<p>Introduction: Parental involvement is becoming increasingly common in the paediatric health care. Parental participation at home means that parents receive instruction by nursing staff in order to perform a caregiving procedure at home.</p><p>Aim: To explore parents' feelings about performing caregiving procedures on their child at home, and their experience of instruction about these, and to explore nurses’ experiences of their instruction to parents.</p><p>Method: A descriptive quantitative and qualitative design using questionnaires with statements to be responded by nurses and parents according to scales graded 1-10. The study was carried out during the autumn of 2009 at a pediatric unit in the University Hospital in Uppsala.</p><p>Results: Ten completed questionnaires from the nursing staff and ten from parents were obtained. The mean assessment of parents' perceived safety and security, and their perception that their questions had been answered ranged between 8,6 and 9,2. The nurses assessed parents’ comprehension of the information and feeling of security as means from 9,1 to 9,7. The parents felt confident at discharge with the nursing activities to be performed at home, with a few exceptions.</p><p>Conclusion: Both the nurses and the parents were overall satisfied with the instruction.</p> / <p>Introduktion: Föräldramedverkan blir mer och mer vanligt i den pediatriska vården. Föräldramedverkan inför hemgång innebär att föräldrarna får information och utbildning av vårdpersonalen för att sedan utföra vård i hemmet.</p><p>Syfte: Att undersöka föräldrars känslor inför att utföra vårdåtgärder på sitt barn i hemmet samt deras upplevelse av utbildning, samt att undersöka sjuksköterskors upplevelser av sin utbildning till föräldrarna inför hemgång.</p><p>Metod: Deskriptiv kvantitativ och kvalitativ design baserad på enkäter som besvarades av föräldrar och sjuksköterskor. Enkäten bestod mestadels av värderingsskalor. Studien genomfördes hösten 2009 på en barnavdelning vid Akademiska sjukhuset i Uppsala.</p><p>Resultat: Tio besvarade enkäter erhölls från sjuksköterskor och tio från föräldrar. Medelvärdet på föräldrarnas skattning av sin upplevda trygghet och säkerhet samt om de fått svar på sina frågor var mellan 8,6-9,2 (1-10). Sjuksköterskornas skattning om föräldrarnas trygghet och hur väl de uppfattade informationen var mellan 9,1-9,7 (1-10). Föräldrarna var generellt trygga och säkra inför hemgång med en vårdåtgärd att utföra bortsett från något enstaka fall.</p><p>Slutsats: Sjuksköterskorna och föräldrarna var överlag nöjda med utbildningen.</p>

Introduction: Parental involvement is becoming increasingly common in the paediatric health care. Parental participation at home means that parents receive instruction by nursing staff in order to perform a caregiving procedure at home. Aim: To explore parents' feelings about performing caregiving procedures on their child at home, and their experience of instruction about these, and to explore nurses’ experiences of their instruction to parents. Method: A descriptive quantitative and qualitative design using questionnaires with statements to be responded by nurses and parents according to scales graded 1-10. The study was carried out during the autumn of 2009 at a pediatric unit in the University Hospital in Uppsala. Results: Ten completed questionnaires from the nursing staff and ten from parents were obtained. The mean assessment of parents' perceived safety and security, and their perception that their questions had been answered ranged between 8,6 and 9,2. The nurses assessed parents’ comprehension of the information and feeling of security as means from 9,1 to 9,7. The parents felt confident at discharge with the nursing activities to be performed at home, with a few exceptions. Conclusion: Both the nurses and the parents were overall satisfied with the instruction. / Introduktion: Föräldramedverkan blir mer och mer vanligt i den pediatriska vården. Föräldramedverkan inför hemgång innebär att föräldrarna får information och utbildning av vårdpersonalen för att sedan utföra vård i hemmet. Syfte: Att undersöka föräldrars känslor inför att utföra vårdåtgärder på sitt barn i hemmet samt deras upplevelse av utbildning, samt att undersöka sjuksköterskors upplevelser av sin utbildning till föräldrarna inför hemgång. Metod: Deskriptiv kvantitativ och kvalitativ design baserad på enkäter som besvarades av föräldrar och sjuksköterskor. Enkäten bestod mestadels av värderingsskalor. Studien genomfördes hösten 2009 på en barnavdelning vid Akademiska sjukhuset i Uppsala. Resultat: Tio besvarade enkäter erhölls från sjuksköterskor och tio från föräldrar. Medelvärdet på föräldrarnas skattning av sin upplevda trygghet och säkerhet samt om de fått svar på sina frågor var mellan 8,6-9,2 (1-10). Sjuksköterskornas skattning om föräldrarnas trygghet och hur väl de uppfattade informationen var mellan 9,1-9,7 (1-10). Föräldrarna var generellt trygga och säkra inför hemgång med en vårdåtgärd att utföra bortsett från något enstaka fall. Slutsats: Sjuksköterskorna och föräldrarna var överlag nöjda med utbildningen.

Conselho Nacional de Desenvolvimento Científico e Tecnológico / Percebe-se que no contexto hodierno, cada vez mais as pessoas estão tendo dificuldades em lidar com a carga que o mundo pós-moderno ocidental inflige. O resultado disto são os inúmeros casos de pessoas que procuram por terapias. Esta pesquisa aborda a colaboração entre a Teologia Prática e a Musicoterapia no concernente a sua atuação para potencialização do cuidado em grupos de canto na IECLB. Para tanto se fez necessário um trabalho de pesquisa bibliográfica com a finalidade de apresentar formas de cuidado oriundas do fazer musical, das mensagens da hinologia oficial da IECLB, entre outros fatores terapêuticos atrelados ao convívio e vínculo grupal. O presente trabalho está dividido em três capítulos. O primeiro capítulo destinou-se à exposição de dois importantes conceitos para este trabalho: Musicoterapia com sua abordagem terapêutica dos elementos da música (ritmo, melodia, harmonia) fornecendo um cuidado diferenciado às pessoas em situação de fragilidade; e o cuidado a partir, principalmente da concepção do teólogo Leonardo Boff. O referido cuidado é abordado primeiramente de uma forma geral, visando suas diferentes definições, até um cuidado mais específico encontrado na diaconia e cuidado advindo de Cristo. O segundo capítulo se caracteriza por uma abordagem histórica expondo a ligação da música com a espiritualidade, especialmente com a fé judaico-cristã; na sequência é pesquisada a relação música-igreja-grupo a partir do envolvimento de Lutero, e, por conseguinte, pela chegada da teologia luterana em território brasileiro, junto com os primeiros imigrantes alemães. No último capítulo é realizado um levantamento bibliográfico acerca do relato de cuidado prestado por pessoas vinculadas a grupos de música, desde membros até coordenadores; são apresentadas mensagens de cuidado contidas nos temas e hinos do hinário oficial da IECLB (Hinos do Povo de Deus); também são apresentados fatores terapêuticos atrelados ao estar em grupo; e, para finalizar, são expostas algumas formas de cuidado oriundas da aplicação de possíveis objetivos terapêuticos em Musicoterapia. / One can perceive in the context of daily life, that people are having ever greater difficulties in dealing with the load inflicted upon them by the post-modern Western world. The result of this is the innumerable cases of people seeking therapies. This research deals with the collaboration between Practical Theology and Music Therapy relating to its action in potentializing care giving in singing groups in the IECLB [Evangelical Church of Lutheran Confession in Brazil]. To accomplish this bibliographical research work was necessary in order to present ways of care giving stemming from musical action, from messages from the official hymnology of the IECLB, among other therapeutic factors connected to group communal interaction and ties. This paper is divided into three chapters. The first chapter was designated to the exposition of two important concepts for this work: Music Therapy with its therapeutic approach of musical elements (rhythm, melody, harmony) providing a differentiated care giving for people in situations of frailty; and care giving based mainly on theologian Leonardo Boff&#8223;s conception. The care giving referred to is first approached in a general way, focusing on its different definitions, going to a more specific care giving found in diakonia and care giving coming from Christ. The second chapter is characterized by an historical approach presenting the connection of music to spirituality, especially within the Jewish-Christian faith; in sequence the relation of music-church-group is researched based on Luther&#8223;s involvement, and, finally, the arrival of Lutheran theology on Brazilian territory, together with the first German immigrants. In the last chapter a bibliographic survey is carried out about the reports of care giving given by people tied to music groups, from members to coordinators; care giving messages appearing in the themes and hymns of the official hymnal of the IECLB (Hinos do Povo de Deus [Hymns of the People of God]) are presented; therapeutic factors tied to being in a group are also presented; and, finalizing, some forms of care giving coming from applying possible therapeutic goals of Music Therapy are presented.

The worldwide ageing of the population, with an increase in associated chronic diseases, will inevitably escalate the demand for social work services at individual, group and community level. Alzheimer’s disease is one of the conditions associated with a population that is growing older. The disease was first described by Alois Alzheimer in 1906 and is characterised by progressive declines in cognitive and body functions, eventually resulting in death. It is estimated that 25 to 30 million people worldwide suffer from Alzheimer’s disease and that in 2050, 106.2 million people will be living with the disease, causing a looming global epidemic of Alzheimer’s disease (Brookmeyer, Johnson, Ziegler-Graham & Arrighi, 2007:186). At some stage in the disease’s process, most, if not all people with Alzheimer’s, require some form of care. This care is generally provided by informal (family) caregivers in the community. Providing care to an older person with Alzheimer’s disease present multiple challenges with many factors influencing the caregiving experience. When the needs of caregivers are not met, caregiver burden may result. For the many families living in rural and impoverished areas, this additional responsibility may come as an extraordinary burden and cause unwarranted stress. The goal of the study was to explore the needs and experiences of caregivers of persons with Alzheimer’s disease living in black rural communities in Mpumalanga. The guiding research question was: What are the needs and experiences of caregivers of persons with Alzheimer’s disease living in black rural communities in Mpumalanga? A qualitative research approach was followed with a collective case study research design. The population for this study was caregivers providing care to persons diagnosed with Alzheimer’s disease living within the Ehlanzeni and Nkangala Rural Districts Municipalities of Mpumalanga. Non-probability purposive sampling was utilised to generate a sample. Eleven participants who were caregivers of persons with Alzheimer’s disease living in communities within the above-mentioned municipalities were selected. Semi-structured individual interviews were conducted with participants. Interviews were voice recorded with the permission of the participants, and were transcribed by a contracted transcriber. The data gathered were analysed by the researcher and themes and sub-themes were identified. The research findings were presented by providing a profile of research participants followed by a thematic analysis of the themes and sub-themes from the transcriptions. Literature control and verbatim quotes were used to support the findings. The themes include the following: Theme One – The Alzheimer’s disease caregiver; Theme Two – Indigenous issues with regards to Alzheimer’s disease; Theme Three – Caregivers’ understanding of Alzheimer’s disease; Theme Four – The impact of Alzheimer’s disease on the caregiver and Theme Five – Support services in the community. The conclusions of this study reflect that caregivers in black rural communities in Mpumalanga have a number of needs and challenges in providing care to a person with Alzheimer’s disease. Some of the challenges include the absence of caregiving training, stigmatisation due to indigenous beliefs, traditional healers’ diagnosis and treatment of Alzheimer’s disease, limited knowledge of caregivers about Alzheimer’s disease, adverse physical, social and psychological outcomes associated with caregiving, negative experiences with the public health care system, and the limited availability and accessibility of support services in the community. The recommendations offered by this study can be used by professionals working in the field of gerontology to understand the needs and experiences of Alzheimer’s caregivers. Social workers can use the recommendations to find ways to make their services known to the communities, and improve their intervention and support to these caregivers. / Dissertation (MSW)--University of Pretoria, 2015. / Social Work and Criminology / Unrestricted

The rapid increase in HIV-infections is changing the face of modern society. The number of HIV/AIDS orphans for sub-Saharan Africa is expected to increase to 18, 67 million in 2010. Education has a pivotal role to play in effectively dealing with the effects of the pandemic, as well as creating awareness among learners. The focus of this study is to explore educators’ perceptions of teaching learners about HIV/AIDS and of schools as care-giving centres for orphans and vulnerable children. The HIV/AIDS education curriculum has been introduced in a milieu of change and restructuring in South African education, presenting particular challenges for educators. This study set out to uncover how educators are engaging with their new roles and responsibilities when teaching HIV/AIDS education. / Sociology / MA (Social and Behaviour Studies in HIV/ Aids)

This study was undertaken to identify the biographical characteristics, attitudes and perceptions of informal family care-givers caring for patients with mental illness in Dennilton. Data were gathered from 48 care-givers by using a cross-sectional survey approach in which structured questionnaires were completed. The results revealed that a sizeable proportion of the care-givers were 60 years and older. Only 10% were employed and a quarter married, suggesting that the care burden influenced their life choices. Many care-givers were mothers or female family members. Half of the patients cared for suffered from depression. Violent, aggressive behaviour was reported as a symptom that care-givers found difficult to deal with. Less than half of the care-givers reported that the patients accepted their health situation. / Sociology / M.A. Soc.

Volunteer caregivers provide essential services to people in the terminal stages of AIDS and their families. Volunteers are exposed to stress and burnout. This study investigated the relationships between stress, coping strategies, levels of burnout and resilience in this population. Volunteers from Societas ‘O Sosiale (SOS) Children Villages and community based organisation (CBO) partnerships, were selected using non-probability purposive convenience sampling. A total of 110 participants were given the Experience of Work and Life Circumstances Questionnaire (WLQ), Brief-Cope, Maslach’s Burnout Inventory (MBI), a Resilience scale and the Living Standard Measure to complete. Statistical analyses were performed on the data. This includes descriptive statistics, reliability analysis, factor analysis, correlations and multivariate analysis of variance. The study found that volunteer caregivers experience high stress levels and burnout related to stressors outside work, remuneration, personnel policies and high resilience. High burnout is associated with all forms of coping. Further it is shown that training in problem-solving skills, counselling, government and public lobbying for support, registration with relevant professional bodies, furnished offices, reasonable recruitment requirements and compensation are needed to help the care givers avert the effect of stressors and control stress by stopping it from turning to burnout. / Psychology / M.A. (Psychology - Research Consultation)

The rapid increase in HIV-infections is changing the face of modern society. The number of HIV/AIDS orphans for sub-Saharan Africa is expected to increase to 18, 67 million in 2010. Education has a pivotal role to play in effectively dealing with the effects of the pandemic, as well as creating awareness among learners. The focus of this study is to explore educators’ perceptions of teaching learners about HIV/AIDS and of schools as care-giving centres for orphans and vulnerable children. The HIV/AIDS education curriculum has been introduced in a milieu of change and restructuring in South African education, presenting particular challenges for educators. This study set out to uncover how educators are engaging with their new roles and responsibilities when teaching HIV/AIDS education. / Sociology / MA (Social and Behaviour Studies in HIV/ Aids)

This study was undertaken to identify the biographical characteristics, attitudes and perceptions of informal family care-givers caring for patients with mental illness in Dennilton. Data were gathered from 48 care-givers by using a cross-sectional survey approach in which structured questionnaires were completed. The results revealed that a sizeable proportion of the care-givers were 60 years and older. Only 10% were employed and a quarter married, suggesting that the care burden influenced their life choices. Many care-givers were mothers or female family members. Half of the patients cared for suffered from depression. Violent, aggressive behaviour was reported as a symptom that care-givers found difficult to deal with. Less than half of the care-givers reported that the patients accepted their health situation. / Sociology / M.A. Soc.

Volunteer caregivers provide essential services to people in the terminal stages of AIDS and their families. Volunteers are exposed to stress and burnout. This study investigated the relationships between stress, coping strategies, levels of burnout and resilience in this population. Volunteers from Societas ‘O Sosiale (SOS) Children Villages and community based organisation (CBO) partnerships, were selected using non-probability purposive convenience sampling. A total of 110 participants were given the Experience of Work and Life Circumstances Questionnaire (WLQ), Brief-Cope, Maslach’s Burnout Inventory (MBI), a Resilience scale and the Living Standard Measure to complete. Statistical analyses were performed on the data. This includes descriptive statistics, reliability analysis, factor analysis, correlations and multivariate analysis of variance. The study found that volunteer caregivers experience high stress levels and burnout related to stressors outside work, remuneration, personnel policies and high resilience. High burnout is associated with all forms of coping. Further it is shown that training in problem-solving skills, counselling, government and public lobbying for support, registration with relevant professional bodies, furnished offices, reasonable recruitment requirements and compensation are needed to help the care givers avert the effect of stressors and control stress by stopping it from turning to burnout. / Psychology / M.A. (Psychology with specialisation in Research Consultation)