel Lévinas.

Em um novo tempo, em que o mundo passa por profundas transformações, discorrer sobre a ética, em âmbito geral, e a ética a partir dos gestores que são condutores organizacionais, é de grande importância pela proposta de reflexão dos valores numa era globalizada marcada pela competitividade mercadológica no campo da administração. O presente estudo teve como objetivo geral investigar se o perfil ético do gestor tem influência no ambiente onde está inserido. De acordo com os objetivos delineados, este estudo define-se como uma pesquisa qualitativa do tipo exploratória, participante e descritiva, uma vez que deseja aprofundar-se na temática levantada, visando proporcionar maior familiaridade com o problema, com vistas a torná-lo mais explícito. Por estar restrita a análise ética a partir do exemplo do gestor em um grupo de empresas de um município do interior da Bahia, trata-se de um estudo de caso. Desta forma, a metodologia de investigação proposta refere-se à pesquisa qualitativa com suporte de entrevista semiestruturada com o gestor, versando sobre a influência dos princípios da Ética do Cuidar na atuação profissional do gestor moderno, cujo instrumento de investigação dos dados coletados foi à análise de conteúdo de Bardin à luz da Teoria das Representações Sociais. Verificou-se, na pesquisa, a importância do perfil e atuação ética do gestor, e sua influência no ambiente organizacional interno e externo, visto que as entidades significativas na existência da empresa tendem a olhar para os gestores como modelos de comportamento. O estudo apresenta ainda o desafio do gestor moderno em vencer as diversas provocações impostas pelas mudanças ocorridas no mundo globalizado, considerando a responsabilidade socioambiental que é originária de uma postura ética. / In a time when the world is experiencing deep transformations to talk about ethic in a general sense and ethic that starts from the managerial point of view which is the organizational conductor, it is highly important by the proposed reflection of the values in a globalized era characterized by the competitiveness marketing in the field of administration. The general objective of this study is to investigate if the ethical profile of the manager have influence in the environment where is inserted. According to the mentioned objectives this study is defined as a qualitative investigation such as exploratory seeking to consider a better understanding of the problem in order to make it more precise. For the reason that the ethical analysis be restricted in the example of a manager in a company grou located in a state of Bahia, this is a case study. Therefore, the proposed investigative methodology refers to the qualitative study with the support of the semi- structure interview of the manager speaking about the influence of the principles of the Care Ethic in the professional dealings of the modern manager which the investigative instrument of collected data went for Bardin analisis of the content in the light of the Theory of Social Representations. It was identified in this study the importance of the profile and ethic role of the manager and his influence in the internal and external organizational environment since that the relevant entities in the existence of the company tends to look to the managers as role models. The study also presents the challenge of the modern manager to overcome the many situations imposed by the changes in the trends of the globalized world considering the responsibilities of the socio-environment which is originated by the ethical standard.

The dissertation attempts to do two things: First, to move political theory and philosophy from a humancentric to an ecocentric worldview. This entails thinking about justice and equality—and hence about reciprocity, solidarity, and cooperation—in both ecological and social terms. Second, I argue that the shared conditions of interdependency and vulnerability allow us to bridge the gap between the social and the ecological, and thus to reconnect politics with nature. As little attention has been paid to ecology and sustainability in democratic theory, my work’s ambition is to demonstrate the transformative potential of a relational ethics that is not only concerned with human animals, but also with the multiplicity of beings that inhabit the earth, and the relations in which they are enmeshed. The purpose is to think about ways of cultivating and fostering the kinds of relations that are needed to maintain human and more than human diversity, and therefore to sustain life on earth. In order to accomplish this task, I begin by critically examining the scholarship on pluralism and diversity, and by pressing the limits of the prevailing frameworks within which these themes are generally approached. The argument I attempt to put forward is that most of the literature bounds the scope of diversity and plurality to the worlds of human animals, which constrains our understanding of difference and why it matters. Such scholarship remains largely confined to phenomena such as culture, religion, and legal authority at the collective level, as well as to epistemic diversity at the individual level. These forms of diversity and plurality are not only exclusively concerned with humans, but they are also underpinned by a problematic conception of human animality. As feminism, care ethics, disability studies (among other critical approaches) have shown, much theorizing about reasoning, dialogue, collective action, and other fundamental concepts in democratic theory were conceived in the image of the Enlightenment man, and hence in opposition to embodiment, affectivity, and empathy. Moreover, political theory in general, and democratic theory in particular, have been built on a presumption of able-bodiedness and able-mindedness that excludes many forms of being human from political participation. And it is my contention that reflecting critically on our own condition of human animality—and on the ways in which it has been portrayed in political thought until relatively recently—will inevitably prompt us to reconsider the relations we entertain with each other and with more than human forms of life on earth. / Graduate

No description available.

Yes / Research with prisoners’ families is limited in the context of learning difficulties/disabilities (LD) and autism spectrum. Life-story interviews with mothers reveal an extended period of emotional and practical care labour, as the continuous engagement with their son’s education and experiences of physical and emotional abuse are explored. Prior to their son’s incarceration, mothers spoke of stigma and barriers to support throughout their childrearing, as well as limited or absent preventative/positive care practices. Subsequently prisons and locked wards seem to feature as a progression. Mothers have experienced abuse; physical and/or emotional, as well as lives that convey accounts of failure. Not their failure, but that of the systems. A care ethics model of disability assists an analysis of the narratives where care-less spaces are identified. Interrelated experiences merging emotional responses to extended mothering, the external forces of disabilism and destructive systems, lead to proposing a rehumanising of care practices within for example, education and the criminal justice system. / The Leverhume Trust (RF-2016-613\8)

This piece provides an application of care ethics to the typical American diet. In the first chapter, the problems surrounding the Standard American Diet are discussed at both the individual, familial, global, animal, and environmental levels. The second chapter provides an overview of the theoretical components of care ethics, and lays a framework for analysis. The third and final chapter demonstrates how in applying many of the core principles of care, great strides can be made in remedying the numerous problems that are a direct result of typical consumption habits in the United States.