This in-depth qualitative, phenomenological (Smith & Fowler, 2009) research study attempted to understand the experiences of young adults with intellectual disability who had completed a 2-year, inclusive postsecondary education program. 13 participants (4 former students with ID, 5 parents, and 4 Postsecondary Education staff members) participated in semi-structured interviews. Interviews were coded to provide themes amongst each individual group of participants. A document review was also conducted to better understand the program components and add validity to self-reports from interviews. Results were analyzed and used to provide implications for future research and program development.

Abstract Sexual autonomy is the right and capacity of each individual to decide and make choices about whom, when, and how they express themselves sexually. Individuals with intellectual disabilities have frequently been marginalized, oppressed, and left out of discussions about sexuality placing them at risk of abuse, unsafe sex practices, and unplanned pregnancies. The purpose of this qualitative study was to examine the usefulness of person-centered planning techniques in the development of an individual service plan that address the social-sexual needs of individuals with intellectual disabilities. Purposeful sampling was used to select 8 participants for this study. Specific participants were selected because they possessed personal perspectives and experiences regarding person-centered planning techniques. Data collection included semi-structured, open-ended questions with face-to-face interviews and document review. Code development began with systematic organization of narrative data that was thematically analyzed using open-coding. Findings showed the person-centered individual service plan is a tool that can empower and promote social-sexual autonomy for individuals with intellectual disabilities if service and support administrators initiate a conversation about social-sexual activity. Implications for social change include increased advocacy for sexual autonomy, greater social acceptance of relationships, inclusive sexuality programming for individuals with intellectual disabilities and professional development training for service and support administrators.

This study was a nonexperimental correlational study that took a strengths-based approach and utilized family systems theories to examine parenting stress, as measured by the Parenting Stress Index-Short Form, and posttraumatic growth (PTG), as measured by the Posttraumatic Growth Inventory, and the relationship between the two constructs. The study was conducted with a national sample of 136 maternal caregivers of transition-age youth on the autism spectrum (ASD), ages 14 to 22 years, recruited through social media, flyers, and referrals. Participants were primarily biological mothers (83.9%), White (87.5%), and resided in the South (68.4%); the mean age of the adolescent with ASD was 17.16 years. Descriptive statistical findings showed that caregivers had normal levels of parenting stress and high levels of PTG. Results from one-sample t tests showed that the sample parenting stress mean score (M = 51) was similar to the population mean score of 50 while the sample PTG mean score (M = 56) was significantly higher than the population PTG mean score of 52.5. The third research question examined if parenting stress was significantly associated with PTG, controlling for pertinent covariates. Hierarchical multiple linear regression findings indicated that, after controlling for the place of residence, parenting stress was significantly associated with PTG: as parenting stress increased, PTG decreased. Parenting stress explained 7% of the variance in PTG, a small effect size. Findings from this study denote the positive aspects of parenting an adolescent with ASD. Results can inform the development of parent interventions aimed at reducing parenting stress and enhancing PTG.

Stroke is a serious illness that requires urgent attention. The purpose of this study was to investigate whether age, ethnicity, gender, and quality of life predict self-efficacy scores in stroke survivors. The theoretical foundation of the study was the social cognitive theory of perceived self-efficacy that was developed by Bandura. There were 4 specific research questions investigated. A correlational research design was used to sample 115 stroke survivors from several Arkansas rehabilitation facilities who completed a pilot study, demographic form, QOL rating scale, and the Daily Living Self-Efficacy Scale (DLSES). Stepwise multiple regression analysis was applied to identify the independent variables that served as significant predictors. The findings revealed that ethnicity, gender, and the quality of life did not predict self-efficacy scores when controlling for all other variables in stroke survivors. The independent variable age was statistically significant for both the QOL rating scale and the DLSELS scores. Age predicted DLSES and the QOL rate scale scores when controlling for all other variables among stroke survivors. This study may promote understanding for stroke survivors, make future research accessible through effective psychologically measured questionnaire interventions, and provide awareness of stroke exposure. This study enabled potentially positive social change through social services. Many issues were identified after stroke and the implications of research for practice were highlighted.

Dream/Hope/Love/Create/Act (and back) is a collaborative arts-based research project on the experiences that support workers have with enacting support, care and education practices in the disability support and education field. Five support workers were interviewed using arts-based and collaborative methods. Conversations focused on the disciplining power that policies, systems and structures have over the support practices provided to young people labeled with an intellectual disability. Questions were formulated on support worker experiences with enacting care, behaviour support, and curriculum. The following four issues were central to the inquiry: child development and the pressure for language acquisition; issues of consent in everyday practice and clinical spaces; the creation and enactment of behaviour plans; and disability labels and the diagnosis process. The in-depth, unstructured arts-based individual and group conversations were collaboratively designed with research participants, and topics of care, support and professional ethics were intentionally politicized. Conversations took place during the creation of poetry, painting and collage to grapple with practitioners’ own power in shaping the worlds of young people. By way of experimenting with diffractive approaches to analysis, assemblages of poetry, art and theory were created as thresholds for entry into the larger thesis assemblage. Transcripts and art were analyzed while thinking with various theoretical threads from critical disability studies, feminism, queer theory, critical race theory and social justice, with the purpose of blurring and resisting harmful and normative support practices. This study shows that support workers are honouring the bodies and communications of resistance of the young people with disabilities they support. This study also shows support workers as deeply self-reflexive as they engage in critical practices in resistance to ableism. Dream/Hope/Love/Create/Act (and back) has implications for informing research, training and education that grow support work practices to become increasingly consensual and designed with and for young people with a variety of disability labels. / Graduate

Since the turn of the twentieth century, middle-class Americans have considered the thin body--ostensibly the result of self-control and self-discipline--a moral imperative and a symbol of good citizenship. In this thesis, I provide a critical perspective on fat studies by examining the ways in which the field authorizes itself in a society that deems the fat body unhealthy, costly, and immoral. As one potential solution to fat-hatred, fat studies proposes fat-positivity, but I argue that fat-positivity requires an extraordinary act of imagination in which the fat person overcomes what I term the ideology of thinness and subsequently feels good about herself. Importing models of ambivalence from disability studies, I propose ambivalence as an alternative to fat-positivity. I argue that ambivalence is a legitimate response when living in a society that de-values one's embodiment, but ambivalence is undertheorized by fat studies scholars. In Chapter 2, I analyze from a feminist perspective Tweets with the hashtag "feeling fat," tracing the emotion to cultural ambivalence about consumption and consumerism. In Chapter 3, I examine how the genre of the fat memoir authorizes itself during an "obesity epidemic" and what those methods reveal about gendered selfhood. Instead of indicting these Twitter users and fat memoirists for their purported lack of fat-positivity, I emphasize instead the social situations that give rise to these cultural forms. I suggest that drawing attention to ambivalence is a form of political resistance.

<p>Avsikten med denna studie var att belysa hur funktionshindrade barn uppfattas av andra barn. Jag intervjuade tio barn i år 4, från två olika skolor. I den ena skolan går flera funktionshindrade elever. Jag valde att samtala med barnen utifrån 6 bilder föreställande andra barn - 4 med olika funktionshinder och 2 utan synbara funktionshinder. </p><p>De slutsatser jag tycker mig kan dra utifrån det material jag har, var att alla tio respondenter hade en relativt enhetlig uppfattning om hur funktionshindrade barn tänker och känner. Skillnaden mellan skolorna var att de barn som var vana att se funktionshindrade i större utsträckning kunde identifiera olika typer av funktionshinder, och att de då i någon mån hade en klarare uppfattning om hur de tycker att funktionshindrade bör behandlas. Alla barnen jag talade med uttryckte sympati för de funktionshindrade barnen. Genomgående var också uppfattningen att funktionshindrade är det synd om, och de bör därför behandlas med extra hänsyn och respekt. Ju mer avvikande de funktionshindrade ser ut, ju mer särskilda från respondenterna upplevs de av dessa. De upplevs tänka på och tycka om att göra andra saker. Exempelvis tros funktionshindrade haft anledning att fundera över existentiella frågor i högre utsträckning, och är således inte lika materialistiska som andra barn. Barn utan synbara funktionshinder upplevs tycka om populär musik och"såpor"i tv - sådant som av respondenterna upplevs som"normalt". Detta var gemensamt för båda grupperna av barn, liksom att de gav uttryck för uppfattningen att ett avvikande yttre också innebär ett avvikande inre.</p>

This dissertation was a discourse analysis study, drawing upon discursive psychology, poststructural understandings of discourse, conversation analysis, and a social relational model of disability. The purpose of this study was to explore how autism was performed as an interactional event among children with autism labels, the therapists who work with them, and their parents, in the context of a pediatric therapy setting. I interrogated how the participants’ everyday discursive practices were shaped and, at times, constrained by the social and political institutions that often work to define autism and the related, official plans of treatment. A total of 12 families agreed to participate, resulting in the participation of 12 children with autism labels, three to 11 years of age, six fathers, and 11 mothers. The participants included three speech therapists, two occupational therapists, one physical therapist, one teacher/social group facilitator, and one medical secretary/sibling support group facilitator. Data sources included conversational data from the therapy sessions of the participating children and their therapists, 14 parent interviews, eight therapist interviews, documents used within the therapy sessions, demographic surveys/information from the participating therapists and parents, and two interviews with a state advocate and clinical directors focused on qualifying for services. Findings from the interview data highlighted the varied meanings and performances of autism, while pointing to the related political and social conditions that make the naming and treating of autism (im)possible. Findings drawn from the therapy session data pointed to how the participants’ discursive practices worked to reframe “behaviors of concern,” and to transgress normative communication patterns. The following conclusions were drawn from the findings: (a) autism, as a construct, remains open to multiple meanings, while being inextricably linked to institutionalized practices; (b) in therapy talk, therapists and children with autism labels often co-construct alternative accounts of problematic behaviors; and (c) therapy talk can function to reframe non-normative communication and behavioral patterns, expanding what is constructed as “acceptable.” The findings point to the complexities of defining and performing autism labels, and highlight the ways in which therapy talk can function to reframe behaviors and communication patterns presumed to be pathological.

Thesis (Ph. D.)--University of Washington, 2006. / Vita. Includes bibliographical references (leaves 303-322).

Avsikten med denna studie var att belysa hur funktionshindrade barn uppfattas av andra barn. Jag intervjuade tio barn i år 4, från två olika skolor. I den ena skolan går flera funktionshindrade elever. Jag valde att samtala med barnen utifrån 6 bilder föreställande andra barn - 4 med olika funktionshinder och 2 utan synbara funktionshinder. De slutsatser jag tycker mig kan dra utifrån det material jag har, var att alla tio respondenter hade en relativt enhetlig uppfattning om hur funktionshindrade barn tänker och känner. Skillnaden mellan skolorna var att de barn som var vana att se funktionshindrade i större utsträckning kunde identifiera olika typer av funktionshinder, och att de då i någon mån hade en klarare uppfattning om hur de tycker att funktionshindrade bör behandlas. Alla barnen jag talade med uttryckte sympati för de funktionshindrade barnen. Genomgående var också uppfattningen att funktionshindrade är det synd om, och de bör därför behandlas med extra hänsyn och respekt. Ju mer avvikande de funktionshindrade ser ut, ju mer särskilda från respondenterna upplevs de av dessa. De upplevs tänka på och tycka om att göra andra saker. Exempelvis tros funktionshindrade haft anledning att fundera över existentiella frågor i högre utsträckning, och är således inte lika materialistiska som andra barn. Barn utan synbara funktionshinder upplevs tycka om populär musik och"såpor"i tv - sådant som av respondenterna upplevs som"normalt". Detta var gemensamt för båda grupperna av barn, liksom att de gav uttryck för uppfattningen att ett avvikande yttre också innebär ett avvikande inre.